Outcomes in social communication intervention: the case for … · case for mechanism...
Transcript of Outcomes in social communication intervention: the case for … · case for mechanism...
Outcomes in social communication intervention: the case for mechanism identification and individualization
of therapy
Dr Catherine Adams University of Limerick
3 May 2017
Outline
• Social Communication Intervention programme and project
• Individualization of intervention
• Outcomes within complex intervention evaluations
• Outcome and process evaluation in our new research
• Mechanism evaluation in the context of evidence generation
Main pragmatic and language impairment features
observed in Social Communication Disorcer From Adams C (2013) Pragmatic language impairment in F. Volkmar (Ed.) Encyclopedia of Autism,
Springer: New York.
Pragmatics
Responsivity
Initiations
Turn-taking
Verbosity
Topic
Presupposition
Reference
Language impairment
Non-literal language
Inference
Word meaning
Narrative
+ Mild autism
features
S o c i a l C o m m u n i c a t i o n I n t e r v e n t i o n P r o g r a m m e a s p e c i a l i s t c o m m u n i c a t i o n i n t e r v e n t i o n
Jacqueline Gaile
Catherine Adams Aimed at children aged 6-12 years
Assessment Process
(2-3 hours)
Intervention Mapping (1-2 hours)
Phase 1
Intervention (4-6 hours)
Phase 2 Intervention (11-14 hours)
Finish SCIP Intervention
Standardised formal tests Non-standard observation Carer and teacher checklists
Identification of core skills Phase 1 needs Identification of Phase 2 needs: SUSI,
PRAG, LP
Direct Phase 1 intervention (core skills) Phase 2 individualised planning
Direct Phase 2 intervention (main intervention phase)
Carer / teacher training Phase 3 planning Personalisation and generalisation of
therapy Carer / teacher further liaison and
training Agree: monitoring schedule and further
SCIP intervention
Phase 3 Intervention (11-14 hours)
Assessment (2-3 hours)
Functional measures: Carer checklist Teacher checklist
Standardised assessments
Non-standardised formal and observational measures
Extract gaps in knowledge, performance and impressions of functioning
Extract concerns with peer relationships, play and social situations and priorities for intervention
Evaluate the problematic situation to extract key skills required to meet ‘desirable outcomes’
ASSESSMENT SUMMARY
Write a summary of strengths / needs
Begin to identify priority areas for intervention
Individualised intervention objectives for Phase 2
Phase 1 Intervention
Assessment to Intervention Mapping
CM Comprehension Monitoring
USC Introduction to Understanding Social Context
MPA Basic Metapragmatic Awareness
BN Basic Narrative
EM Introduction to Emotions in Context
FR Introduction to Friendship
• SCIP has established route to Phase 2 intervention
assessment intervention goals
• Prescribed manual of intervention activities all specified in the manual
Phase 2 intervention
Assessment to Intervention Mapping
PHASE 2 Intervention Components
SUSI
PRAG
LP
Pragmatics
PRAG 1: Conversation and metapragmatic skills
PRAG 2: Understanding information requirements
PRAG 3: Improving turn-talking skills
PRAG 4: Understanding and managing topic in conversation
PRAG 5: Understanding and improving discourse style
Pragmatics
PRAG 1: Conversation and metapragmatic skills
PRAG 2: Understanding information requirements
PRAG 3: Improving turn-talking skills
PRAG 4: Understanding and managing topic in conversation
PRAG 5: Understanding and improving discourse style
Conversational flow is problematic with frequent clashes or misinterpretations
Shows lack of reciprocity in conversation
Ignores speaker and / or does not look at person he is speaking to
CCC-2: Ignores conversation overtures from others
Pragmatics
PRAG 1: Conversation and metapragmatic skills
PRAG 2: Understanding information requirements
PRAG 3: Improving turn-talking skills
PRAG 4: Understanding and managing topic in conversation
PRAG 5: Understanding and improving discourse style
Includes excess information
Referents are sometimes unclear
Talk is over-precise
Talks about things either not established or already known
Pragmatics
PRAG 1: Conversation and metapragmatic skills
PRAG 2: Understanding information requirements
PRAG 3: Improving turn-talking skills
PRAG 4: Understanding and managing topic in conversation
PRAG 5: Understanding and improving discourse style
Lack of reciprocity in conversation
Frequent clashes during conversation
Does not take up his turn in conversation
Difficult to interrupt the child’s flow of talk in conversation
Pragmatics
PRAG 1: Conversation and metapragmatic skills
