TRANSFORMING LIVESDONOR REPORT 2013

Charities like PACE thrive when they do excellent work that makes a real difference; in our case, to the lives of the remarkable and resilient children that it is our privilege to work with. Fundamentally, our ability to make that difference relies on the contribution of skilled and committed staff and supportive families. However, none of it can be achieved without the generosity of hundreds of donors and volunteers whose gifts help to ensure that we are here for children with motor disorders like cerebral palsy, now and in the future.

I send heartfelt thanks and appreciation to each and every one: to individuals, families, charitable trusts and foundations, businesses, community groups, clubs, churches, and those who give time and energy as well as money. We simply could not help our children without your continued support.

Together, we are transforming lives.

This report will tell you more about the tremendous impact that you made in just one year on the lives of the children that PACE currently works with, and their families. It also celebrates just a small sample of the many remarkable people and organisations whose efforts and generosity are making PACE’s life-changing work possible.

Thank you!

Amanda Richardson

Caitlin loves being at PACE. Knowing that she’s able to benefit from the wonderful support and services offered by PACE is a huge relief to our family.

We’d like to send a special message of thanks to every single person and organisation whose generosity makes it possible for PACE to be here for Caitlin. The opportunities and the care that your donations enable are making a huge difference to Caitlin, and to all the other children at PACE, every single day.

We are more grateful than we can possibly say.

Thank you!

Caroline and Caitlin

A MESSAGE FROM THE CHIEF EXECUTIVE

A MESSAGE FROM CAROLINE AND CAITLIN

£1.2 million given to the First Steps Appeal in 2013 by 37 major supporters.

GIVING TO PACE IN 2013: Facts & figuresGiving to PACE in 2013: Facts & Figures

PACE CyclingRiders: 36Amount raised: £64,600 Annual mileage cycled: 14,580 miles£4.43 per cyclist per mile

In 2013, 58% of total PACE funding was given by charitable donors

£2.6m 58%

£1.5m 32%

£0.5m 10.%

0.0

0.5

1.0

1.5

2.0

2.5

3.0

Donations Statutory PupilFunding

Other InvoicedServices

Mill

ions

Major Gifts, Trusts and

Foundations (restricted),

£1.6m61%

Trusts and Foundations (unrestricted)

£0.6m, 23%

Events & Community Fundraising,

£0.4m16%

Giving to PACE in 2013: A Year in Pictures

Since1990, PACE services for children with cerebral palsy have had the generous support of over 400 charitable trusts.

We are particularly lucky to have a strong relationship with The Sobell Foundation. Our partnership began in 1997 and has resulted in us receiving substantial donations over the past 17 years. We are currently in the final year of a three year grant, whereby The Sobell Foundation is supporting our innovative PACE Infant & Parent Service (PIPS).

High levels of neuro-plasticity mean that the greatest impact on motor function (and therefore life potential) can be achieved as a result of intensive, early intervention. To achieve this, PACE has created PIPS, a world-class service on a single site for young children with motor disorders and their families. As a result, more disabled children will be able to access the early input they need to make a lasting impact on the quality of their future lives.

The Sobell Foundation’s grant has benefited over forty children over the past three years, and hundreds since they started supporting PACE back in 1997. Just like Katie, they too are discovering a whole new world of play and fun, and they too will learn vital skills towards achieving their own personal level of future independence.

We are extremely grateful to The Sobell Foundation for this wonderful support.

The Sobell Foundation: Transforming Hundreds of Lives

Just one such child to benefit from The Sobell Foundation’s generosity is two-year-old Katie, who has diagnoses of spastic quadriplegic cerebral palsy and myoclonic epilepsy. She has experienced a very challenging start to life, needing resuscitation, seizure management and feeding via a nasal gastric tube. When Katie first came to PACE her hands tended to be clenched into fists and were not used at all to engage in play. She was also unable to use her upper limbs for postural support. This subsequently had a very profound impact on her ability to experience her world and to play, which comes naturally to most other children.

However, after attending intensive sessions at PACE, Katie has a much greater awareness of her arms and hands. She actively engages in play activities, finding the noisy ones especially fun. (Her parents are particularly delighted when the noisy ones are used with great gusto at home!) She can reach out and knock over a musical instrument and she can use her arms to help push up to see the world around her. Quite simply, her world is changing for the better, and will continue to do so in the future.

