Parents perspective on

transition of health care

services from childhood to

adulthood.......

....Samee's Story.

CONTEXTQueen’s Nursing Institute – Transitions Focus Group

Durham August 2016

Report written by :

Chloe Brown (Project Worker) and Sam Jassat (Young Person)

“...... uncomfortable meeting new health care professionals. .....

.........somebody they know and trust to talk to with their problems and issues regarding health. .......

...old and new doctor in the same appointment for their first few appointments of transition........”

“......parent said that healthcare professionals kept saying that they would be ‘going through transitions’ and now they are accessing adult services and they are still not aware of the transitions process. ....

...I.e. there were in children’s services and suddenly found themselves in adults services. .......”

CONCLUSION

“Families said that their understanding of transitions was extremely vague and no-one could define what transitions was and what did / should happen during this period.”

OUR JOURNEY OCTOBER 2011 DIAGNOSED TYPE1(15)

OCTOBER 2012 CHILD TO ADULT SERVICES(16 and growing)

Investing in Children...Type 1 Kidz(T1Kz)

OCTOBER 2015 UNIVERSITY(...and growing)

INSULIN:EXERCISE:DIET

INSULIN:LOVE:CARE:KNOWELDGE

(PROF.JOHNNY LUDVIGSSON SWEDEN 2011)

PHASE 1 LIVING WITH TYPE1......

FAMILY........knowledge/support ;

SCHOOL........hypo kit/understanding the needs ;

PEERS.......transformation;

DIABETES UK........you are not alone.

HOLDING HANDS AND LETTING GO........not easy;

INVESTING IN CHILDREN........you are truly not alone;

SEAMLESS HANDOVER.......continuity of care/connectedness

SUPPORT..........crucial role by diabetic nurse as a conduit into the team;

PERSONALISATION...........on the journey together;

PHASE 2TRANSITION TO ADULT SERVICES:

Investing in Children Investing in Children (IiC) is a Community Interest

Company that listens to the wants and needs of children & young people and helps to make changes based on this.

Started working with Paed. Diabetes Teams in 2001 and T1KZ has grown considerably since then. Children & young people asked to have more peer support to help them live successful lives by learning from one another. Have several interactive sessions each month across North East England.

Investing in Children

Young facilitators support other children & young people to learn by taking part in practical activities and events. In the past 2 years 160 children & young people have taken part. Winner of 2 Quality in Care Awards 2016.

TRANSFORMATION

HELPING OTHERS