PSYCHOSOCIAL ISSUES IN PSYCHOSOCIAL ISSUES IN CYSTIC FIBROSIS CYSTIC FIBROSIS ADHERENCE AND QUALITY ADHERENCE AND QUALITY OF LIFEOF LIFEYvonne D. Gathers, MSW,LCSW

Clinical Social Worker

Pediatric Pulmonary Center

OBJECTIVESOBJECTIVES Psychosocial Issues in children, adolescents

and adults with Cystic Fibrosis Psychological complications of cystic fibrosis Obstacles of Transition to adult Care Obstacles for parents/Caregivers View video tape of adolescents with cystic

fibrosis

INTRODUCTIONINTRODUCTION Children (age birth-10 yrs.) Early adolescence (age range 11-14 yrs.) Am I normal Mid-adolescence (age 14-16 yrs.) Independence/self image Late adolescence (age 17-older yrs.) Future oriented, intimacy /career goals

Process of acquiring relevant information needed to decide on and develop a rational plan for helping clients or patients.

Cultural Values Environment Health Beliefs

Resources Education Economics Housing Support system Family

PSYCHOLOGICAL PSYCHOLOGICAL COMPLICATIONS OF CYSTIC COMPLICATIONS OF CYSTIC FIBROSISFIBROSIS Severity of Disease Shock, disbelief, fear, anger, depression &

guilt Treatment Regiment Nutritional habits/Bonding time vs vest

therapy Length of Hospitalizations/Outpatient Office

Visits Employment/Marriage

PSYCHOLOGICAL PSYCHOLOGICAL COMPLICATIONSCOMPLICATIONS Body image Mature 1 ½ - 2 yrs. later Younger and small body size Relationship with peers

OBSTACLES AFFECTING OBSTACLES AFFECTING TRANSITIONTRANSITION Dependent behavior Immaturity Severe illness or disability Mental Health Lack of support systems Lack of trust in caregivers Poor adherence to treatment regiment Parental involvement

OBSTACLES FOR OBSTACLES FOR PARENTS/CAREGIVERSPARENTS/CAREGIVERS Excessive need for control Emotional dependency Parenting styles/overprotective Heightened perception of disease severity Lack of trust in caregivers Denial about the severity of the disease