The journey that every child takes with PACE is a long and demanding one. Generous donors know this too and very often they join with our children on that ongoing journey, providing long-term support that helps every step of the way along that path, unlocking their potential and helping them to live as independently as possible.

The ongoing support of the wider Freemasonry movement is an inspiring example of this. Over the last ten years, Freemasons have raised over £50,000 to enable PACE to transform the lives of children with cerebral palsy.

With the exception of the National Lottery, no national community organisation is more supportive to charities across the UK than the Freemasonry movement and PACE records its enormous gratitude for this support. Gifts made by individual lodges and lodge members over recent years have been numerous and generous, and here are just two highlights:

In 2013, Clifford Drake galvanised the entire Brethren to support PACE by taking on the challenge of the PACE Big Walk, raising well over £10,000.

In 2014, Peter Lawrence undertook the gruelling Rock Ride 2 event, cycling no less than 1,500 miles from Gibraltar to Buckinghamshire, raising funds for several charities including well over £1,000 for PACE.

We also gratefully acknowledge the generous support for PACE provided over numerous years by the Buckinghamshire Masonic Centenary Fund.

£50,000 can provide ten years’ worth of assessment and tracking tools for the PACE Physioptherapy and Occupational Therapy teams.

£12,000 provides early intervention for a child newly diagnosed with cerebral palsy at PIPS, the PACE Infant & Parent Service, for three years.

£1,000 provides 6 to 8 ses-sions to enable a detailed assessment of a child with cerebral palsy by our skilled professionals.

L to R: Amanda Richardson (PACE Chief Executive), Peter Kemp (Freemason and PACE Appeal Committee member), Mike Stimson (Deputy Provincial Grand Master, The Provincial Grand Lodge of Buckinghamshire).

Freemasons and PACE: A Long-Term Partnership

At PACE, there are countless examples of children staff, children and donors going the extra mile to achieve great things.

In 2012 Jennie Younger, a long-standing friend and supporter, ran an astonishing 2012 kilometres to raise funds for PACE. That’s equivalent to running a marathon a week or running from London to Cyprus! No wonder so many friends and colleagues supported her efforts with a gift to PACE. Instead of putting her feet up, she then decided to take on an even greater challenge, turning her target from kilometres into miles for 2013. When she completed her final mile in September 2013, Jennie’s determination and hard work had raised almost £20,000, and also inspired an extremely generous further matching gift to the same value.

Jennie said “I wanted to set myself a real challenge and certainly needed to draw on the example set by the children at PACE, who are not afraid to tackle any challenge, however great. PACE is a really special charity based near my home and I was glad to support them and show my admiration for what those remarkable children achieve in partnership with families and staff.”

Jennie Younger: Going the extra mile

£40,000 funds one early years intervention professional at PACE for an entire year (including £5,000 of assessment tools and other equipment).

Jennie Younger: Going the Extra Mile

Since 2008 PACE’s nine cycle challenges have raised half a million pounds. No less than 169 riders have pedaled just over 70,000 miles in support of PACE - that’s very nearly three times around the world.

One small group of PACE cycle riders have now formed themselves into a cycling club called ‘Ripcor’. Styled by Treve Ripley and Sean Cornell, Team Ripcor aim to have fun, get fit and raise money for charity. Having taken part in all of PACE’s Cycle Challenges, members of Ripcor have contributed not only by fundraising but also by giving their time, skills and expertise.

Treve and Sean are both creative professionals who have given many hours of valuable branding, design and marketing services to PACE. Services like these are normally unavailable to PACE, given our limited budget. Other members of Ripcor, like Neil Franklin, have chosen to support PACE in other ways too, and to date Neil has run two Virgin London Marathons for PACE, raising nearly £17,000.

Our two 2013 cycling events travelled across Iceland in July and through the mighty Alps in September, and involved a total of 36 riders. Nine of these intrepid rides came from Team Ripcor. To all of our cylists we say thank you for your support and your inspiration!

Team Ripcor and PACE Cycling events: going from strength to strength

In 2013, 36 PACE cyclists raised £64,600, cycling 14,580 miles in the year (£4.43 raised per cyclist per mile).

£64,600 supports the entire PACE physiotherapy team (4 full-time and 2 part-time specialist pediatric physiotherapists) plus associated equipment for three months.

