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JDRF Outreach Department Resource Guide Updated June 2012

OUTREACH PROGRAM RESOURCE GUIDE


TABLE OF CONTENTS

INTRODUCTION

ABOUT JDRF

WHEN YOU OR YOUR CHILD ARE DIAGNOSED

NATIONAL TYPE 1 RESOURCES

SUPPORT AND INFORMATION WEB SITES AND BLOGS

DIABETES PRODUCT INFORMATION

MEDICAL ALERT JEWELRY/ID

HEALTH INSURANCE

COMPANIES THAT DONATE SUPPLIES

RESOURCE/ASSISTANCE AGENCIES

SCHOOL INFORMATION

COLLEGE INFO

JDRF.ORG RESOURCES

DIABETES CAMPS INFO

FOREIGN LANGUAGE RESOURCES

EMERGENCY PREPAREDNESS

TRAVELING WITH DIABETES

CELIAC DISEASE

LOCAL TYPE 1 RESOURCES

OUTREACH MENTORS

DIABETES EDUCATORS

LOCAL DIABETES MEDICAL SERVICES

LOCAL TYPE 1 PEDIATRIC ENDOCRINOLOGIST

SUPPORT GROUPS

JDRF CHAPTER EVENTS

BOOKS AVAILABLE AT JDRF


INTRODUCTION The Mission of the Juvenile Diabetes Research Foundation (JDRF) is to find a cure for diabetes and its complications through the support of research. The Outreach Program enhances the JDRF mission when it supports and engages the type 1 community by creating new partners for JDRF chapters. Outreach brings together people who share our vision for a cure, and who will actively work with us to achieve this goal. ABOUT JDRF JDRF began in 1970, when parents of children with diabetes founded the organization to raise money and awareness for diabetes research. JRDF has a clear mission: to find a cure for diabetes and its complications through the support of research. Approximately 85% of every dollar currently funds diabetes research or education, making JDRF one of the world’s most efficient charities. JDRF gives more resources to diabetes research than any other nonprofit, nongovernmental organization in the world – more than $1 Billion since 1970. To cure, treat, and prevent type 1 diabetes, we must achieve several things: • Arrest the immune attack on the insulin‐producing beta cells • Restore or replace beta cell function • Better control blood sugar levels • Protect people from – or reverse – complications Accomplishing all of this requires that our research encompass multiple areas. Within each area, we seek to discover and develop new drugs and devices that can be combined in therapeutic regimens, based on an individual’s stage of disease. JDRF’s four areas of emphasis for therapeutics development are: 1. Immune Therapies • Stop the immune system attack on the insulin‐producing beta cells • Prevent an immune attack on regenerated beta cells or other insulin‐producing cells used to replace beta cells 2. Beta Cell Therapies • Restore the body’s ability to make insulin through: • Regeneration of insulin‐producing beta cells (i.e. triggering the body to re‐grow beta cells) and • Replacement of the beta cells lost to diabetes 3. Glucose Control • Dramatically improve blood glucose control while avoiding dangerous highs and lows in people at all stages of type 1 diabetes 4. Complications Therapies • Free people from the devastating long‐term complications of type 1 diabetes, including diseases of the eyes, nerves, kidneys, and heart JDRF leverages research funds by partnering with government agencies around the world. Its focus is obtaining the best research, anywhere in the world in the quickest timetable. Approximately 1/3 of the research is now outside the United States. JDRF helps scientists to collaborate, communicate, and share information across research disciplines and across traditional research lines.


Disclaimer: This information is not endorsed by JDRF or any other organization. It is provided only as a general resource and should be used only as a guide. Always consult your physician.

WHEN YOUR CHILD IS DIAGNOSED This section is especially for parents of children with diabetes. Hearing that your child has a chronic, incurable disease is likely the most traumatic news that a parent could receive. Managing the day‐to‐day routine of diabetes care is difficult enough, but in combination with the knowledge of diabetes complications, the disease can be overwhelming. Some tips for coping: Lose the guilt. Diabetes is a autoimmune disease that is not caused by feeing a child wrong or any other parental action– you were not responsible! Focus on providing care rather than assuming blame. Reach out for help. This document provides a list of diabetes professionals and support groups. There is no need to go it alone. JDRF has a wealth of adults with Type 1 and parents of children with Type 1 who know what you are going through and can help you at any step of the way. Don’t be afraid to ask questions. Write down and ask your child’s doctor any questions that you have about the disease or your child’s care. Many fears are borne of ignorance. Educate yourself. This resource guide lists websites and books on diabetes. Take care of yourself and your family. Don’t let diabetes rule your family. Cope with as best you can and live your life as normally as possible. Fight back! Raise funds for research by getting involved in local JDRF programs, briefly described in this resource guide. For many families, attending a local JDRF Walk to Cure Diabetes provides hope and is often very emotional and uplifting.


DIABETES WEBSITES TO EXPLORE Organizational websites

• JDRF Website ‐ www.jdrf.org Juvenile Diabetes Research Foundation website. Includes the latest news and breakthroughs in diabetes research, the activities of JDRF and “Kids Online”, a special section devoted to children with diabetes.

• JDRF Kids Online – http://kids.jdrf.org/index.cfm

• JDRF Online Diabetes Support Team –

http://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=4C025132‐2A5E‐7B6E‐1AC40A9846C3960A . One to one support, a sympathetic ear, and some practical suggestions from JDRF volunteers who have “been there”.

• JDRF School Advisory Toolkit Request ‐ www.jdrf.org/satrequest

JDRF’s School Advisory Toolkit for Families takes a proactive approach for school personnel and families to work together through ongoing communication. Other information regarding the Child’s Rights with diabetes, going to college, and daycare information are also included.

• www.who.int The World Health Organization

• American Association of Diabetes Educators (AADE) http://www.diabeteseducator.org/

General diabetes information; find a diabetes educator.

• Diabetes Exercise and Sports Association (DESA) http://www.diabetes‐exercise.org/index.html DESA exists to enhance the quality of life for people with diabetes through exercise and

physical fitness.

• American Association of Clinical Endocrinologists (AACE) http://www.aace.com/index.php A professional medical organization devoted to the enhancement of the practice of clinical endocrinology.

• National Institute for Diabetes Digestive and Kidney Disease ‐ www.niddk.com

National Institute of Health’s (NIH) Diabetes and Digestive Kidney division – site includes lots of facts and information on type 1 diabetes.


Support Websites • www.diabeteshealth.com

An online magazine dedicated to living a healthy life with diabetes

• www.ntpl.ca/ws_par/banting/index.html Banting Digital Library – History of discovery of insulin

• www.diatribe.us/jdrf

Research and product news for people living with type 1 diabetes

• www.healthsimplediabetes.com Features tools for people with diabetes

• www.insulin‐pumpers.org

Provides information and support for adults and children with diabetes and their families interested in insulin pump therapy

• www.childrenwithdiabetes.com • www.fit4d.com

Personalized Diabetes Fitness Coaching

• www.fifty50.com

• www.diabetes.acponline.org

• www.act1diabetes.org Blogs from Adults living with type 1 diabetes

• www.dLife.com

dLife.com serves as a total diabetes hub, featuring the latest information and content about both type 1 and 2 from many of the top experts in the world.

• http://www.diabetesportal.com/ A gateway to 14 Web sites providing daily news updates, tips for living with diabetes, and

information about research findings and advanced treatments.

