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Malaysian occupational therapists’ practiceswith children and adolescents with autismspectrum disorder

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  • Research Paper

    Malaysian occupational therapists practiceswith children and adolescents with autismspectrum disorder

    Masne Kadar1, Rachael McDonald2 and Primrose Lentin2

    AbstractIntroduction: Occupational therapy is one of the health care professions that provides assessments and interventions for childrenand adolescents with autism spectrum disorder. However, to date, there is no information available regarding occupational therapypractices in Malaysia for this population. The purpose of this study is to describe the occupational therapy services for children andadolescents with autism spectrum disorder in Malaysia, including the perceived training needs of practitioners.

    Method: We surveyed the registered members of the Malaysian Occupational Therapy Association using a mailed questionnaire.Results: A response rate of 15.5% was obtained. The majority of the responses were from those working in hospital settings whohad less than 5 years experience working as occupational therapists with children and adolescents with autism spectrumdisorder. The theories, assessments, interventions, and training that related to respondents practices mainly revolved aroundsensory-based approaches. Encouragingly, more than 70% of the respondents claimed that they performed assessments of dailyliving activities in their service. Client-centred practice was a further feature of occupational therapist respondents involved in thisstudy.

    Conclusion: Future study is needed, especially to engage more respondents and thereby produce more generalizable results andan in-depth exploration of the continuing education needs of occupational therapists in Malaysia.

    KeywordsTheory, interventions, professional development

    Received: 18 July 2013; accepted: 2 September 2014

    Introduction

    The recently published Diagnostic and Statistical Manual

    of Mental Disorders 5th Edition (DSM-V) (American

    Psychiatric Association (APA), 2013) specied two

    major characteristics of impairment in autism spectrum

    disorder (ASD).

    1. Decits in social interaction and social communication.

    2. Restricted, repetitive patterns of behaviour, interests, or

    activities.

    The DSM-V recognizes that the four previously separ-

    ate disorders under the Diagnostic and Statistical Manual

    of Mental Disorders-IV Text Revision (DSM-IV-TR)

    classication (APA, 2000) that is: (a) autistic disorder;

    (b) Aspergers disorder; (c) childhood disintegrative dis-

    order; and (d) pervasive developmental disorders not

    otherwise specied are actually a single condition with

    dierent levels of symptom severity in the two core decits

    mentioned earlier. In this study, the ASD criteria, as stated

    under the DSM-IV-TR (APA, 2000), were used because

    the DSM-V (APA, 2013) was only published after the

    research data had been collected. Internationally, it has

    been reported that the prevalence of this condition is

    increasing (Baron-Cohen et al., 2009; MacDermott et al.,

    2006), with boys diagnosed more frequently than girls at a

    ratio of 4:1 (Fombonne, 2003).

    This article reports the results of a survey examining the

    practice of occupational therapists in Malaysia with chil-

    dren and adolescents with ASD. The prevalence of ASD in

    Malaysia is estimated at 1.6 per 1000 (Mohd Kassim et al.,

    2009). Malaysia is divided into two regions separated by

    the South China Sea: Peninsular Malaysia to the west and

    East Malaysia on the island of Borneo. National manage-

    ment and administrative tasks (including matters regard-

    ing children with special needs) are governed federally

    from central Peninsular Malaysia. Occupational therapy

    services in Malaysia have been available for over 50 years;

    1Lecturer, Universiti Kebangsaan, Kuala Lumpur, Malaysia2Senior Lecturer, Monash University, Melbourne, Australia

    Corresponding author:Masne Kadar, Lecturer, Universiti Kebangsaan Malaysia (UKM), Department

    of Occupational Therapy, School of Rehabilitation Sciences, Faculty of

    Health Sciences, Jalan Raja Muda Abdul Aziz, Kuala Lumpur, 50300,

    Malaysia.

    Email: [email protected]

    The British Journal of Occupational

    Therapy

    2015, Vol. 78(1) 3341

    ! The Author(s) 2014Reprints and permissions:

    sagepub.co.uk/journalsPermissions.nav

    DOI: 10.1177/0308022614561237

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  • though rst introduced by Barbara Tyldesley, member of

    the British Association of Occupational Therapists

    (BAOT), in 1958, information about occupational therapy

    practices with children and adolescents with ASD in

    Malaysia is still limited.

    Globally, occupational therapy practitioners form one

    of the professional groups involved in providing services to

    children and adolescents with ASD (Provost et al., 2007),

    and they have begun to do so in Malaysia as well (Amar,

    2008). However, we have very little evidence to guide best

    practice approaches with this group (Jasmin et al., 2009;

    Wallen and Imms, 2006). Concern has also been expressed

    that the interventions we do use have not been well docu-

    mented for evidence-based practice, and that we risk losing

    our occupational focus if we do not mindfully attend to

    this, in addition to other approaches (Rodger et al., 2010).

    Hence, the main aim of occupational therapy to provide

    occupation-based intervention should always be the

    focus of every clinician dealing with children with ASD

    (Arbesman and Lieberman, 2010; Rodger et al., 2010;

    Wagenfeld and Kaldenberg, 2005).

