Nov/Dec 2012 - MS Society Wigan Branch Newsletter

Multiple Sclerosis Society Wigan Branch

Multiple Sclerosis Society Registered as a LTD Company in England and Wales. 07451571

Alemtuzumab (Lemtrada) encouraging clinical trial results published01 November 2012

Author: MS Trust

The results of phase III clinical trials of alemtuzumab (Lemtrada) have been published in the Lancet

Alemtuzumab is an experimental drug treatment for people withmultiple sclerosis that is currently going throughEuropean Medicines Agency (EMA) and the Federal Drug Administration (FDA) in the US. If approved, it is expected to be marketed under the name

The results of the CARE-MS I clinical trial published today showed that alemtuzumab was twice as effective as beta interferon in reducing relapses in people with relapsing remitting MS who had not received any treatment previously. However, more people inthe alemtuzumab group experienced side effects, some of which were serious. In addition, the reduction in disability seen in previous trials was not observed here.

A second trial, called CARE-MS II, tested alemtuzumab in people with relapsing remitting MS who had experienced at least one relapse on treatment with beta interferon or glatiramer acetate. After two years, half of those on beta interferon had relapsed but only a third of those in the alemtuzumab group. 20% of people receiving interferon had accumulated further disability compared with 13% of the alemtuzumab group.

Alemtuzumab was originally licensed for use in Ba type of cancer, and in organ transplantation under the name MabCampath. Following encouraging clinical trial results, some neurologists have been using alemtuzumab 'offlicense' for people with aggressive MS. In August 2012, the manufacturer chose to surrender the license for alemtuzumab but has now applied for a new license for the drug to be used in MS. There has been some criticism of the manufacturer over this move as it is anticipated that they will reintroduce the drug at a higher price.

The results of these trials of alemtuzumab are encouraging for people with relapsingremitting MS although it is important for individuals to balance the risks and benefits when choosing any disease modifying treatment and to talk through their options with their neurologist and MS specialist nurse.

It is vital that alemtuzumab makes swift progress through the reif found to be safe and effective; it can then be considered by NICE.licensed, NICE will consider the cost effectiveness of alemtuzumab, amongst other factors, when deciding if it will become available on the NHS.

Wigan Branch Front Page Newsletter

Multiple Sclerosis Society - Registered Charity Numbers 1139257/SC041990Registered as a LTD Company in England and Wales. 07451571

WIGAAlemtuzumab (Lemtrada) encouraging clinical trial results published

The results of phase III clinical trials of alemtuzumab (Lemtrada) have been

Alemtuzumab is an experimental drug treatment for people with relapsing remittingthat is currently going through the licensing process with the

European Medicines Agency (EMA) and the Federal Drug Administration (FDA) in the US. If approved, it is expected to be marketed under the name Lemtrada.

MS I clinical trial published today showed that alemtuzumab was twice as effective as beta interferon in reducing relapses in people with relapsing remitting MS who had not received any treatment previously. However, more people inthe alemtuzumab group experienced side effects, some of which were serious. In addition, the reduction in disability seen in previous trials was not observed here.

MS II, tested alemtuzumab in people with relapsing who had experienced at least one relapse on treatment with beta

interferon or glatiramer acetate. After two years, half of those on beta interferon had relapsed but only a third of those in the alemtuzumab group. 20% of people receiving

umulated further disability compared with 13% of the alemtuzumab

Alemtuzumab was originally licensed for use in B-cell chronic lymphocytic leukaemia, a type of cancer, and in organ transplantation under the name MabCampath. Following

nical trial results, some neurologists have been using alemtuzumab 'offlicense' for people with aggressive MS. In August 2012, the manufacturer chose to surrender the license for alemtuzumab but has now applied for a new license for the

MS. There has been some criticism of the manufacturer over this move as it is anticipated that they will reintroduce the drug at a higher price.

The results of these trials of alemtuzumab are encouraging for people with relapsingis important for individuals to balance the risks and benefits

when choosing any disease modifying treatment and to talk through their options with their neurologist and MS specialist nurse.

It is vital that alemtuzumab makes swift progress through the regulatory process so that, if found to be safe and effective; it can then be considered by NICE. If the drug is licensed, NICE will consider the cost effectiveness of alemtuzumab, amongst other factors, when deciding if it will become available on the NHS.

December Newsletter 2012

Newsletter Nov/Dec2012

1139257/SC041990

Page 2Events Page

Page 5Liverpool care

Page 8Megan’s story

0Leigh Group

WIGANAlemtuzumab (Lemtrada) encouraging

The results of phase III clinical trials of alemtuzumab (Lemtrada) have been

relapsing remittingthe licensing process with the

European Medicines Agency (EMA) and the Federal Drug Administration (FDA) in the

MS I clinical trial published today showed that alemtuzumab was twice as effective as beta interferon in reducing relapses in people with relapsing remitting MS who had not received any treatment previously. However, more people inthe alemtuzumab group experienced side effects, some of which were serious. In addition, the reduction in disability seen in previous trials was not observed here.

