Overview: 2013 Advocacy Summit Your Questions Answered.
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Transcript of Overview: 2013 Advocacy Summit Your Questions Answered.
Overview:2013 Advocacy Summit
Your Questions Answered
Your Questions Answered• I’m registered for the Summit; my bags are packed, now
what?• We are coming early to visit the sites. Is that okay?• I’m in DC, how do I get to the hotel?• What should I expect at the Summit?• I have a child attending the Kids’ Summit. What do I need to
know?• Help! I don’t know what to tell my Member of Congress!• How should I share my Summit experience on social media?• Do you have any final tips for me?
Preparing for Your DC Trip
• Pre-Summit Emails late Jan-Feb• March in DC? Be prepared for any type of
weather. • Summit Dress is business casual—no jeans for
Hill meetings. (for kids “Sunday best”)
Getting Around DC
Washington, DC has three Airports:Washington Reagan (DCA)Washington Dulles (IAD)Baltimore-Washington International (BWI)
Metro/TaxisAMTRAK
Visit the Summit Website for details on the Transportation tab
www.arthritis.org/advocacy
Summit Hotel: Marriot Crystal Gateway• Check In/Out (4pm/noon)
Luggage storage is available• Indoor, heated pool • On site restaurants• Close to other
dining/shopping• Ten minutes from Airport (free shuttle to DCA)/close to
Downtown DC• Metro Accessible
There are many hotels in the area with similar names. Please make sure that you are reserving a room at the “Marriott Crystal Gateway”.
Things to Do In Washington, DC
Near hotel in Crystal City: www.crystalcity.orgIn Washington, DC: http://washington.org/
Summit Overview
Meeting Registration 1pm-6:00pm Monday and Tuesday morning for late arrivals
– Pick up your Summit schedule, agenda book, bag, and Summit t-shirts.
– Ambassadors & State Coordinators; don’t forget your badge ribbons!
Information desk available during the Summit.
Summit OverviewDay 1Discovery to Treatments Session (NIH/FDA)*Mandatory Advocacy Trainings (Three Levels)
Day 2Morning Welcome and Keynote Program*U.S. Senate AppointmentsCelebrating our Achievements Dinner
Day 3U.S. House Appointments
*Live Streamed event
Kids’ Summit OverviewParent Orientation is mandatory.– A program targeted for children from K-8th Grade– Creating projects to present to Senators and
Representatives– Training on how to speak with their Members/Senators– Talk with Pediatric Rheumatologists– Games and Activities
We’ve designed a fun program for your children; parents are strongly encouraged to send children K-8th to the Kids Summit not the adult program.
Congressional Meetings: Getting to the HillSummit Shuttle Buses
Shuttle Bus Schedule will be posted at the meeting and in your Program book
Shuttles will leave regularly from the hotel and Hill
Metro: www.wmata.org
Finish your meeting early? Feel free to Metro-- the hotel is located at Crystal City on the Yellow/Blue Lines.
Congressional MeetingsYou will meet your members
over 2 days
U.S. Senate Meetings (Tues. 2pm-5pm)U.S. House Meetings (Wed. 9am-4pm)
You will drop off materials to other members of your state delegation
Congressional MeetingsSTATE COORDINATORSState Coordinators are the lead for each state delegation.
•The main point of contact for all Hill Meeting schedule questions or changes.•Organize the group of attendees that will attend meetings together.•Look for the lime green ribbon!
What are we advocating for?Issue:
Insurance companies are placing certain “high costs” medications on a special tier and charging a percentage of the cost of the
medication.
Ask:Support legislation to end this practice and
require co-payment vs. percentage of the cost. (Patients’ Access to Treatments Act of 2013 H.R. 460)
What are we advocating for?Issue:
There are currently 11 states without a single board-certified, practicing pediatric
rheumatologist and 7 states with just one.
Ask:$5M to help support loan repayment for
pediatric rheumatologists
What are we advocating for?Issue:
More research is needed to reduce the arthritis burden on our nation’s warfighters, veterans
and civilians.
Ask:Include “post traumatic osteoarthritis” and
“rheumatoid arthritis” research at the Department of Defense (DoD)
Networking Café• Share with advocacy staff your notes from
your Congressional meetings.• Send thank you notes to your Members of
Congress.• Complete your Summit evaluations.
Awareness = AdvocacySocial Media @ Advocacy Summit 2013
POST. Share your story with others on the Arthritis Foundation’s Wall.
CHECK IN. Tell your friends you’re on Capitol Hill by checking in at your Congressional visits!
TWEET. Share your experience with @arthritis_org and don’t forget to mention your elected official, too!
‘GRAM. Take pictures around the Summit and with your elected officials. Mention @Arthritis_org and tag #FaceArthritis2013
#FaceArthritis2013
Housekeeping: Final Tips• Reimbursements for travel award winners• Other final tips
QUESTIONS?• Answers to many questions
are available at www.arthritis.org/advocacy (see 2013 Summit section)
• Feel free to contact your regional advocacy staff person or a member of the DC staff.
Contact Us—National Staff
Amy Melnick, Vice President, Advocacy Maria Spencer, Director, Federal AffairsKimberly Beer, Director, Government RelationsLaura Keivel, Advocacy Operations Coordinator Laurie Markle, Grassroots Advocacy Manager
Email: [email protected]: 202-887-2913
Contact Us—Regional Advocacy Staff
Regional Advocacy Staff Region
Pam Fields [email protected] Great Lakes Region
Johanna Lindsay [email protected] Great West Region
Michele Guadalupe [email protected] Heartland Region
Cecil Wallace [email protected] Mid-Atlantic Region
Sue Nesci [email protected] New England Region
Michele Greco [email protected] Northeast Region
Krystin Herr [email protected] Pacific Region
Serena Heins [email protected] South Central Region
Pam Snow [email protected] Southeast Region
Lori Obluck [email protected] Upper Midwest Region
SEE YOU IN WASHINGTON, DC!