• http://www.diabeteswellness.net/ Articles on treatment, diet and exercise, and lifestyle

• Diabetes Dictionary available at: http://diabetes.niddk.nih.gov/dm/pubs/dictionary/


Government Websites with Diabetes Information

• The National Diabetes Information Clearinghouse (NDIC), a service of the National Institute of Diabetes and Digestive and Kidney diseases (NIDDK). Established in 1978, the clearinghouse provides information about diabetes to people with diabetes and to their families, Health care professionals, and the public. Their website is: http://diabetes.niddk.nih.gov/

• The National Diabetes Education Program

http://ndep.nih.gov/ The National Diabetes Education Program is a federally‐sponsored initiative that involves public and private partners to improve the treatment and outcomes for people with diabetes, to promote early diagnosis, and to prevent the onset of diabetes.

• CDC’s Diabetes and Health Resource Page http://www.cdc.gov/diabetes

The Centers for Disease Control and Prevention (CDC), an agency of the Department of Health and Human Services, provides answers to frequently asked questions about diabetes, along with information about prevention and treatment.

• US Food and Drug Administration – Diabetes Information http://www.fda.gov/diabetes/

The FDA regulates the medical products used to treat diabetes, including glucose meters, insulin pumps, diabetes medicines, and insulin. Its Web site is an excellent source for new products that have received FDA approval and other current information about diabetes care.


HEALTH INSURANCE ASSISTANCE Nationally Based 1. Insure Kids Now! – Every state in the nation has a health insurance program for people under 18. This Website offered by the US health and Human Services Dept. http://www.insurekidsnow.gov/ or call 1.877.KIDS.NOW. 2. www.themedicineprogram.com ‐ Provides prescription medication for people who do not have adequate insurance coverage or are experiencing financial hardship – no toll free number but can be reached at 573.996.7300. 3. Pharmaceutical Research and Manufacturers Association – Assistance program available to help offset the cost of supplies or prescription medicines.1.800.762.4636. 4. Institute for Health Care Research and Policy at Georgetown University – “Consumer Guide for Getting and Keeping Health Insurance” for each of the 50 states. The guides are available online at http://www.healthiinsuranceinfo.net/ 5. www.freemedicine.com –Provides prescription medication for people who do not have adequate insurance coverage or are experiencing financial hardship‐ no toll free number, but can be reached at 573‐996‐7300 Partnership for Prescription Assistance‐ Assistance program available to help offset the cost of supplies or prescription medicines. 1‐888‐477‐2669 www.pparx.org 5. Centers for Medicare and Medicaid Services‐ www.cms.hhs.gov 6. National Drugstores and Pharmacy Chain Patient Assistance ‐ Speak with your local pharmacist about their prescription programs. Stores with these programs include Costco, CVS, K‐mart, Rite Aid, Target, Wal‐mart, and others. 7. United Healthcare Children’s Foundation –The Foundation provides financial assistance toward the family's share of the cost of medical services. www.uhccf.org Locally Based

1. NJ Family Care – Affordable health coverage for children in NJ www.njfamilycare.org 2. Child Health Plus – NY assistance for children’s healthcare coverage www.health.state.ny.us/nysdoh/chplus

DIABETES SUPPLY INFORMATION


Insulin Manufacturers:

• Sanofi Aventis ‐ 1‐800‐633‐1610 • Lilly – 1‐800‐545‐5979 • Novo Nordisk – 1‐800‐727‐6500

Glucose Meters:

• Abbott – 1‐888‐522‐5226 • Bayer – 1‐800‐348‐8100 • Lifescan – 1‐800‐227‐8862 • Relion – 1‐800‐992‐3612 • Roche – 1‐800‐858‐8072

Insulin Pumps:

• Accu‐Chek (Disetronic) ‐ 1‐800‐280‐7801 • Animas – 1‐877‐767‐7373 • Dana Diabecare – 1‐866‐342‐2322 • Insulet 1‐800‐591‐3455 • Medtronic MiniMed – 1‐800‐646‐4633 • Nipro – 1‐888‐651‐7867 • Tandem Diabetes‐ 1‐877‐801‐6901

INSULIN PUMP COMPANIES Animas Corporation 590 Lancaster Ave Frazer, PA 19355 1‐800‐ PUMP‐YES www.animascorp.com Insulet Corporation 9 Oak Park Dr Bedford, MA 01730 800‐591‐3455 www.myonmipos.com Roche Insulin Delivery Systems 11800 Exit Five Parkway, Suite 120 Fishers, IN 46038 1‐800‐280‐7801 http://www.accu‐chekinsulinpumps.com


Medtronic MiniMed 18000 Devonshire Street Northridge, CA 91325‐1219 1‐800‐MINIMED www.medtronicminimed.com Nipro Diagnostics 2400 N.W. 55th Court Fort Lauderdale, FL 33309 USA 1‐800‐803‐6025 www.niprodiagnostics.com CGM – Continuous Glucose Monitors:

Some current and future continuous glucose monitoring products include: • FreeStyle Navigator • Medtronic Minimed Paradigm Real Time Continuous Glucose Monitor • The Guardian by Medtronic Minimed • Dexcom

OTHER SUPPLIES

• Blood Ketone meter (Precision Xtra) by Abbott – to get a number instead of a shade of pink. Need a prescription http://www.abbottdiabetescare.com

• Dex4 Glucose Tabs – Name brand and some of the more expensive – but they do offer GREAT

flavors. Strawberries and Cream, Sour Apple, and Raspberry are some of our favorites. And you can use Flex accounts for these. You can even get these at Amazon.com!

• Emla – Numbing cream, use it for CGM insertions and blood draws. Works but you need to put it

on a good hour or two before you want it to work. A 5% emulsion preparation, containing 2.5% each of lidocaine/prilocaine. Need a prescription

• Frio – to keep insulin cool without refrigeration – re‐chargeable with simple tap water. Lots of

sizes available. Available from lots of vendors (Even Amazon)

• Groovy Patches – To make wearing a pump more fun and fashionable! http://www.groovypatches.com/ No prescription needed, about $1.00 each.

• I‐Port – a “port” that is inserted and changed every 3 days similar to a pump site and then

insulin injections are delivered through it. One “shot” every 3 days instead of multiple daily injections. http://www.i‐port.com/


• Inject‐Ease – Hides the needle and does the injection at the push of a button – but the “snap” sound it makes may make it scarier than just doing the injection for a young child. Also a bit clunky and hard to set up – but works well for folks looking for alternative injections sites they can not currently reach.

• Insulin Pen – Several companies make insulin pens including Novo Nordisk, Aventis and Eli Lilly.

These companies produce pens for most of their insulins, including NovoLog/NovoRapid, Humalog, Levemir and Lantus. They are very common with adults. Prescription is needed

• Insulin Pen cartridges – Made for use with the pens – but can be used with syringes too. If you

don’t use much insulin monthly you could get 5 month supply of insulin for 1 co‐pay! Prescription needed.

• I.V. 3000 Transparent Dressing ‐ Clear, transparent tape dressing for covering infusion sites.

Useful if you pull out a lot of sites and for covering Emla while waiting the 2 hours. (AKA Tagaderm OTC) If you are a pumper this may be covered by insurance.

• Leg sleeve (Pump Bands) – another way to wear a pump http://www.pumpwearinc.com No

prescription needed – I have heard control top panty hose work too.

• Medicool ‐ To keep insulin cool without refrigeration (Needs pre‐cooled freezer pack.) Lots of sizes available. Available from lots of vendors (Even Amazon)

• MultiClix‐ by Accu‐Check – Easier lancet management (Daycares & schools love these!) Available

at most drug stores and lots of on‐line vendors. Can get a prescription for the lancets. Normal shelf price is about $30 but they go on sale at Wal‐Mart every so often for $10.00‐ish.