MS II, tested alemtuzumab in people with relapsing

interferon or glatiramer acetate. After two years, half of those on beta interferon had relapsed but only a third of those in the alemtuzumab group. 20% of people receiving

umulated further disability compared with 13% of the alemtuzumab

cell chronic lymphocytic leukaemia, a type of cancer, and in organ transplantation under the name MabCampath. Following

nical trial results, some neurologists have been using alemtuzumab 'off-license' for people with aggressive MS. In August 2012, the manufacturer chose to surrender the license for alemtuzumab but has now applied for a new license for the

MS. There has been some criticism of the manufacturer over this

The results of these trials of alemtuzumab are encouraging for people with relapsing-is important for individuals to balance the risks and benefits

when choosing any disease modifying treatment and to talk through their options with

gulatory process so that, If the drug is

licensed, NICE will consider the cost effectiveness of alemtuzumab, amongst other

Newsletter 2012

Multiple Sclerosis Society Wigan Branch 2 Newsletter Nov/Dec 2012

This year we thought a Christmas Night out, with a Hot Pot supper may be preferable to the Annual January Dinner

This event will take place at St Jude’s Rugby Club, Keats Avenue, off Poolstock Lane, Wigan WN3 5UB,

On Friday 14th December at 7.30pm

The above band will be supplying the music for you. They play and sing songs from previous decades.

A Hotpot Supper will be served in the interval, with Apple Pie and Cream to follow

The night will be free for Members and their partners. Additional family members will pay a charge of £3.

Please ring Tracy or Janet on 01942 323 836 between 10 am – 3pm, to order tickets for your extended family members

“This is a really reasonable Christmas night out, a chance to get all the family together for a night which will begin the Christmas celebrations”

΄΄΄΄΄A Christmas fair will be held at the MS Charity Shop in the Galleries. (The old Index shop) On 8th December, if you’re in Town come along and join us!.. There will be stalls, and lots of fun things to do.

Events Page

MLC (Mid Life Crisis)

Are a very experienced Pop/Rock band who are all in their 50’s, they’ve been Gigging & friends for 35yrs

Jeff- Guitar & VocalsPaul Drums & VocalsNeil Keyboard & Vocals

Bryan Bass Guitar & VocalsGood range of music from Beatles – Pink Floyd

Dear Members,The Wigan Branch would like to take this opportunity to wish all our Members

“A very Merry Christmas and a Prosperous, Happy and Healthy New Year” and to “Thank You for your continued Support”

Multiple Sclerosis Wigan Branch 3 Newsletter Nov/Dec 2012

76-year-old Tyrone Man Runs Dublin Marathon

By Louise Cullen BBC NI NewsAbout 10,000 people will take part in the Dublin marathon

Just a handful of people have run every Dublin marathon since it started in 1980. One of them is County Tyrone pensioner Pat O'Loughlin at 76, and a survivor of prostate cancer, he is pulling on his trainers for the 33rd marathon on Monday.

Pat has been a familiar sight, running on the streets in and around Castlederg. He took up the sport in 1978 and swears marrying his wife Philomena that same year was just a coincidence.

"I did play a bit of football in my younger days but I never ran until the year I was married. I was 42 years of age then and that was my first run," he said.

When his friend's son was diagnosed with Multiple Sclerosis 12 years ago, Pat realised his hobby could do some good for others.

"John wanted to raise some funds and I said, well I'm doing the marathon - I'll give you a sponsor card and we'll use that for raising some funds," said Pat. "It really took off and I think we've raised over £45,000 since."

Pat O'Loughlin did not start running until he was 42. As well as financial support, Pat has a running mate, Jenny Mc Menamin, who trains

with him. "Times I would say to her, can you not go on,

You’re far faster than me - do you not want to go ahead and do your good fast times?" Pat said.

"And she says no, we'll stay together, because she enjoys the craic and all the people. There's great support all round the road."

Fast times have never been the goal for Pat "I've been lucky enough so far that I've been free of injuries for the Dublin marathon and I've managed to complete them all, sometimes through thick wit and just determination to keep going," he said.

"On the sheet you fill in what you think your time would be and I have five hours 59 minutes down, but I'm hoping maybe five and a half if things go well.

"At my age, you wonder a wee bit what will happen with training, when you go on up to 10 miles or so - would you get weaker or would your body not be able to get any fitter? But thank heavens, with all the good wishes, fromthe people and all the prayers the training has gone pretty well."

In all, Pat has completed about 55 marathons and has no intention of stopping yet, although he thinks about it more in recent years. "I had a wee bit of a setback there - I had prostate cancer and had to have the prostate removed," he said.