    The majority of the occupational therapy services for

    children and adolescents with ASD in Malaysia are pro-

    vided in the hospital/clinic-based setting (Muthuraman

    Sellathurai Pathar, President of Malaysian Occupational

    Therapy Association, 2011, personal communication). A

    minimum of a diploma/certicate in occupational therapy

    is required to practise in Malaysia. The training of local

    occupational therapists at certication level in Malaysia

    was started over 30 years ago under the Malaysian

    Ministry of Health (MOH), with the primary objective

    being to full the requirements of government hospitals

    and clinics. However, over the past 15 years, training of

    occupational therapists at diploma and degree levels has

    increased, with courses oered by the Ministry of Higher

    Education (MOHE) and other private educational pro-

    viders (Mohd Suleiman Murad, Occupational Therapy

    Lecturer, 2012, personal communication). Occupational

    therapy practitioners in Malaysia are reported to be

    receiving an increasing number of referrals for children

    and adolescents with ASD, for both assessments and inter-

    ventions (Rohana Mukahar, Head of Occupational

    Therapy Department, Universiti Kebangsaan Malaysia

    Medical Centre, 2009, personal communication).

    To date, there is no information available regarding the

    theories, assessments, and interventions utilized, or the

    further education needs of Malaysian occupational ther-

    apists working with children and adolescents with ASD.

    Database searches including CINAHL Plus, Medline,

    ProQuest, PsycINFO, and ERIC, on the keywords of

    occupational therapy and Malaysia and service/practice

    and autism/autistic, returned no results for literature

    published between 1992 and 2012. Hence, the aim of this

    study was to describe the occupational therapy practices

    in Malaysia provided to children and adolescents with

    ASD aged between 3 and 18 years, in terms of theories,

    assessment, intervention, and professional development

    needs. Occupational therapists working throughout

    Malaysia were surveyed in this study. Thus, this is the

    rst published study reporting on the occupational

    therapy services for children with ASD in Malaysia.

    Literature review

    Occupational therapy is one of the most common services

    received by children with ASD and their families

    (McLennan et al., 2008). In the United Kingdom (UK),

    the prevalence of ASD was reported at 1% of the total

    population of school-aged children between 5 and 9 years

    of age (Baron-Cohen et al., 2009). In the United States

    (US), the overall estimated prevalence of ASD was

    reported at one in 50 children a signicant increase

    from that previously reported (Blumberg et al., 2013).

    Occupational therapy within the US, for example, pro-

    vides various interventions, including early intervention

    programmes, social skills training, and educational inter-

    vention programmes (Case-Smith and Arbesman, 2008).

    Although much is now known about the characteristics

    of children who have ASD, the underlying occupational

    performance issues and eective interventions for children

    with ASD remain poorly understood (Wallen and Imms,

    2006). Furthermore, explicit information regarding the

    interventions and services received by children with ASD

    and their families is limited (McLennan et al., 2008). It was

    reported that children with ASD experienced diculties in

    personal care activities (Allik et al., 2006; Cermak et al.,

    2010; Flynn and Healy, 2012; Twachtman-Reilly et al.,

    2008), poor engagement in school or classroom activities

    and with peers (Falkmer et al., 2012), and motor dicul-

    ties that can cause occupational performance problems for

    those children (Green et al., 2009; Liu, 2013; Rinehart and

    McGinley, 2010; Shetreat-Klein et al., 2012).

    To date, there have been three studies reporting on

    occupational therapy services provided specically for

    children and adults with ASD: Watling et al. (1999a) per-

    formed a study in the US; Ashburner et al. (2010, unpub-

    lished report) in Queensland, Australia; and Kadar et al.

    (2012) in Victoria, Australia. Despite a gap of a decade,

    there are strong similarities in the ndings of these studies.

    They relate to the emphasis given by the occupational

    therapy participants in managing issues and providing

    interventions related to sensory processing diculties

    exhibited by people with ASD, as well as the need for

    knowledge related to sensory-based approaches in the

    areas of assessment, intervention, and training in their ser-

    vice for this population. Despite the therapists emphasis

    on working with sensory processing diculties in these

    reports of their practice, there is currently little evidence

    of the eectiveness of the sensory-based interventions or

    approaches for children and adolescents with ASD (Hyatt

    et al., 2009).

    It is also important for occupational therapists to con-

    sider the use of other related approaches and/or useful

    strategies in their interventions for children and adoles-

    cents with ASD (Arbesman and Lieberman, 2010).

    Increasingly, studies that investigate the improvement of

    occupational performance of children and adolescents

    with ASD are being performed (Rodger and

    34 The British Journal of Occupational Therapy 78(1)

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  • Brandenburg, 2009), such as the cognitive orientation for

    daily occupational performance (CO-OP). CO-OP is a

    task-orientated problem-solving approach that utilizes

    cognitive skills to improve occupational performance

    (Rodger, 2004). Other than that, the use of physical stra-

    tegies which are more occupation- and activity-focused,

    such as leisure and recreation activities, in interventions

    among children and adolescent with ASD, have also been

    observed (OBrien, 2010).

    Method

    Design

    A self-administered questionnaire was mailed to occupa-

    tional therapists in Malaysia. The questionnaire used in

    this study was adapted from a questionnaire entitled

    Current Practice of Occupational Therapy for Children

    with Autism: A National Survey of Practitioners, developed

    by Watling et al. (1999b) for their survey of occupational

    therapists in the US. This questionnaire was selected as the

    basis for the questionnaire used in this study. Considerable

    modication was required as the original questionnaire

    was: (a) designed for therapists based in the US; and

    (b) designed and carried out prior to 1999 (Renee

    Watling, 2009, personal communication). Permission to

    do so was granted by the rst author. The questionnaire

    was modied to include more current information relating

    to occupational therapy and ASD by reviewing relevant

    occupational therapy textbooks and literature (Case-

    Smith, 2005; Case-Smith and Arbesman, 2008; Kramer

    and Hinojosa, 2010; Miller-Kuhaneck, 2004; Mulligan,

    2003; Watling et al., 1999a) and was also based on a ques-

    tionnaire entitled The Paediatric Occupational Therapy

    Practitioner Survey (Brown and Rodger, 2001, unpub-

    lished tool) (permission to modify the questionnaire was

    granted by the author). The modied questionnaire

    includes more current assessment tools and interventions

    provided to children with ASD compared with the original

    questionnaires. To ensure its face and content validity, the

    questionnaire was sent to 12 experts in the occupational

    therapy and/or ASD eld internationally (including

    experts from the US, Australia, Malaysia, and Taiwan).

