Patient and Public Involvement in Programme Development and Research at Maggie’s

Mandy McMahanPhD (Clinical Psychology)Maggie’s Dundee & Fifemandy.mcmahan@maggiescentres.org

Maggie’s: A foundation of patient & public involvement• Maggie Keswick Jencks & Charles Jencks

“Above all, what matters is

not to lose the joy of living in

the fear of dying”

www.maggiescentres.org

Maggie’s Programme of Support

Remains Well

Remission

Long Term Effects

DiagnosisPrimary

TreatmentRecurrence

Active and Advanced Disease

2nd and Subsequent Treatments

End of Life

Maggie's Support Programme

Quality assurance & Research

Programme development and evaluation

Getting Started

3-hour group workshop for patients & carers before or at beginning stages of treatment

Education & discussion about managing side effects, keeping physically active, nutrition and well-being

Where Now?

6-week post treatment programme

Personalised exercise & nutrition, stress management & well-being

Patient & Carer perceptions of barriers to participating in Maggie’s services

Programme Development

Getting Started & Where Now?

Partnership

Wellness Community & Lance Armstrong Foundation

Pilot

Frankly Speaking & Cancer Transitions

Evaluation & Feedback

Standard measures + participant feedback and comments

Integration & Development

Research: Identifying barriers to services & participation

Research: Identifying barriers to services & participation

Research: Identifying barriers

Research: Identifying barriers to services & participation

Research: Identifying barriers

Research: Identifying barriers