"Then my blood count went up a bit last year, but thanks to the people in Belfast City Hospital, I got radiotherapy there. They did a good job on me and I was able to get back out on the go again. "I enjoy it and people are so good - the amount of good wishes I get is unbelievable. You see people round the town here saying keep going and asking how the training's going.

"A good wish or even a wave to you there is like a prayer - when somebody waves to you, they're wishing you well, good speed on your journey and that things will go well. The local people always give you a wave. "It's great to be part of it." Around 10,000 people are expected to take part in the Dublin marathon on Bank Holiday Monday in the Republic.


Eileen Postlewaite Eileen a former member of the Wigan MS Branch has sadly passed away. She will be sorely missed by all who had the privilege of knowing her.

We send our deepest condolencesfamily and friends

Across1. Nil (4)3. Cask (6)8. Security device (7)9. Water barrier (3)10. Terse (4)11. Rudderless (6)13. Technical terminology (6)15. Zealous (4)18. Written record of events (3)19. Countries (7)21. Currency unit (6)22. Labyrinth (4)

Down1. Fastener (3)2. Detection instrument (5)4. Japanese martial art (6)5. Armbones (5)6. Restricted (7) 7. Adult male swan (3)10. Coaxed (7)12. Part of the eye (6)14. Majestic (5)16. Stringed instrument (5)17. Consumed (3)20. Litigate (3)

anch 4 Newsletter

former member has sadly passed

missed by all who had

to all her

Hello from Emma, Counsellor/Hypnotherapist to the Wigan and Leigh branch

Hi everyone, for those of you who don’t yet know, therapy sessions are available at the Wigan and Leigh branch shop in the Galleries for Society members and their close relatives, for £5 contributionsession, first session free. Please give me a ring in confidence if you would like to consult me, or want any information. Please note, I do not do home visits except in particular circumstances. Private consultations for nonMS Society members are acontact me for prices.

October was a quiet month for Counselling at the shop. It was a pity the Pamper Evening in Pemberton wasn’t better attended; it was good to see those of you there, but what a good evening a lot of you missed out

I am now offering short workshops/courses at Marsh Green Resource Centre Centre, Kitt Green Road, Wigan) with significant discounts for Society members. All ages welcome, with the emphasis on fun and learning something new! To get more details/book a place please 819840 or email me [email protected]

Dates for your diary;

January 14th…..ASSERTIVENESS SKILLS

January 28th….MEMORY WORKSHOP

Details; Time 9.30am for 10am until 1pm; wheelchair friendly venue; £20 for Society members; all materials, refreshments etc provided.

TAKE CARE AND SEE YOU SOON!

Newsletter Nov/Dec 2012

Hello from Emma, Counsellor/Hypnotherapist to the Wigan and Leigh branch

Hi everyone, for those of you who don’t yet

their close relatives, for £5 contribution per session, first session free. Please give me a ring

if you would like to consult me, or Please note, I do not do

home visits except in particular Private consultations for non-

MS Society members are also available; please

October was a quiet month for Counselling at the shop. It was a pity the Pamper Evening in Pemberton wasn’t better attended; it was good to see those of you there, but what a good evening a lot of you missed out on!

I am now offering short workshops/courses at Marsh Green Resource Centre (the Therapy Centre, Kitt Green Road, Wigan) with significant discounts for Society members. All ages welcome, with the emphasis on fun and learning something new! To get more etails/book a place please Phone me on 07984

[email protected]

…..ASSERTIVENESS SKILLS

….MEMORY WORKSHOP

Time 9.30am for 10am until 1pm; wheelchair friendly venue; £20 for Society members; all materials, refreshments etc

TAKE CARE AND SEE YOU SOON!


Liverpool Care Pathway

Relatives ' must be informed'

Relatives of terminally-ill patients would have to be consulted before a decision to withdraw food or water is taken, under new government proposals.

It comes after some patients were placed on the Liverpool Care Pathway to relieve suffering - without their relatives' knowledge.

The government wants to ensure families are told of life and death decisions.

The instruction will be included in a number of proposed changes to theConstitution to be unveiled on Monday.

The Liverpool Care Pathway was developed at the Royal Liverpool University Hospital and the city's Marie Curie hospice to relieve suffering in dying patients, setting out principles for their treatment in their final days and hours.

Supporters say it can make the end of a patient's life as comfortable as possible and the method is also widely backed by doctors and many health charities, said the BBC's Alan Soady.

However, critics argue it can be inhumane.

The government has now said that trules needed to be stricter,

h 5 Newsletter Nov/Dec 2012

Liverpool Care Pathway

Relatives ' must be informed'

ill patients would have to be consulted before a decision to withdraw food or water is

government

It comes after some patients were placed on the Liverpool Care Pathway - designed

without their relatives'

The government wants to ensure families are told of life and death decisions.

will be included in a number of proposed changes to the NHS

to be unveiled on Monday.

was developed at the Royal Liverpool University Hospital and the city's Marie Curie hospice to relieve suffering in dying

s, setting out principles for their treatment in their final days and hours.

