PC Pt & Carer Education
Transcript of PC Pt & Carer Education
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Running an Educational Program forPalliative Care Patients and Carers
Edite Tang ( Senior PC physiotherapist )Jenny Downes, ( Social Worker)
Palliative Care Service, Braeside Hospital , Sydney
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Objectives
Highlight the challenges we have experienced in
implementing a Palliative Care (PC) Patient & Carer
Education Program
Share the benefits we have noted to date with the
implementation of the PC Patient & Carer Education
Program
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Literature review
Rosenwax(2005) suggests 10 conditions potentially
needing palliative care
Cancer
HIV AIDS
Parkinsons disease
Liver Failure
Heart failure Disease
Chronic obstructive pulmonary disease
Motor Neurone Disease
Renal failure
Alzheimers disease
Huntingtons Disease
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Literature review
Kwak (2007) study using Cargiving at End of life Program
Hudson (2008) psycho-educational group program
Hudson (2009) study Carer Group Education Program
focus on role of carer on PC, strategies for self care andterminally ill
Harding (2002) short term group intervention focus on
information and support needs of carers
Harding (2004) short term group intervention focus on
psychological support / anxiety reduction, information
giving and enhancement of coping
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Areas of Need
(Palliative Care Australia 2003)
Patients& carers
Physical
Emotional
Spiritual
Emotional
SocialPsychological
BEREAVEMENT
END OFLIFE ISSUES
ADVANCE
CARE
PLANNING
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Palliative Care Needs Analysis
WhatWhat
Consultation (based on focus group discussions, semistructure interviews & questionnaire analysis) with clients ofservices
WhoWho
Participants are (a) PC patient: patients of South-WesternArea Health PC Service
(b) Carers of PC patients
WhyWhy To gain first-hand and detailed understanding of experiences,needs and priorities from PC patients and cares
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Unmet Needs Influence Quality ofLife
Increased EmotionalDistress
Decreased
Quality ofLifeUnmet Needs
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What they want to know more about
PC patients ( n = 31)
Planning Ahead
Crisis Management
Emotional Management Symptom Management
Nutrition
Energy Conservation
Social Activities &Entertainment
Legal issues
PC patients cares ( n = 17)
End of life issues
Nutrition & Hydration
Legal issues Emotional Management
Results reported in descending order of frequency
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Objectives of the PC Patient & Carer
Education Program
Literature
review
Carerneeds
Patient
needs
Reduce gaps in knowledge to enhancePalliative Care Control
Facilitate and accelerateimplementation of best availableknowledge
Optimise quality and access
Improve the palliative care experiencefor Australians
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Area Health PC Patient & Carer
Education Program 2010FORUM 1: Stress and Relaxation (Oncology Clinical Psychologist)
FORUM2
Advanced Care Planning (CMO)
Nursing Issues and End ofLife Issues (PC CNC)
FORUM 3:
Music Therapy (Music Therapist)
Energy Conservation (Occupational Therapist)
FORUM 4: Look Good, Feel Better Workshop
FORUM 5: Legal Issues (Solicitor)
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Statistical Analysis
Participants were asked to evaluate the program
after participation by means of an evaluation
questionnaire. They could answer on a five-point
scale (strongly agree / agree / neutral / disagree/strongly disagree ).
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Result
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Outcomes ofSessions
A couple of patients followed up psychologist redepression management and relaxation
Follow up by patients re: Advanced care planning
Group discussion re nursing issues and end of lifecare
L
egal issues follow up by carers and patients
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Linking to clinical practice
EDUCATION
Dialogue with Patient /Basic Intervention
Increasing timely accessto services
INTERVENE
FOLLOW UP
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Work across role boundaries
Communication
Liaise with multidisciplinary teams oncology
Intercede as patient advocate
Make transparent the role of Palliative Care service
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Limitations
Was not associated with improved health status
Publicity of sessions : (Limited interest from
community patients & carers)
Limited capacity to cater for those from CALD
backgrounds due to lack of interpreters etc
Limited evaluation due to lack of resources
Catering for patients & carers at different PalliativeCare stages
No Funding / Resource
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Areas for Further Development
Increased satisfaction with services
Increase Access and Connection
To provide leadership to change the focus ofPalliative Care so that patients and families needsare better served.
Future research is needed to evaluate the most
acceptable and effective ways of providinginformation
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Areas for further Development
Increased knowledge about palliative caremanagement
Increase Access and Connection
Greater inclusion of pts and carers from CALDbackgrounds
Improved study method
Accessing funding / resources
Publicity of sessions
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Acknowledgements
Dr Meera Agar (Director, Palliative Care Service, Braeside Hospital)
Mr.M
ark Buhagiar (Allied Health Manager, Braeside Hospital)
Mrs. Judy Stone (CNC, Palliative Care Service, Braeside Hospital)
Mr. Stewart James (General Manager, Hammondcare Health and
Hospital)
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