PPG REPORT FOR 2012/13 by DES Component

Establish a PRG/PPG of only registered patients and do best to ensure that this representative (0%)

This element was established in 2011/12. The method and the outcome can be found in our report published last year on the www.springfieldmedicalcentre.co.uk website.

Agree with PPG which issues are a priority and base local practice survey around the findings. (10%)

The thrust of the development of the PPG/PRG at Springfield Medical Centre has been to engage with other practices to gauge what common themes apply to most customers. This has been accomplished through the engagement of a small group of champions from our patient group, surveys conducted locally, sharing of information with other PPGs, development of tools to spread the message such as virtual PPG networks and a collaboration with the PPG Pilot which involved 12 practices in Lambeth and moreover allowed our patient group representatives to play a important role in representing the practice as a whole.

The practice manager at Springfield also sat on the Patient Participation Advisory panel which met regularly to discuss findings and collate a final report which will go some way to continuing the progress into 2014 and beyond.

The process was kicked off by an initial response to the Evaluation Team based on the Springfield PPG meeting held in August 2012. A copy of the responses is shown below at Appendix 1

Collate patient views, involve the practice in Lambeth wide issues by electing champions to represent the local views. (20%)

The PPG Pilot Project set up by Lambeth PCT in conjunction with Link provided an excellent platform to inform and share views. Minutes of the first meeting are shown below at Appendix 2. This meeting formed the basis for the activities of Springfield PPG throughout the winter of 2012.

Subsequent meetings of the pilot group have developed on the initial enthusiasm and the joint nature has allowed Springfield to benefit from initiatives at other practices which have more mature and thriving PPG’s. Minutes of two subsequent meetings are shown below at Appendix 3.

The outcomes and finding were discussed at Springfield PPG meetings held in December 2012 and February 2013.

Provide PRG with opportunity to discuss findings of local practice survey. Reach agreement with PRG of changes in provision and manner of delivery of services. (30%)

During 2012/13 many of the original recommendations of the Springfield PPG have been put into action, these include:

Introduction a new telephone queuing system that provides patients with multiple advice options including management of colds and viral infections, flu jabs, ante and post natal care, emergency and out of hours advice.

Move from pre-bookable appointments to more same day appointments. Increase in community service access including advice for young mothers and

baby clinics. More clinically managed slots so that babies and young children can be seen

urgently and options remain for priority patients.

The focus has changed from regulation issues to more community and social services. The survey below at Appendix 4 shows the move from a prescriptive (closed questions) to a more descriptive (freedom of thought) approach.

The combination of responses to survey, information gleaned from the PPG Pilot, shared vision with the 12 other practices that took part in the pilot, the developments brought about by the PPG Advisory panel have massively increased the potential for improvements to patient care and patient services by reflecting much more of what our patients actually want from the GP.

Agree with PRG an action plan setting out priorities and proposals arising out of local patient surveys and gaining PRG agreement to implement. (30%)

The resultant action plan is shown as Appendix 5. What must be the primary aim now is to spread the message to all patients at Springfield that it is a great opportunity for patients to have a say in the running of their medical services rather than being dictated to by practice staff. There is a need to recruit more people from as many groups as possible and get real involvement. Already initiatives have been introduced to capitalise on services offered at Springfield. The baby clinic not only allows the checking of the health and welfare of the infants themselves but also an opportunity for young mothers to meet socially with more experienced mothers and get first hand guidance. The diabetic service allows people with similar needs to meet for education and exchange of experiences. DESMOND and DAFNE courses have been a great success in collaboration with the Community Diabetic Service run at Springfield every Wednesday. Sharing has proven that many of the issues and concerns of Springfield patients are common to other practices in the area. Solutions have been found in some cases that might be of considerable benefit to Springfield patients and might influence how care is delivered by Springfield staff. It is essential that this work continues but it might be that the essential glue is the establishment of champions who can drive the early progress forward. We encourage all of our patients to think carefully about this and invite them all to come forward and join the movement.

