NDIS Pre-planning Workbook combined. 2016-v2 -...

©JederInstitute–2016 1

NDIS Pre-planning

Developed by

©JederInstitute.2016


JederInstituteMichaelaKennedy-Director

ABN:61168152869

Tel:0409646665Email:[email protected]:www.jeder.com.au

WelcometotheNDISPre-Planningworkshop.Youwillbe

participatingina2dayworkshopsthatwilltakeyouthroughaseriesofideasandquestionstothinkabout,throughwhichyouwilldevelopaPersonCentredPlanforyourson/daughterwithadisabilityreadytomeettheNDISplannerorLocalAreaCoordinator(LAC).ThisworkbookisaccompaniedbyaPlanningtemplate,intowhichyoucantransfertheinformationgatheredduringtheworkshop.Oncecompletedtheplanwillbereadytousehowyouwishe.g.tomeettheNDISplannerorLAC,toorganisesupports,tosharewithserviceprovidersorfundersoralloftheabove.

Ithasbeenalong-timedreamofminetobeabletofacilitateworkshopsthatprovidetheopportunityforfamiliestobeinthedrivingseatofplanningthefuturefortheirlovedones.Ifeelhonouredandprivilegedtobedoingthistogetherwithcolleaguesandfriends.

IwouldliketothankthemanygreatthinkersofPersonCentredwork;JohnO’Brien,ConnieLyle-O’Brien,JackPearpoint,MarshaForest,LyndaKahn,BethMount,JulieSimpson,MichaelSmullandHelenSandersonaswellastheworldleadersinAssetBasedCommunityDevelopment(ABCD)JohnMcKnight,MikeGreen,RicThompsonandDeeBrooks,plusthemanyotherpassionatepeopleIhavemetwhoinfluencedmyworkovertheyears;toomanytomentionhere,thankyouforyourgenerosityandsharing.Withoutyourongoingsupportthisprogramwouldnotexist.

ThisprojectisaninitiativeoftheNSWGovernmentundertheLivingLifeMyWay–GettingPreparedprojects.Thankyou!Michaela


DayOne


FacilitatorsoftheNDISPre-Planningworkshop:

Thefacilitatorsarefamilymembersofapersonwithadisabilityand/orapersonwithadisabilitythatareself-directingtheirsupports;theco-facilitatorissomeonethatisexperiencedworkinginthedisabilityindustry.Allfacilitatorsaretrainedprofessionalsinthedevelopmentanddeliveryofthistrainingpackage.TheyhaveparticipatedintheprogramthemselvesandhavedevelopedPersonCentredPlansforthemselvesand/ortheirson/daughterwithadisability.Ourworkshopsareinthestyleoffacilitativeteaching;wewillshowthepractice,demonstratehowitworks,getyoutodoit,andthenaskyoutoshareanddiscussit.Thefacilitatorsarecommittedtoensuringyougetthemostoutofthisworkshoptobenefityourself/yourfamilymemberwithadisability.Theyarecontactableforsupportandadvicewithplanningandarecommittedtobuildingtrustingrelationshipswithallparticipants.AnyissuesorproblemspleasecontactMichaelaKennedyatJederInstitutewww.jeder.com.auIntroductoryRound:

Pleasesharewithusyourname,whatyouwanttogetoutofthisworkshopandsomethingpositiveaboutyourfamilymemberwithadisability. Settingthegroupculture:

Whatagreementsdowewanttoworkby?Whatdowewantourculturetobetohelpkeepussafeandencourageeveryonetospeakfreely?Howdowewanttobewithoneanotherduringourtimetogether?Comfort,Stretch,Panic:

Taking'a'Stretch'

COMFORT'ZONE'

TAKING'A'STRETCH'

DANGER'ZONE!'


ComfortZone:Istheplaceofsafetyandcomfort,weknoweverythingandfeelverycomfortable(firmboundaries).Ifwedon’tleavehereeverynowandthen,welosethechancetogrow.DangerZone:Aplaceofexposureandvulnerability(looseornoboundaries).Ifwegetintothisterritoryweleaveourselvesopentobeinghurtordamaged.TakingaStretch:Theplaceofgrowth(flexibleboundaries).Takingastretchallowsustochallengeourthinkinginasafespace,knowingthatwecanreturntoourcomfortzoneifthingsgettoomuch.Ifwereallywanttochangesomethingwewillcontinuetochallengeourselvesandtolearnfromourexperiences.Youcanplanforlearningbyworkingoutwhatwillkeepyouinthestretchzone:Goal-Tobemoreconfidentinridingahorse:

Actiontobetaken Who When

Organisearegularridingopportunities–onceamonthrideandfortnightlylessonstoincreaseskills

Michaela January

TakenotesofhowIfeltridingatatrotandachanteraftereachrideusingskillslearned

Michaela MonthlyfromFebruary

Discussnoteswithteacheratfortnightlylessonsandfigureoutstrategiestoaddressfear

Michaela Eachfortnight

RecognizingEmotionsThroughoutChange:Fear Anger Frustration Excitement

Werecognisethroughouttheseworkshopsanumberofemotionsmayarise.Weencourageyoutobegentlewithyourselfandeachother.Changeaffectspeopleinmanydifferentwaysandeveryonehasauniquesetofcircumstancesandexperiences.Weworkhardatcreatingasafesupportivespacewithintheworkshopsandencourageyoutoexpressyourfeelingsandgetthesupportyouneed.Wewanttoacknowledgethatnoonecanbeamindreader,thereforepleasecomespeaktous(thefacilitatorsoftheworkshops)foranythingwecandotosupportyou.Overviewof2-DayWorkshop:

Day1

HistoryofTheDisabilityInclusionMovement SystemCentredtoPersonCentredFunding–What’schangingundertheNDIS? SelfDirection&SelfManagementofFundingDescriptionoftheperson IntroducingthePerson–viaStrengths&Capacities5ValuedExperiences&VisionStatement VisioningandVisionStatementDVD–LivingaGoodLife GiftsoftheHead,HeartandHand


Day2

RelationshipMapping,Circles&MicroBoards GoodDay/BadDay/BestDay-Perspectives–LifeAreas&RitualsandRoutines GoalsandwhatsupportisrequiredtogetthemTimetable-weekly Budget–Howmuchwillitcost?IACadviceonreasonable&necessarysupport SuccessionPlanning&SelfCare

HistoryoftheDisabilityInclusionMovement:

FromSystemCentredtoPersonCentred:Person-centeredplanning:withBethMount(1992)http://www.youtube.com/watch?v=y77y7XW8GtE

FromSYSTEMCENTRED–PAST TowardsPERSONCENTRED-FUTURE

Planalifetimeofprograms Craftadesirablelifestyle

Offeralimitednumberofusuallysegregatedprogramoptions

Designanunlimitednumberofdesirableexperiences

Baseoptionsonstereotypesaboutpeoplewithdisabilities Findnewpossibilitiesforeachperson

Focusonfillingslots,beds,placementsandclosures Focusonqualityoflife

Overemphasisetechnologiesandclinicalstrategies

Emphasisedreams,desires,andmeaningfulexperiences

Organisetopleasefunders,regulators,policiesandrules Organisetorespondtopeople

Timelineofsignificantdisabilitymovements JohnO'Brienandthe 'forma1veyears' ofPersonCentred Planning(1979-1992)

BengtNirjecoined BobSchalock(US)MovetowardsthetermandBobCummins(Australia)'Personalisa1on’and‘Normalisa1on'introduce'QualityofLife''Individualised'services

1960s 1980s 2000 2014

1970s1990s2011WolfWolfensbergerfurtherMichaelWehmeyer(US)developedNormalisa1on,whichexplores'SelfDetermina1on'ledto'SocialRoleValorisa1on'acrossthelifespan

UnitedNa1onsCivil/HumanRights&An1-Discrimina1on Conven1ononthe

Movementsincreasing RightsofPeoplewith Disabili1es

Deins1tu1onalisa1onè

Implemen1nganNDIS

Produc1vityCommissionreportonDisabilityCare

andSupport

RichmondReport1983


DisabilityInclusionAct2014:www.facs.nsw.gov.auTheDisabilityInclusionAct2014andtheDisabilityInclusionRegulation2014commencedon3December2014.TheActreplacedtheDisabilityServicesAct1993.TheActhastwomainroles:

1. CommittingtheNSWGovernmenttomakingcommunitiesmoreinclusiveandaccessibleforpeoplewithdisabilitynowandintothefuture.ThesecommitmentswillcontinueevenwhentheNDISisoperatingacrossNSW.

2. RegulatingspecialistdisabilitysupportsandservicestopeoplewithdisabilityinNSWandintroducingbettersafeguardsfortheseservicesuntilthechangeovertotheNDIS.

http://www.adhc.nsw.gov.au/__data/assets/file/0018/300348/DIA-Factsheet-1-Overview-of-the-Act.pdf

StateFunding–Now:

Whatyoushouldknowaboutyourfunding;availablefunding;applyingforfundingandtheNDIS:Withallofthechangesthatareoccurringatthemoment,thelogicalplacetostartistofindoutaboutyourfunding–orthefundingforthepersonwithdisabilities,iftheyhaveany.Thismaytakeabitofperseverancetofindout,particularlyifthefundshavebeenwithanorganisationforalongtime,orifyouhavenoteverreallythoughtaboutit.Whatisimportanttoknowiswhatsupportsyourfundshavebeendesignedtocovernowandhowtheycanbeused,thisiscalledfundingcriteria.Sometimespeoplefindthatthefundsweretocoverrespitebuttheyhavebeenusingitforin-homesupports,orsituationswherethepersonhasusedsomeoftheircommunityaccessfundstopurchasecalliperssothattheycanmovearoundmoreeasilyathomeaswellasinthecommunity.YourDepartmentalliaisonpersonshouldbeabletoassistyouwithfindingouttheinformationaboutthefundsincludinghowmuchmoneyitis.Ifyouknowthenameofyourfundinge.g.accommodation,respite,communityparticipation,transitiontowork,homecare,supportedlivingfund,etc.Youcanlookupthefundingcriteria,seelinksbelow.Whenyouknowwhatfundshavebeenallocated(nameoffundingpackage)aswellaswhatfor(fundingcriteria),youwillhaveaplacetostart.Whetheryouneedtospendtimeplanningonwhatneedstobedonetohelpthepersonwithdisabilitytohavethebestpossiblelifeorwhetheryouhavethissortofinformation&wanttostartmakingsurethecorrectservices&supportsareputinplace,yourknowledgeaboutthefundinglevel(amountofmoney)andcriteriawillbereallyuseful.Sometimespeoplefindthattheydon’thaveenoughfunding.Whenthishappens,youmayhavetogothroughanotherassessment,applicationorappealprocessorconsiderotheravenuesforfunding.Currently,fundingsitswithinvariousstreamsdesignedtosupportpeoplewithdisabilitiesindifferentareasoftheirlife,forexample,accommodationsupport,lifeskills,communityaccess,employmentservices,respite,earlyintervention,transitiontowork,olderparentcarers,home&communitycare,justtonameafew.SomeofthesearefundedundertheNSWgovernment,whereasothersarefederallyfunded.