    The purpose of sending the initial questionnaire to the

    experts was to ensure that the questionnaire design works

    in practice, to identify and amend problematic questions,

    rene the questionnaire, and identify problems

    relating to the content, wording, layout, length, and

    instructions included in the questionnaire. The question-

    naire was further tested by six Malaysian occupational

    therapists who had experience of working with children

    with ASD, in order to ensure that the English language

    used in the survey was applicable to Malaysian occupa-

    tional therapists. None of the six therapists tested sug-

    gested that the questionnaire should either be in Malay

    language or be in two languages (that is, English and

    Malay) because English is used in most of the teaching

    delivery and training activities of the occupational therap-

    ists in Malaysia. The feedback received was used to

    produce the nal version of the questionnaire entitled

    Occupational Therapy Practice Survey for Children with

    Autistic Spectrum Disorders that was used in this study

    (the questionnaire can be obtained from the corresponding

    author).

    The nal questionnaire was divided into six sections.

    . Section A: the frame(s) of reference and model(s) of prac-tice utilized with children with ASD.

    . Section B: the assessments or outcome measures adminis-tered to children with ASD.

    . Section C: the interventions utilized in occupational ther-apy services for children with ASD.

    . Section D: the areas of adaptive behaviours addressed inoccupational therapy services for children with ASD.

    . Section E: the issues of professional development needsamong occupational therapists.

    . Section F: the respondents demographic information,including personal and professional information.

    The developed questionnaire was also used to collect data

    from occupational therapists in Victoria, Australia, and

    these results have been reported elsewhere (Kadar et al.,

    2012).

    Research ethics

    Ethics approval was gained from the Monash University

    HumanResearchEthical Committee (MUHREC) project

    number CF09/3131 2009001710. In order to conduct

    research in Malaysia, another ethical approval was also

    requested from The Research Promotion and Co-

    Ordination Committee, Economic Planning Unit (EPU),

    Prime Ministers Department, Malaysia reference

    number UPE: 40/200/19/2505.

    Respondents

    The respondents in this survey were Malaysian qualied

    non-international occupational therapists who were mem-

    bers of the Malaysian Occupational Therapy Association

    (MOTA). To be included in the study, respondents must

    work or have worked with children and adolescents with

    ASD in occupational therapy services, either in Peninsular

    or East Malaysia. MOTA were consulted for their help in

    identifying potential respondents for the survey.

    The rst author was given access to the MOTA

    member information database in order to source addresses

    to which the survey could be mailed. However, out of 459

    ordinary members listed (December 2009), only 362 mem-

    bers had their full names and addresses recorded in the

    database. The remaining 97 members had incomplete

    names or addresses. It was not known whether the com-

    plete details of members were current. There was also no

    indication on the database of the members service areas

    or specialties (such as whether they are working in the

    paediatrics area or in any other specialized areas) to

    enable the researchers to select and mail the surveys only

    to those in the target group for the purpose of this study;

    Kadar et al. 35

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  • hence, the survey was mailed to the 362 Malaysian occu-

    pational therapists whose full names and addresses were in

    the MOTA database.

    Procedures

    Ethical approval was granted by the Monash University

    Human Research Ethical Committee (MUHREC) and

    The Research Promotion and Co-Ordination Committee,

    Economic Planning Unit (EPU), Prime Ministers

    Department, Malaysia. The self-administered survey was

    mailed to members on the MOTA database, together with

    an introductory letter, explanatory statement, and

    stamped, self-addressed envelope. In order to encourage

    the response rate, reminders were sent out at two and four

    weeks after the survey was sent (Salant and Dilman, 1994).

    Return of the anonymous surveys by the respondents was

    considered as their consent to take part in the study. To

    ensure the privacy and condentiality of the respondents,

    no identifying information was kept or recorded by the

    researchers. No incentive was provided for participating

    in the survey.

    Data analysis

    Numerical data were entered into the SPSS 18.0 and ana-

    lysed to generate descriptive statistics such as frequencies

    and percentages. The answers given to open-ended ques-

    tions were categorized following the content analysis pro-

    cess described by Liamputtong (2009: 281). Firstly, all

    responses to open-ended questions were read entirely to

    gain an understanding of their meaning. Codes were then

    assigned to all answers for each question by the rst

    author. These codes were then grouped together into cate-

    gories and the replies for each code and category were then

    counted (Liamputtong, 2009). However, to prevent bias,

    an audit trail was performed by the third author to ensure

    the coding and categorizing was accurate. Where discre-

    pancies arose, the responses to the open-ended questions

    were referred to in order to ascertain the correct coding

    and categorizing.

    Results

    Response rates

    A total of 78 respondents returned their survey during the

    3-month data collection period. However, 26 were

    excluded, because they indicated that they had never

    worked with children with ASD. These 26 negative

    responses were excluded from the survey sample total of

    362, making the valid response rate 15.5% for a total of

    52 respondents. According to Weisberg et al. (1996), the

    response rate for postal surveys tends to fall between 10%

    and 50%. The response rate for this study is at the lower

    end of this range. Due to the limitations of the MOTA

    database, we cannot be sure if this is a valid response rate

    representative of Malaysian occupational therapists who

    have worked with children and adolescents with ASD.

