NWAC Funder Call Presentation

Click here to load reader

Embed Size (px)

Transcript of NWAC Funder Call Presentation

  1. 1. HIV-Positive Women Making National Policy Change April 9 th , 2009
  2. 2. Greetings Sara Gould , President and CEO, Ms. Foundation for Women Desiree Flores , Program Officer, Health Programs, Ms. Foundation for Women Rona Taylor , Organizer, National Women and AIDS Collective (NWAC), a project of the Ms. Foundation for Women
  3. 3. Background Liz Brosnan, Christies Place, San Diego, CA
  4. 4.
    • 1996 Ms. Foundation for Women created the Women and AIDS Fund (WAF) , the first and only national fund solely dedicated to supporting community organizing and policy advocacy of, by and for women living with HIV/AIDS.
    • WAF Mission To improve the lives of HIV-positive women by supporting local grassroots organizations that advocate for policies and services to meet their needs.
    • 2005 The birth of National Women and AIDS Collective (NWAC) current and past WAF grantees form NWAC as a vehicle for concrete policy change at the national level.
    • NWAC is the only national network that advocates for women-led and women-serving organizations.
  5. 5. National Women and AIDS Collective (NWAC): Who we are
    • NWAC represents a total oftwenty five (25) organizations in fifteen (15) states including California, Nevada, Louisiana, Atlanta, Vermont, Minnesota and New York.It also includes the U.S. Virgin Islands.
    • These organizations are predominantly led by and for HIV+ women and are oftentimes the first place that women go to seek help when diagnosed.
    • These organizations are predominantly community based organizations with an average staff of five (5) people and budgets ranging from $50,000 - $800,000.
  6. 6. Our Vision:
    • A world where testing, prevention, care and treatment is adequately resourced in order to better target and support the needs of women living with HIV/AIDS.
    • We aim to achieve this by focusing on the following :
    • Advocate for better surveillance outcomes for women, to more accurately reflect the disease within the U.S. HIV/AIDS data which has implications for resource allocation.
    • Advocate for reauthorization of the Ryan White CARE Act to include support services and medical services to better meet the needs of women and their families.
    • Collaborate with other organizations and social justice movements to advance NWACs goals.
  7. 7. Notable Achievements:
    • Created and distributed our first-ever women and AIDS national policy paper, which outlined the importance of the re-authorization of the Ryan White Act and how services for the engagement care, treatment, and support of women must be properly supported (May 2005)
    • Held a congressional briefing on Women and AIDS and presented our policy position paper entitled,Change the CDC HIV Surveillance System to More Accurately Reflect the Reality of the HIV Epidemic and the HIV Prevention Needs of Women Living in the United States(Oct. 2007)
    • Distributed a National HIV Testing Day survey (annually since 2007)
    • Published and distributed a National AIDS Strategy for Women (2008)
    • Partnered with the U.S. Positive Womens Network and National Black Womens HIV/AIDS Network to form the Women, Health, and HIV Working Group (2009)
    • Met with Dr. Kevin Fenton, Director of the National Center of HIV/AIDS, STDs, Viral Hepatitis, and TB Prevention, and Jeff Crowley, Director of the Office of National AIDS Policy, to present concrete, tangible recommendations to influence their decision making process.
  8. 8. The Inclusion of Women as a Priority Population: Why and What does is mean? Vanessa Johnson, National Association of People with AIDS,Silver Spring, MD
  9. 9.
    • Women at risk for and living with HIV have unique needs:
        • Biological difference
        • Family structure considerations
        • Gender inequality
        • Socioeconomic circumstances
    • Without an approach to prevention that takes into account the realities ofwomens lives, there will never be a halt to this epidemic.
  10. 10. The Inclusion of Women as a Priority Population means
    • When you have the power to do so:
    • 1. Supporting their participation and leadership in policy development and implementation.
    • 2. Supporting the creation ofbest practices of, by and for women living with HIV/AIDS.
    • 3. Supporting the infrastructure of a national network of women living with and affected by HIV/AIDS.