• My Other Checkbook –Easily record carbs, insulin doses, oral medications and exercise on our

convenient Smart Charts. Graph your blood sugars to quickly spot patterns. Try 4 months for $8.95 or go for a year supply for $21.45. http://www.diabetesnet.com/mocb1.php

• Needle clipper – by BD – Easier used syringe management and travel

Available from lots of vendors (Even Amazon) about $4.00

• Pump Packs – to hold the pump for young kids that don’t have belts to clip them too. http://www.pumpwearinc.com/ www.perfectlypumped.com Insulin Pump Pouches by a local mom!

• Pump skins – To make wearing a pump more fun and fashionable! Looks like they are only

available with Accucheck and Medtronic pumps. http://www.minimed.com/products/insulinpumps/skins/

• Skin Tac™ Wipes – This latex‐free, hypo‐allergenic wipe aids in the adhesion between skin and

adhesive tape. Helpful if you pull out a lot of sites. We got ours through our pump company.


• Soup thermos – Can be used for quick trips with insulin in the summer. Smaller, cheaper and can be bought almost anywhere.

• Spoon – makes giving little ones with needle aversions shots easier. Chances are you already

have one of these – just pop it in the freezer should be ready in an hour or two!

• Syringes with ½ unit markings – A must for little ones with tiny insulin doses. Most pharmacies do not carry them but they can order them for you. Ask for “BD Ultra‐Fine™ Insulin Syringe with Short Needle, 3/10 cc (30 units) with half‐unit scale” BD catalog number #328440. UPC number #08290‐328440

• Uni‐Solve adhesive remover by Smith and Nephew. Helps remove sticky pump sites. Getting the

sites OFF was more difficult than getting them ON! Walgreen’s can order it for you. Not covered by insurance but well worth the $8‐ish it cost.


COMPANIES THAT DONATE SUPPLIES

• NIDDK – Publication called “Financial Help for Diabetes Care” which offers information about resources such as Medicare, Medicaid, and health insurance programs which may provide coverage for medical expenses for a person with diabetes. The publication can be viewed online at http://www.nicck.nih.gov/health/diabetes/summary/finhelp/finhelp/htm or to order copies call 1.800.860.8747.

• National Institutes of Health ‐ Diabetes Program: 1.800.860.8747. For pharmaceutical

assistance programs.

• Medisense Meter – donates free meters and strips. 800.527.3339

• Lilly Care – donates free insulin – a patient can apply for a 3 month supply of insulin for free. A patient must submit a new application each time he/she is applying. The patient need the doctor’s involvement or letter stating the need for insulin 1.800.545.6962

• Medic Alert – donates free sterling silver bracelets or necklaces. 800.432.5378

• Aventis– donates Lantis insulin. 800.221.4025

• Ciba Pharmaceuticals – can be covered by Medicare, Medicaid or third party insurance as long

as prescriptions are not covered. Eligibility is determined by the physician based on company guidelines. 800.257.3273

• CR3 Diabetes‐ provides medical devices and supplies to those unable to afford the cost.

www.cr3diabetes.org

• Beckton Dickinson – Money saving coupons for syringes and patients just need to call and request coupons. The company also offers a one time only coupon for a free box of syringes. 1.800.237.4554.

• Freemeds.com – 1‐888‐722‐7556 works really well. You can not have an insurance

prescription card and access this program, but you can have insurance and this program. You can donate supplies too!

Insulin for Life ‐ Insulin for Life USA is a non‐profit organization that collects and distributes in‐date, unopened and unneeded insulin, test strips and other diabetes supplies that would otherwise go to waste.

www.insulinforlifeusa.org CR3 Diabetes: Contact The CR3 Diabetes Association, Inc. at (919) 303‐6949


SAVINGS PROGRAMS Some of the pharmaceutical companies and other organizations have established money‐saving programs for those in need:

• The Pharmaceutical Research and Manufacturers of America (PhRMA) has an online database to help patients without prescription drug coverage access user friendly information about more than 1,400 medicines offered free through patient assistance programs sponsored by the pharmaceutical industry and others. In English the website is: http://www.helpingpatients.org

• Diabetes‐Meds is an advocate program that works with low‐income patients on a case‐by‐case

basis with every drug manufacturer to provide nearly every medication a patient requires for chronic illness. Diabetes‐Meds, a service of ElderMeds, works with over 161 pharmaceutical companies and is not confined to people of any age. Every U.S. citizen is eligible, regardless of age or medication prescribed. The URL is: http://www.diabetesmeds.org/

• You may obtain some meters, test strips and other diabetes supplies other people no longer

need them from the “Angel Network.” http://www.mendosa.com/dws‐free_drugs.htm

• “Free Drugs” The URL is: http://www.mendosa.com/dws‐free_drugs.htm • Financial Help: http://www.diabetes.org/main/community/info_news/web/dec15.jdp

• Free Prescription Drug Programs: www.rxassist.org www.freemedicinefoundation.com www.needymeds.com www.ncsl.org/programs/health/drugaid.htm


CARB COUNTING RESOURCES

• CalorieKing.com – Easily searchable (and free) on‐line nutritional database website. Can even buy software database to be loaded on a palm pilot/blackberry or other fancy phones. http://www.calorieking.com

• Carb Factors – The carb factor is the percentage of carbohydrate present in a food. For

instance, the carb factor of an apple is 0.13. This means that 13% of an apple's weight is carbohydrate. An apple weighing exactly 100 grams would contain 13 grams of carbs. Especially useful for pizza – we use .27 to .29 depending on the thickness of the crust. http://www.medexplorer.com/nutrition/nutrition.dbm (This data base lists everything based on 100g servings which can be easily converted to a carb factor by moving the decimal point.)

• Kitchen scale ‐ A great product that helps make carb counting easy! Try one from a local

supporter and vendor, Eat Smart Products: http://www.eatsmartproducts.com/kitchen‐scales

• Travel scale – useful for carb counting on the go. Especially useful for French Fries (1oz=10 carbs), Buns (Weigh the bun in grams and then divide by 2 and that equals the carbs), & Pizza (Weigh in g and then use a carb factor of .27 or .28 depending on thickness of crust to get a carb count.) http://www.amazon.com/Polder‐Pocket‐Size‐Digital‐Scale/dp/B0002EXVH8

MISCELLANEOUS RESOURCES

• Children’s Special Health Care Services – 800.359.3722

• Life Crisis Services – Nation wide hotline for any personal crisis oriented problems and addictions. Including gambling, depression, suicide, alcohol, abuse, neglect, parental problems, and others. 1‐800‐784‐2433 or 1‐800‐273‐8255 http://www.suicidepreventionlifeline.org/

• United Way ‐ go to http://national.unitedway.org/myuw/ to find your local chapter of the

United Way.