    Characteristics of the participants

    Results show that 82.7% of the respondents were from

    Peninsular Malaysia and 17.3% were from East

    Malaysia. In terms of the respondents academic quali-

    cations, 71.0% held diplomas/certicates in occupational

    therapy and all of them were qualied general occupa-

    tional therapy practitioners, as none reported that they

    had received any certication or specialized training in

    certain areas, such as certication in sensory integration.

    The majority of the respondents worked in hospital set-

    tings (82.7%). More than half (57.7%) of the respondents

    reported having 1 to 5 years experience working as an

    occupational therapist. Table 1 details the participants

    characteristics.

    Occupational therapy practice

    Frames of reference and models of practice

    Results showed that 98.1% of the respondents indicated

    that they used frames of reference (FOR) and 92.3%

    models of practice (MOP) to guide their service delivery

    with children and adolescents with ASD. The most

    common FOR in use were the sensory integration FOR

    (92.3%) (Kimball, 1999) and the psychosocial FOR

    (63.5%) (Olson, 1999). In terms of MOPs, the Model of

    Human Occupation (MOHO) (Kielhofner, 2008;

    Kielhofner and Burke, 1980) was used by the majority of

    the respondents (73.1%).

    Interventions

    The six interventions/programmes indicated as being

    often and always used were: (1) play therapy (86.6%);

    Table 1. Participants experiences working as occupational ther-apists, working with children with ASD, and their academic

    qualification.

    Participants working experiences Frequency Percentage

    Years of practising as an occupational therapistLess than 1 year 6 11.5%

    15 years 30 57.7%

    610 years 9 17.3%

    1115 years 6 11.5%

    1620 years 1 2.0%

    Total 52 100.0%

    Years of working with children with autism spectrum disorderLess than 1 year 31 59.6%

    15 years 18 34.6%

    610 years 3 5.8%

    Total 52 100.0%

    Highest academic qualificationDiploma/certification in occupational therapy 37 71.0%

    Bachelors degree in occupational therapy 14 27.0%

    Coursework/research masters 1 2.0%

    Total 52 100.0%

    36 The British Journal of Occupational Therapy 78(1)

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  • (2) sensory integration training (79.2%); (3) sensorimotor

    stimulation (78.8%); (4) pre-school training (77.0%); (5)

    early intervention (65.4%); and (6) Snoezelen therapy

    (60.8%).

    Age group of children with ASD served mostfrequently

    A total of 69.2% of the respondents reported that they

    mainly see children with ASD aged below 5 years (pre-

    school), 36.5% reported they mainly see those aged

    between 6 and 18 years, and 9.6% of the respondents

    reported seeing both age groups.

    Methods of assessment and outcome measures

    The following methods of assessments were reported by

    the majority of the respondents as often and always

    utilized: performing interviews with parents/caregivers

    (90% of respondents), utilizing informal assessment/

    screening tools (70.8%), utilizing standardized assess-

    ment/screening tools (56.3%), and observation in multiple

    environments (46%). Two methods of assessment were

    reported by the majority of the respondents as seldom

    and sometimes used; namely, interviews with teachers/

    education sta (70%) and interviews with other health

    professionals (67.3%). Four types of standardized assess-

    ments were administered by the majority of the respond-

    ents. These assessments and the tools frequently used

    were: (1) developmental screenings and evaluations

    (76.9%) (Denver developmental screening test); (2) activ-

    ities of daily living skill assessments (76.9%) (modied

    Barthel index of activities of daily living); (3) gross or

    ne motor skill assessments (69.2%) (Denver developmen-

    tal screening test); and (4) sensory processing or sensory

    integration assessments (67.3%) (sensory prole/sensory

    prole school companion).

    Short-term occupational therapy interventiongoals

    The answers to the open-ended question, where the

    respondents were asked about their top ve most

    common short-term occupational therapy intervention

    goals when working with children and adolescents with

    ASD, showed that the top ve most common were:

    (1) improving attention and concentration skills (n 26);(2) improving communication and social skills (n 26);(3) managing issues related to sensory diculties

    (n 18); (4) improving self-care skills (n 16); and (5)improving physical functions (for example, motor skills,

    muscle strength) (n 15).

    Collaboration with other people or professionalsand level of confidence

    All respondents had collaborated with parents/caregivers

    in the provision of services for children and adolescents

    with ASD. The majority of the respondents (67.3%)

    reported that they always worked with parents/care-

    givers, 51% reported they sometimes worked with tea-

    chers/education sta, and 38% reported they worked with

    speech therapists/speech pathologists. Furthermore, the

    majority of the respondents felt moderately condent

    when working with children and adolescents with ASD

    (59.6%), 38.3% felt high or very high condence, and

    2.1% felt low condence.

    Professional development

    Training/certification/continuing education courses eitherattended or listed as desirable to attend. The three mostfrequently attended courses for professional development

    related to the provision of services for children and ado-

    lescents with ASD were:

    1. sensory-based interventions/trainings (n 12);2. knowledge/understanding about ASD (n 9); and3. behavioural skills training (n 4).

    The three courses that the respondents most frequently

    stated they would like to attend were:

    1. sensory-based interventions/training (n 22);2. behavioural skills training (n 15); and3. social skills training (n 8).

    Preferred methods for obtaining knowledge andskills. Table 2 lists the respondents preferred methodsfor obtaining knowledge and skills. The two methods

    most preferred by Malaysian occupational therapists in

    obtaining knowledge and skills were hands-on mentoring

    by experts/experienced therapists and attending short

    courses of specialized certication on certain techniques/

    programmes; these were reported by 43.1% and 33.3% of

    the respondents, respectively. Only 4% of the respondents

    gave top preference to literature reviews as a method of

    obtaining knowledge and skills.