Publicise this Local Participation Report on the practice website. (10%)

Appendix 1 to Springfield PPG Report for 2012/13

Patient Participation Groups (PPG) Pilot Evaluation Baseline and Follow-Up GP Practice Staff Questionnaire Thank you for taking part in the PPG Pilot Project in Lambeth. For more information please email barbara.wilson@ageuklambeth.org.uk or waiha@ageuklambeth.org.uk or telephone Lambeth LINk on 0207 274 8522. The information gathered from this questionnaire will help develop PPGs in Lambeth. Any information from the questionnaire used in reports or articles will be kept anonymous, so please do tell us what you really think.Completed by NAME: Art Matthews Job Role: Practice Manager (PM)

1. About your PPG

1.1 When was your PPG set up?

August 2011

1.2 Has the DES money influenced the set up in any way? (Please describe)

No

1.3 Are there strategic objectives for the PPG that you are aware of? (Please put a x in the right box)

Yes x No Don’t Know

1.4 If yes, please tell us what they are.

To engage patients with the medical centre as a hub for community. To market the centre as a place for well being rather than just a centre for care episodes

1.5 Who supports and accounts for what the group does? (Please describe)

Small committee of 4 patients and the PM

1.6 How regularly are PPG meetings held? (Please put a x in the right box)

Monthly Quarterly x Other (please describe)

1.7 Are minutes or notes taken and kept as a record? (Please put a x in the right box)

Yes x No Don’t Know

1.8 Do you have a budget to support your PPG? (Please put a x in the right box)

Yes No x

1.9 Is it wholly from the DES programme? (Please put a x in the right box)

Yes No (please explain)

1.10 Who attends PPG meetings?

Patients, PM and at least one clinician usually a partner

1.11 How does your PPG recruit members? (Please describe)

Word of mouth, newsletters, handout leaflets

1.12 Does your PPG do anything specific to recruit harder to engage patients? (Please describe)

PPG is always a major feature of the practice marketing information

1.13 What is the size of your practice?

6500

1.14 Do you feel your PPG is representative of the practice population as a whole? (Please put a x in the right box)

Not at all

Slightly Moderately x Very Extremely

1.15 Please give a reason for your answer:There is a reasonable cross section by age, ethnicity and social background but numbers are still small and we need to engage younger elements

1.16 Is the work of your PPG valued in the practice? (Please put a x in the right box)

Not at all

Slightly Moderately x Very Extremely

1.17 Has the practice implemented any changes as a result of the involvement of the PPG? (Please describe)

Yes, we have introduced a call queuing system for the phones, we have changed the mix of routine and same day appointments to reflect urgency and we have introduced earlier appointments for workers.

1.18 If the PPG didn’t exist, what would the practice find harder to do? (Please describe)To gauge the effectiveness and perception of new methods. To get an unbiased response to recommendations

1.19 What support have you provided for your PPG? (Please describe)

2. Communication

2.1 Does your PPG use any of the following methods of communication? (Please put a x in all that apply)

Email x Easy access formats Text messaging x

Leaflets x Social Networks Letter mail-outs

Website x Newsletters-electronic x Word of mouth x

Prescription messages Appointment cards

Newsletters -paper copies Digital e.g. TV Screens

Other (Please describe)

2.2 Do you have links with any of the following organisations? (Please put a x in all that apply)

Expert Patients Programme x Lambeth Carers’ Hub x

Local Nurseries Local Care homes Tenants Associations

Pharmacies All Practice Event x Practice Managers’ Forum x

Community groups or faith based groups (Please name)

Lambeth Clinical Commissioning Collaborative Board (LCCCB) x

Other PPGs –please name

Any other organisations (Please name) X Lambeth PPG Link

2.3 How can the way your practice communicates with the PPG be improved, if at all? (Please describe)

2.4 How effective is your PPG at influencing LCCCB decisions? (Please put a x in the right box)

Not at all

Slightly x Moderately Very Extremely

2.5 What more can be done to increase the PPG’s effectiveness at influencing LCCCB decisions? (Please describe)

2.6 Do you see yourself as playing a role in promoting the group and its activities? How? (Please describe)

At the moment the low number of members is hindering the ability of the group to function authoratively. I shall attempt to build on the limited successes so far to swell the membership and assist the group to take more responsibility for decisions and actions

3. Developing your PPG3.1 Where would you like the PPG to be in six months’ time? Please be realistic

about what is achievable. (Please describe)

A larger group perhaps with a hardcore of 8 members who are able to act with conviction and confidence to represent the views of our patients rather than the staff of the medical centre imposing criteria.