• Diabetic Driver/passenger vehicle stickers – Incase of an emergency on the road might be nice to have something to alert the professionals that there maybe someone with a medical condition involved. http://www.dadinnovations.com/products.html


MEDIC ID BRACELETS Laurens Hope – Finally…a medic ID bracelet that combines safety with style 1‐800‐360‐8680 www.laurenshope.com Proceeds benefit JDRF Children with Diabetes ‐ Medic ID Product Section http://www.childrenwithdiabetes.com/d_06_700.htm Fifty50 – Medic ID Bracelets www.50fifty.com Med Alert Kits – providing vital information to Medics www.medalertkits.com Additional Medic Alert Bracelets – Lots to choose from Google “Medical Alert”. http://www.medicalert.org http://www.petitebaublesboutique.com/ http://www.rescuemeids.com/ http://www.medicharms.com


DIABETES CAMPS Diabetes Education & Camping Association Lorne Abramson– Executive Director 256‐883‐2556 www.diabetescamps.org Camp Nejeda 910 Saddleback Road Stillwater NJ 07875 John Latimer ‐ Director of Programs 973‐383‐2611 [email protected] The Barton Center for Diabetes Education Camp Clara Barton & Camp Joslin 30 Ennis Road P.O. Box 356 North Oxford, MA 01537 508‐987‐2056 [email protected] Adult Camps Spin, Stroke, Spin, and Stride’s A week‐long summer camp for grown‐ups Camp founder Matthew Corcoran, M.D www.diabetestrainingcamp.com


MINORITY RESOURCES Spanish Resources

• Visit the JDRF Intranet Outreach Resources page for JDRF Diabetes information and publications in Spanish.

http://diabetes.niddk.nih.gov/spanish/indexsp.asp

• There are two books on amazon.com website: a Spanish version of the Joslin diabetes book, and they list another one – “Diabetes: el enemigo que acecha en silencio” by Emerito M Roncali, Instituto de Salud.

• There is also a coloring workbook for children in Spanish. It is called “Libro Para Colorear Sobre la Diabetes” and has a summary before each chapter for parents to help them learn about diabetes. It is published by Barbara Davis Center for Childhood Diabetes: University of Colorado Health Sciences Center 4200 East Ninth Ave., Box B140 Denver, CO 80262 303‐315‐8796

• The following website from the US Department of Health and Human Sersvices has information on Diabetes Care in Spanish http://www.ahrq.gov/browse/diabetes.htm

• There are two books on the amazon.com website: a Spanish version of the Joslin diabetes book; the other is written by Elisa Hendel and is available in both English and Spanish: http://www.amazon.com/gp/product/0971861226/sr=1‐3/qid=1154016063/ref=sr_1_3/103‐5602780‐3751025?ie=UTF8&s=books

• There is also a coloring workbook in Spanish. It is called “Libro Para colorear sobre la diabetes” and has a

summary before each chapter for parents to help them learn about diabetes. It is published by: Barbara Davis Center 1775 North Ursula Street, Aurora, CO 80010

US Mail should be addressed to: Mail Stop B140, PO Box 6511, Aurora, Colorado 80045‐6511

(303) 724‐2323 www.barbaradaviscenter.org

• NIDDK: http://diabetes.niddk.nih.gov/spanish/indexsp.asp

• National Diabetes Education Program: http://ndep.nih.gov/diabetes/pubs/catalog.htm#PubsHispLatino


Spanish Language: Diabetes Management Materials http://www.bd.com/us/diabetes/page.aspx?cat=7001&id=7294 BD (Beckton Dickenson) has booklets that are downloadable at the link below. These booklets are available in both English and Spanish are on such topics as: Drawing and Injecting Insulin Site Selection Hypoglycemia and Diabetes Self‐Monitoring of Blood Glucose Exercise and Diabetes Stress and Diabetes Planning Your Diabetes Care During Disaster Conditions Personal Diabetes Care Card Dining Out Guide (includes ethnic foods) Know the Difference: High Blood Sugar And Low Blood Sugar Sick Days Travel, Vacations and Diabetes Straight Answers for Kids with Type 1 Diabetes Straight Answers for Parents of Children with Type1 Diabetes


SCHOLARSHIP OPPORTUNITIES

• Diabetes Scholars Foundation ‐Diabetes Scholars Foundation funds college and conference scholarships for children and teens with type 1 diabetes. Scholarships offered annually to two kids with www.diabetesscholars.org

• John E. Kostic Memorial Foundation ‐ Diabetes Scholarship Benefiting IncomingCollege Freshman from NJ http://www.johnekosticmemorialfoundation.org/apps.html

• Two Scholarships offered annually to two kids with type 1. It is presented through the Billie Jean King Foundation in cooperation with the American Diabetes Association to a male or female scholar athlete ages 14‐21 who plays interscholastic, intercollegiate, or intramural tennis and has type 1 diabetes. The URL is: http://www.childrenwithdiabetes.com/kids/d_02_401.htm

• LifeScan Inc. awards $500 Diabetes Camp Scholarships to 20 children. They will be selected at random and will also get a new blood glucose meter. Successful applicants must have diabetes, be under 18 years of age and be a U.S. resident. Scholarship winners agree to share their camp experiences in words and pictures with LifeScan for promotional purposes. Call 1‐866‐238‐8301 or visit http://www.lifescan.com

• TheraSense funds scholarships for children to participate in nationwide diabetes summer cmaps. A Certified Diabetes Educator (CDE) must submit a nomination. The URL is: http://www.therasense.com/nominat_child/nominate_1.htm


WHAT IS A CLINICAL TRIAL? Clinical trials are research studies used to determine whether new drugs or treatments are both safe and effective. The National Institutes of Health (NIH) ClinicalTrials.gov Web site answers some of the most frequently asked questions about these studies. The decision to participate in a clinical trial is very personal and should be made only after speaking with your health care provider and other individuals you trust. You can stop participation in a clinical trial at any time if new concerns arise or you lose confidence that its potential benefits outweigh its risks. Current Clinical Trials:

• JDRF Type 1 Diabetes Clinical Trial Connections The JDRF Type 1 Diabetes Clinical Trials Connection is here to help people with type 1 diabetes better understand what is involved in participating in a clinical trial, and to simplify the process of finding trials that may be of interest to them or to their family members. https://trials.jdrf.org/patient/index.cfm

• Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes. This site provides information about ongoing and completed TrialNet Studies.TrialNet performs trials for newly diagnosed or at risk individuals for type 1 diabetes. http://www.diabetestrialnet.org/

• ClinicalTrials.gov also lists NIH‐sponsored trials that have been scientifically reviewed through NIH mechanisms and approved by government council. http://www.clinicaltrials.gov/

Although NIH‐sponsored trials may be of scientific and medical value, JDRF has not reviewed these studies and therefore cannot endorse participation in them. JDRF does not take responsibility for the trial conduct, liability lies within the sponsoring University/Hospital/Clinic. Inquiries regarding trials should be directed to the trials contact person or institution not JDRF. JDRF does not take responsibility for accuracy of clinical trial information provided.


TRAVELING WITH DIABETES Federal Aviation Administration Regulations The Federal Aviation Administration (FAA) has increased security measures at airports throughout the nation due to the events of September 11. Some of the precautions taken by the FAA, as well as by individual airlines, will likely affect passengers with diabetes, who must carry their medical supplies when they travel. JDRF continues to monitor the situation and provide updates whenever available. This information represents the minimum requirements for passengers, and JDRF and the FAA recommend calling the individual airline for further information, at least one day in advance of the scheduled flight.

1. Passengers may board with syringes or insulin delivery systems only if they can produce a vial of insulin with a professional, pharmaceutical pre‐printed label that clearly identifies the medication. No exceptions will be made. Since the prescription label is on the outside of the box containing the vial of insulin, the FAA recommends that passengers refrain from discarding their insulin box and come prepared with their vial of insulin in its original pharmaceutically labeled box.

2. For passengers who have diabetes and must test their blood glucose levels but who do not require insulin, boarding with their lancets is acceptable as long as the lancets are capped, and as long as the lancets are brought on with the glucose meter that has the manufacturer's name embossed on the meter (i.e. One Touch meters say "One Touch," Accucheck meters say "Accucheck").

3. Glucagon is dispensed and normally kept in a pre‐printed labeled plastic container or box. We advise travelers with diabetes to keep their glucagon kits intact in the original pre‐printed, pharmaceutically labeled containers.

4. Contrary to what we were told previously, because of forgery concerns, prescriptions and letters of medical necessity will not be accepted.