Supporters say it can make the end of a patient's life as comfortable as possible and the method is also widely backed by doctors and many health charities, said

However, critics argue it can be

The government has now said that the rules needed to be stricter,

meaning relatives of patients are always consulted before the technique is applied.

'New right'

A Department of Health (DoH) spokesman said the proposed changes would set out a "new right" under the NHS Constitution, which was established by thebut he stopped short of describing the move as a "legal requirement".

However, the spokesman added: "Anybody providingrequired by law to take account of it [the NHS constitution] in their decisions and actions."

Some reports suggested health trusts that failed to involve patients and families in decisions could be sued, while doctors could face being stru

The DoH spokesman said it was unlikely policy had been developed on this as the proposal was still at an early stage.

Health Secretary Jeremy Hunt will launch a 12-week consultation on the proposed changes to the constitution statement of patients' rights

Health minister Norman Lamb said this week that it was "completely wrong" for terminally-ill patients to be put on a "pathway" to death without relatives being consulted.

Mr Lamb has called a meeting of doctors and patients to discuss worries about the pathway.

Meanwhile, Conservative peer Baroness Knight called for an inquiry into claims some people might have survived had they not received this treatment.


meaning relatives of patients are always consulted before the technique is applied.

A Department of Health spokesman said the

proposed changes would set out a "new right" under the NHS Constitution, which was established by the Health Act 2009, but he stopped short of describing the move as a "legal requirement".

However, the spokesman added: NHS services is

required by law to take account of it [the NHS constitution] in their decisions and

Some reports suggested health trusts that failed to involve patients and families in decisions could be sued, while doctors could face being struck off.

The DoH spokesman said it was unlikely policy had been developed on this as the proposal was still at an early stage.

Health Secretary Jeremy Hunt will launch week consultation on the proposed

changes to the constitution - the formal of patients' rights - on Monday.

Health minister Norman Lamb said this week that it was "completely wrong" for

ill patients to be put on a "pathway" to death without relatives being

Mr Lamb has called a meeting of doctors and patients to discuss worries

Meanwhile, Conservative peer Baroness Knight called for an inquiry into claims some people might have survived had they not received this treatment.


Wigan Branch MS Society:Contact Number: 07963345329

National MS Society

Central Duty Team: 01942 828 777Disability Resource Centre:01942 700889Crossroads: 01942 700 612

Address: 372 Edgeware Road, London,NW2 6DNTel: 020 8438 0700

Website: www.mssociety.org.ukEmail: [email protected]

National MS Helpline0808 800 8000 (Mon-Fri 9am-9pm)

Local Support Development ManagerLeo Brightley: Tel, 020 8438 0918Mob: 07788717589

Service Development OfficerTracey Cole: Tel: 020 8438 0984Mob: 07919698308

MS NursesDenise Winterbottom at Salford Royal(Formerly Hope HospitalTel: 0161 206 1611

Carolyn Cairns at the Walton CentreTel: 0151 529 5645

Karen Lea, Community Matron for Neuro Sciences. Taylor Neuro Community Team, STOT Unit, Leigh Infirmary, the Avenue, Leigh WN7 HIS.Tel: 01942 264 255

Therapy Centre Ince, WiganMarsh Green Community Centre,Kitt Green Road, Wigan, WN5 0EFPhone No: 01942 217 696Mobile No: 07759286285

Adult Services Area Offices Aspull: 01942 832 592Golborne: 01942 728 603Ince: 01942 828 479Leigh: 01942 404 523Standish: 01942 832 592Tyldesley: 01942 404 765Wigan: 01942 487 901Carers Centre: 01942 683 711

Social Security Offices:

Wigan: 01942 758 000Leigh: 01942 236 700

Continence Advice Services:Tel: 01257 501 340

Wigan Independent Advice Services:Tel: 01942 324 851.

Young Carers Free Helpline:Tel: 0800 169 3669

Shop MobilityTel: 01942 776 070

Ring & RideEnquiries: 01942 492 252, 7.30am-5.00pm

Booking Wigan Area:01942 829 444, 9am-11am

Booking Leigh / Atherton:Tel: 01942 829 400, 9am-11am

Wigan & Leigh Wheelchair Service:Tel: 01204 390 742 (24hr-365 Days a Year)

Carers Helpline: 01942 606 086Monday-Friday: 9.00am-10.30pmSaturday-Sunday: 1.00pm-10.30pm

Contact List

Support for young peoplewww.mssociety.org.uk/pieces

Aimed at people aged 18 – 40.

Kids and Teenswww.youngms.org.uk

Young Peoples Newsletter!!www.staying-positive.co.uk


Care and SupportSupported short breaks –Crossroads Care schemesPeople affected by MS who live in England and Wales can now access care and support during their short breaks and holidays, thanks to a new partnership between the MS Society and Carers Trust.

