PersonalisationPersonalisation

The road we have taken The road we have taken

and and

path we need to treadpath we need to tread

Why meWhy me

►Work in CoventryWork in Coventry► For Life Path TrustFor Life Path Trust► That supports That supports

people with a people with a learning disability.learning disability.

► I knew Alan and his I knew Alan and his storystory

Personalisation is:Personalisation is:

►ChoiceChoice

►ControlControl

ChoiceChoice

►Do you have choice?Do you have choice?

►What factors influence choice?What factors influence choice?

No ChoiceNo Choice

►When?When?

►Who?Who?

►Why?Why?

The road to exclusionThe road to exclusion

►Vagabonds and Beggars Act 1495 Vagabonds and Beggars Act 1495 ►Act for the Relief of the Poor 1597Act for the Relief of the Poor 1597►Poor Law 1601Poor Law 1601 Workhouse Workhouse

Social ExclusionSocial Exclusion

►LocationLocation Outskirts of townOutskirts of town High walls or railingsHigh walls or railings

►LanguageLanguage RetardRetard MentalMental

New wayNew way

►Parent powerParent power 1955 Mencap founded1955 Mencap founded

►1959 Mental Health Act1959 Mental Health Act Acknowledged some people did not need Acknowledged some people did not need

hospitalshospitals

►New types of serviceNew types of service Hostels Hostels

Institutional failureInstitutional failure

►1967 – Allegations about lack of care 1967 – Allegations about lack of care at Ely Hospitalat Ely Hospital

►1969 – Howe report on Ely Hospital1969 – Howe report on Ely Hospital►Other reports on institutions Other reports on institutions ►1971 – Better Services for the Mentally 1971 – Better Services for the Mentally

HandicappedHandicapped

New momentum - 1973New momentum - 1973

►Ely Hospital's first reaction to the idea that Alan and the other people he lived with on Pine and Rose Villas could leave the hospital was disbelief and outrage. How could people with disabilities this severe live in a house with students?

►How dare people suggest that there was no need for institutional care?

Jim Mansell

Policy keeps movingPolicy keeps moving

►1981 – All Wales Strategy for Mental 1981 – All Wales Strategy for Mental HandicapHandicap

►1983 – Mental Health Act1983 – Mental Health Act►1984 – Residential Care Act1984 – Residential Care Act►1988 – Griffiths report ‘Community 1988 – Griffiths report ‘Community

Care; agenda for action’Care; agenda for action’

Thinking moves tooThinking moves too

►1972 – Wolfensburger1972 – Wolfensburger Principles of normalisationPrinciples of normalisation

►1983 – Wolfensburger1983 – Wolfensburger Social Role ValorisationSocial Role Valorisation

►1992 – O’Brien1992 – O’Brien 5 accomplishments5 accomplishments

►Community presence, relationships, choice, Community presence, relationships, choice, competence & respectcompetence & respect

2000 - today2000 - today

►Valuing PeopleValuing People►Keys to Citizenship, Simon DuffyKeys to Citizenship, Simon Duffy► inControlinControl►Mental Capacity Act 2005Mental Capacity Act 2005►Putting People First 2007Putting People First 2007►Think Local, Act PersonalThink Local, Act Personal

Do we still fail?Do we still fail?

►Winterbourne View – CastlebeckWinterbourne View – Castlebeck Closed communityClosed community Management failureManagement failure Public reportingPublic reporting

►Southern CrossSouthern Cross Financial modelFinancial model

Valuing PeopleValuing People

Key to CitizenshipKey to Citizenship

Gift ModelGift ModelCommunity

Government

Professional

Contribution via Taxation

Funding for services

Assessment and support

GovernmentProfessional

Citizen ModelCitizen Model

Community

Contribution via Taxation

Entitlementto fundingNegotiated

service

Changing valuesChanging values

Service first

People first

7 Steps to inControl7 Steps to inControl

Mental Capacity ActMental Capacity Act

►What is capacity?What is capacity? Ability to understand the nature, purpose Ability to understand the nature, purpose

and likely effectsand likely effects

►Assume CapacityAssume Capacity Need to show that person does not have Need to show that person does not have

capacity in each situationcapacity in each situation

►Allows everyone to make unwise Allows everyone to make unwise decisionsdecisions

Putting People FirstPutting People First

Today - 2011Today - 2011

TommorowTommorow

SummarySummary

►What difference does personalisation What difference does personalisation make?make?

►Does it matter?Does it matter?

ReferencesReferences► Llais Winter 2009/10. Alan Duncan 1995-2009, Llais Winter 2009/10. Alan Duncan 1995-2009, ► Duffy, S., 2003, Keys to CitizenshipDuffy, S., 2003, Keys to Citizenship► Department of Health, 2006. Our Health, Our Say, Our Care.Department of Health, 2006. Our Health, Our Say, Our Care.► Department of Health, 1971. Better services for mentally Department of Health, 1971. Better services for mentally

handicapped.handicapped.► Report of the Committee of Inquiry into Allegations of Ill -

Treatment of Patients and other irregularities at the Ely Hospital, Cardiff. 1969

► Welsh Office, 1981. The All Wales Strategy for Mental Handicap► Wolfensberger, W. (1972). The principle of Normalization in human

services. Toronto: National Institute on Mental Retardation ► Wolfensberger, W. (1983). Social role valorization: A proposed new

term for the principle of normalization. Mental Retardation, 21(6), 234-239

► Department of Health, 2001. Valuing People.Department of Health, 2001. Valuing People.► Mental Capacity Act, 2007Mental Capacity Act, 2007► Department of Health, 2007. Putting People First.Department of Health, 2007. Putting People First.