5. FAA security measures apply to travel within the 50 United States only. Passengers should consult their individual air carriers for both domestic (US) and international travel regulations. Be advised that the FAA's policy and the policy of each airline are subject to change.

In the event that travelers with diabetes encounter problems boarding their flights, they should contact the FAA Grounds Security Commissioner at the airport for assistance. We recommend not packing diabetes supplies in checked baggage, as cargo hold temperatures vary greatly, and the passenger may need the supplies in flight. JDRF will continue to stay abreast of FAA policy regarding these issues. We wish all travelers safe and pleasant trips. For more information from the FAA, go to www.faa.gov or call 866.289.9673.


Flying with Diabetes Supplies This information along with other travel tips is located on the Transportation Security administration (TSA) website at http://www.tsa.gov all travelers, and particularly those who travel infrequently are encouraged to visit the section on travel tips before heir trip. Frequent flyers should review the information periodically for changes and updates. You can go directly to these tips at http://www.TSATravelTips.us You should always notify your air carrier of your special screening needs before you arrive at the airport. This should include any assistance you will need with connecting flights. You might also want to take a copy of these tips with you when you travel. If you encounter problems with the screening process, ask to speak with the TSA security supervisor. You can report problems encountered while traveling by calling the TSA Consumer Response Center toll free at 1‐866‐289‐9673. Persons with Diabetes • Notify the screener that you have diabetes and are carrying your supplies with you. The following

diabetes‐related supplies and equipment are allowed through the checkpoint once they have been screened:

Insulin and insulin loaded dispensing products, syringes, lancets, blood glucose meters, blood glucose meter test strips, alcohol swabs, meter‐testing solutions; insulin pump and insulin pump supplies (cleaning agents, batteries, plastic tubing, infusion kit, catheter, and needle); Glucagon emergency kit; Urine ketone test strips; unlimited number of used syringes when transported in Sharps disposal container or other similar hard‐surface container. Sharps disposal containers or similar hard‐surface disposal container for storing used syringes and test strips.

• Insulin in any form or dispenser must be clearly identified. • If you are concerned or uncomfortable about going through the walk‐through metal detector with

your insulin pump, notify the screener that you are wearing an insulin pump and would like a full‐body pat‐down and a visual inspection of your pump.

• Advise the screener that the insulin pump cannot be removed because it is inserted with a catheter

(needle) under the skin. • Insulin pumps and supplies must be accompanied by insulin. • Advise screeners if you are experiencing low blood sugar and are in need of medical assistance. Note on Diabetes technology: Pumps usually do not set off security alarms, nor do security officials ask you to remove them. If you do set off an alarm, show your pump and explain what it is. Your back up insulin bottle with prescription should help. Also, a CGM does not need to be turned off during a flight CGM does use some radio frequency; it is not the type that would interfere with a flight. You may leave it running during your entire flight.


Persons with Disabilities & Medical Conditions ‐ Before You Go...

• Provide advance notice to your airline or travel agent if you require assistance at the airport.

• If you require a companion or assistant to accompany you through the security checkpoint to reach your gate speak with your airline representative about obtaining a gate pass for your companion before entering the security checkpoint.

• The limit of one carry‐on and one personal item (purse briefcase or computer case) does not apply to medical supplies, equipment, and mobility aids, and/or assistive devices carried by and/or used by a person with a disability.

• Make sure all your carry‐on items; equipment, mobility aids, and devices have an identification tag attached.

• Disability‐related items permitted through the security checkpoint include:

o Wheelchairs, scooters, crutches, casts, canes, walkers, prosthetic devices, support braces, exterior medical devices

o Orthopedic shoes and appliances, augmentation devices, Braille note takers, slate and stylus

o All diabetes related equipment and supplies

Tips for the Screening Process

• If a personal search is required you may choose to remain in the public area or go to a private area for your screening. If you refuse either option you will not be able to fly.

• You should be offered a private screening before the beginning of a pat‐down inspection if the pat down will require the lifting of clothing and/or display of a covered medical device.

• You should be offered a disposable paper drape for additional privacy before the beginning of a pat down.

• You may request a private area for your personal search at any time during the screening process.

• Your companion, assistant, or family member may accompany you and assist you during a private or public screening. After providing this assistance, the companion, assistant, or family member will need to be re‐screened.

• You may ask for a chair if you need to sit down during the screening process.


UNDERSTANDING CELIAC DISEASE Studies show that celiac disease (CD) occurs in almost 1 in 10 children with diabetes. So if your child has diabetes, you should know the signs and symptoms of celiac (also known as "sprue"). Here are some answers to common questions about celiac disease and diabetes:

What Is Celiac Disease? Celiac Disease (also known as "sprue") is an allergic reaction to gluten proteins found in wheat, rye and barley. The reaction occurs in the intestine, skin, and other tissues. Common symptoms can include stomach pain, diarrhea, gas, and, in children, failure to grow and thrive. Celiac causes the body to absorb nutrients inefficiently, which sometimes leads to bone loss.

Other symptoms may include:

• Loss of appetite • Weight loss • Weakness • Depression or irritability • Anemia • Skin rash • Cramping • Unexplained low blood glucose levels

Most often, however, there are no symptoms. Celiac is diagnosed using a blood test and then confirmed with an intestinal biopsy.

Celiac causes damage to the small intestine. In the early stages of untreated celiac disease, the small intestine becomes irritated and damaged, but still functions. Problems with food absorption become apparent right away. Celiac often develops after a viral illness and the symptoms are similar to the flu, so celiac onset is often mistaken for the flu in its early stages.

Over time, the continued and repeated exposure to gluten makes the intestinal irritation worse. Problems with food absorption continue until celiac is diagnosed and treatment begins. If celiac disease goes untreated, a person can become very malnourished and literally starve to death.

How is Celiac Treated? Celiac is treated by removing all products containing gluten from the diet completely. These include primarily wheat, rye and barley. Rice, corn, and oats, are generally gluten‐free and can still be eaten.

It takes time for the gluten‐induced damage to heal, and it's the intestinal damage that causes symptoms. So introduction of even one serving of a gluten‐containing food can cause symptoms. Thus the person with celiac disease must completely remove all gluten‐containing foods from their diets entirely.

Adults who are asymptomatic often go untreated. Left untreated, over the long term celiac can cause gastrointestinal tumors. There have been a few case reports of adults who have died with a cancer of the intestine where celiac disease has been found.


How does Celiac Relate to Diabetes? Type I diabetes occurs at a rate of about 0.5% in the general population, but at a rate estimated at 5‐10% among people with celiac. Celiac is a genetic disease carried on one of the genes that causes high risk for type 1 diabetes. Thus, People with with type 1 diabetes are 20 times more likely to also have celiac disease, and vice‐versa.

Additionally, research from the Genetic and Environmental Causes of Celiac Disease (CEDAR) has shown that 10% of diabetic children and adults, 3% of their relatives and 1% of the general population have celiac disease.

Some studies have indicated that a gluten‐free diet may improve glycemic control in children with diabetes and celiac disease. However, risk for type 1 diabetes in first‐degree relatives of children with IDDM is not reduced by a gluten‐free diet.

Like type 1 diabetes, celiac disease is also more commonly found in those of Northern European extraction. No connection has been found between type 2 diabetes and celiac disease.