Youneedtobeawareofthewaythesefundingprogramslookatthesupportthepersonrequires.Thismeansunderstandingthetermsusedinfundingarrangements.Forexample,insteadofsayingyouwantsupportathomesothattheperson’sparentscangoawayonholiday,youmightneedtosaythatthefamilywouldliketogoawayforafewdays,whichmeansthatsomein-homesupportwillberequiredforthepersonwithadisabilitytobuildtheirindependentlivingskills&practicetheseskillsinordertoliveawayfromthefamilyhomeoneday.Anotherexamplemightbethepersonwantstogotoamusicgrouporouttoseelivemusic,thiscanbeframedasthepersonwouldliketomakefriendsandbuildcommunitysupportnetworksthroughsharedinterestsbyattendingamusicgroup,localfestivalsandlivemusicevents.Itreallyhelpstohaveasupporterwhounderstandsthistypeoflanguagedifference&whocanalsohelpyougetusedtousingthislanguageinyourwriting.Ifyouareunsureofanythingyouwriteandwouldlikesupportpleasecontactyourfacilitators.Currentfundingstreamsandcriteria:www.adhc.nsw.gov.au

EarlyChildhood:

https://www.adhc.nsw.gov.au/__data/assets/file/0004/283387/Plain_English_Information_Resource.pdfCommunityParticipation,LifeChoices&ActiveAgeing:http://www.adhc.nsw.gov.au/?a=228283IndividualAccommodationSupport:http://www.adhc.nsw.gov.au/individuals/support/somewhere_to_live/individualised_accommodation_support/individual_accommodation_support_packages

TransitiontoWork:http://www.adhc.nsw.gov.au/__data/assets/file/0003/228288/Transition_to_Work_Guidelines_2013.pdfIndividualisedPrograms:Currently,ADHChasanumberofprogramareas,whichincludeindividualisedfundingoptions:• SupportedLivingFund(SLF)• IndividualAccommodationSupportPackages(IASP)• LeavingCareProgram(LCP)• CommunitySupportProgram(YoungerOnsetDementia[CSP]• YoungPeopleinResidentialAgedCare(In-ReachandIn-Home[YPIRAC]• YoungPeopleinResidentialAgedCare(YPIRACIASP)• ExtendedFamilySupport(EFS)• CommunityParticipation(CP)• FlexibleRespite• BoardingHouseRelocationProgram• LifeChoices/ActiveAgeing(LC/AA)


Whyisitimportanttoplan?–Adaptedfromhttp://www.inclusionbc.org/parent-s-handbook-inclusive-education/planning-your-child-s-education/why-planning-importantPlanningallowsparentswhosupportpeoplewithdisabilitytoconnecttheirhopesanddreamstodailyactions.Itmakespossibleaninclusivecommunitylifeforyourlovedone,onestepatatime.Planningcanalsoinvolveformingateamtoworktogethertowardbig-picturegoals.Thisteamwillincludeyouandyourlovedoneatthecentreandmayincludefriends,neighbours,extendedfamilyandothercaringcommunitymembers.

Planningshouldbeperson-centred.Itbeginswithyourlovedonesandyourfamily.Itshouldalsorespondtoallaspectsoflife—includingsocialrelationships,recreation,andeducationalopportunities—andincludesbothlong-termandshort-termgoalsforyourson/daughter.Person-centredplanningtoolssuchasMaps,PathandLifestylePlanningmaybehelpfulfordevelopingplans.Communitypartnerscanincludeschoolpersonnel,socialworkers,neighbours,friendsandotherprofessionalsupporters;theycanalsohelpwithdevelopingplansandorganizingtherequiredsupportsandservices.

Planningisanongoing,circularprocess.Asyouidentifynewdreams,goalsandneeds,youwillneedtorevisetheplantoaddressthem.Asgoalsintheplanareachieved,youwillneedtodefinenewgoals.Therearealsomanycrossroadsovertheyears,andtransitionplanningiskeytoensuringgoodoutcomes.Transitionplanscanplanforvisitstoanewenvironmentbeforeanactualmove.Thisallowsstaffinthenewenvironmenttodevelopthebestpossiblestrategiestomakethemoveassmoothaspossibleforyoursonordaughter.Somedistrictshavetransitionteamstosupportpeoplethroughmajorchanges.Planningshouldbeginwellinadvanceofanticipatedtransitions.