    Discussion

    Descriptions of the occupational therapypractices in Malaysia with children andadolescents with ASD

    The fact that the majority of the respondents in this study

    worked in hospital-based settings is consistent with the

    statement made by Muthuraman Sellathurai Pathar, the

    President of the Malaysian Occupational Therapy

    Association (2011, personal communication). The data

    gathered in this study were largely from respondents

    who have worked as occupational therapists and with chil-

    dren and adolescents with ASD for less than 5 years.

    Most respondents were from Peninsular Malaysia; thus,

    generalization of the results obtained in this study to the

    practices of all Malaysian occupational therapists working

    with children and adolescents with ASD is limited.

    Kadar et al. 37

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  • Further study is needed in order to get a more repre-

    sentative description of the occupational therapy practices

    in Malaysia with children and adolescents with ASD.

    Similar to the ndings from Ashburner et al. (2010,

    unpublished report), Kadar et al. (2012), and Watling

    et al. (1999a), respondents from Malaysia also reported

    the use of theories, assessments, and interventions asso-

    ciated with sensory-based approaches for children and

    adolescents with ASD. These are evident in the high

    reported use of the sensory integration FOR (Kimball,

    1999) to guide their practice and also in the choice of sen-

    sory integration training (Kimball, 1999) and sensori-

    motor stimulation (Huebner and Lane, 2001) in their

    interventions. However, this is quite concerning as, while

    none of the respondents in this study reported that they

    have received specialized training or are certied in sen-

    sory integration, some of them are using sensory integra-

    tion intervention approaches in their services for children

    and adolescents with ASD. Unlike users of sensory-based

    stimulation, therapists who want to provide sensory inte-

    gration therapy should undergo extensive training and be

    certied in that therapy.

    It is interesting to note that, besides assessments and

    interventions based on sensory integration and sensory-

    based stimulations, the majority of respondents also

    indicated performing activities of daily living skills assess-

    ments, developmental screenings and evaluations, and

    gross or ne motor skills assessments. This is an encoura-

    ging result to see, especially the fact that 76.9% of the

    respondents stated that they performed activities of daily

    living skills assessments in their practices with children and

    adolescents with ASD. According to Green et al. (2009),

    motor impairments are found to be common in children

    with ASD, which might explain why the majority of the

    respondents reported performing gross or ne motor skill

    assessments in their services for children with ASD.

    Occupational therapists perspectives on occupation-

    based practice can be varied (Estes and Pierce, 2012;

    Mullersdorf and Ivarsson, 2011); however, interventions

    based on daily occupation in order to achieve independ-

    ence, such as self-care activities, should be the main focus

    in occupational therapy services with this population

    (Arbesman and Lieberman, 2010; Diamantis, 2010;

    Rodger et al., 2010). According to Drysdale et al. (2008),

    training on daily activities, such as shopping and tele-

    phone tasks, in community-based training for children

    with intellectual disabilities might be more eective

    than classroom-based training. Studies show that children

    with ASD experience diculties managing their daily

    occupation, regardless of their level of cognitive function;

    for example, children with high-functioning autism (Perry

    et al., 2009; Schatz and Hamdan-Allen, 1995). Moreover,

    the gap between the ability to function independently in

    daily living skills has been reported to widen as the chil-

    dren with ASD grow older (Kanne et al., 2011). In order

    to enhance occupational performance in children with

    ASD, no single approach or therapy might be eective

    to achieve this. Best practices may be the combination of

    those interventions that use or modulate sensory experi-

    ences among those children, which may be achieved

    through play to enhance their skills in daily living

    activities.

    It is important for occupational therapy practitioners

    to implement evidence-based interventions in their service

    with children with ASD, as reports show that parents are

    highly likely to abandon interventions which were either

    ineective or not based on sucient evidence (Bowker

    et al., 2011). In a setting such as Malaysia, where resources

    for interventions are much less available than in more

    developed countries, this becomes even more essential.

    Lyons et al. (2010) suggested that additional education

    in conducting research activities might be benecial to

    occupational therapy practitioners in order to improve

    their ability to guide their practice based on strong

    evidence. However, the very low preference for acquiring

    knowledge and skills through reviewing literature indi-

    cated by the respondents in this study is quite concerning.

    This decision could be due to the heavy workloads faced

    by occupational therapy practitioners that make it dicult

    for them to implement evidence-based practices, as

    reported by occupational therapists from across seven

    acute National Health Service (NHS) Trusts in the UK

    Table 2. Preferred method of obtaining knowledge and skills.

    Methods of obtaining knowledge and skills n

    Notpreferred(%)

    Lowpreferences(%)

    Moderatepreferences(%)

    Highpreferences(%)

    Preferred themost (%)

    Hands-on mentoring by experts/experienced therapists 51 0.0% 3.9% 21.6% 31.4% 43.1%

    Case presentation of intervention and technique 51 0.0% 3.9% 31.4% 49.0% 15.7%

    Multidisciplinary workshop with discussionand problem-solving

    51 2.0% 0.0% 21.6% 49.0% 27.5%

    Short courses of specialized certification on a certaintechnique/programme

    51 2.0% 3.9% 29.4% 31.4% 33.3%

    Online courses 49 10.2% 30.6% 44.9% 8.2% 6.1%

    Conferences or seminars 50 6.0% 6.0% 30.0% 50.0% 8.0%

    Literature reviews 50 10.0% 20.0% 38.0% 28.0% 4.0%

    Advanced post-professional academic degrees 47 14.9% 14.9% 27.7% 23.4% 19.1%

    n number of participants providing rating. In a five-point Likert scale: 1 (not preferred), 2 (low preference), 3 (moderate), 4 (high preference),and 5 (preferred the most).