3.2 What help/resources are necessary to achieve that goal? (Please describe)Ideas from other successful groups … a new way of getting the message across

3.3 In the longer term, what support and resources would you need to support the development of your PPG? (Please describe)

Joined up experience, groups meeting of a number of PPGs with guest speakers to explain the changes in the way healthcare is being delivered and how patients may influence the processes.

3.4 What lessons have you learnt during the process of the PPG’s development? (Please describe)

Irrespective of noble ambitions it is still incredibly difficult to get certain communities to commit to such a process, there are many difficulties in overcoming cultural and social differences and gleaning information without making the suppliers suspicious of motives.

3.5 What advice would you give to other practices/patient groups on setting up a PPG? (Please describe)

Start slowly, establish champions, try to be representative of the population and dive out prejudices

3.6 Is there anything else you would like to share with us?

Appendix 2 to Springfield PPG Report for 2012/13

PPG PILOT.Record of first pilot wide meeting held on 21.11.12 @ LAMBETH ACCORD 336 Brixton Rd SW9 7AA.

PPG members presentKate, Chris and Rosa - Crown DaleChris –Tulse Hill Frank-SpringfieldJenni, Sandra & Robert - Streatham Common Brenda, Priscilla and Christine - Hurley ClinicDavid and Robert – 2 Prentis Rd John –Stockwell Group

Joined by the following practice staff over lunch: Steven (Hurley), June (Herne Hill Rd), Mia (Tulse Hill), Ruth (2 Prentis Rd), Miofa (Lambeth Walk) & Art (Springfield). With apologies from Beera (Vassall Rd), Jenny (Stockwell Group), Paula & Dr Justin Hayes (Valley Rd), Bernadette (Herne Hill Rd) , Dr. Sam Brown & Jenny Read (Clapham Park) , Louise (Streatham Common), Marie (Tulse Hill), Gael (Crown Dale) and Diana (Lambeth Walk PPG member and co- chair of PPG Network).

Facilitated by Barbara & Wai Ha (LINk)

Ground RulesTry to Suspend, Understand and Nurture. Rather than Reacting, Assuming or Insisting you know best!We had information on various initiatives around the room - CARERS HUB and their work with practices to identify and signpost carers, the Learning Disability DES (Direct Enhanced Service) which asks practices to make “reasonable adjustments” in terms of access and communication, the food growing co-op (Ed Rosen hosting a launch at

Lambeth Walk Practice) and the Modernisation Initiative on Diabetes. As well as the PPG Network newsletter and information on the work of LINk.

By the end of the meeting we wanted to All know more than at the start Have an outline for the front page of the next LINk newsletter Ideas on development of virtual PPGs Clarity on training needs Make connections with other PPGs Start thinking about action plans Set key dates We began by asking everyone to identify key messages for their practices and to post these up. We then broke into smaller working groups to tackle several different tasks before being joined over lunch by the practice colleagues.This is what people said in their various smaller groups-which were fed back to all at the end of the meeting:

Virtual PPG development Current situation (in most cases where practices have a virtual group) “Virtual PPG” is a system of email addresses held by the practice staff PPG has no control or access to this list, only through the practice PPG have no knowledge of who is on this list and why they chose to be

on this list The system is not interactive, often a one way communication process

The PPGs want: A virtual group that is part of the PPG and is owned, controlled and

managed by the PPG PPGs should be encouraged to develop their own website, independent

but link to the practice’s website Build trust and good relationship with the practice and achieved mutual

understandings Virtual group needs to be

o Easy to useo Simpleo Accessibleo Interactive

Registration to this group not necessarily reliant on the practice Clear communication between members and not personal complaints Links to other group and websites

Format:

Online forum Social media like Facebook, twitter Skype WordpressOther important considerations Rules and principles for virtual groups Security issues Moderator – train up PPG members to take this role Guidance on Data Protection Act issues Guidance on legal issues

Next step on Virtual PPG development A small working group to discuss and put forward a proposal for the next project wide meeting on the 19th December 2012. Members –Kate, Mia and Art –supported by Barbara.

LINk Newsletter Priscilla & Rosa worked on an outline for the front page of the December Newsletter-asking people for quotes to be included. We agreed that the emphasis of the article should be on recruiting new members.Barbara agreed to work this up and pass it to Jeanette in time for the print deadline.