Overtime,thewayyouplanmaychange.Forexample,aspeoplegetolder,it’simportanttoincludethemasmuchaspossibleintheplanningprocessandtheplansthemselvesmayrequiremoredetailstobeshared.Ideally,peopleshouldparticipateinplanningmeetings.Planningworksbestwhenbothparentsandthepersonwithdisabilityareactiveandvaluedparticipantsintheprocess.JederInstitutecontinuallyrunspreparationandself-directionworkshopstosupportpeopleandfamiliestohavechoiceandcontrol.www.jeder.com.au

FundingundertheNDIS:

TheNDISrolloutwasannouncedinSeptember2015–seethislinkforthetimeframeandwhichareasarerollingoutwhen.http://www.ndis.gov.au/about-us/our-sites/nswItisplanningthatallofNSWwilltransitiontoNDISby2019.ToentertheNDISseehttp://www.ndis.gov.au/ndis-access-checklist-‘NDISAccesschecklist’OnceyouhavepassedtheeligibilityphaseaLocalAreaCoordinatorwillcontactyouandsendyousomeinformation.Ifyoucurrentlyhavesupportfunding,yourinformationhasalreadybeengiventotheNDISandaLocalAreaCoordinatorwillcontactyou.Findmoreinformationat:https://myplace.ndis.gov.au/ndisstorefront/about-us/our-sites/nsw.1.html


ThepersoncentredplanyouwillbeworkingonthroughinthisworkshopwillcoverthecomponentsofanNDISplan.Thetemplatethatcomeswiththisworkbookisauser-friendlyplanthatcanbeusedforimplementingthestated,desiredlifestyle,recruitingateamofsupporters,sharingvaluableinformationwithothersandworkingtowardsasharedvisionandtheassociatedgoals.Self-DirectionTheterm‘self-direction’isbeingusedalotthroughoutthedisabilitysectoratthemoment,butwhatdoesitreallymean?Wethinkitisalsobeingconfusedwithfundingarrangementslikeself-managedandeachstateinAustraliaseemstohaveaslightlydifferentinterpretation,sothefollowingdefinitionsareanattempttohelptoexplainthisabitmore:Directpayment: Provisionofadirectpaymenttoapersonwithdisabilityorhis

/hernominatedpersonresponsible,thepersonorthepersonresponsiblemakesarrangementsforsupportsandisdirectlyresponsibletothefundingbody/government.

Self-directed: Apersondirectingtheirownlifefreefromexternalcontrolandconstraint.Directingthewaytheylivetheirlife,decidingonthejourney,futuregoals,howandwhentogetthereandwhenthingschange.Directingtheirownsupports,howitisgivenandwhoisgivingit. Ithasnothingtodowiththefunding.

Self-managedfunding: Thepersonwithdisabilitiesand/ornominatedpersonresponsibleandnominatesignificantotherpeoplemanagealltheaspectsofthefunding,andprovidefinancialacquittalsandreportsdirectlytothefundingbody/government.

Sharedmanagement: Thisapproachisbasedonanagreedsharingofsupports/fundingmanagementresponsibilitiesbetweentheindividualand/ortheirfamilyandaSupport/IntermediaryOrganisation.

State based Flexible funding programs, also referred to as direct payments, individualbudgets, self-directed support, self-management, consumer-directed care, personalassistance, and individualized funding, have been promoted for a number of yearsthroughoutAustralia,andreflectthecontinuationofinternationalpolicytrendsthathavebeen operating in one form or another for at least the past fifty years. While thesearrangements are not new, considerable interest has been placed over the years onspecifying what self-management and flexible funding means to government, servicestructuresandindividuals.

We believe Self-directed support should beviewed as an option in which people withdisabilities with the support of their families and their allies manage and direct theirservicesandsupports,withtheopportunityalsobeingprovidedforpeopletoself-managetheir fundingpackagetodesigntheirownsupportrequirementsandpurchasethese inawaythatsuitsthembest.


The selfmanagedapproachunder theNDISprovides theopportunity forpeople tohavegreatercontrolovertherecruitment,hiringandmanagementofsupportstaff&tousethefunds flexiblytoaddressotheressentialrequirements. Thisapproachrecasts thepersonwithdisabilities frombeingapassiverecipientofpre-purchasedservices, towardsactivecitizenship where the person has the right to assert and exercise control over theirsupports and their own life. This has been seen as a progressive shift away from a‘professional gift model’ towards a citizen-based approach, which is more in keepingwithwhatisvaluedinmostpeople’slives.

There are many examples of people self-managing their arrangements throughoutAustralia. The following diagram shows one example of the spectrum that self-management of funding covers: (adaptedfromDepartmentofCommunities,ChildSafety&DisabilityServices2013p9)

Asaprocess,self-directionappearstohaveanumberofcommonelements.Theseincludespecific budgets being attached to the individual, with these funds addressing supportcoordination,useof fiscal intermediaries,updating informationtechnology,andadequatetrainingbeingoffered toensureoptimalbenefitsareexperiencedby the individual. Theabilitytousefundsinflexiblewaysiscriticalinpromotingtrueself-determinationaswellasachievingtheimpactsofeffectiveimplementationofself-directedservices.

