Dismantling Feminist Biology through the Design of eTextiles
Participatory eTextiles design with mental health care communities...
Transcript of Participatory eTextiles design with mental health care communities...
ParticipatoryeTextiles designwithmentalhealthcare
communitiesSarahKettleyandRichardKettley
AnInternetofSoftThings
• Thismultidisciplinaryprojectaims:
• todevelopaperson-centredmethodologyforparticipatorydesigninthefieldsofeTextiles,InteractionDesignandServiceDesignfortheInternetofThings
• toincludementalhealthserviceusersandprovidersinthedevelopingpublicimaginaryofthesetechnologies.
http://aninternetofsoftthings.com/project/
Whatwearedoing
• WehaverunaseriesofworkshopsatMind,athirdsector(charity)mental
healthcareproviderintheUK,whereparticipantsmadehandheldtextile
formswithsoftcircuitsandlightoutput
• Oneoutcomeofthisisasetofrecommendationsforotherdesign
researcherswhowishtodeveloptheirpracticeinthefieldsofmental
healthandwellbeing
Overview
• Inthistalkwewill:
• describetheplanning oftheworkshopcontent
• discussissues aroundthePerson-Centred Approachandskills-basedlearning
• outlineourrecommendations foraparticipatorydesignresearchprotocolfore-textilesworkinmentalhealthcareenvironments
Planningofworkshopcontent
• MentalHealthAwarenesstrainingforwholeteam(deliveredbyMind)
• Planningincluded:
• skillsteachingandpractice
• generationofideas
• person-centred,safeenvironment
• varietyofwaystoself-reportholisticexperience
• rolesofresearchers/facilitators/co-designers
• informedconsent
• reflecting,beingflexible
IssuesaroundthePerson-CentredApproachandskills-basedlearning
• Non-judgemental• whenthereisrightandwrongwaytodosomething:itwilleitherworkornot• ifresearcher/facilitatordoesn’tliketheobjecttheparticipant/co-researcherproduces
• Non-directive• material,colour,design,function• separateprocessfromcontent;principledvs instrumental
• Rolesofresearchers/co-researchers(whoownstheprocess?)• autonomy• empathicattitudeofresearcher/facilitator• Achievement
• Practice-ledcriticalreflection• roleofresearcherasfacilitator/co-designer• reflectionasdata• reflectiontoinformongoingdesignofresearch• workingwithnon-verbalparticipants
Recommendationsforaparticipatorydesignresearchprotocolfore-textilesworkinmentalhealthcareenvironments
• Time
• Framingexperienceandexpectations
• Relationships
• Powerdynamics
• Data
• Co-productionofnarratives
• Debriefingandsupport
• Widerdisciplinaryandresearchexpectations
Recommendation:Time• Pace:
• pacewithinworkshop(3hoursincludinglunch)andwithinseries(6sessions)• goatthepaceoftheparticipants(difficulttoplan)• valueachievementindifferentpartsoftheprocess• ideationandreflection- eg ‘whatislight?’– aswellasskills• differenttypesofthinkinginvolved(fromSTEMtoSTEAM)soveryengaging• overcomingphysicalaswellasmentalandemotionalbarriers
• Resources:• a lotofmaterialsprovidedbecauseofimportanceofchoiceandplayfulness/risk• alotoforganisationbeforeandafter(textilesandelectronicsandtracking/reflections)• smallthingscanmakeabigdifference(eg needlethreaders andembroideryscissors)
• Timing:• managingresourcessotheyarenotoverwhelming(tables,areasofroom)• riskofstressanddisengagement
Recommendation:Framingexperienceandexpectations
• Check-in;check-out
• Groupagreement
• Ongoinginformedconsentbasedonexperience:
• reflectingonprocess(ratherthanproduct)
• buildingontrustinresearch(ers)
• transparency:checkingwhat’sOKornotOKwitheachindividual
• Contrasttobehaviouralpsychologywhichmightseektoinfluenceorpersuade:inPCApeopleareinherently
trustworthyandresourceful
Recommendation:Roles&Relationships
• Researchershavemultipleroles:• asethicalresearcher• asexperientialfacilitatorand/orco-designer• asparticipant
• Researchershaverelationshipswith:• eachother(theteam)• theorganisation/serviceanditsrepresentatives• theparticipants,especiallytheirco-designpartner
• Participantsmayhavevaryinglevelsofinvolvementinthedesignprocessdependingon:• theirself-confidence/self-esteem• capacityforverbalandnonverbalcommunication• Dexterityand/orconcentrationlevels• experience/awarenessofdesignissuesetc
• Importanceoftrustworthiness,empathicunderstandingandwarm,valuingattitudes
Recommendation:Powerdynamics
• Awarenessofculture(&funding)ofsector(inUK):• Government(NHS)– 1st sector(medicalmodel)• Privatebusiness– 2nd sector(businessmodel)• Charity/CommunityInterestCompany/SocialEnterprise– 3rd sector(doinggood)
• Presenting yourselvesandyourproject:• Expertornon-expert:levelofdetailonyourinstitution,funding,backers(needtoknow?)
