People with dementia living in the community – what can ... · •Māori (31%) and Pacific people...

19
People with dementia living in the community – what can interRAI data tell us? By Michelle Liu, Senior data analyst interRAI

Transcript of People with dementia living in the community – what can ... · •Māori (31%) and Pacific people...

Page 1: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

People with dementia living in the community – what can interRAI data tell us? By Michelle Liu, Senior data analyst interRAI

Page 2: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

What is interRAI

• Comprehensive clinical assessment instruments• Best practice approach to assessing people’s needs• Standardised and designed for specific groups• Common language, common measures, common concepts • www.interRAI.co.nz

2

interRAI = international Resident Assessment Instrument

Page 3: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

interRAI assessments used in New Zealand

In the community:• Contact Assessment (CA), a basic

screening assessment for people living in the community

• Community Health Assessment (CHA) and Home Care Assessment (HC) for planning care and services in home and community-based settings

• Palliative Care Assessment (PC) for community-based older adults where a palliative care focus is required.

In aged residential care:• Long Term Care Facilities Assessment

(LTCF) for evaluating the needs, strengths and preferences of those in aged residential care.

3

Page 4: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

Collect once – use many times

Research data

repository

General information

Services

Policy

Legal aspects

Technical standards

Metadata standards

Quality standards

4

Page 5: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

What interRAI tells us about people with dementia living in the community

5

Page 6: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

What we are looking at• Home Care assessments completed in 2017/18• Assessments not clients• Demographic characteristics• Outcome measures

• Outcome scales• Clinical Assessment Protocols (CAPs)

6

Page 7: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

Demographic characteristics

7

• One in four Home Care clients had a diagnosis of Alzheimer’s disease and/or other type of dementia

• 44% of diagnosed Home Care clients are between 75 to 84 years of age

• Men were 12.5% more likely to be diagnosed with dementia (age adjusted)

• Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted)

Page 8: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

Cognitive performance Scales • This scale combines information on:

1. daily decision making2. short term memory3. making self understood 4. eating performance.

• The score ranges from 0 to 6 – the higher the score, the worse the cognitive impairment.

8

Page 9: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

Other health conditions

9

26%

17%

11%14%

33%

22%

10%

13%

0%

5%

10%

15%

20%

25%

30%

35%

Coronary heart disease Diabetes mellitus Anxiety Depression

Dementia & CPS>=3

No Dementia & CPS<3

Page 10: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

Cognitive and mental health

10

13%

2% 6%

33% 34%27%

22%

2%

6%

14%

28%

15%

0%

10%

20%

30%

40%

50%

60%

70%

Dementia& CPS>=3

No Dementia& CPS<3

Dementia& CPS>=3

No Dementia& CPS<3

Dementia& CPS>=3

No Dementia& CPS<3

Behaviour CAP Communication CAP Mood CAP

Prevent decline

Facilitate improvement

Page 11: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

Activities of daily living (ADL) self-performance hierarchy scale

11

16%

6%

10%

5%

8%

5%

2%

0%

0% 5% 10% 15% 20% 25% 30% 35% 40%

Dementia & CPS>=3

No Dementia & CPS<3

3 - Extensive assistance required 4 - Maximal assistance required 5 - Very dependent 6 - Total dependence

Page 12: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

Family support

12

0 2 4 6 8 10 12 14 16

Dementia & CPS>=3

No Dementia & CPS<3

# of hours

Average hours of care and monitoring activity in 3 days

Page 13: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

Strong relationship with family

13

91%

88%

0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%

Dementia & CPS>=3

No Dementia & CPS<3

Strong and supportive relationship with family

Page 14: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

Family carers status

14

45%

16%

0% 5% 10% 15% 20% 25% 30% 35% 40% 45% 50%

Dementia & CPS>=3

No Dementia & CPS<3

The primary family carer expresses feelings of distress, anger, or depression

Page 15: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

Family carers status – cont.

15

38%

17%

0% 5% 10% 15% 20% 25% 30% 35% 40%

Dementia & CPS>=3

No Dementia & CPS<3

The primary family carer is unable to continue in caring activities

Page 16: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

Advance Care Plan (ACP) and Enduring Power of Attorney (EPOA)

16

3%

67%

4%

51%

0%

10%

20%

30%

40%

50%

60%

70%

80%

ACP in place EPOA in place

Dementia & CPS>=3 No Dementia & CPS<3

Page 17: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

Like more data?

17

Page 18: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

interRAI data visualisation: www.interRAI.co.nz/data

18

Page 19: People with dementia living in the community – what can ... · •Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted) Cognitive performance

www.interrai.co.nz