AdaptedfromReferences:DepartmentofCommunities,ChildSafety&DisabilityServices.2013.YourLifeYourChoice:

Self-DirectedSupportFramework,[online]https://www.communities.qld.gov.au/resources/disability/key-projects/your-life-your-choice/ylyc-self-directed-support-framework.pdf

Apersoncanmoveacrossthisspectrumdependingonwhattheyarecomfortabledoing,theirpreviousexperiencesandcurrentsituation.

SpectrumofSelf-ManagedSupport

Thepersonacceptsfullresponsibilityfortheplanning,budgetingand

organisingoftheirsupport.Fundingisadvancedtotheperson’sbank

account,usuallyonamonthlybasis.

Thepersonacceptsmostofthe

responsibilitiesfortheplanningandorganisingoftheirsupport.Theremainderis

purchased.Fundingmaybeadvanced,reimbursedorheldbytheserviceprovider.

Thepersonacceptssomeresponsibilityfortheplanning,budgetingand

organisingoftheirsupport.Additionalsupportintheseareasispurchased.

30

30


Rees,K.2012.“It’snotjustaboutthesupport:Exploringthewaysinwhichfamilymembersandpeoplewithdisabilitiesevaluatetheirself-directed/self-managedarrangements”,commissionedbythePracticalDesignFund,FaHCSIA,Canberra,ACT.

Thewaywedescribeourson/daughterwithadisabilityisimportant:Toooftenpeoplewithadisabilityaredefinedanddescribedintermsofdeficits,ratherthanintermsofcapacities.Society’s attitude to disability can be a source of distress to families.Families are often toldwhat is wrong with their child/adult, rather than having their capacities highlighted. Oftenfamiliesareencouragedor forced intopointingout their familymembersdeficits inorder toreceivesupportsorfunding.Communitycanseepeoplethroughstereotypes,andcanexpectpeoplewithdisabilitiestobeincompetent. Findingcapacities inpeoplehelpsotherstoseehowcompetentpeoplecanbewhentheyhavetheopportunitytoexpresstheirgifts.Withpersoncentredplanning,thefocusisonthecapacitiesofpeoplewithadisability,andonbuildingopportunitiesinthecommunityforthesecapacitiestobeexpressed.Inparticularthecontributionpeoplecanmaketotheircommunitythroughsharingtheircapacities,andfindingmoreoftheseopportunities.Firstlylet’slookatdescribingthepersonthroughtheircapacities:Descriptionsofthepersoninmylife(deficitversusstrengths)

PersonA PersonB

• Hashigh-levelquadriplegia&isunabletodoanythingforthemselvese.g.eat,bathe,movearound,etc.

• Hasthementalcapacityofa3yearold• Isbrain-blind,unabletospeak,has

significantintellectualimpairmentbecauseofatraumaticbraininjury

• Significanthealthconcernse.g.multipleformsofepilepsy,neurogenicbladder,significantsleepdisorder,coughingdisorder

• HasaPEGforhydration&medicationadministration

• SometimesneedstousethePEGformeals• Limitedtohomelifebecausewhenthey

areawake,itmaybeat2amsonotsafetogooutinthecommunity

• Unabletousetheirhandse.g.touseacomputerorspeechassistanttool

• Refusestouseacommunicatordevicesohardtoknowwhatthepersonreallywants

• Smallbusinessproprietor• Employerofstaff• Teacher&Mentor• Italy&Spainaresoulhomes• Practicaljoker• Karaokequeen• Changeagent• Traveller• Adventurer&risktaker• Adoresinterestingfashion• Foodconnoisseur• Greatlistenerwithakeeninterestin

people• Meditator&musiclover• Spiritualperson• Homeowner&neighbour• Gardenerespeciallynativegardens• Beekeeper• Lovesrelaxinginthespawithfriends• Baileys&milklover–nottoohappythe

nextdayifthereisahangover!


Activity:Describeyourselforyourlovedonewithadisability:

Deficit/Labels Strengths&Capacities

GlassHalfEmptyorGlassHalfFullPerspective:

Wedecidehowwelookatthings.

People/ Communities

have deficiencies and needs

People/Communities

and its citizens Have capacities

and assets

PEOPLE/COMMUNITIES

HAVEDEFICIENCESANDNEEDS

PEOPLE/COMMUNITIES

ANDIT’SCITIZENSHAVECAPACITIESAND

ASSETS


Writinganintroduction:

Anintroductiongivesothersasnapshotabouttheperson.Theintentionheristosetthesceneand bring the person to life, the human being-ness of the person. In general, a goodintroductionwill,introducethepersonandgiveabitofbackgroundinformation,setthescopeofdiscussion,bringattentionto thekeyelement (strengthsandcapacities)of thepersonandincludetheperson’sname,age,gender (ifnotobvious)andthepositiveattributesabout theperson.Theintroductionshouldbeshort,notmorethan2–3shortparagraphs.ExampleIntroduction:HelloI’mBrenton,Iama24-year-oldyoungmanandliveinWoonona,asuburbofWollongong. I love lifeandbeingwithmyfamilyandfriends. I lovemy life inmycommunity;I’macoachfortheWoononaBushrangers,playfootballwithmylocalDragonsandwatchthelocalTigersplayeveryweek.IgototheWoononaBowlingclubprettymucheveryFriday and Saturday night unless I have a party or other event to go to. I have beenvolunteeringinsportsatschoolsfor5yearsnow.IlovemysportandwatchingtheFootyShoweveryweek.IlivewithmyMum,Grandma,AuntandUncleinourlargefamilyhome.Wealllookaftereachotherandenjoyspendingallspecialoccasionstogetherwhenmorefamilyandfriendsvisitandspendtimewithus.MyMumhelpedme towrite thisplanandhelpsme toorganisemy life, ImakeallmydailydecisionsofwhatI’mgoingtodoetc.andIchoosemyownstaff.MumandIarenowlookingintodevelopingabusinesssothatIhavesomethingtodoforworkthatfitswithmypassionsandinterests.Activity:UsingthenotesyouhavemadeinthepreviousactivityintheStrengthsandCapacitiessectionwriteashortIntroduction.


The5ValuedExperiencesgivesusalanguagetodiscussaperson’sdevelopmentandfocusesourattentiononthequalityofaperson’sexperiences.Itresultsinasharedsenseofdirectionandprioritywhichguidestheselectionofpersonalandserviceobjectivesandactivities,formstheessential linkbetweenplansandactionandprovidesthemeansforregularfollow-upandrevision.Itprovidesawaytogetthingsdone.Thosewhomakeimportantdecisionsaboutanotherperson’sfutureneedausefulvocabularyfordiscussingtheeffectsoftheirdecisionsonthequalityofthatperson’slifeexperiences.The5valuedexperiencesarehelpfulindescribingaperson’ssituation,identifyingopportunitiesforimprovement,andevaluatingthemeritofproposedactivities.Five related termsdefine thisway to lookat thequalityofaperson’s lifeexperiences. Eachpointstoexperiencesthatmakesenseforapersontoseekmoreof;togetherthey indicateabalanceof experiences thatmakeeffortworthwhile. History shows that peoplewith severedisabilitiesarelikelytomisstheseordinarypositiveexperiencesunlessthepeopletheyrelyonwork hard to provide them. These valuable experiences come from cooperation betweenindividualsandtheirallies.Theybringoutthequalityofallpeople’slivesbecausetheyaretheresultofpersonal investment, focusedattentionand learning throughaction; theycannotbemanufacturedthroughamechanicalprocess.(O’Brien2002)Everyone’sworldgrowsricherandmoreinterestingwhenpeoplehavemoreopportunitiesforthesevaluedexperiences.Belonging:Beingamemberofagrouporanassociationoracongregation;beingafriend;beingafamilymember;beingapartner.Havingavarietyofrelationshipsandmembershipsincludingassociationswithbothpeoplewithdisabilitiesandpeoplewithoutdisabilities,bothpaid,staff,volunteersandothercitizens.Beingrespected:Beingseenandtreatedwithdignity;beingseenandtreatedasawholeperson;beingseenandtreatedinwaysthathonourthebestinyourculture;beingseenandtreatedasapersonwithrights;beingseenandtreatedinwaysthatfityourage.Sharingordinaryplaces:Makingthesameuseofcommunitysettingsasanyothercitizendoes,atthesametimesandforthesamepurposesasothercitizensdo:living,working,learning,andplayingconfidentlyinordinaryplaces.Contributing:Makingapositivedifferencetootherpeople,tocommunitygroups,andtothecommunityatlargebydiscovering,developing,andgivingindividualgiftsandusingpersonalcapacities.Therearegiftsofbeingandgiftsofdoing:contributionscanincludeinterestedpresenceaswellascapableperformance;insomesituationssimplybeingpresentandinvolvedmakesarealdifference.Contributionscanbefreelygivenorearnpay.


Choosing

Choosing:Havingthefreedomandsupportandassistancetomakethesamesortsofchoicesasotherpeopleofyourageandtolearntomakewiserchoicesovertime.Asanadult,makingbigdecisions(suchaswhereandwithwhomtoliveandwork)andsmallerdecisions(likewhattoeatandwhentogotobed).Atanyage,beingencouragedtouseandstrengthenyourvoice(inwhateverwayworksforyoutocommunicate),toclarifywhatreallymatterstoyou,tomakethoughtfuldecisions,andtolearnfromexperience.O’Brien,J.&LyleO’Brien,C.(2002,3rdPrinting).AlittlebookaboutPersonCentredPlanningInclusionPressActivity:Identifywhereandhow,inyourlifeoryourson/daughter/familymemberwithadisability,dothese5ValuedExperiencesshowup,rightnow.Thenidentifywhereandhowyouwouldlikethemtoshowupinthefuture.Putaboxorcirclearoundthedreamsforthefuture.

