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![Page 1: Perceptions of the Chronic Disease Self-Management Program among Low Income African American Women with Lupus A Pilot Study Charmayne M. Dunlop-Thomas,](https://reader030.fdocuments.in/reader030/viewer/2022032703/56649d0a5503460f949dd4ec/html5/thumbnails/1.jpg)
Perceptions of the Chronic Disease Self-Management Program among Low Income African American Women with
Lupus
A Pilot Study
Charmayne M. Dunlop-Thomas, MS, MPH Candidate
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• Statement of Problem• Chronic Disease Self-Management
Program• Lupus Pilot Study• Future Implications
Introduction - Overview
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Statement of Problem
Lupus – Disease Burden–Morbidity– Quality of Life– Disability– Economy–Mortality
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Statement of Problem
MMWR (2002): Trends in Deaths for Lupus U.S. 1979-1998
Systemic lupus erythematosus death rates* among females, by age group & race - U.S. - - 1979-1998
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Lupus Interaction
Liu & Davidson (2012) Nature Medicine
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Concept of Self-Management
“The ability to make wise choices to achieve a fruitful and joyous life.”
--unknown author
Illustration: Scottish Gov. Living Well Report
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Chronic Disease Self-Management Program
Program Intervention
Group-based program• Evidence-based
intervention that improves the health of people with chronic diseases
• Versions– In-Person– Internet
Illustration: African Health Magazine
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What are you going to do?
How much will you do?
When will you do this?
How often will you do the activity?
Program Intervention
Goal Settingand
Action Planning
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Stress ReductionEmotionsExercise
DietMedicationRelaxation
CommunicationCommunity Resources
Program Intervention
Topics
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Pilot Study
Researchers from Emory University want to learn if the chronic disease self-management program could help patients from the Grady Lupus Clinic to improve their quality of life.
• Determine efficacy in lupus patients
• Determine acceptance in our target population of AA women
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Pilot Study Population
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Pilot Study Recruitment
• African American woman• Age 18 or older• Diagnosed with Lupus• At least 1 active Grady Lupus Clinic
visit in the past 6 months
Illustration: Hello Beautiful Newsletter
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Pilot Study Recruitment
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Pilot Study Data Collection
Quantitative Measures:• Self-Report pre/post surveys• Healthcare system utilization
Qualitative Measures
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Pilot Study Qualitative Measures
Focus Groups
Supplemental Measures:Telephone Leader InterviewsPost-Workshop Satisfaction Survey
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Pilot Study Focus Groups
Purpose: insight into acceptability, relevance, and
usefulness
Capturing: satisfaction; valid and applicable aspects to real world experiences
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Pilot Study Focus Groups Distribution
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Pilot Study Supplemental Measures
Semi-Structured Leader Interviews
Post-Workshop Surveys
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Pilot Study Data Analysis
Transcripts
Thematic Analysis
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Pilot Study Results
Positive Experience
“Just the motivation and the thrill to see a smile on people faces every week…
enlightens me…we learn and interact with each other.”
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Pilot Study Results
Relevant & Relatable
“…the action plan is my life now…”
“The feedback was the best part. It’s nice to be able to talk to somebody who has
[lupus]; somebody to relate to.”
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Pilot Study Results
New Skills“If I lay in bed all day I feel miserable, so I
have to really set my mind to get up and do something…the action plan helped out with
that.”
“I also keep my medication list. For instance, I went to the doctor the other day and told the doctor I’m taking too many of this or
that.”
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Pilot Study Conclusions
Education
Social Support
Skill Development
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• Promising results
• Further Research Study
• Public Awareness
Future Implications
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Special Acknowledgements
Principle Investigator: Cristina Drenkard, MD, PhD
CDSMP Leaders:Lynda Conner & Rosalyne King Fulton County Housing and Human Services, Office of Aging
Advisors: Hannah Cooper, ScD and Theresa Brady, PhDQual.Researchers: Terrika Barham, MPH and Natasha Brown, MPH