Open Membership Meeting and Leadership Forum

June 5, 2011

St. Paul, Minnesota

June 5, 2011St. Paul, Minnesota

Margaret A. Nygren, EdD, Executive Director

AAIDD Open Membership Meeting and Leadership

Forum

A Couple of Things About AAIDD

Mission• AAIDD promotes progressive policies, sound research, effective practices, and universal

human rights for people with intellectual and developmental disabilities.

Goals• Enhance the capacity of professionals who work with individuals with intellectual and

developmental disabilities.

• Participate in the development of a society that fully includes individuals with intellectual and developmental disabilities.

• Build an effective, responsive, well-managed, responsibly-governed, and sustainable organization.

Structure

• AAIDD is a membership organization

• Governed by a Board of Directors elected by the membership

• Standing and ad-hoc committees of the Board

• Supported by 12 staff, a number of contractors, and numerous volunteer leaders

Components are:• Geographical units, of

regional, state, provincial, and student Chapters.

• Professional groups, including divisions, action groups, SIGs, and task forces

• Fellows

Major FunctionsThe major functions of the Association are to

• Support its members’ leadership in activities that affect people with intellectual and developmental disabilities.

• Publish and promote cutting edge research, tools, and materials that inform policy and practice.

• Develop and implement educational opportunities for professionals, policy makers, and others; and

• Engage in activities that promote progressive public policy.

THE WORK OF THE ASSOCIATION Reviewing the past 12 months and projecting into the future on

Membership!

Activities over the past 12 months

• Change in membership structure to allow differing benefit packages at costs tied to the package

• Introduction of 2 new member benefits: – weekly Member Update eblast– monthly Field Notes

• Investment in a new association management software platform

• Staffing changes to support membership goals

Membership!

Current AAIDD Membership by Type

Type %Basic ($75) 34%Classic ($125) 10%Standard ($175) 36%Premium ($250) 5%International Electronic ($50) 2%Emeritus 13%Total: 100%

Students receive a 20% discount on any membership category

Planned activities for the coming year

• Build membership through targeted outreach– regional targets– partnership targets– Professional interest targets

• Development of new member benefits: – additional monthly electronic publication– discounts on new educational offerings

• Build partnerships with other national organizations that advance membership goals

• Delegations– Cuba in 2011– Brazil in 2012

Membership!

Education

Activities over the past 12 months

• Held webinars at about the rate of 1 per month on a variety of topics

• Provided 2-day trainings on Positive Behavioral Supports and Supervisor Training

• Launched new online learning program on the Essential Learning platform

• Developed 2011 conference

Education

Planned activities for the coming year

• Build the content and capacity of the online learning platform

• Continue to host webinars at least monthly• Continue our current educational partnership with The

Arc through its Autism NOW project• Provide a full day symposium at the 2012 IASSID

conference• Develop 2012 AAIDD conference• Co-sponsor the Coleman Institute and the ANCOR

Technology conferences

Education

Publications

Activities over the past 12 months

• Maintained strong journals program

• Managed international translations

and publishing program

• Released two titles

– End-of -Life Care for Children and Adults

with Intellectual and Developmental Disabilities,

edited by Sandra Friedman and David Helm

– Supervisor Training Curriculum and

Trainee Guide by Dennis Reid, Marsha Parsons,

and Carolyn Green

Publications

Planned activities for the coming year

• Journals– Transition to new editor of IDD– Transition to Highwire platform for journals access

• BooksReleased at this conference!

– Forging a Federal/State Partnership by Robert Gettings

– 2011 update to the State of the Statesby David Braddock et al

Publications

Assessment Tools

Activities over the past 12 months

• Supports Intensity Scale (SIS)– Staffing changes to support program goals– Refresh of the tool underway– SIS for Children being normed

• Diagnostic Adaptive Behavior Scale (DABS) – Tool developed, final testing underway

Assessment

Tools

In Use State Wide

In Use at the County or Provider Level

Under Consideration for State Wide Use

SIS® in North America

SIS® Worldwide

In Use State WideIn Use at the County or Provider Level

Under Consideration for State Wide Use

Andorra Canada France Japan Spain

Argentina Chile Iceland Mexico Taiwan

Australia Columbia Ireland Netherlands United States

Belgium China Israel Portugal

BrazilCzech Republic Italy South Korea

Planned activities for the coming year

• Supports Intensity Scale (SIS)– Release of refreshed SIS in late 2012– Release of SIS for Children in 2013 – Ongoing translation, training, and state adoption

efforts• Diagnostic Adaptive Behavior Scale (DABS)

– Release in early 2012

Assessment

Tools

Policy

Activities over the past 12 months

• Active member of the Consortium for Citizens with Disabilities (CCD)

• Co-sponsored the annual Disability Policy Seminar with 5 other national organizations

• Submitted Amicus briefs on Atkins cases• Contributed to joint policy statements with The Arc• Submitted comments on Rosa’s law legislation, plans to

add a “wandering” code to the ICD-9-CM, others• Contributed to the popular press on disability issues

Policy

Environmental Health Initiative• Chemical Policy Reform

– Legislative reform efforts included sign on letters, participation in Congressional hearings and briefings, and commentary on draft legislation

– Executive branch efforts included meetings with key federal staff to advance reform efforts and commentary on proposed rules.

• Education and Outreach– Hosted 4 Research and Science webinars and 6 Policy webinars (archived

on the website)– Ongoing work with other national and state organizations to advance

reform goals– Co-hosted Health Advocacy meeting in DC in January– Contributed to the popular press on issues of environmental health– Holding a post conference workshop on the science, policy, and

economics of environmental exposures and the health of people with disabilities.

Planned activities for the coming year

• Continue all ongoing policy activities• Continue to provide comments on draft

legislation, proposed rule making, and other federal activities that affect people with intellectual disabilities and their families

Policy

Finances

2010 REVENUE, GAINS, AND OTHER SUPPORT$3,433,120

Sales of Books & Assessment Tools

$1,346,833

Journal Subscriptions

$707,723

Membership Dues

$497,262(14%)Fees

$411,937Grants, Awards,

& Donations $245,117

Investment Income $122,737

Reprints & Royalties

$62,144

Miscellaneous$39,367

2010 EXPENSES$3,220,157

Salaries & Benefits$1,109,596

Depreciation$35,990

Fees for Services$656,106

Information Technology $478,498

Office Expenses$378,607Occupancy

$309,632

Travel$134,815

Conferences& Meetings

$72,248

Inventory Adjustments

$5,959

Insurance$28,031

Advertising$10,174

Taxes$491

Planned activities for the coming year

• We will – Adhere to a conservative budget for 2011 and plan

for modest growth in 2012– Invest in activities that support goals for membership,

education, publications, assessments, and policy– Seek out new funding sources through grants and

partnerships

Finances

UPCOMING CONFERENCES & EVENTS

Alliance for Full Participation November 17-18, 2011

(Washington, DC)

AAIDD Cuba Delegation October 16-21, 2011

(Havana and TBD)

Disability Policy Seminar April 23-26, 2012

(Washington, DC)

AAIDD Annual Meeting June 2012

(Charlotte, NC)

IASSID World Congress July 9-14, 2012

(Halifax, Nova Scotia)

AAIDD Brazil Delegation October 20-28, 2012

(Sao Paulo & Rio de Janeiro)

QUESTIONS AND COMMENTS