Belonging

BeingRespected

SharingOrdinaryPlacesContributing


Developingavision:

Whywouldwedothis?Surelythatsoundslikesomethingpeopledoinbusinessorintheorganisationsthatsupportpeoplewithdisabilities?Whileyouwouldbeabsolutelycorrectinthinkingthis,familymembers&peoplewithdisabilitieshavesometimesfoundthatthissortofapproachcanreallyhelpthemwithintheirdailylives.Avisionisadreamorhopeofsomefuturestatethatwemayachieve.Itisthe‘bigpicture’&answersquestionssuchas:

• Whatisourlong-termgoaloraspiration?• Howdoweseeoursituationin2years’time?5years’time?• Whatisouridealfuturestate?

Thisisthesortofstatementthateveryonewhosupportsyou/thepersonshouldbeabletoidentifywithaswell.Overtime,youwillbeabletoreviewthisstatementtoseeifitstillfitsthecurrent&reflectwhereyouareuptoinlifenow.Thefollowingisanexampleofthesestatements:

VISIONSTATEMENT

Our vision is that Jenny is continually enabled to live a lifestyle she chooses, is used to andentitled to. That Jennymaintains the right tomake her own decisions and experience risk,withinanenvironmentthatensuresthathersafetyissafeguarded.ThatJennyhasvaluedroleswithinherlocalcommunityandsocialnetworks,ensuringthatherpersonaldignityisrespectedatall times. Thatpeople Jennychoosesand thatchoose tobewithher inmutual reciprocalrelationshipregularlysurroundher.

VISIONSTATEMENT:


GiftsoftheHead,HeartandHands:

Inanycommunity,themostfundamentalbuildingblockisindividualpeople’scapacitytojoinincontributingtheirgiftstostrengthentheircommunity.Everyindividualhasmanygifts–knowledge,skills,andinnatetalents;giftsofthehead,handandheart.Averypowerfulwaytobuildastrongercommunitytapsunrealizedpotentialintwosteps.Askingpeople;Whatareyourgifts?Thenconnectinggiftstoopportunitiesforcontribution.Whenpeoplepurposefullylookforgifts,thereareamazingdiscoveries.Thekeyisasking.Themostfundamentalactionofcommunitybuildingisconversation,peopleturningtooneanotherandaskingeachotherwhatisimportanttothemandwhattheyhavetooffertoacommoneffort,toworktogetwhatisimportant.

Activity:Askthefocuspersontotellyouastoryaboutatimewhenheorshewasathisorhervery

best,atimewhenheorshemadeapositivedifferencetootherpeopleandfeltgoodtobeinvolvedindoingso.Itcanbeasmallthingorabigthing,whatmattersisthatthefocuspersonfeltgoodaboutdoingit.(Ifyoucannotcommunicatewellenoughwiththefocuspersontoheartheirstory,youwillneedtoaskpeoplethatknowandcareaboutthefocusperson.)Reflectonthestorybyasking,‘Whatqualitiesorgiftsdoesthisstoryshowthefocusperson

tohave?’Putawordorafewwordswheretheyseemtobelongtoidentifythefocusperson’sgifts.Thenask‘Arethereanyothergiftsorcapacitiesthefocuspersonhas,thataren’tinthestory?’Addtheanswers.Thinkabout:

• Giftsofthehead–knowledge,questions,experience,andinformationthatthefocuspersoncancontribute(forexample:figuringpeopleout,organizingandclassifyingthings,travelroutes,sportsnews,faninformation,gossip,localhistory,abilitytospotabargain,abilitytodebate,salesability,creativethinking,math,solvingpuzzles,interestsinpolitics,desiretothinkandtalkaboutbigquestions)pleasenote;thisdoesnotmeantheyneedtobeanexpertinthearea,justknowaboutitandliketotalkaboutit.

• Giftsofthehand(andfeetandvoice)–abilitiesandskillsthatthefocuspersoncancontribute(forexample:recognizingpeopleandrememberingnames,dancing,fixingthings,singing,typing,drawing,arrangingshapesandcolours,usingacomputer,decorating,acting,composingmusic,figuringoutthebestwaytodoajob,sewing,workinghardusingphysicalstrength,abilitytosign,abilitytospeakorunderstandanotherlanguage)

• Giftsoftheheart–interests,enthusiasms,personalpassions,andtherewardsofrelationshipthatthefocuspersonbringstoothers(forexample:welcomingpeople,patience,courage,impatiencetomovefromtalkintoaction,sensitivitytoothers,highenergy,desirefororder,abilitytolisten,passionforjustice,loveofnature,abilitytodrawothersout,spiritualgifts)


Reference:O’Brien,J.&Pearpoint,J.,(2004)Person-CenteredPlanningwithMapsandPath–AworkbookforFacilitators.InclusionPressGreen,M.,Moore,H.,&O’Brien,J.(2006).Whenpeoplecareenoughtoact–AssetBasedCommunityDevelopment2ndEdition.InclusionPress(pg31)

Head Hands Heart

Activity:

Thinkaboutopportunitiesforthefocusperson’sgiftsandcapacitiestobegiventothecommunity.Whatwouldhelpthecommunitybeabetterplacebythecontributionoftheperson’sgiftsandcapacities?Whatisoneideathatwouldhelpthecommunitybebetteroffbyknowingthefocusperson

throughhis/hergifts?