£17,000 supports a critical research project into the use of lycra posture suits as an unobtrusive and effective treatment for children with motor disorders such as cerebral palsy.

The Great PACE Tea Party campaign was launched in 2013, raising a wonderful £11,000.

Tea parties are a fun way for groups of people from the local community to bake cakes, make tea, have a natter and raise some money for to support PACE’s critical work.

As ever, our supporters rose to the challenge and held tea parties with original ideas and themes, such as dog show tea parties, jewellery shop openings, beer gardens and ‘Mad Hatter’ community days. It has proved to be a wonderful way to meet many new supporters, too.

One tea party was held by Cinram Logistics UK, one of Europe's largest distributors of entertainment media, based in Aylesbury. Cinram combined their tea party with a summer fun day, with family fun activities such as wet sponge throwing and football shoot-outs, plus plenty of cakes and tea. They also welcomed other businesses in the local area, generating a wonderful community feel to the day, made complete by the attendence of some of our PACE children, who all had a terrific time. £2,420 was raised for PACE’s work.

Cinram’s excellent teamwork and superb organisation meant that their staff were enthused to support PACE further and they quickly signed up to our Flag Relay campaign, a 26-mile relay run around their premises, as well as donating the proceeds of book sales.

The Great PACE Tea Party: Brewing Up for PACE

£2,420 provides specialist assessment and tracking tools for use by our occupational therapy team.

£11,000 supports our speech and language therapy teams so that they can help children at PACE learn “safe swallowing”, enabling them to master safe eating and drinking.

We knew the opportunity that lay ahead when we embarked upon the First Steps Appeal. Even so, 2013 was a year of enormous progress and excitement.

The huge boosts to the appeal made in 2013 by many generous supporters, particularly the significant pledges of the Garfield Weston Foundation and the Bradbury Foundation, enabled us to embark upon the £1.2 million first phase of the Early Year’s Intervention Centre in early 2013, pictured above. Construction was successfully completed on the stroke of Christmas Eve thanks to the tireless efforts of our constructor, Jarvis Contracting. The Centre began to realise its enormous potential immediately, welcoming children and staff from the very first day of the new term in January 2014.

It is no small thing to take up the challenge of a major appeal to support a development of the kind that we now see at work at the Bradbury Campus. There remains much to do as we work towards realising the two further phases of the Early Years and Independence Centre so that we can bring PACE’s powerful combination of therapy, support and inspiration to even more children and families. Heartened by what we have achieved together so far, I look forward to completing our appeal.

To each and every donor, and to all the members of the First Steps Appeal Committee, I send my heartfelt thanks .

Milly Soames Capital Appeal Committee Chairman

The First Steps Appeal Committee:

David BarnettPatricia Bergqvist JPCharlotte FiggBobbie Aubrey-FletcherLindsay GommeClive JohnPeter KempAnnabel WestrayJennie Younger

The First Steps Appeal

Thank you!

With grateful thanks to all those charitable trusts and foundations that have supported the First Steps Appeal to date:

CHK Charities LtdThe Anson Charitable TrustThe Anton Jurgens Charitable TrustThe Band TrustThe Beatrice Laing TrustThe Bergqvist Charitable TrustThe Bernard Sunley Charitable FoundationThe Bradbury FoundationThe Charlotte Heber-Percy Charitable TrustThe Childwick TrustThe Dudley & Geoffrey Cox Charitable TrustThe Garfield Weston FoundationThe Harebell Centenary FundThe Henry Smith CharityThe Lennox & Wyfold FoundationThe Lord Barnby’s FoundationThe Madge TrustThe Mobbs Memorial TrustThe Patrick & Helena Frost FoundationThe Roger and Jean Jefcoate TrustThe Rothschild FoundationThe Rowse Family TrustThe Shanly FoundationThe Trusthouse Charitable TrustThe Wolfson Foundation

The First Steps Appeal has also been generously supported by a large number of individual and other anonymous donors, who are not listed here for reasons of privacy but are no less warmly thanked.

£1.2 million given to the First Steps Appeal in 2013 by 37 major supporters.

TRANSFORMING LIVES

The PACE CentrePhilip Green HouseCoventon RoadAylesbury HP19 9JL

t 01296 392739f 01296 393556i www.thepacecentre.orge info@thepacecentre.org

facebook.com/thepacecentre@thepacecentre

Children‘s names have been changed for the purposes of producing this report.