    38 The British Journal of Occupational Therapy 78(1)

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  • (Humphris et al., 2000). This highlights an area that needs

    to be strengthened in the education of occupational ther-

    apists, at least during the student period (Arbesman and

    Lieberman, 2010).

    It can be seen from the results of this study that a high

    percentage of the respondents worked closely with par-

    ents/caregivers of children with ASD. A study by Boyd

    et al. (2011) showed that parents involvement in the inter-

    vention of children with ASD managed to signicantly

    reduce repetitive behaviours among such children; other

    encouraging results were also achieved.

    Regarding professional development needs, the

    majority of the respondents in this study indicated that

    they had either attended or needed to attend courses

    related to sensory-based approaches to improve their

    knowledge and skills in their service with children with

    ASD. This emphasis on attending and desire to attend

    courses related to sensory integration therapy and

    sensory-based approaches needs to be explored further

    to ascertain the reasons the respondents feel that they

    are lacking in this area of intervention compared with

    some other areas, such as the occupation-based interven-

    tion in daily living; hence why they need to know more

    about sensory integration therapy and sensory-based

    intervention. It is also essential for occupational therapists

    to clearly explain to parents the limited evidence available

    on the eectiveness of the use of sensory integration ther-

    apy (American Academy of Pediatrics, 2012; Arbesman

    and Lieberman, 2010).

    Study limitations and future research

    A major limitation of this study is the size and repre-

    sentativeness of the sample, with the majority of the

    responses from respondents coming from Peninsular

    Malaysia. For future research, the response rate obtained

    could be improved if the membership database kept by

    MOTA were updated and completed in terms of its mem-

    bers full name, current addresses, and their specialty areas

    (if any). A database that contains complete and current

    information about its members would be an important

    source of information for the further development and

    understanding of workforce and service needs, as well as

    a useful resource for assisting with research regarding the

    future and directions of this profession in Malaysia.

    Future research to explore how the practitioners incorp-

    orate sensory integration therapy and sensory-based

    approaches, as well as other intervention approaches,

    into their occupational therapy services for children and

    adolescents with ASD in order to improve occupational

    performance would be very worthwhile.

    Conclusion

    This is the rst published study reporting on the occupa-

    tional therapy practices in Malaysia with children and

    adolescents with ASD. Regardless of dierences in cul-

    tural, educational, and health care systems, results from

    this study illustrate similarities in occupational therapy

    practices with children with ASD in Malaysia to those in

    other international studies (Ashburner et al., 2010, unpub-

    lished report; Kadar et al., 2012; Watling et al., 1999a).

    The majority of the respondents in this study reported

    using theories, assessments, and interventions that are

    associated with, or based on, sensory integration and/or

    processing approaches in their practices with children and

    adolescents with ASD. However, it was also encouraging

    to see that the majority of the respondents reported that

    they performed activities of daily living assessments in

    their service, which reected that this area of daily occu-

    pation was not being overlooked by them. The element of

    client-centred practice was also highly implemented by

    occupational therapist respondents involved in this

    study, as they reported that they sought to involve

    parents/caregivers of children and adolescents with ASD

    in their service deliveries.

    Key findings

    . Occupational therapy practices in Malaysia for childrenand adolescents with ASD highly utilized sensory integra-

    tion therapy and sensory-based approaches in their the-

    ories, assessments, and interventions.

    . An encouraging percentage of participants performed theinterventions of daily living skills in their service for chil-

    dren with ASD.

    What the study has added

    This is the rst published study to describe the prac-

    tices of occupational therapy with children and ado-

    lescents with ASD in Malaysia. Future study involving

    more representative samples from both Peninsular and

    East Malaysia will assist in dening the practices

    clearly.

    Acknowledgements

    We would like to extend our gratitude to the occupational therapists

    in Malaysia who were willing to spend their valuable time in complet-

    ing the questionnaire. We would also like to thank the Malaysia

    Occupational Therapy Association (MOTA) for its help in assist-

    ing with the addresses for mailing the survey to its members.

    Furthermore, we would like to acknowledge Dr Jill Ashburner for

    freely sharing her information on a survey of current practices, train-

    ing, and professional development needs of occupational therapists who

    provide services to people with autism spectrum disorder (Ashburner

    et al., 2010, unpublished report) and for her generous help.

    Declaration of conflicting interests

    None declared.

    Funding

    This research received no specic grant support from any funding

    agency in the public, commercial, or not-for-prot sectors.

    References

    Allik H, Larsson J-O and Smedje H (2006) Sleep patterns of

    school-age children with Asperger syndrome or high-

    functioning autism. Journal of Autism and Developmental

    Disorders 36(5): 585595.

    Kadar et al. 39

    by guest on February 17, 2015bjo.sagepub.comDownloaded from

  • Amar HSS (2008) Meeting the needs of children with disability in

    Malaysia. Medical Journal of Malaysia 63(1): 13.

    American Academy of Pediatrics (2012) Policy statement: Sensory

    integration therapies for children with developmental and

    behavioral disorders. American Academy of Pediatrics 129(6):

    11861189.

    American Psychiatric Association (2013) Diagnostic and

    Statistical Manual of Mental Disorders. 5th ed. Arlington,

    VA: American Psychiatric Association.

    American Psychiatric Association (2000) Diagnostic and

    Statistical Manual of Mental Disorders. 4th ed. text revision.

    Washington, DC: American Psychaitric Association.

