Chronic Wasting Disease (CWD) Sample Collection Interim Study
Nightscout - CWD Focus on Technology - October 2014
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Jason Calabrese @jasoncalabrese October 2014
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Nightscout presentation from Children with Diabetes Focus on Technology conference - October 25th 2014 As part of the presentation I also showed this excellent video about Nightscout and why #WeAreNotWaiting: http://vimeo.com/109767890
Transcript of Nightscout - CWD Focus on Technology - October 2014
Jason Calabrese@jasoncalabrese
October 2014
@jcostik · 14 May 2013
https://twitter.com/jcostik/status/334304089854844928
Now getting all the important CGM data, and uploading to the cloud. 24x7 access to E's BG #T1D @Integ_Diabetes
@jcostik · 16 Jul 2013https://twitter.com/jcostik/status/357196196869185536
@jcostik · 5 Oct 2013https://twitter.com/jcostik/status/386604514167382016
Nightscout is BornLane Desborough & Ross Naylor
September 2013
The tagline “We Are Not Waiting” was the result of a group discussion at the first-ever DiabetesMine D-Data ExChange event last November [2013] at Stanford University.
Howard Look “The aim is to make diabetes data more
accessible, intuitive, and actionable… We’d like to get the data into a format
where it can help increase time in (glucose) range, and achieve fewer lows and better A1C.”
Lane Desborough “Companies that make physical components of (the diabetes) ecosystem – sensors, pumps, smartphones, insulin, strips, cellular networks, cloud servers – will continue to survive and thrive because these elements are necessary… The system will continue to comprise three essential components: hardware, software, and wetware (humans). What will change is how – and how fast – these
systems will be developed. Closed, proprietary systems will die. Open, standards-based, interoperable devices will thrive. The problem and its solution will get closer in person, space, and time. “
@jasoncalabrese - https://twitter.com/jasoncalabrese/statuses/369119597393244163
18 Aug 2013 - The tweet that got everything started for me@Integ_Diabetes used 2 tips from yesterday +50 BG for dbl up and +20% for my son's big dinner, worked great #INNAC13
@jcostikhttps://twitter.com/jcostik/status/442498548613906432
8 Mar 2014committed some code http://tinyurl.com/m4g8gz8 #diabetes @PebbleDev
@jasoncalabresehttps://twitter.com/jasoncalabrese/status/442543055204139008
8 Mar 2014Thanks @jcostik just got the basics and wifi debugging working, now to get upload going #wearenotwaiting
@jasoncalabresehttps://twitter.com/jasoncalabrese/status/442574847256690689
9 Mar 2014A good stopping point for tonight https://github.com/jasoncalabrese/project-glu
@jasoncalabresehttps://twitter.com/jasoncalabrese/status/446527329552965632
19 Mar 2014in less than an hour I got NightScout integrated in a usable way
@jasoncalabresehttps://twitter.com/jasoncalabrese/status/453116639194939392
7 Apr 2014What would have happened without Dexter and NightScout?
@jasoncalabresehttps://twitter.com/jasoncalabrese/status/459220818757566464
23 Apr 2014Got a basic pebble endpoint in project-glu. @BlueRiverFlyCo thanks for the beer and inspiration
April 27th, 2014Jason Adams chose the name the "CGM in the Cloud" for the Facebook group. Initial group from the Diabetic Alert Dog community - Laurie Schwartz, Frank Wisneski, Dorrie Nuttall, and many more
May 11th, 2014John Costik, Lane Desborough, Ross Naylor, Ben West, Howard Look, Brandon Arbiter, Scott Mark, Scott Leibrand, Dana Lewis, Amy Tenderich, and many others join the group
CGM in the Cloud7,764 Members
Around the World
Rajat Gupta - Installed over 150 systems, helping people from the
other side of the world
Nightscout Project Founded
May 24, 2014
#WeAreNotWaiting to know our kids are safe on the long bus ride home. Thank you Nightscout!
Nightscout 77 arrow going down. I was able to contact Chell, she is shopping with me in another part of the store. Finger stick 61. Thanks Nightscout, #wearenotwaiting
Why we wanted NightScout! Our kiddo wants more autonomy at school. Today she wore her Pebble for the first time. She navigated herself through 2 dropping blood sugars successfully and stayed in range. We just received a text from the school nurse "this was a weird day for me I didn't see her once." #WeAreNotWaiting = one very happy kid
Thanks to the cloud I just caught a 188 with two arrows up (she jumped 20+ points in one reading). She wouldn't have checked it for at least another hour and who knows what her number would have been by then. Instead a quick text and she's steadying out a few minutes later. #wearenotwaiting
A1c was 7.4 today. Down from 9.1, I credit Nightscout. Told our Endo all about it and she was impressed, had a million questions. I was so excited to share! #WeAreNotWaiting
Thanks to Nightscout, some awesome teamwork with our 11 year old daughter and our pebble watches, we are pleased to report our best A1C ever despite a huge growth spurt! Feeling pretty great and so proud of my girl!!!