SCHOOL INFORMATION When your child returns to school after being diagnosed with diabetes, it is vitally important that the school is aware of their condition and knows how to deal with it. For a guide on diabetes in the school setting (including daycare and college information) go to www.jdrf.org/satrequest to get your copy of the JDRF School Advisory Toolkit for Families. Also, every family is encouraged to download a copy of helping the Student with Diabetes Succeed: A Guide for School Personnel from the website of the National Institutes of Health and the Centers for Disease Control and Prevention. If the 88‐page PDF file is too large for you to download, you can request a free copy of the document by printing the order form and faxing or mailing it to the NDEP. Go to: http://ndep.nih.gov/publications/PublicationDetail.aspx?PubId=97&redirect=true#main You can also go to www.nasn.org for more info on what is required of a school nurse, a school system and the need for 504 plans.


JDRF RESOURCES At www.jdrf.org, you will find a wide variety of resource. Click on “Publications” for books and periodicals. The following resources can be found by clicking on “Life with Diabetes” and then “Resources”. RESEARCH UPDATE Since diabetes research is such a rapidly changing area, the reader is referred to the JDRF website (www.JDRF.org), select the “research” tab. JDRF LOCAL CHAPTER INFORMATION Our volunteers and professional staff are focused on one mission: to raise funds for research. We do this through the combined efforts of our special events; Walk to Cure Diabetes, Ride to Cure Diabetes, Gala, and JDRF Golf as well as, major gifts, planned giving, third party events, committees and board work. The Chapter looks to our volunteer partners to provide their expertise, passion and working assistance in the following areas: ●Administrative Support: volunteer partners who assist the Chapter office with administrative tasks such as large mailing projects, data entry and pre‐event logistics. This assistance is on an “as need” basis and is generally supported by student and retiree groups. ●Team Captains: volunteer partners who drive our fund raising efforts for our Walk to Cure Diabetes ●Committee Members: volunteer partners who actively participated on one or more of the Chapter’s special event or executive committees. Responsibilities include, but are not limited to, strategic planning, logistics, sponsorship, budgets and proposals. Special Event Committees • Walk to Cure Diabetes • Gala • JDRF Golf • Ride to Cure Diabetes Executive Committees • Special Events • Major Gifts/Planned Giving • Strategic Planning/Finance • Government Relations • Community Outreach/Communications • Nominating • Outreach Board members: volunteers generally qualify to seek nomination to serve on the Chapter Board of Directors after actively participating on one or more of the Chapter committees for at least a year.


DIABETES EDUCATORS This information is provided to you strictly as a resource. JDRF does not evaluate or recommend specific programs, corporations, organizations, institutions, or medical care providers. Bergen County

Azadeh Ahmadi, MS, RD, CDE Ridgewood, NJ (973) 745‐0428 Judy Brewer, RN, CDE Valley Hospital Ridgewood, NJ (201) 447‐6293 Maureen Carroll, RN, CDE Rutherford, NJ (908) 307‐1105 Fay Cesarano‐Caputo Community Healthcare Network River Edge, NJ (212) 545‐2416 Linda E. Cohen, RN, APNC, BC‐ADM, CDE Diabetes Center @ HUMC Paramus, NJ (201) 968‐0585 Roni E. Finkelstein, RD, CDE Hackensack, NJ (201) 495‐9096 Sharon J. Guadagno, APRN, CDE Glen Rockl NJ (914) 309‐1492 Beverly A. Herman‐Rivera, RD, CDE Glen Rock, NJ (201) 445‐1460 Hermine Kessler, MA, MPA, MBA, RD, CDE Fort Lee, NJ (201) 461‐9279 Mona C. Lefkowitz, RN, CDE Hackensack University Medical Center Hackensack, NJ (201) 968‐0585 Cynthia Luer Valley Home Care Paramus, NJ (201) 291‐6000

Wendy Martinez, RD, CDE Clara Maass Medical Center Rutherford, NJ (973) 450‐2268 Janice Messick, RD, CDE Englewood Hospital Englewood, NJ (201) 894‐3335 Janet Post, RN, BSN, CDE Hackensack, NJ (201) 996‐5329 Rita Saltiel‐Berzen, RN, MPH, CDE,CHES Ramsey, NJ (201) 847‐5813 Leslie P. Schifrien, MS, RD, CDE Paramus, NJ (201) 291‐6000 Hilda Sepulveda, RN, BSN Holy Name Medical Center Teaneck, NJ (201) 833‐3000 Alyson J. Small, RD, CDE Englewood, NJ (201) 567‐2993 Stephanie I. Song, MS, RD, CDN, CDE Omni Health Professionals, LLC Saddle Brook, NJ (201) 310‐1752 Maria E. Soper, RN Holy Name Medical Center Teaneck, NJ (201) 833‐3298 Kathy Tigue, RD, CDE The Molly Center at HUMC Emerson, NJ (845) 598‐7204 Viris May Tinker, DRPH, CDE Fort Lee, NJ (201) 240‐3706 Jane Worthman‐Leva, RD Ridgewood, NJ (201) 819‐0563


Passaic County

Judith Brault, MS, RN, BC‐ADM, CDE St. Joseph’s Children’s Hospital Paterson, NJ (973) 754‐2473 Linda Gogates, MS, RD,CDE Wayne, NJ (973) 633‐1103 Jessica Hermansky, RD St. Joseph’s Wayne Hospital (973) 720‐6733 Mary Ann Hickey, RN, APRN, CDE St. Joseph’s Children Hospital Paterson, NJ (973) 754‐3365 Kusum Kansal, RD, CDE Paterson, NJ (973) 754‐2480 Elizabeth A. Lesnevich, MA, RD, CDE Chilton Memorial Hospita; Pompton Plains, NJ Patricia Murray DiPietro, RN, BSN, CDE St. Joseph’s Wayne Hospital Wayne, NJ Mary O’Connor, RN, CDE Englewood Hospital Clifton, NJ Dorothy Ozurumba, RN, NP,BC‐ADM,CDE Paterson, NJ Mary Schneider, RN,BSN,CDE Pompton Lakes, NJ Alice Thomas, RD Paterson, NJ Donna J. Yannacone, MS, RD, CDE Clifton, NJ


Rockland County Karen M. Curley‐Frustaci, MS, RD, CDN, CDE, FADA Orangeburg, NY (845) 359‐8739 Michael A. Gibney, RN, MA, CS, CDE Chestnut Ridge, NY Carol Guarino Suffern, NY Mary P. Loftus, RN, CDE Nyack, NY Germaine O’Kane, RN, MS, CDE Thiells, NY Hanna S. Raice, MS, RD, CDE Monsey, NY Irina Sigal, RN, BSN, CDE New City, NY Linda C. Suarez, MS, RN, CDE Nyack, NY

Sussex County

Judy Beardsley, MA, RN, CDE Newton Hospital Newton, NJ (973) 579‐8666 Rosamond Dee, RN, CDE Newton Memorial Hospital Newton, NJ Yvonne Quinones Syto, RD, CDE, IBCLC Stanhope, NJ

Warren County

Mildred Mary Bentler, MA, RD, CSP Hackettstown, NJ (973) 322‐7595 Donna Kendrick, RN, BSN, CDE Hackettstown Regional Medical Center Hackettstown, NJ (908) 850‐6937


LOCAL ENDROCRINOLOGISTS SERVING TYPE 1 DIABETES This information is provided to you strictly as a resource; JDRF does not evaluate or recommend specific programs, corporations, organizations, institutions, or medical care providers.