Key messagesDavid & Robert (S) clustered messages as followsPractice Joint PPG Does the PPG have any right to know about the practice budget?

EMIS system.

GPs-have lost funding re Diabetes (Tulse Hill)-are practices linking to the MI?

No. of people who miss appointments –this creates problems –should there be a walk in?

Work in partnership to enhance patient/doctor relationship.

Discuss triage system –or any new system –jointly Training for patients on how to use the practice website. Simplifying IT access-less complicated numbers/log ins.Include info re PPG in registration packs.

Could we form a club for carers –where a

Engagement of practice staff in “new” role of PPGs.

Can we have information on the various performance measures?

medical/ professional rep could join to give info and advice? More promotion of PPG needed

Training needs: a number of PPG members are going on the HL Champion training–this will mean that they get to work on some action plans to bring back to their PPG as well as sharing learning across the pilot and with the PPG Network. NB There are also 5 distance learning places where you are sent a folder to work from in your own time-to then join the others on the second day (11 th January 2013) .We do need to think about facilitation skills, leadership, understanding how the system works and confidence in speaking up.

Carers/LD needs: Robert (H) explained to Chris (L) and Jenni what is currently happening in the borough. The Practice staff present said that they were waiting to hear back from Katie (worker at the Carers Hub) re next steps on her project work.

Key Dates November 201228th Food Growing Co-Op @ Lambeth Walk-open meeting 30th (with follow up day January 11th 2013) Healthy Living Champion Training –book places with Wai Ha. December 2012 13th 2 Prentis Rd (Mastertons & Partners, SW16 1XU) Open Day from 1-4 Everyone is welcome.

(The group decided that we would meet in December and for the whole meeting to be both patients and practice staff.) Next pilot wide meeting:

19th December 2012.11-12.30 with lunch from 12.30-1.30 to be held in the large Lecture Theatre, Lambeth Walk Practice, 5 Lambeth Walk London SE 11 6SP.

January 2013 11TH Second day of HL Champion training. 9.30-4.30 Board room LINk offices, 336 Brixton Rd SW9 7AA.22nd PPG Network meeting 6-7.30 pm @ the LINk offices. 336 Brixton Rd SW9 7AA.

(Please let Wai Ha know if you plan to attend the Network meeting @ 020 72748522 or waiha@ageuklambeth.org.uk

AOB. Miofa said that it was the “MJog system” (that enables sending texts

to all patients’ mobile phones) that resulted in such a high turnout at one of their meetings. She would highly recommend using.

Brenda said that St Marks Church in Kennington has spaces for hire (0207 582 5613).

Steven (Hurley Clinic) thought that practices ought to be able to share budget headlines with PPGs-obviously removing any sensitive/confidential information –and this is something to explore further.

We ran out of time to start work on action plans and ended with thanks to all.

Appendix 3 to Springfield PPG Report for 2012/13

PPG PILOT. Record of second pilot wide meeting held on 19.12.12 @ LAMBETH WALK PRACTICE

PPG members presentRosa - Crown DaleJenni, Sandra & Robert - Streatham Common Priscilla, Dilys & Christine - Hurley ClinicDavid– 2 Prentis Rd Art, Lorraine & Marjorie-Springfield.Grant –Clapham Park Karen -Lambeth Walk Diana -Lambeth Walk PPG member and co-chair of PPG Network. Geraldine -Valley Rd.

With apologies from Beera (Vassall Rd), Brenda (Hurley), Frank (Springfield)Kate& Chris (Crown Dale), Robert (2 Prentis Rd), Nicola (Clapham Park), Chin Ong (Tulse Hill), Freddy (Springfield), Ruth (2 Prentis Rd), Miofa (Lambeth Walk) & Dr. Sam Brown & Jenny Read (Clapham Park), Louise Upton (Streatham Common) & Wai Ha (LINk) Facilitated by Barbara & Graham (LINk)

Ground RulesTry to Suspend, Understand and Nurture. Rather than Reacting, Assuming or Insisting you know best!We began with some speed intros and circulated notes from the last meeting plus a briefing paper explaining the current commissioning structure & the PPG Network flyer for the meeting coming up on the 22.1.13.