    • 4. Acknowledging the socioeconomic, biomedical, and behavioral factors that lead to HIV vulnerability in women.
  11. 11. 1. Supporting the Participation and Leadership in Policy Development and Implementation
    • Advance the participation and leadership to include women doing the work and women infected/affected by HIV.
    • NWAC is a unique national network that is modeling this.
  12. 12. 2. Supporting the creation of best practices for recognizing and supporting the capacity of women-focused HIV organizations in the U.S.
    • Very few HIV/AIDS organizations or programs focus solely on the unique needs of women.Those that do are often not adequately resourced restricting their ability to move beyond direct service work to focus on long lasting systems change in a more impactful way .
  13. 13. 3. Supporting the infrastructure of a national network of women living with and affected by HIV/AIDS. It is imperative that HIV-positive women and the organizations they lead are networked and connected in order to leverage power, learn from each other and decrease isolation.
  14. 14. 4. Acknowledging the socioeconomic, biomedical, and behavioral factors that lead to HIV vulnerability among women.
  15. 15. Again, Making Women a Priority Means: Naina Khanna, Positive Womens Network & WORLD, Oakland, CA
    • 1. Supporting their participation and leadership in policy development and implementation
    • 2. Supporting the creation of best practices by, for and about women living with HIV/AIDS.
    • 3. Supporting the infrastructure of a national network ofwomen living with and affected by HIV/AIDS.
    • 4. Acknowledgingsocioeconomic, biomedical, and behavioral factors that lead to HIV vulnerability in women.
  16. 16. HIV Surveillance System Carrie Broadus, Women Alive Coalition, Los Angeles, CA & Precious Jackson, Center for Health Justice, West Hollywood, CA
  17. 17. The Current System:
    • Does not accurately report why rates among women are rising.
    • Suffers from a serious flaw that may contribute to women being unaware or choosing not to believe their risk for infection.
    • Requires women to know the exposure/risk category of her male partner.
    • Early studies of HIV/AIDS focus on individual characteristics and behaviors in determining HIV risk biomedical individualism coined by researchers Fee and Krieger.
  18. 18. The Current System:
    • Hierarchal Transmission (Risk) Categories:
    • Men who have sex with men (MSM)
    • MSM/Intravenous Drug Users (MSM/IDU)
    • Intravenous Drug Users (IDU)
    • High-risk Heterosexual Contact **
    • Non-Identified Risk (NIR)
    • *NIR cases has increased over time by 20% in 1994 and 35% in 2004
  19. 19. The Reality:
    • Women are contracting HIV because they either:
    • a) believe they are in a monogamous relationship or,
    • b) do not know the sexual or drug using history of their male partner.
    • These women do not fit into a exposure/risk category identified by the CDC; therefore, they are non-identified risk.
    • 47% of all women testing positive in US are assigned to the
    • non- identified risk group.
  20. 20. Non-Identified Risk/No Reported Risk (NIR/NRR)
    • Because a larger proportion of AIDS cases were reported with non-identified risk (NIR) inrecent years, the AIDS incidence among some exposure categories may be underestimated unless an adjustment is done. The CDC developed a method to redistribute these NIR cases into other valid exposure categories based on the sex, and race specific distribution of the cases reported from 1993 to 2002.
  21. 21. The Impact of Risk Categories:
    • Risk Categories are created based on how information is collected if you go looking for apples in the apple orchard, youll find apples.
    • These categories not only impact testing practices, they impact:
      • Allocation of resources/funding *
      • Monitoring trends
      • Planning Prevention
      • Evaluation of HIV programs
      • Identification of new or unusual cases
  22. 22. What do we need?
    • Focus on the role of social factors in infectious disease transmission, progression and exposure.
    • Focus on analysis of social conditions that causes exposure to HIV.
    • An acquisition category focusing on women who lack knowledge of their male sexual partners HIV behavior risk factors.
  23. 23. Goals to Decrease the Rates Among Women
    • Implement aheuristicsurveillance model that enhances the cu