• Language:academic/business/jargonmayprohibitinclusivityandengagementin3rdsectorenvironment
• Beginningsandendings:approachable,interestedintheperson,teaandcake!
Recommendation:Data
• Anythingthatcapturesexperience (includingreflections)• photographs• journals,blogs,notesandreflections• audiorecordingsofsessions,debriefings• meetings,informalchats
• Disciplinesmightdisagreeonattitudesto:• process/assessment/outcome• generative/evaluativeresearch
• Isyourresearchperceivedas:• a service?(eg MentalHealthAwarenessWeek)• ornotaservice?(NationalInstituteofHealthResearch)
• Makingdataavailabletofutureresearchers(newResearchCouncildirectiveinUK)
Recommendation:Co-productionofnarratives
• Co-designrelationship:• importanceofconsistencyandsensitivityofresearcherinthisrelationshipforsafetyofparticipant
• elicitingreflectionandenablingfeedbackwhereparticipantfindsthisdifficult
• InterpersonalProcessRecall(IPR):• reviewingvideoplaybacktopauseandrecallwhatwasn’tsaidatthetime,toexplorethoughtsandfeelings
• Film-making:• involvingindividualsinfilm-makingprocessandshowingtheirexperienceintheirownwordsattheirownpace
Recommendation:Debriefingandsupport
• Self-carefortheresearchers
• Informaldebriefingormoreformalisedsupervision
• Encourageself-discoveryofnon-cognitiveresponsesandreflections
• Ownyourownstuff
• Importanceofrightenvironment:trustworthiness,empathicunderstandingandwarm,valuingattitudes
Recommendation:Widerdisciplinaryandresearchexpectations
• Whateverthediscipline,bringitbacktomentalhealth• Impact• contribution
• Prioritisesafetyofparticipants• workwithexistingstaff/supportandtrainwholeteaminmentalhealthawareness• worktoethicalcode/frameworkeg BACP(includepsychotherapistonteam?)• transparencyandtrust• activelisteningandvaluing
• Processitself(ofmaking/doing)isunderstoodandassumedtobetherapeutic• itisvaluedregardlessofprovingbenefitofaproduct
• Evaluatetheworkshopdesignnottheproduct
AnInternetofSoftThingsTeam
• SarahKettley,PI(DesignResearch)
• AmandaBriggs-Goode,Co-I(Textiles)
• DavidBrown,Co-I(ComputerScience)
• MatthewBates(ComputerScience)
• StevenBattersby(ComputerScience)
• MarthaGlazzard(Textiles)
• TincutaHeinzel(Textiles)
• IsabelJones(Film-maker)
• RichardKettley(Psychotherapy)
• RachelLucas(Psychotherapy)
• AnnaSadkowska (ServiceDesign)
• SarahWalker(InterdisciplinaryPhDstudent)Contact:[email protected]
Website:http://aninternetofsoftthings.com/project/
Bassetlawworkshopreflectionsa filmbySalamanda TandemforIoSofT
Director/researcher:IsabelJonesFilm/photography:GeoffreyFielding
Withthanksto:TheBassetlawMindTuesdayArtGroup,staffChris,ElaineandMeg
https://www.youtube.com/watch?v=YixEuzl0Wfc