We have the front page of the December LINk Newsletter -thanks to Priscilla & Rosa for their work on this last time. (Emphasis on recruiting new PPG members).Quick Feedback from the floor

Healthy Living Champion training –very positive –there will be a slot for the Modernisation Initiative on Diabetes at the session on the 11th Jan. Graham & Wai Ha will be supporting people to work on their follow up action plans . We have been able to offer 5 distant learning places.

Virtual PPG development the small working group met once (Kate, Mia & Art –supported by Barbara) so the notes were circulated

13th December Open Day @ 2 Prentis Rd (Mastertons & Partners). David said that despite extensive publicity they had a disappointing turn out with only one new member signing up to the PPG but it was a good opportunity to meet doctors and practice staff in an informal setting. Jenny, Bob and Sandra all got along from Streatham Common and found it to be well organised, friendly and welcoming. They will take two ideas back to their own practice-the photoboards of the GPs (listing their special interests) and the confidential suggestion box (managed by the PPG not the practice). The Practice had used one of their 4x a year CELDOC cover sessions –and it was suggested that maybe each PPG could request using one of these 4 slots at their own practices for a similar open day. They are still planning to get the TV screen working with a USB stick as a way of presenting information to a “captive “ audience in the waiting area

NB Priscilla did say that at their AGM (Hurley) they only had the “usual suspects” turn up and Diana (@ Lambeth Walk) thought that although there was a good response to the mobile phone text message for one of their meetings –people have not joined the PPG subsequently. When sending texts you need to be very clear about what you are asking patients to come along to. We then broke into smaller group discussion on virtual PPG development , reflecting on the notes from the sub group –and this is what people recorded. Virtual network enables people to chose level of involvement

User voice on EMIS –gives ideas of what patients want

Two way communication not just practicepatients

Concern about patient confidentiality if use email or text

Who will administer the forum and monitor content?

Forum where can offer suggestions and patients chose priorities

Digital exclusion –how can virtual be made accessible?

Suggest to GPs that they install a computer in the surgery for patient access to virtual PPG

Overload of information

What is the PPG wanting to achieve? Notes (recorded by GM) .What do we want to address?

address things that worry you (e.g. phone answering) more information on how to use the system information on the structure of the practice information on how it works how it works if you can’t come in to the surgery (e.g. phone conversation with

the doctor, email)

The practice has tended to communicate with us, but we need to communicate with them, not just respond to the practice. How can this be arranged?Using the virtual PPG, the group members don’t have to meet as a group. Instead, there is a way of posting views, questions, comments etc. This could be a web page, Facebook, texting etc. If a web page, how accessible would it be? Many people don’t use email, for example because they can’t afford it, or because it is difficult to learn. A web page would need moderating, and would collect many (maybe too many) responses which could not be used (e.g. unintelligible)‘A first response’. By this we meant a person who can begin to sort things out. “When something happens to you, you don’t know what to do”. We talked of two different kinds of first response:

the person might just listen, or they might suggest a course of action, set up appointments etc.

‘Triage’ is needed i.e. sorting what priority the need is. Difficult for receptionists.Barbara will ask the small working group to reconvene in the New Year with a view to presenting options at the next full pilot meeting. We will invite Grant to join the group as his remit within his practice is IT.

Training needs: Facilitation skills, leadership, understanding how the system works & confidence in speaking up. We added to this

Session on terms of reference e.g. non personalisation of information

To receive information on how to pass on advice re Resources etc

Action Planning Barbara will be in touch with all PPGs early in the New Year to set dates to work on individual PPG action plans –using the baseline information reports as our starting point plus any priority issues, for instance carrying out the second DES survey ,as well as tying in with any action plans coming out from the HL Champion Training. Wai Ha & Graham will assist with this work.

Please think about what needs to go into these action plans.

A.O.B. Nicola has suggested that we find out about good practice elsewhere on PPGs -particularly Birmingham, Wandsworth and NW London. Barbara asked for any volunteers on this to get in touch with her.

Key Dates 2013JANUARY9th Lambeth Clinical Commissioning Group meeting 1-4 with and open to the public slot from midday -1. Held downstairs @ Lambeth Accord. 336 Brixton Rd SW9 7AA.

11TH Second day of HL Champion training. 9.30-4.30 Board Room LINk offices, 336 Brixton Rd SW9 7AA. 5 distance learning trainees to join existing group. 22nd PPG NETWORK meeting 6-7.30 pm @ the LINk offices. 336 Brixton Rd SW9 7AA.(Please let Wai Ha know if you plan to attend the Network meeting @ 020 72748522 or waiha@ageuklambeth.org.uk )

FEBRUARY Next pilot wide meeting:13th February 2013.Time and venue to be decided.