PEDIATRIC ENDOCRONOLOGISTS Bergen/Passaic County Dr. Javier Eisenberg & Dr. Valerie Auyeung Hackensack University Medical Center – Molly Diabetes Center 30 Prospect Avenue, Hackensack, NJ 07601 201‐996‐5329 Dr. Paul Pelavin & Dr. Ting‐Wen Lee Valley Hospital – Pediatric Endocrinology 579 Franklin Turnpike, Ridgewood, NJ 07450 201‐447‐8182 Dr. Vijaya Prasad & Dr. Katerina Harwood St. Joseph’s Children’s Hospital – Endocrinology & Diabetes Division 703 Main Street, Paterson, NJ 07503 973‐754‐2541 Rockland County Dr. Moshe Weiss Nyack Hospital – Pediatric Endocrinology 258 Old Nyack Tpk. Spring Valley, NY 10977 845‐321‐8777 Outside of our chapter area: Naomi Berrie Diabetes Center – Columbia University Medical Center Russ Berrie Medical Science Pavilion

1150 St. Nicholas Avenue (at 168th Street) New York, NY 10032 Phone: (212) 851‐5494 Diabetes Center: Goryeb Children's Hospital at Morristown Memorial 100 Madison Avenue Morristown, NJ 07962 Phone: 973‐971‐4340



ADULT ENDOCRONOLOGISTS ** Please note that not all doctors have been contacted on this list by JDRF. Some may no longer practice diabetes care, however all are listed as adult endocrinologists. Please contact the doctor you would like to visit and inquire about their care and services.**

Bergen and Passaic County Dr. Natalia Anchipolovsky 77 Prospect Ave Hackensack, NJ 07601 (201)‐820‐3596 Dr. Richard Berkowitz 2025 Hamburg Turnpike Suite D Wayne, NJ 07470‐6250 (973)‐839‐5070 Dr. Jerome Bodian 245 Engle Street Englewood, NJ 07631‐2410 (201)‐567‐0076 Dr. Rhoda Cobin 75 North Maple Avenue Suite 202 Ridgewood, NJ 07450 (201)‐444‐5552 Dr. Janna Cohen‐Lehman 229 Engle Street Englewood, NJ 7631 201‐567‐3474 Dr. Allison Froehlich 265 Ackerman Avenue Suite 101 Ridgewood, NJ 7450 201‐444‐4363 Dr. Michael Goldman 600 East Palisade Ave. Englewood Cliffs, NJ 07632 (201) ‐568‐1108 Dr Peter Hannoush 380 Sutton Avenue Hackensack, NJ 7601 201‐488‐8766 Dr. Martin Hochstein 1 Sears Drive Paramus, NJ 7652 201‐261‐2560 Dr. Mohammad Ibrahim 871 McBride Avenue West Paterson, NJ 07424 (973)‐569‐4488

Dr. Josephine Jasper 829 Allwood Road Clifton, NJ 70212 973‐777‐0900 Dr. Merab Joseph 968 River Road Suite 200 Edgewater, NJ 7020 201‐854‐4726 Dr. Adam Kelman 75 North Maple Avenue Suite 202 Ridgewood, NJ 07450 (201)‐444‐5552 Dr. Saleh Khaddash 40 Union Ave. Clifton, NJ 07011 (973)‐546‐3355 Dr. Lester Levine Old Hook Medical Associates LLC 452 Old Hook Road Emerson, NJ 7630 201‐666‐3900 Dr. Yair Litvin 158 Linwood Plaza Suite 318 Fort Lee, NJ 07024‐3704 (201)‐461‐0585 Dr. Hyesoo Lowe‐Shin 229 Engle Street Englewood, NJ 7631 201‐567‐3674 Dr. Michael Magnotti 870 Palisade Ave Teaneck, NJ 7666 201‐836‐5655 Dr. Pudchong Nil 561 East 28th Street Paterson, NJ 07504 (973)‐278‐4672 Dr. Manizheh Panah 516 Hamburg Tpk., Suite 11

Dr. James Ping‐Hsun Leu 57 Willowbrook Blvd Wayne, NJ 07470 (973)‐754‐4060 Dr. Pamela Pinto 699 William Bliss Drive New Milford, NJ 7646 201‐787‐3311 Dr. Maria Angela Rodino 219 Old Hook Road Suite 2C Westwood, NJ 07675 (201)‐722‐0600 Dr. Atara Schultz 870 Palisade Ave Teaneck, NJ 7666 201‐836‐5655 Dr. Joseph Schwartz 229 Engle Street Englewood, NJ 7631 201‐567‐3674 Dr. Mark Singer 7 Roberts Road Englewood Cliffs, NJ 7632 201‐567‐7704 Dr. Jack Tohme 265 Ackerman Avenue Ste 101 Ridgewood, NJ 7450 201‐444‐4363 Dr. Robert Wehmann P.O. Box 65 Hillsdale, NJ 7642 201‐666‐1400 Dr. Mark Weisen 870 Palisade Ave Teaneck, NJ 07666 (201)‐836‐5655 Dr. Dima Yeshou 230 E. Ridgewood Ave. Bldg. 6 2nd Floor Paramus, NJ 07652 (201)‐225‐4700 Wayne, NJ 07470

(973)‐790‐0006



ADULT ENDOCRONOLOGISTS ** Please note that not all doctors have been contacted on this list by JDRF. Some may no longer practice diabetes care, however all are listed as adult endocrinologists. Please contact the doctor you would like to visit and inquire about their care and services.**

Rockland County Dr. Rosario Velasco 120 Harwood Drive Tappan, NY 10983 914‐364‐3130 Dr. Yuriy Gurevich 156 Rt. 59 Unit C‐1 Suffern, NY 10901 845‐357‐3838 Dr. Jonathan Schlosser 156 Rt. 59 Unit C‐1 Suffern, NY 10901 845‐357‐3838 Dr. Alan Dresner 2 Crosfield Avenue Suite 204 West Nyack, NY 10994 845‐358‐6266 Dr. Nick DiBitteto Sussex County Medical Associate 123 Newton‐Sparta Road Newton, NJ 07860 973‐579‐6300

Dr. Michael Aronwald 222 Route 59 Ste 201 Suffern, NY 10901 845‐357‐3838 Dr. Carla Iudica‐Souza 5 Medical Park Drive Pomona, NY 10970 845‐362‐3111 Dr. Barry Lifschitz 5 Medical Park Drive Pomona, NY 10970 845‐362‐3111 Dr. Deborah Raice 5 Medical Park Drive Pomona, NY 10970 845‐362‐3111 Sussex/Warren County Dr. Sameer Stas Sussex County Medical Associate 123 Newton‐Sparta Road Newton, NJ 07860 973‐579‐6300

Dr. Don Zwickler 5 Medical Park Drive Pomona, NY 10970 845‐362‐3111 Dr. Anna Chernov Rockland Endocrinology 275 North Middletown Road, Suite 1H Pearl River, NY 10965 845‐620‐0220


PSYCHOLOGICAL SERVICES This information is provided to you strictly as a resource; JDRF does not evaluate or recommend specific programs, corporations, organizations, institutions, or medical care provider.

LOCAL PSYCHOSOCIAL PROFESSIONALS (Counselors, Social Workers, Family Therapist, etc.) SERVING THE TYPE 1/CHRONIC ILLNESS POPULATION IN CHAPTER AREA.