PRAG 2: Understanding information requirements
PRAG 3: Improving turn-talking skills
PRAG 4: Understanding and managing topic in conversation
PRAG 5: Understanding and improving discourse style
Frequently changes topic in conversation
Does not signal topic change
Dominates conversation
CCC-2: talks repetitively about things no-one is interested in
Talks about lists of things he has memorised; Moves the conversation to a favourite topic even though other don’t seem interested
Pragmatics
PRAG 1: Conversation and metapragmatic skills
PRAG 2: Understanding information requirements
PRAG 3: Improving turn-talking skills
PRAG 4: Understanding and managing topic in conversation
PRAG 5: Understanding and improving discourse style
Can appear overly familiar in conversation
Talks to unfamiliar people too readily
Cannot change style to match different types of interactions
CCC-2: Stands too close to people when talking to them
PHASE 3
Uses real-life problematic situations reported by • parents / carers • teachers
Unlike Phase 1 and Phase 2 (where all activities are available and prescribed), Phase 3 has no prescribed therapy content
Creates the context for personalised intervention
Phase 3: Transfer knowledge & skills to everyday experiences
Individualization of therapy via Assessment to Intervention Mapping
Heterogeneous presentation
Comprehensive set of therapy targets and
activities
Case study Joe
Examples of assessment triggers
Examples of prioritisation influences
Examples of parent priority
Completed Phase 2 plan
Assessment to intervention mapping
Assessment at baseline – Joe
10 years 4 months
Year 5 mainstream school
TA support 5 hours / week
Lives at home with parents and two older sisters
Autism spectrum disorder preschool
Overview SCIP pre-screening checklist 4/5 features of PLI/SCD
Children’s Communication Checklist CCC-2 score
Cut-off for DLD ≤55
GCC = 31
SIDC = -16
Ravens CPM
centile midpoint
75
Test for Reception of Grammar TROG-2 standard score
88
Social Communication Questionnaire
Autism spectrum disorder
CELF Core Language Score 91
Joe’s language scores (1)
CELF-4 Standard scores Time 1
Concepts & Following Directions 7
Word Classes Receptive 8
Receptive Language Score 85
Recalling sentences 10
Formulated Sentences 10
Word Classes Expressive 7
Expressive Language Score 95
Understanding spoken paragraphs 8
Core Language Score 91
• Clip 1 and 3
SCIP PHASE 2 PLANNING SUMMARY AND PRIORITIES Joe
SUSI PRAG LP
SUSI 1 Understanding social context cues in interactions
PRAG 1 Conversation and metapragmatic skills
LP 1 Vocabulary and word knowledge
?
SUSI 2 Understanding emotion cues in interactions
PRAG 2 Understanding information requirements
LP 2 Improving narrative construction
√
SUSI 3 Understanding and practising flexibility
PRAG 3 Improving turn-taking skills
LP 3 Non-literal language
SUSI 4 Understanding thoughts and intentions of others
PRAG 4 Understanding and managing topic in conversation
LP 4 Discourse comprehension
√
SUSI 5 Understanding friendship
PRAG 5 Understanding and improving discourse style
LP 5 Enhanced comprehension monitoring
√
Mapping CCC2 to SCIP Phase 2 content
To carry out this aspect of mapping you would need:
A SCIP Form
CCC2 data for Joe
CCC2 to intervention mapping guidance (in manual)
A knowledge of the therapy content of the manual to identify potential SCIP Sections for inclusion in Phase 2 intervention
CCC-2 to PRAG intervention mapping Items identified by parents on CCC-2 PRAGMATICS Sections
31. Ignores conversational overtures from others
PRAG 1 Conversation and metapragmatic skills
37. Tells people things they already know 42. Includes over-precise information 48. Doesn’t explain what he is talking about to someone who doesn’t share his experiences
PRAG 2 Understanding information requirements
5. Talks repetitively about things no-one is interested in (2) 26. Moves the conversation to a favourite topic even though others don’t seem interested 35. It’s difficult to stop him from talking
PRAG 4 Managing topic in conversation
23. Pronounces words in over-precise manner 25. Can be hard to tell if he is talking about fantasy or reality 49. Uses unusual words, or more adult-sounding phrases
PRAG 5 Understanding and improving discourse style
• Reciprocity/Turn-taking – Is responsive but does not initiate; minimal answers given,
conversation is ‘hard work’
• Taking account of listener knowledge – Too much and too little information
• Verbosity – stereotyped or learned phrases – you don’t want anybody to be sick
• Topic Management – difficulties with topic maintenance
• Discourse Style – Possibly unaware of intonation - yeah, of course