Thank you! Thank you Nightscout developers! I just got back from an endo
appt., and for the first time in 34+ yrs of T1D, I have an A1c of 6.7! Finally got below seven! The Nightscout helped me rein in those
numbers to a more acceptable "surf". I hope to bring it down a little more.
Wonderful work you guys and gals!
LOWEST A1C I HAVE EVER
HAD IN MY 42 YEARS OF T1
We had a great check up yesterday at the Endo. Matched our lowest A1C but this time without big lows. We we were also the first patient they had seen with Nightscout. They asked my husband to email them a summary of items needed and how to set it up so they can spread the word … Another wonderful day "in the cloud".
Just saw our endo and A1C down from 8.6 to 8.1,
woohoo! Almost back in the 7's I also spoke to the nurse
and Dr about Nighscout and they are talking to patients
about it but don't really understand it. So I said I will create
a flyer or handout they can have in all their rooms to pass
the info and spread the word. … #WeAreNotWaiting
Chase had his quarterly endo appointment today. We were able to show his doctor Nightscout. He loves it!Best thing is Chases
a1c dropped from 8.7 to 7.6! Thank you Nightscout!
The last few months...
http://www.nightscout.infoJames Wedding & Gail DeVore
Install Guide • Support Labs • Wiki • Videos
Logos • Links
CGM in the CloudOfficial Member of the CloudForce
Wes Ton
Bennet Dunlap August 26
FIVE TWELVE.
512 (or %!@ when you leave caps lock on) Holy %!@ That rocks.
I am confident that is the biggest turn out of the diabetes community to any draft docket FDA has ever seen. Why
does this matter?
● FDA has a clear understanding of patient feelings about risk and CGM data.
● For the second time in 6 months our community brought attention to a diabetes issues through FDA dockets.
● This response was bigger than the last showing increasing community interest in working with FDA to improve the lives of people with diabetes.
512 Submissions to the FDA MDDS DocketsAugust, 2014
Raw / Unfiltered DataAugust 2014
https://twitter.com/jcostik/status/509700324186415104https://twitter.com/jcostik/status/495556966484561920
New Pebble WatchfaceChristine Deltrap, Kate Farnsworth,
Jonathan MooreAugust 2014
Care Portal + PushoverJason Calabrese & John Costik
August, 2014
3D Printed CasesIan Jorgensen, Mads Ring, Sara Krugman
August 2014
Nightscout controlledPhillips Hue LightsSeptember 2014
Kevin Lee shows off hisMoto 360 and joins the team
September 2014
September 27, 2014
Who will create the 1000th fork, we'll find out soon. Maybe
it will be the 7000th member.September 29 at 4:59pm
Ben West BOOM 1000.September 29 at 5:10pm
David Waghalter Just forked. Do I win? September 29 at 5:10pm
1000 GitHub Forksa key step in the install process
September 2014
81
75
214
160
266
Nightscout MerchandiseJoanna Quitos, Christine, Susan McCaughey, Ross
Naylor, James Wedding
October, 2014
Beta version of Android Uploader in Google Play
October 2014
Wixel
Adrien de Croy · June 2014https://bitbucket.org/adrien_de_croy/dexterity-wixel
Peter Foxon Miller · August 15 2014
Dex TicTac Mint
http://lori-dev2.blogspot.com/2014/10/dex-tictac-mint.html
September 30 at 08:50pm:
up and running 50+ hours so far, some packets lost
September 30 at 11:59pm:total voltage 2.56V, I am surprised it still works
October 1 at 10:34pm:74+ hours so far, some packets lost, batteries total voltage 2.42V
October 2 at 11:04pm:4days so far, some packets lost, batteries voltage 2.33V
October 4 at 11:04am: 6th day BT is connected but wixel is not running, time to replace
batteries
October 4 at 4:28pm: Replaced batteries - high energy - should have better discharge
characteristics, voltage 3.16V
Lorelai Lane - @lorelai_lhttps://twitter.com/lorelai_l/status/518413420715339776
Bluetooth only Pebble DisplayCamping ModeOctober, 2014
Most people have no idea what’s in that red backpack
FREE Software
=FREEDOM
#DIYPS
Scott Leibrand with Dana M. LewisOctober 3 at 7:35pm
#DIYPS (see DIYPS.org) is now powering our Nightscout predictions (in my IOB/COB branch)! Here are some excellent visualizations of it predicting & helping Dana prevent a bad low without overcorrecting, by recommending a 30m temp basal to zero and then 10 carbs.
+@danamlewis @scottleibrand
About an hour later - one more small bolus suggested by #DIYPS for the remaining carbs on board not yet absorbed.
End result - the overall mostly flat picture of that meal. I am predicted to be in range heading into the night. #wearenotwaiting: we are working toward making this possible for more people!
Dana M. Lewis After that small low earlier? No rebound, BGs
stayed in range and also did well after using #DIYPS to bolus for dinner. Woot! Here's what happened at the start of the meal (staggered boluses).
FIRST MEETING WITH THE FDAScott Leibrand, John Costik, Ben West,
Bennet Dunlap, Ping FangOctober 8th, 2014
Children with DIABETES
@jasoncalabrese · October 2014