MARCH 12TH PPG Network 6-7.30 pm @ the LINk offices. 336 Brixton Rd SW9 7AA.

Feedback on today What worked well –

Ideas exchanged in smaller groups, getting to know more people, background, experiences etc. Positive atmosphere & facilitation. Good pace.

What we should do differently Make it warmer! Make more time! Suggest virtual network between practices.

Thanks to Karen and all at Lambeth Walk Practice for hosting today.

PPG PILOT: Record of third pilot wide meeting held from 10-2 on 13.02.13 @ LAMBETH ACCORD

PPG members presentJenni & Sandra – Streatham Common Priscilla, Dilys & Christine – Hurley ClinicDavid & Robert – 2 Prentis Rd Grant – Clapham Park Rosa – Crown DaleGeraldine – Valley Rd Winifred and Beera – Vassall RdBernadette, June and Garry – Herne Hill RdMia –Tulse Hill Jenny H – Stockwell Group With apologies from Brenda (Hurley), Art & Frank (Springfield) Karen, Diana & Miofa (Lambeth Walk) , Kate, Chris & Gael (Crown Dale), Nicola & Dr. Sam

Brown (Clapham Park), Dr Justin Hayes and Paula (Valley Rd), Chin Ong & Chris (Tulse Hill) , Cristina, Peter, Bob & Louise (Streatham Common) Facilitated by Barbara, Wai Ha & Graham (LINk)

Ground RulesTry to Suspend, Understand and Nurture.

Rather than Reacting, Assuming or Insisting you know best!Papers available

PPG Network flyer for the meeting on the 19.2.13 Preliminary findings report from baseline questionnaires

January e bulletin Information on Healthwatch

Presentation to LCCG PPG Action Plans

NAPP e bulletins and newsletters List of national health promotion days up to end of June 2013 (if you

want a copy of this please contact Wai Ha)

We began by hearing from the Healthy Living Champions about their training and the presentation of certificates held yesterday at Lower Marsh. Christine shared photos on her iPAD. Nine people passed the accredited course (Royal Society for Public Health) and a few others will sit the exam shortly. Congratulations to all. Action We need to feed back on the fact that there was poor organisation at the awards ceremony (late starting and lack of refreshments) as well as missed opportunities to network with Pharmacy Colleagues.

Some key messages taken from the training were offer “opportunistic, brief intervention “ make all engagement “attractive & approachable ” it is not about pushing any health improvement agendas.

The HL Champions have all been thinking about what they might do and as one person said the starting point in discussion with the practice was “How can we help...?”And this is the list of ideas so farSet up a HLC corner/area in the waiting room – have a range of up to date leaflets and information and make it welcoming. Link this closely with information

Host a healthy eating event – drawing in support from practice staff and local pharmacy community champion. Use it as a chance to recruit to the PPG.

Attend other key events to source good information and bring that back to display in the practice.For instance carer’s events

about the PPG The themes could be anything on health & wellbeing.

Make a direct link with the local Pharmacy –have found them to be very amenable so far –have displays – example alcohol measuring cups and information on being drink aware. Promote the PPG

Set up a regular HLC surgery slot – GPs to signpost patients on for more detailed advice and information on health improvement – i.e. smoking cessation. Give out information re PPG

Invite speakers in on certain topics – with expertise , and work closely with the practice staff on priorities

Some of the HL Champions have followed up on leads given by the trainer to access equipment/posters/materials-but found that as individuals they were not able to access the appropriate number of items needed. It was agreed that it would be good to be able to pool resources – and then share things across the whole group. Action -have to work out how best to do this. Any information to share can be sent to Wai Ha for distribution. It may be that there are some very useful APPS to download – e.g. Change 4 Life that can then be shared with patients. One idea is to have access to a lap top/computer in the waiting area for general use. We agreed it would be helpful for the Champions to meet as a Buddy Group - Wai Ha and Graham will facilitate this by the end of May.2013

Evaluation Barbara explained that Maria Kordowicz, a researcher with Akord People, has been working with the pilot –and has analysed all the baseline questionnaires –producing a preliminary findings report for us. She will now look at all the Action Plans to analyse themes emerging and will also interview a small number of people to ask about their experiences of being part of the pilot.