• Response problems – overly literal comprehension – it comes from the kitchen
TOPICC to intervention mapping
PRAG 1
PRAG 5
LP 3
PRAG 4
PRAG 2 LP 2 LP 1
SCIP PHASE 2 PLANNING SUMMARY AND PRIORITIES Joe
SUSI PRAG LP
SUSI 1 Understanding social context cues in interactions
√
PRAG 1 Conversation and metapragmatic skills
√
LP 1 Vocabulary and word knowledge
X
SUSI 2 Understanding emotion cues in interactions
√
PRAG 2 Understanding information requirements
√ LP 2 Improving narrative construction
√
SUSI 3 Understanding and practising flexibility
√
PRAG 3 Improving turn-taking skills
X LP 3 Non-literal language
√
SUSI 4 Understanding thoughts and intentions of others
√ PRAG 4 Understanding and managing topic in conversation
√
LP 4 Discourse comprehension
√
SUSI 5 Understanding friendship
√
PRAG 5 Understanding and improving discourse style
√
LP 5 Enhanced comprehension monitoring
√
The Social Communication
Intervention Programme (SCIP) Trial A randomised control trial of intervention for children with
pragmatic language impairment
Catherine Adams and Elaine Lockton
Funded by the Nuffield Foundation
RCT (N=88) of effectiveness of SLT for children with PLI /SCD (aged 6-11)
International Journal of Language and Communication Disorders: Vol 47:3 (2012)
& Vol 48:1 (2013)
Outstanding issues from school-based trial
Heterogeneous population
Application in real practice
Complex intervention
Development of clinical trial?
Complex intervention definition
Number of interacting components within the experimental and control interventions
Degree of flexibility or tailoring of the intervention permitted
A single primary outcome may not make best use of the data; a range of measures will be needed
The intervention may work better if a specified degree of adaptation to local settings is allowed for in the protocol
Craig et al (2008) BMJ 337
SCIP 2 NIHR Research for Patient Benefit feasibility
study: Aims*
study and refine aspects of the intervention procedure and outcome measurement
refine the characteristics of the proposed modified goal attainment scale (GAS) primary outcome measure for effective use with the target population
explore practitioner views on training needs and acceptance of novel techniques
explore acceptability of the intervention (including training/support) to participants and their families
*Co-investigators: Richard Emsley, Janet Baxendale, Hazel Roddam
RfPB feasibility study work schedule
Work package 1 Survey
Work package 2 N of 1 parallel studies
Work package 3 Qualitative study plus Delphi consensus study
• Practitioner survey (England) N = 73
• NHS respondents (78%)
• non-NHS practitioners (22%)
Number of resources used for children with Social Communication Disorder = 64
Number of different outcome measures used for capturing progress in social communication
> 35
Large variation in service delivery
Work package 2
24 cases with NHS/independent or school-based speech and language therapists
Receive manual and training
Map assessment findings to individualized treatment programme with research speech and language therapist (Jacqueline Gaile)
Set goals based on parent targets
Goal attainment scales set at time 1
Secondary outcomes: SLDT, TOPICC, Parent questionnaire
Revisited and rated by parent and therapist at time 2 (within-subject design)
Development of evidence in RfPB study
Outcome evaluation
method
Process evaluation
method
Mechanism of intervention
Process evaluation Implementing therapy in real practice
Practitioner engagement:
Monitoring adaptations and responses via audio
diaries
Interviews with purposive sample of practitioners/service
managers and parents/carers
Structured picture –based therapy
discussion with children at end of intervention
Exploratory qualitative approach
Mechanisms of intervention?
A mechanism of change shows a causal relation
between an intervention and an outcome
The study of mechanisms requires the investigators
to propose the specific basis for change
(Kazdin et al 2008)
Mechanisms of intervention? Future steps
In order to ensure that therapy is individualised according to a child’s needs, it is essential to have a clear understanding of how therapy proposes to work
How intermediate outcomes are currently measured in practice
and how they are selected - based on the underlying
mechanisms of change associated with an intervention
Improving knowledge of intervention effects
Improving guidelines for intervention
SCIP 2 Additional information
www.scip2.bmh.manchester.ac.uk
www.napierhillpress.co.uk
• @napierhillpress #SCIPManual
• @JacquelineGaile
• @Cathy_adams1
Laura Clitheroe
Jacqueline Gaile