During the break, care will be provided by trained carer support workers fromCrossroads Care schemes, which are network members of Carers Trust. They will come to your hotel, B&B, chalet or wherever you choose, to provide that support for you. Having someone else take over the caring responsibilities for a while means that families can go away together – or people with MS can travel independently the knowledge that the main family carer will get a chance to rest and recharge their batteries.

This is a pilot project, so at the moment supported short breaks can be taken at destinations in most of Wales, on the south coast of England and in East Anglia.

To find out more about the service and how it works, or to order an information leaflet, call 020 8438 0805 or [email protected].

Bond Holidays – 2 for 1 MS taster weekends in November and DeceAs a first step in a new partnership with Bond Holidays, we are pleased to announce that people with MS, their families and carers will be able to take advantage of a 2 for 1 offer at their accessible hotels in Blackpool or Lytham St Annes over any w

Weekend stays are 3 nights from Friday night to Monday morning. The price for two people is £179, which includes dinner, bed and breakfast.

Both hotels are accessible with ensuite wet floor shower rooms, hoists and otheequipment. Bond have a CQC-registered care agency which can be booked for the stay if personal care and support is needed during the break.

Contact Bond Holidays to discuss a booking on 01253 341218 or email [email protected]. Make sure you mention this offer when booking.

If you have any comments you’d like to feedback about Bond Holidays or their accessible hotels, please let us know – call 020 8438 0805 or email

Find Me Good Care – a new websiteabout care and supportThe care system is a mystery to many, with research revealing that the majority of British people don’t know what options are available to them and two thirds have no idea how much care provision costs. A new website, Find Me Good Care, has been developed help people take their first steps in seeking the right care. it includes information and guidance on how to choose and pay for care, together with a directory of providers and the opportunity to provide feedback.

Find Me Good Care aims to give people better choice and control through reliable information and advice, whether at a time of crisis or as they plan for the future.

The MS Society is a partner of Find Me Good Care, and we hope this new resource will make it easier for people affected by MS to make the choices that are right for them. www.findmegoodcare.co.uk

nch 7 Newsletter

Care and Support Update – November 2012A new partnership with Carers Trust and local

Crossroads Care schemesPeople affected by MS who live in England and Wales can now access care and support during their

holidays, thanks to a new partnership between the MS Society and Carers Trust.

During the break, care will be provided by trained carer support workers from local Crossroads Care schemes, which are network members of Carers Trust. They will

otel, B&B, chalet or wherever you choose, to provide that support for you. Having someone else take over the caring responsibilities for a while means that

or people with MS can travel independently – safe in hat the main family carer will get a chance to rest and recharge their batteries.

This is a pilot project, so at the moment supported short breaks can be taken at destinations in most of Wales, on the south coast of England and in East Anglia.

out more about the service and how it works, or to order an information leaflet, call 020 8438

.

2 for 1 MS taster weekends in November and DeceAs a first step in a new partnership with Bond Holidays, we are pleased to announce that people with MS, their families and carers will be able to take advantage of a 2 for 1 offer at their accessible hotels in Blackpool or Lytham St Annes over any weekend in November and December.

Weekend stays are 3 nights from Friday night to Monday morning. The price for two people is £179, which includes dinner, bed and breakfast.

Both hotels are accessible with ensuite wet floor shower rooms, hoists and otheregistered care agency which can be booked for the stay if

personal care and support is needed during the break.

Contact Bond Holidays to discuss a booking on 01253 341218 or email . Make sure you mention this offer when booking.

If you have any comments you’d like to feedback about Bond Holidays or their accessible hotels, please call 020 8438 0805 or email [email protected]

a new website helping people make better choices

The care system is a mystery to many, with research revealing that the majority of British people don’t know what options are available to them and two thirds have no idea how much care provision costs. A new website, Find Me Good Care, has been developed by the Social Care Institute of Excellence to help people take their first steps in seeking the right care. it includes information and guidance on how to choose and pay for care, together with a directory of providers and the opportunity to provide

Find Me Good Care aims to give people better choice and control through reliable information and advice, whether at a time of crisis or as they plan for the future.

The MS Society is a partner of Find Me Good Care, and we hope this new resource will make it easier for people affected by MS to make the choices that are right for them. For more information visit


November 2012A new partnership with Carers Trust and local

People affected by MS who live in England and Wales can now access care and support during their holidays, thanks to a new partnership between the MS Society and Carers Trust.

local Crossroads Care schemes, which are network members of Carers Trust. They will

otel, B&B, chalet or wherever you choose, to provide that support for you. Having someone else take over the caring responsibilities for a while means that

safe in hat the main family carer will get a chance to rest and recharge their batteries.