BERGEN COUNTY

County Mental Health Board Bergen County Mental Health Board 327 Ridgewood Avenue Paramus, NJ 07652 (201) 634‐2750

Intensive Family Support Services Comprehensive Behavioral Healthcare, Inc. 395 Main Street Hackensack, NJ 07601 (201) 646‐0333 Outpatient Comprehensive Behavioral Healthcare, Inc. 395 Main Street Hackensack, NJ 07601 (201) 646‐0333 Outpatient Care Plus NJ 610 Valley Health Plaza Paramus, NJ 07652 (201) 265‐8200 Outpatient Vantage Health System 2 Park Avenue Dumont, NJ 07628 (201) 385‐4400

Partial Care West Bergen Mental Health Center 120 Chestnut Street Ridgewood, NJ 07450 (201) 444‐3550

Outpatient Vantage Health System 93 West Palisade Englewood, NJ 07631 (201) 567‐0500 Outpatient Comprehensive Behavioral Healthcare, Inc. 516 Valley Brook Avenue Lyndhurst, NJ 07071 (201) 935‐3322 Outpatient West Bergen Mental Health Center 120 Chestnut Street Ridgewood, NJ 07450 (201) 444‐3550

PRIMARY SCREENING CENTER for BERGEN Care Plus NJ @ Bergen Regional Medical Center 230 East Ridgewood Avenue Paramus, NJ 07652 HOTLINE: (201) 262‐4357

PASSAIC COUNTY

County Mental Health Board Passaic County Mental Health Board 401 Grand Street, 5th Floor Paterson, NJ 07503 (973) 225‐3700

Emergency Services ‐ Affiliated w/Screening Center St. Joseph's Regional Medical Center 703 Main Street Paterson, NJ 07503 HOTLINE: (973) 754‐2230

Integrated Case Management Services St. Mary's Hospital Behavioral Health Services 23 Colfax Avenue Pompton Lakes, NJ 07442 (973) 616‐8981 Intensive Family Support Services Mental Health Association of Passaic County 404 Clifton Avenue Clifton, NJ 07011 (973) 478‐4444 Outpatient Mental Health Clinic of Passaic 1451 Van Houten Avenue Clifton, NJ 07013 (973) 473‐2775 Outpatient SERV Centers of NJ 777 Bloomfield Ave., Suite B Clifton, NJ 07012‐1248 (973) 594‐0125


PASSAIC COUNTY CONTINUED

Intensive Outpatient Treatment and Support Services St. Mary's Hospital Seton Center 530 Main Avenue Passaic, NJ 07055 (973) 470‐3100 (973) 955‐3111 (after hours) (973) 471‐6907 (weekends)

Outpatient New Bridge Services, Inc. 105 Hamburg Turnpike Pompton Lakes, NJ 07442 (973) 831‐0613 Outpatient New Bridge Services, Inc. 1801 Greenwood Lake Turnpike West Milford, NJ 07421 (973) 728‐3938 Outpatient St. Joseph's Regional Medical Ctr. 56 Hamilton Street Paterson, NJ 07505 (973) 754‐4750 or (973) 754‐4766

PRIMARY SCREENING CENTER for PASSAIC St. Joseph's Regional Medical Center 646 Broadway Paterson, NJ 07514 HOTLINE: (973) 684‐7792

Program of Assertive Community Treatment (PACT) Bridgeway Rehabilitation, Inc. 13 Fairfield Avenue Little Falls, NJ 07424 (973) 638‐1120 (973) 638‐1113

SUSSEX COUNTY

County Mental Health Board Sussex County Mental Health Board 135 Morris Turnpike Newton, NJ 07860 (973) 948‐6000 Integrated Case Management Services (ICMS) Bridgeway Sussex Sparta Business Campus 376 Route 15 Sparta, NJ 07871 (973) 579‐8670 Outpatient Newton Memorial Hospital 175 High Street Newton, NJ 07860 (973) 383‐1553 Intensive Family Support Services St. Clare's Behavioral Health 20 Walnut Street Sussex, NJ 07461 (973) 702‐2741 PRIMARY SCREENING CENTER for SUSSEX Newton Memorial Hospital 175 High Street Newton, NJ 07860 HOTLINE: (973) 383‐0973

WARREN COUNTY

County Mental Health Board Warren County Mental Health Board 202 Mansfield Street Belvidere, NJ 07823 (908) 475‐6330

Integrated Case Management Services Easter Seal Society of NJ 2083 Route 57 Washington, NJ 07882 (908) 689‐6600 Outpatient Family Guidance Center of Warren County 492 Route 57W Washington, NJ 07882 (908) 689‐1000

PRIMARY SCREENING CENTER for WARREN Family Guidance Center 370 Memorial Parkway Phillipsburg , NJ 08865 HOTLINE: (908) 454‐5141

Intensive Family Support Services Family Guidance Center of Warren County 492 Route 57W Washington, NJ 07882 (908) 689‐1000 Intensive Outpatient Treatment and Support Services Family Guidance of Warren County 370 Memorial Parkway Phillipsburg, NJ 08865 (908) 454‐5475 or (908) 454‐4470, ext. 332 or 333 Program of Assertive Community Treatment (PACT) Bridgeway Rehabilitation, Inc. Star Plaza, Suite 11 West Church Street Washington, NJ 07882 (908) 835‐8660


SUPPORT GROUPS FOR PARENTS & CHILDREN JDRF Support Programs: JDRF Coffee Program – Support Program for Families and Children Living with Type 1 Diabetes JDRF Diabuddies Support Group – A Playgroup for those living with Diabetes ages 0‐12 yrs JDRF Adult Type 1 Support Group – Monthly Support Group for Adults living with Type 1 Diabetes Hackensack University Medical Center – Molly Diabetes “After School with Molly’s Support Group for Families, Children and Teens” (Hackensack, NJ) Parents and their families participate in no‐cost education and support groups in our “After School at Molly’s” program. This unique program provides valuable information and support to children and their families within a fun and positive atmosphere. Families participate in lectures that include practical tools for diabetes management, fitness, and understanding family dynamics. Children and parents also connect with other families affected by diabetes, and have opportunities to participate in social events and Molly holiday parties. Valley Hospital Support Group for those living with Type 1 Diabetes (Ridgewood, NJ) This group meets on the second Tuesday of the month (excluding July and August) at 7:00 p.m. at the Kraft Center, 15 Essex Road, Paramus. The support group is open to children with diabetes under age 18 and their families. Siblings are welcome. Every month there is a planned speaker or activity. Learn more about diabetes and meet new friends! For more information, please call 201‐291‐6000, ext. 7080, or e‐mail [email protected].


JDRF MEMBERSHIP INFORMATION Your support of JDRF is greatly appreciated. The Juvenile Diabetes Research Foundation (JDRF) provides 86 cents of every dollar to research and education about research. By becoming a Member of JDRF you are helping to find a cure for diabetes and its complications. We hope you'll take the time to find out more about JDRF‐funded diabetes research by visiting the research portion of our web site. JDRF is an accredited 501(c)(3) nonprofit agency; all donations (including membership donations) are tax deductible. A receipt will be provided via e‐mail. Additionally, donations of $250 or more will receive a letter of acknowledgment. Benefits of Membership A JDRF Membership is accompanied by a one‐year subscription to Countdown Magazine and its accompanying Countdown For Kids, and various other premiums. To register on‐line to become a member, go to the JDRF website (www.JDRF.org), select the “support jdrf” tab, become a member. Or call JDRF (800) 533‐CURE (2873). PRINT MATERIALS A number of JDRF Educational Brochures contain information that is useful for teachers, nurses, and administrative staff at a school attended by a child with diabetes. Parents and teachers who would like additional information or have other concerns about students with diabetes are invited to contact JDRF Public Information: Phone – 800.533.CURE E‐Mail – [email protected] BOOKS Through our line of books, you can help raise more money to find a cure and learn to manage your diabetes. 20 percent discount for JDRF Members only! Call 1‐800‐533‐CURE to place your order. To order online see the JDRF website (www.JDRF.org), select the “publications” tab.

Produced by the JDRF National Outreach Department and updated/customized by your local chapter of the JDRF. We make every effort to keep this document as up to date if possible. If you find any information is incorrect or outdated, please notify your local JDRF chapter or the National Outreach department at [email protected]. Thank you!

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