PPG Network Robert explained that the Network started a year ago and he co-chairs with Diana (a patient at Lambeth Walk) and has support from Wai Ha at LINk. It is a forum of PPGs “by patients for patients”. The current membership is approx 18 PPGS (out of a possible 49) and the meetings are held bi-monthly from 6-7.30 at the LAMBETH Accord building. They have set an extra meeting this month as a great deal of concern was raised at the January meeting about funding cuts for GP practices. Last year the PPG Network wrote to the Lambeth Clinical Commissioning Group (LCCG) about representation at the Board level. This was not agreed.

There is going to be a workshop on the 27 February to discuss the relationship with the Equalities Engagement and Communications Sub group of the LCCG but this group has a limited role in overseeing the work plan of the Engagement Officer and only meets 4 times a year. Robert did ask a question on behalf of the PPG Network at the open pre-meeting of the January (LCCG) meeting about patients’ role in standards of services. A few of the pilot sites have identified the locality level as maybe somewhere where PPGs can have a much more direct input and influence – which then gets fed into the LCCG. This needs to be explored further. The other body they wish to establish a relationship with is the National Commissioning Board – which commission GP services. This will be in place from April this year.There will be a Health Summit on 28 February, it will be good to raise the profile of the PPG Network and to encourage as many of the 49 PPGs to attend to strengthen the patient’s voice .Wai Ha will raise the issue of ongoing support under Healthwatch – as LINk ends on the 31.3.13.

Virtual PPG development The small working group (Kate, Mia & Grant – Art gave apologies) met on the 5th February and considered the feedback from the December pilot-wide meeting. Grant presented some options on behalf of the group (see separate paper). He differentiated between Blogs, Forums and Networks and recommended the use of a professional network platform. He also highlighted the issue of free services often having privacy clauses that allowed for use of data and how this would not be good for our purposes. Facebook is good for promoting events and activities and informing people but has limitations. After using the 4 headers of suitability, simple, secure and supported he recommended purchasing a collaboration community licence from Groupsite. We thanked Grant for his work and agreed to revisit the discussion after lunch.

Wai Ha emphasised that the £800 in the pilot budget is about supporting PPGs make a connection between members who have given their email contact to the practice and face to face members. An example of this is in Streatham Common where Jenni is meeting with her PM to go through the email contact list of 160 people to see how to progress this.

Everyone agreed that it will be good to have calendars, to be able to carry out polls and have a forum interchange with unlimited number of users. It was proposed that a recommendation be made to the PPG Network that

there is a PPG Network website set up – with each PPG on it and a link to a Forum. This was put to a vote 12 in favour, 1 Abstention and 1 No. Estimated costs are £60 for a domain name for 5 years and costs to carry out the web design (Wai Ha did suggest contacting local colleges). It could be moderated by 2 members per locality = 6 moderators in total. NB It is important to find a way for each PPG to connect with its virtual members, and then communicate with the PPG Network –which in turn feeds into commissioning. Don’t forget

LCCG are setting up a new website –maybe PPGs can have a link /profile on it?

Have a newsletter that shares news across PPGs Final Report –“keep PPGs alive”

Key Dates- February 201318th presentation to LAMPAG (Pensioners Action Group) 1.30 Lambeth Town Hall –Anyone wishing to join Barbara please get in touch 19th PPG NETWORK meeting 6-7.30 pm @ the LINk offices. 336 Brixton Rd SW9 7AA. 2 places per PPG –you must let Wai Ha know if you plan to attend 020 72748522 or waiha@ageuklambeth.org.uk )NB Robert (Co-Chair) asked everyone to bring along any information they have on staffing levels, budgets, concerns /worries, positives etc 27th Workshop on PPG engagement -6 reps have volunteered28th Health and Wellbeing Summit 3-7 PM @ the Oval –PPG Network to have a stall – volunteers to give their names to Wai Ha

March 2013 12TH PPG Network 6-7.30 pm @ the LINk offices. 336 Brixton Rd SW9 7AA.15th –PPG Pilot ends-Barbara’s last day and deadline for Final Report. By the end of the month: Meeting of the pilot groups convened to receive Final Report –action by Wai Ha, Graham and Robert. 31st –LINk closes down.