This is a pilot project, so at the moment supported short breaks can be taken at destinations in most of

out more about the service and how it works, or to order an information leaflet, call 020 8438

2 for 1 MS taster weekends in November and DecemberAs a first step in a new partnership with Bond Holidays, we are pleased to announce that people with MS, their families and carers will be able to take advantage of a 2 for 1 offer at their accessible hotels in

Weekend stays are 3 nights from Friday night to Monday morning. The price for two people is £179,

Both hotels are accessible with ensuite wet floor shower rooms, hoists and other specialist registered care agency which can be booked for the stay if

If you have any comments you’d like to feedback about Bond Holidays or their accessible hotels, please

helping people make better choices

The care system is a mystery to many, with research revealing that the majority of British people don’t know what options are available to them and two thirds have no idea how much care provision costs. A

by the Social Care Institute of Excellence to help people take their first steps in seeking the right care. it includes information and guidance on how to choose and pay for care, together with a directory of providers and the opportunity to provide

Find Me Good Care aims to give people better choice and control through reliable information and

The MS Society is a partner of Find Me Good Care, and we hope this new resource will make it easier For more information visit


Meg, a wonderful Dog A.I.D - Her storythrough her eyes

Hi, I’m Meg, I’m a cockapoo and I came to my owner Barbara when I was four and a half months old. My breeder had intended keeping me to produce gorgeous puppies like myself however, when approached she decided I could go and live with my new mum, PHEW!!! Close call girls.

As I was used to living in a rural setting I had to adjust to living in a more residential environment with lots more noise and traffic, mum also had to

socialise me as we’d missed the important first 16 weeks of my puppy stage, I soon trained her to listen to me and take a gentle, fun approach, she did ok and soon caught on. We began with short walks and introductions to other dogs, and people, as was the new kid on the block I received quite a lot of attention from them all

Sclerosis Society Wigan Branch 8 Newsletter Nov/Dec 2012

, a wonderful Dog

and I came to my owner Barbara when I was four and a half months old. My breeder had intended keeping me to produce gorgeous puppies like myself however, when approached she decided I could go and live

w mum, PHEW!!! Close call girls.

s used to living in a rural setting I had to adjust to living in a more residential environment with lots more noise and traffic, mum also had to

socialise me as we’d missed the important first 16 weeks of my puppy stage, I soon trained her to

and take a gentle, fun approach, she did ok and soon caught on. We began with short

to other dogs, and was the new kid on the block I

received quite a lot of attention from them all

and found playmates galore. I was coand made such a fuss of, it was all very acceptable to me, yes, I was really beginning to enjoy myself and relax.

Now we spent more time in our local Country Park which is where most of my outdoor training was to take place, and still does. I mcyclists, joggers, huge groups of walkers (so many legs and big boots!) and paragliders flying overhead. I didn’t know the names of all of these as yet though. Then there was the big lake with boats, swans, geese and ducks, some of which spilled over onto the car park with the hope of being fed from picnickers, I wasn’t

allowed to join in though, bit unfair I thought!

Now mum decided it was time to approach DogA.I.D to help train me to be of assistance to her, I forgot to mention she has MS apathologies, this means for her she has to use a powered wheelchair, BIG WHEELS! But hey, this didn’t faze me, we’d become a team.

Well it took a while, 12 months in fact due to non-availability of trainers in my neck of the woods, but then the good news came and Lyn Fleet swept into our lives. She’s great, she introduced clickers and treats (well rewards really – but what’s in a name), stimulating mind games and taught mum a thing or two I can tell you!.

Continued on page 9

Sclerosis Society Wigan Branch 8 Newsletter Nov/Dec 2012

and found playmates galore. I was cooed over and made such a fuss of, it was all very acceptable to me, yes, I was really beginning to

Now we spent more time in our local Country Park which is where most of my outdoor training was to take place, and still does. I met horses, cyclists, joggers, huge groups of walkers (so many legs and big boots!) and paragliders flying overhead. I didn’t know the names of all of these as yet though. Then there was the big lake with boats, swans, geese and ducks, some of

led over onto the car park with the hope of being fed from picnickers, I wasn’t

allowed to join in though, bit unfair I thought!

Now mum decided it was time to approach DogA.I.D to help train me to be of assistance to her, I forgot to mention she has MS and multiple pathologies, this means for her she has to use a powered wheelchair, BIG WHEELS! But hey, this didn’t faze me, we’d become a team.

Well it took a while, 12 months in fact due to availability of trainers in my neck of the

good news came and Lyn Fleet swept into our lives. She’s great, she introduced clickers and treats (well rewards really

but what’s in a name), stimulating mind games and taught mum a thing or two I can tell you!.


Our formal training had begun.

