North Carolina Electronic Disease Surveillance System Del Williams Communicable Disease Branch North...

North Carolina Electronic North Carolina Electronic Disease Surveillance SystemDisease Surveillance System

Del WilliamsDel Williams

Communicable Disease BranchCommunicable Disease Branch

North Carolina Division of North Carolina Division of Public HealthPublic Health

What is NC EDSSWhat is NC EDSS

The NC Electronic Disease Surveillance The NC Electronic Disease Surveillance System is a PHIN compliant secure web-System is a PHIN compliant secure web-based disease surveillance system based disease surveillance system designed to collect ALL communicable designed to collect ALL communicable disease surveillance information and disease surveillance information and childhood and adult lead surveillance data. childhood and adult lead surveillance data. It also includes an Outbreak Management It also includes an Outbreak Management module.module.

BackgroundBackground

Initial RFP from CDC regarding a NEDSS Initial RFP from CDC regarding a NEDSS surveillance system received in 2000surveillance system received in 2000

NC applied for funding in 2001/2002 NC applied for funding in 2001/2002 During the spring of 2003 requirements During the spring of 2003 requirements

gathering was initiated. This process gathering was initiated. This process continued through the remainder of the yearcontinued through the remainder of the year

NC published a RFP in 2005 NC published a RFP in 2005

BackgroundBackground

NC selected Consilience Software (based in NC selected Consilience Software (based in Austin, TX) as the vendor to develop our Austin, TX) as the vendor to develop our EDSSEDSS

With this vendor we were able to have a With this vendor we were able to have a head start with development of a TB head start with development of a TB reporting module developed by the reporting module developed by the Massachusetts DOHMassachusetts DOH

Current Status of NC EDSSCurrent Status of NC EDSS

The North Carolina Electronic Disease The North Carolina Electronic Disease Surveillance System is in the final stages of design Surveillance System is in the final stages of design and implementation (development of the and implementation (development of the enhanced system started in January 2006)enhanced system started in January 2006)

Twenty-two counties are currently using NC EDSS Twenty-two counties are currently using NC EDSS for TB surveillance, monitoring DOT and TSTfor TB surveillance, monitoring DOT and TST

The first pilot for general communicable disease The first pilot for general communicable disease and bacterial STD reporting was in March of 2008and bacterial STD reporting was in March of 2008

Fifty-seven counties are using NC EDSS for CD Fifty-seven counties are using NC EDSS for CD and bacterial STD reporting. These counties and bacterial STD reporting. These counties probably account for 75% of the STD morbidityprobably account for 75% of the STD morbidity


This process has been a team activity. The This process has been a team activity. The members have changed over the course of members have changed over the course of our development, but it has always been a our development, but it has always been a team approach. team approach.

There have been members from DPH IT, There have been members from DPH IT, SLPH, TB, IB, CD and HIV/STD. SLPH, TB, IB, CD and HIV/STD.

Both childhood lead and adult lead Both childhood lead and adult lead surveillance activities have also been surveillance activities have also been represented.represented.


At the time of initial implementation, data going At the time of initial implementation, data going back to 1992 for communicable diseases other back to 1992 for communicable diseases other than STDs were converted to NC EDSS record than STDs were converted to NC EDSS record layoutlayout

Gonorrhea reports from March 2005 forward were Gonorrhea reports from March 2005 forward were converted and chlamydia reports from January converted and chlamydia reports from January 2008 forward were converted.2008 forward were converted.

There are records for over 10,000 persons in the There are records for over 10,000 persons in the system as of now representing reports for TB, all system as of now representing reports for TB, all reportable diseases other than STDs and some reportable diseases other than STDs and some GC and CT reports GC and CT reports

Plans for the future (cont)Plans for the future (cont)

HIV/AIDS and syphilis surveillance activities will be added HIV/AIDS and syphilis surveillance activities will be added during the fourth quarter of 2008/ first quarter of 2009 in during the fourth quarter of 2008/ first quarter of 2009 in the HIV/STD regional officesthe HIV/STD regional offices

Regional STD-MIS databases containing syphilis cases Regional STD-MIS databases containing syphilis cases and partner information and HIV partner information will be and partner information and HIV partner information will be converted and loadedconverted and loaded

Continued rollout of communicable disease and bacterial Continued rollout of communicable disease and bacterial STD reporting in local health departments will continue STD reporting in local health departments will continue incrementally over the remainder of 2008incrementally over the remainder of 2008

At the point where all health departments have NC EDSS At the point where all health departments have NC EDSS deployed, the use of the paper reporting instruments from deployed, the use of the paper reporting instruments from the local health department to Raleigh endsthe local health department to Raleigh ends


The Branch plans for an aggressive training The Branch plans for an aggressive training and rollout schedule over the remainder of and rollout schedule over the remainder of 20082008

The advantage to both the local health The advantage to both the local health departments and the state office is evident departments and the state office is evident during the pilot phase and delaying during the pilot phase and delaying implementation is not an optionimplementation is not an option


NC EDSS provides for receipt of HL-7 Electronic NC EDSS provides for receipt of HL-7 Electronic Laboratory Reporting eliminating another source Laboratory Reporting eliminating another source of paper reporting and data entryof paper reporting and data entry

The initial rollout for the first pilot required ELR be The initial rollout for the first pilot required ELR be in place for two laboratories (SLPH and LabCorp)in place for two laboratories (SLPH and LabCorp)

Other commercial laboratories as well as hospital Other commercial laboratories as well as hospital laboratories will be approached and the ELR laboratories will be approached and the ELR reporting mechanism for each individually tailored reporting mechanism for each individually tailored as deployment proceedsas deployment proceeds


Will private providers be able to report using Will private providers be able to report using NC EDSS? Current plans do not support NC EDSS? Current plans do not support this option but DPH is discussing the this option but DPH is discussing the possibilitypossibility

However, reporting from hospitals, However, reporting from hospitals, prioritized to those with Public Health prioritized to those with Public Health Epidemiologists is plannedEpidemiologists is planned

Contact informationContact information

NCEDSS Helpdesk (Kristen Jacobs)NCEDSS Helpdesk (Kristen Jacobs) 919-715-5548919-715-5548 877-625-9259877-625-9259

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