Reflect, Recap & Next Steps Any input welcome to Feb & March e bulletins Similarly any input to recommendations for Final Report or case

studies/good practice to highlight. Agreed that we wanted to share each other’s action plans electronically

–Barbara to action Consider how to connect with other PPGs in your immediate area –

and to spread the word about the PPG Network-all to action

Robert thanked Barbara for her work on the pilot and she in turn thanked everyone for being part of the project. She ended by asking everyone to write some reflections on the pilot on individual post- its. (As not everyone put on their names have left all contributions anonymous)

Generally the same voices speaking. Not generally conducive to listening to everyone. Not an enabling environment. Helpful in some ways but feedback not accepted or acted upon when Practice will not co-operate.

Good to network with patients and staff from other practices. Discuss and identify common issues across Lambeth. Concerns over sustainability and direction of network without a pilot or service.

Liaison between PPGs in the same locality. GPs to avail themselves to be present at PPG meetings in their surgery. PPG to find way of getting more patients involved in their monthly meetings.

Gave support, information sharing, ideas, encouragement, and organisation. Demonstrated importance of providing this support on a permanent basis.

Means of communication. Support other PPGs. Gain more information and sharing ideas.

Enjoyable and useful for me – getting back into community/public involvement which has been my work. The Development Worker has a lot of energy and goodwill – essential.

A brilliant project! This has all been well worth all the effort. The awareness and knowledge gained has been great. Looking forward to extending the Practice PPG, gaining new friends and improving Patient Services.

The Development Worker has helped our PPG enormously but we need more help to involve all the other PPGs in the borough, as without this input they may never get started

Recharging our batteries. Encouraging patients to be more pro-active in this area. Strengthening patients and practices relationship

Breaking down barriers within the practice. Coordination and understanding what is going on. Becoming part of a larger group with a shared purpose.

The Development Worker has made us aware of our patient’s views. We are now making changes to our practice.

Being at the start of a new venture in our surgery. Would never have learnt as much without the Development Worker’s input. Learning from other people. Have never participated in anything like this before and have been excited to see the outcome. Thank you.

Could we have routine, written (on line) exchanges of what we are doing etc. Learned a lot about difficulties we share. Also some ideas of

what we should be doing. Healthy Living has great potential but we have to act on it. We need permanent support and encouragement

Post script We ran out of time to discuss this at the meeting but we would like to propose

that as a way to sustain the work we have all begun, especially on the developmental Action Plans that we pair up practices so that PPG

members can provide support to each other as well as a listening ear. We will work out the best way to do this and will be in touch shortly.

Appendix 4 to Springfield PPG Report for 2012/13

Appendix 5 to Springfield PPG Report for 2012/13

Springfield Medical Centre – Action Plan( based on PPG Pilot Project September 2012-January 2013)

Working with 12 Practices to strengthen patient participation groups (PPGs) and enhance feedback to clinical commissioners.

Action Plan Date 22/02/2013Name of PPG Springfield Medical CentreLocality (please circle) (North)

WHAT do we want to do

HOW will we do it

WHO will do it

WHEN BY

HOW will we know we have achieved it?

Develop a larger more established group with a committed core membership for greater autonomy from practice staff.

Recruit more people from different interest groups

Demography

Go to where communities are, especially non-English Speaking.

Focus Groups – Diabetes, Baby clinic, young mothers

News sheets

Approach patients at clinics

Approach patients at training and education events such as DESMOND

By end of March 2013

Nominate Champions

Build group as above then find specialties in the group and encourage to lead

Share information with other PPG and in particular learn from successes

Attend regular events. Join in virtual networks were physical meetings not possible

Raise awareness at locality level

Core group and diversify once numbers grow

Art as board member

2013 and into 2014

Buddy groups

Link

April 2013 meeting

Organise Guest Speakers and

Information sessions new structure, health conditions, Locality priorities

PPG/ CCG Ongoing

LINk Project worker Barbara Wilson 0207 274 8522 (part-time and in post until mid-March 2013).Barbara.wilson@ageuklambeth.org.uk

Wai Ha Lam (LINk Community Engagement Officer) leading on PPG Network, newsletter and training, 0207 274 8522. waiha@ageuklambeth.org.ukVolunteer: Graham Barker –please contact via Barbara or Wai Ha.