During the waiting period, mum had taught me to help around the house, we had so much fun playing games with the laundry, I was allowed to tug it out of the washing machine, play bring it

with my toys, then with the remotes and phone etc. My repertoire has grown and grown since training with Lyn began. I can even take my own empty dinner bowl to the kitchen to be washed and when out pick up and empty my wateafter a drink (can’t do this indoors though As we progressed with Lyn outdoors, we both gained so much confidence, we were taught how to fine tune our recall, very important, sit/lay down/stay, behaviour with other dogs etc. Mum has also learned a lot about understanding dog behaviour and psyche, reading stress signals and such, I’m so proud of her and I know she is just so proud of me. Lyn has proved herself invaluable in this.

Well level one came and yes, we were ready and passed, next step level two, very much like level one so I thought, easy, so I thought –What’s with this distraction and more fine tuning I ask, but hey, you have to pretend you know, well they put so much into wanting you to, bless. Well time on and the three of us have shared indoor and outdoor play and training in the park in all weathers and I must have eventually got everything right because level two test approached and a pass was given. There was some celebrations going on in my house that day I can tell you and I got a squeaky hippo that just had to be introduced to my digging pit in the garden. Thanks Angela!!


During the waiting period, mum had taught me to help around the house, we had so much fun playing games with the laundry, I was allowed to

washing machine, play bring it

with my toys, then with the remotes and phone etc. My repertoire has grown and grown since training with Lyn began. I can even take my own empty dinner bowl to the kitchen to be washed and when out pick up and empty my water bowl after a drink (can’t do this indoors though – why? As we progressed with Lyn outdoors, we both gained so much confidence, we were taught how to fine tune our recall, very important, sit/lay down/stay, behaviour with other dogs etc. Mum

arned a lot about understanding dog behaviour and psyche, reading stress signals and such, I’m so proud of her and I know she is just so proud of me. Lyn has proved herself invaluable in

Well level one came and yes, we were ready and ep level two, very much like level

– yeah! What’s with this distraction and more fine tuning I ask, but hey, you have to pretend you know, well they put so much into wanting you to, bless.

f us have shared indoor and outdoor play and training in the park in all weathers and I must have eventually got everything right because level two test approached and a pass was given. There was some celebrations going on in my house that day

you and I got a squeaky hippo that just had to be introduced to my digging pit in the

Personally, I just love being loved and I am, mum tells me I’m her star, her best friend and companion. We share our time together at work and in play, I’m on hand to pick up items, bring the remotes, telephone etc, I can even respond to mum’s mobile alarm and bring it to her when she doesn’t hear it, which is very important because she has to take medication when this sounds.

I enjoy my duties they’re not a chore they’re fun and in the process I make people laugh and smile too. My training is unrecognizable to me as such, with mum under the watchful eye of Lyn, it’s just an extension of good times all round.

Now the carrot dangles closelJacket time! We are both so excited but it’s something we want to achieve correctly to do our trainer and Dog A.I.D. proud and retain their good name even after qualifying. So here goes folks... must dash now as looks like walk time in tmud, and wind oh, such fun smiling!

What A wonderful story!!lovely lady named Barbara Edmondson. member of our Branch.

What about Meg? She isfriend to have around.

“Thank you for sharing this story with us……Barbara”


Personally, I just love being loved and I am, mum tells me I’m her star, her best friend and companion. We share our time together at work

in play, I’m on hand to pick up dropped items, bring the remotes, telephone etc, I can even respond to mum’s mobile alarm and bring it to her when she doesn’t hear it, which is very important because she has to take medication

duties they’re not a chore they’re fun and in the process I make people laugh and smile too. My training is unrecognizable to me as such, with mum under the watchful eye of Lyn, it’s just an extension of good times all round.

Now the carrot dangles closely, Level three –Jacket time! We are both so excited but it’s something we want to achieve correctly to do our trainer and Dog A.I.D. proud and retain their good name even after qualifying. So here goes folks... must dash now as looks like walk time in the rain, mud, and wind oh, such fun – now why isn’t mum

What A wonderful story!! This was sent in by a lovely lady named Barbara Edmondson. She is a

She is a wonderful Dog and

ou for sharing this story with


Leigh Group

We are a small informal group of people living in the Leigh area, who either have MS or care for people who have MS.

We are a sub group of the Wigan MS Branch

We meet most months of the yearAt the Leigh Sports Village

There is a varied programme of events for the group, and we are always keen for new people to join us

If you would like to come along Sue a call for further details on: 260854.

“We give everyone a very warm welcome”

Come and join us at our coffee morning!

They take place at the Mount Hotel Orrell, every other Tuesday

@ 11am.

We have quite a number of interesting members who join us

(Men & Women)Our next Coffee Morning is Tuesday December 4th

fortnightly onwards.

“Look forward to meeting youthere!....”

Sclerosis Society Wigan Branch 10 Newsletter

Leigh Group

We are a small informal group of people living in the Leigh area, who either have MS or care for people who have MS.

We meet most months of the year

There is a varied programme of events for the group, and we are always keen

If you would like to come along – give on: 01942

“We give everyone a very warm welcome”

To keep up to date with all that is happening in your branch

Log on our Website;www.mssociety.org/wigan

Come and join us at our coffee morning!