    Arbesman M and Lieberman D (2010) Methodology for the sys-

    tematic reviews of occupational therapy for children and ado-

    lescents with difficulty processing and integrating sensory

    information. American Journal of Occupational Therapy 64:

    368374.

    Ashburner J, Ziviani J and Rodger S (2010) Current practices,

    training and professional development needs of occupational

    therapists who provide services to people with ASD. Final

    Report on Research Project; Occupational Therapists Board

    of Queensland Research grant (2008). Unpublished report,

    available from the author.

    Baron-Cohen S, Scott FJ, Allison C, et al. (2009)

    Prevalence of autism-spectrum conditions: UK school-based

    population study. The British Journal of Psychiatry 194(6):

    500509.

    Blumberg SJ, Bramlett MD, Kogan MD, et al. (2013) Changes in

    Prevalence of Parent-reported Autism Spectrum Disorder in

    School-aged U.S. Children: 2007 to 20112012. National

    Health Statistics Reports. Hyattsville, MD: National Center

    for Health Statistics.

    Bowker A, DAngelo NM, Hicks R, et al. (2011) Treatments

    for autism: Parental choices and perceptions of change.

    Journal of Autism and Developmental Disorders 41(10):

    13731382.

    Boyd BA, McDonough SG, Rupp B, et al. (2011) Effects of a

    family-implemented treatment on the repetitive behaviors of

    children with autism. Journal of Autism and Developmental

    Disorders 41: 13301341.

    Brown GT and Rodger S (2011) The Paediatric Occupational

    Therapy Practitioner Survey. Unpublished tool, available

    from the author.

    Case-Smith J (2005) Occupational Therapy for Children. 5th ed.

    St Louis, Missouri: Elsevier Inc.

    Case-Smith J and Arbesman M (2008) Evidence-based review of

    interventions for autism used in or relevance to occupational

    therapy. American Journal of Occupational Therapy 62(4):

    416429.

    Cermak SA, Curtin C and Bandini LG (2010) Food selectivity

    and sensory sensitivity in children with autism spectrum dis-

    orders. Journal of the American Dietetic Association 110(2):

    238246.

    Diamantis A (2010) Defending occupation in pediatric practice.

    British Journal of Occupational Therapy 73(8): 343.

    Drysdale J, Casey J and Porter-Armstrong A (2008) Effectiveness

    of training on the community skills of children with intellec-

    tual disabilities. Scandinavian Journal of Occupational Therapy

    15: 247255.

    Estes J and Pierce DE (2012) Pediatric therapists perspectives on

    occupation-based practice. Scandinavian Journal of

    Occupational Therapy 19: 1725.

    Falkmer M, Granlund M, Nilholm C, et al. (2012) From my

    perspective Perceived participation in mainstream schools

    in students with autism spectrum conditions. Developmental

    Neurorehabilitation 15(3): 191201.

    Flynn L and Healy O (2012) A review of treatments for deficits in

    social skills and self-help skills in autism spectrum disorder.

    Research in Autism Spectrum Disorders 6: 431441.

    Fombonne E (2003) Epidemiological surveys of autism and other

    pervasive developmental disorders: An update. Journal of

    Autism and Developmental Disorders 33: 365382.

    Green D, Charman T, Pickles A, et al. (2009) Impairment in

    movement skills of children with autistic spectrum disorders.

    Developmental Medicine & Child Neurology 51: 311316.

    Huebner RA and Lane SJ (2001) Neuropsychological findings,

    etiology, and implications for autism. In: Huebner RA (ed.)

    Autism: A Sensorimotor Approach to Management.

    Gaithersburg, MD: Aspen, 6199.

    Humphris D, Littlejohns P, Victor C, et al. (2000) Implementing

    evidence-based practice: Factors that influence the use of

    research evidence by occupational therapists. British Journal

    of Occupational Therapy 63(11): 516522.

    Hyatt KJ, Stephenson J and Carter M (2009) A review of three

    controversial educational practices: Perceptual motor pro-

    grams, sensory integration, and tinted lenses. Education and

    Treatment of Children 32: 313342.

    Jasmin E, Couture M, McKinley P, et al. (2009) Sensori-motor

    and daily living skills of preschool children with autism spec-

    trum disorders. Journal of Autism and Developmental

    Disorders 39(2): 231241.

    Kadar M, McDonald R and Lentin P (2012) Evidence-based

    practice in occupational therapy services for children with

    autism spectrum disorders in Victoria, Australia. Australian

    Occupational Therapy Journal 59: 284293.

    Kanne SM, Gerber AJ, Quirmbach LM, et al. (2011) The role of

    adaptive behavior in autism spectrum disorders: Implications

    for functional outcome. Journal of Autism and Developmental

    Disorders 41: 10071018.

    Kielhofner G (2008) Model of Human Occupation Theory and

    Application. 4th ed. Baltimore: Lippincott Williams &

    Wilkins.

    Kielhofner G and Burke J (1980) A model of human occupation,

    part one. Conceptual framework and content. American

    Journal of Occupational Therapy 34: 572581.

    Kimball JG (1999) Sensory integration frame of reference:

    Theoretical base, function/dysfunction continua and guide to

    evaluation. In: Kramer P and Hinojosa J (eds) Frames

    of Reference for Pediatric Occupational Therapy. 2nd ed.

    Philadelphia: Lippincott Williams & Wilkins, 119159.

    Kramer P and Hinojosa J (2010) Frames of Reference for

    Pediatric Occupational Therapy. 3rd ed. Baltimore, MD:

    Lippincott Williams & Wilkins.

    Liamputtong P (2009) Qualitative Research Methods. 3rd ed.

    Victoria, Australia: Oxford University Press.