They take place at the Mount Hotel Orrell, every other Tuesday

We have quite a number of interesting members who join us

(Men & Women)Our next Coffee Morning is

December 4th and fortnightly onwards.

meeting you

Free PilatesClasses

Every Tuesday@

The Therapy CentreMarsh Green Community

Centre,Kitt Green Road,Wigan, WN5 0EF

Pilates class 12.30pm

Our Leigh Class

Which takes place at theCommunity Life CentreUpper George Street

Tyldesley

Every Tuesday @

With our Neuro-Physio Vicki

Please phone TracySession!

Phone: 07963345329Charity shop,

On: 01942 323 836

The classes are free to MS. Paid for through donations and

fundraising.


To keep up to date with all that happening in your branch

Log on our Website;www.mssociety.org/wigan

Free PilatesClasses

Every Tuesday

The Therapy CentreMarsh Green Community

Kitt Green Road,Wigan, WN5 0EF

12.30pm – 1.30pm

Our Leigh Class

takes place at theCommunity Life CentreUpper George Street

Tyldesley

Every Tuesday @ 2pm-3pm

Physio Therapist

Tracy to book a Session!

07963345329 or the Charity shop,

On: 01942 323 836

The classes are free to people with Paid for through donations and

fundraising.


DonationsA very kind ladyPatricia Whatmough gave £10 to our Welfare officerTo donate to the Wigan Branch “Thank you so much”!

£45.95 donated by Aleef newsagent“Thank You”!

Wigan Branch

Who’s who in the Wigan Branch?www.mssocietywiganbranch.co.uk

Chair person: Vic Burrows

Treasurer: Vacancy

Vice Chairman: Jan Hough

Welfare Support Officer:Leigh & District Martin HoughWelfare Phone No: 07963345329

Volunteer Co-ordinator & Information OfficerTracey WadsworthPhone No: 01942 323 836

Treasurer: Dr Ann ParrTel No: 01257 424 168

Donations: 22 Parkway, Standish Wigan. WN6 0SJ

Editor: Carol CritchleyTel: 01942 207 483Mobile No: 07580894246

[email protected]

Lucky Numbers: Ken SuttonTel: 01942 715 349

Secretary & Social Media Officer:Ben CusickTEl: 07708228714

Shop Facilitator: Janet AndersonTel: 07878709102

Fund Raiser: Susi TidmarshTel:07756583709

Social & Events co-ordinator:Vacancy

MS Charity Shop Phone No:01942 323 836Email: [email protected]

Solution to Quick Crossword 19

Surround yourself with people who make you happy.

People who make you laugh, who help you when you’re in need.

People, who would never take advantage of you, people who genuinely care.

They are the ones worth keeping in your life.Everyone else is just passing through.


We wish all our membersA Merry Christmas

A Happy and Healthy New

Wigan MSS “Lucky NumbersResults

Draw Oct 2012

1st £40 No 111 Mrs K Abbott

2nd £20 No 64 Mrs C Critchley

3rd £10 No 110 Mr DJE Shaw

4th £10 No 24 Mr Mrs D Parry

Draw Nov 2012

1st £40 No 57 Mr Mrs W Harvey

2nd £20 No 45 Mrs A Platt

3rd £10 No 143 Mrs J Ramsdale 4th £10 No 31 Mrs M Shepherd

4 months remaining if you wish to join our lucky numbers. Please call Ken Sutton on: 01942 715 349

Back Page Newsletter

wish all our membersA Merry Christmas

&A Happy and Healthy New

Year

The MS Newsletter is published by the Wigan Branch of the MS Society

We give regular up-dates about MS and what is happening locally in theMS Community

Editor: Carol CritchleyContact No: 01942 207483E-mail: [email protected]

DisclaimerAll the views expressed in the publication are individual and not necessarily the view or the policy of thcharity and its supporters.

We will be pleased to receive your comments, poems, jokes, or any articles you wish to share with us.

Please send to the above Eaddress

umbers”

2012

K Abbott

No 64 Mrs C Critchley

No 110 Mr DJE Shaw

Mr Mrs D Parry

2012

No 57 Mr Mrs W Harvey

No 45 Mrs A Platt

J Ramsdale

Mrs M Shepherd

months remaining if you wish to join our lucky numbers. Please call

on: 01942 715 349


The MS Newsletter is published by Wigan Branch of the MS Society

dates about MS and what is happening locally in the

Editor: Carol CritchleyContact No: 01942 207483

[email protected]

All the views expressed in the publication are individual and not necessarily the view or the policy of the charity and its supporters.

We will be pleased to receive your comments, poems, jokes, or any articles you wish to share with us.

Please send to the above E-mail

Nov/Dec 2012 - MS Society Wigan Branch Newsletter

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Transcript of Nov/Dec 2012 - MS Society Wigan Branch Newsletter