    Liu T (2013) Sensory processing and motor skill performance in

    elementary school children with autism spectrum disorder.

    Perceptual and Motor Skills 116(1): 197209.

    Lyons C, Casey J, Brown T, et al. (2010) Research knowledge,

    attitudes, practices and barriers among paediatric occupa-

    tional therapists in the United Kingdom. British Journal of

    Occupational Therapy 73: 200209.

    MacDermott S, Williams K, Ridley G, et al. (2006) The preva-

    lence of an ASD in Australia. Can it be established from

    existing data? Australian Advisory Board on Autism

    Spectrum Disorders Ltd & Commonwealth department of

    Family, Community Services and Indigenous Affairs

    (FaCSIA).

    McLennan JD, Huculak S and Sheehan D (2008) Pilot investi-

    gation of service receipt by young children with autistic spec-

    trum disorders. Journal of Autism and Developmental

    Disorders 38(6): 11921196.

    40 The British Journal of Occupational Therapy 78(1)

    by guest on February 17, 2015bjo.sagepub.comDownloaded from

  • Miller-Kuhaneck H (2004) Autism: A Comprehensive

    Occupational Therapy Approach. 2nd ed. Bethesda, MD: The

    American Occupational Therapy Association, Inc.

    Mohd Kassim AB, Othman S, Lai PG, et al. (2009) Towards

    an inclusive society: Strengthening the collaboration

    between social welfare, health and medical systems for chil-

    dren with disabilities. Available at: http://www.jicwels.or.

    jp/about_jicwels/ASEAN&JapanHighLevelOfficialsMeeting/

    7th_2009_pdf/Malaysia_Country_Report.pdf (accessed 6

    October 2009).

    Mullersdorf M and Ivarsson A-B (2011) Occupation as described

    by academically skilled occupational therapists in Sweden: A

    delphi study. Scandinavian Journal of Occupational Therapy

    18: 8592.

    Mulligan S (2003) Occupational Therapy Evaluation for

    Children: A Pocket Guide. Philadelphia: Lippincott Williams

    & Wilkins.

    OBrien K (2010) Recreation and children with autism: A critical

    appraisal of the topic. Journal of Occupational Therapy,

    School, and Early Intervention 3(1): 6175.

    Olson L (1999) Psychological frame of reference. In: Kramer P

    and Hinojosa J (eds) Frames of Reference for Pediatric

    Occupational Therapy. Philadelphia: Lippincott Williams &

    Wilkins, 323375.

    Perry A, Flanagan HE, Geier JD, et al. (2009) Brief report:

    The Vineland adaptive behavior scales in young chil-

    dren with autism spectrum disorders at different cognitive

    levels. Journal of Autism and Developmental Disorders 39:

    10661078.

    Provost B, Heimerl S and Lopez BR (2007) Levels of gross and

    fine motor development in young children with autism spec-

    trum disorder. Physical and Occupational Therapy in

    Pediatrics 27(3): 2136.

    Rinehart N and McGinley J (2010) Is motor dysfunction core to

    autism spectrum disorder? Developmental Medicine and Child

    Neurology 52(8): 697.

    Rodger S (2004) The application of cognitive orientation to daily

    occupational performance (CO-OP) with children 57 years

    with developmental coordination disorder. British Journal of

    Occupational Therapy 67(6): 256264.

    Rodger S and Brandenburg J (2009) Cognitive orientation to

    (daily) occupational performance (CO-OP) with children

    with Aspergers syndrome who have motor-based occupa-

    tional performance goals. Australian Occupational Therapy

    Journal 56(1): 4150.

    Rodger S, Ashburner J, Cartmill L, et al. (2010) Helping children

    with autism spectrum disorders and their families: Are we

    losing our occupation-centred focus? Australian

    Occupational Therapy Journal 57: 276280.

    Salant P and Dilman DA (1994) How to Conduct Your Own

    Survey. New York: John Wiley & Sons Inc.

    Schatz J and Hamdan-Allen GJ (1995) Effects of age and IQ on

    adaptive behavior domains for children with autism. Journal

    of Autism and Developmental Disorders 25: 5160.

    Shetreat-Klein M, Shinnar S and Rapin I (2012) Abnormalities

    of joint mobility and gait in children with autism spectrum

    disorders. Brain and Development 36(2): 9196.

    Twachtman-Reilly J, Amaral SC and Zebrowski PP (2008)

    Addressing feeding disorders in children on the autism spec-

    trum in school-based settings: Physiological and behavioral

    issues. Language, Speech and Hearing Services in the Schools

    39(2): 261272.

    Wagenfeld A and Kaldenberg J (2005) Foundations of Pediatric

    Practice for the Occupational Therapy Assistant. Thorofare,

    NJ: SLACK Inc.

    Wallen M and Imms C (2006) Critically appraised papers related

    to children with autism; June 2006 issue. Australian

    Occupational Therapy Journal 53(3): 237238.

    Watling R, Deitz J, Kanny EM, et al. (1999a) Current practice of

    occupational therapy for children with autism. American

    Journal of Occupational Therapy 53(5): 498505.

    Watling R, Deitz J, Kanny EM, et al. (1999b) Current Practice of

    Occupational Therapy for Children with Autism: A National

    Survey of Practitioners. Seattle, WA: University of

    Washington. Unpublished tool, available from the author.

    Weisberg HF, Krosnick JA and Bowen BD (1996) An

    Introductory to Survey Research, Polling and Data Analysis.

    Thousand Oaks, CA: SAGE Publications, Inc.

    Kadar et al. 41

    by guest on February 17, 2015bjo.sagepub.comDownloaded from