Describethegoal–

WhatAction/sneedtobetaken Who When

Thingstothinkaboutanddountilwemeetagain:1. Sharewhatyouhavedevelopedherewiththepersonwithadisabilityand/orothers

thatknowandcare,askfortheircontribution


NDISPre-planning

Day2Two


WelcomeRound:

Sharesomethingpositiveaboutyourselforyourfamilymemberwithadisabilitythathashappenedsincewelastmet.Reviewlastsession’swork:Addanynewinformationyoulearnedfromothersthatknowandcareaboutyourselforyourfamilymemberwithadisability.Askquestionsthathavecomeup.RelationshipMapping:http://www.iidc.indiana.edu/?pageId=411

Sincebirth,wehavebeencreatinganintricatenetworkofpeopleinourlives,friendsand/orfamilywhoarethereforusintimesoftrouble,sorrow,andcelebration.Thosefriendstakeaninterestinourlivesandusbecausewesharecommonthreadsthatbindustooneanother.ThisgroupiscalledourCircleofSupportorFriends.Theyarepeoplewevalueinourliveswhohelpusachieveourdreamsorlendahandwhenweareinneed.Wecancountonthemtobethereforus.Theserelationshipsareformedinmanyways,butgenerallycomefrommeetingpeopleindifferentplacesandenvironments.Meetingpeople,formostofus,occursnaturallyandfortheentiretyofourlives.

JudithSnow,awomanwithasignificantdisability,explainsitfurtherandhasdescribedfourdifferentcirclesofrelationshipsthateveryonehasintheirlives.

CircleOne:TheCIRCLEOFINTIMACYismadeupofthosewhowesharegreatintimacy,oursecrets,andheartfeltemotions.Thesearepeopleorperhapsanimalsorobjectsthataresodeartousthattheirabsencewouldimpactusgreatly.Thismayormaynotincludefamilymembers.

CircleTwo:TheCIRCLEOFFRIENDSHIPismadeupofthosepeoplewhoarefriendsorrelativeswhowecallupontogoouttodinner,seeamovie,butarenotthosewhoweconsiderourmostdearfriendsorthosewemustseeregularly.

CircleThree:TheCIRCLEOFPARTICIPATIONiswhereyoubelongandincludesthenamesofthepeopleororganizationsyouparticipatewithinlife.Thiscouldcontainspiritualgroups,whereyouwork,whereyouwentorgotoschool,clubs,organizations,athleticteams,orwhereyouparticipateandinteractwithpeople.SomeoftheseindividualsmaylaterbeinCircleoneortwo!CircleThreeisthegardenforsowingfuturerelationships.

CircleFour:TheCIRCLEOFEXCHANGEismadeupofpeoplewhoarepaidtobeinourlives.Doctors,teachers,dentists,socialworkers,therapists,hairdressers,carmechanics,andthelikemakeupthenumbershere.

JudithSnowexplainsthatwhenwelookatthefourcirclesforpeoplewithoutdisabilities,wecanseethatthereisafairnumberineachcircle.However,ifweweretolookatthecirclesforpeoplewithdisabilities,wewouldseeaVERYDIFFERENTPATTERN.Generallyforpeoplewithdisabilities,theremaybepeopleinCircleOneandCircleFour.Inmanyinstances,circlefourexplodeswithpeoplepaidtobeintheirlives.CircleThree,thekeycircle,hasminimalorganisationsorsocialopportunitiesavailableforthemandthus,peoplewithdisabilitiesareexcludedfromcreatingconnectionstoothersanddevelopingatruecircleoffriendsorsupport.


Thissortofdivisioncanputahugefinancialandemotionburdenonfamilies.ACircleofSupportcanbegintoalleviatesomeofthatstrainandburdenforthefamily;howeveritdoestakeworkandplanning.

Activity:DevelopyourownCircleMap;addnamesintotheappropriatecircle.Makesureyoudothisfromtheperspectiveoftheperson,i.e.wheretheywouldwanttheminthemap.Sometimespeoplewillwanttoaddpetsorpeoplethataredeceased,youmayadddefiningdetailsinbracketstohelpothersunderstandwhopeopleare.Onceyouhavecompletedthemap,putaheartnexttothoseyou/thefocuspersonlovesorcaresdeeplyabout,putastarnexttothosewhoknowanimportantpartofyour/thefocusperson’sstory,putacirclearoundthosethatknowalotofpeopleinthecommunityandputaticknexttothoseyou/thefocuspersonwouldinvolveinplanning.

Intimacy

Friendship

Participation

Exchange


TheRelationshipmaphelpstoidentifyopportunitiesforpersonalsupportandassistance.• Whatarethemainpatternsandthemesintherelationshipsnetwork?• Whatareasofrelationshiparemissing?Whatwouldbeimportanttobuild?• Arethereoldfriendsoracquaintancesfromthepast,withwhomthepersonwouldlike�to

reconnect?• Aretherefriendsoracquaintancesfromthecommunitythatcanbeinvitedtojointhecircle?• Wherecouldcommunitymemberswhowouldliketogettoknowthispersonbefound?

Buildinganetworkofsupport(circleofsupport),invitationandagenda-JudithSnowHowdoesonegoaboutcreatingacircleofsupport/friends?Whatarethestepstofollow?Therearemultiplefactorstoconsiderandeachiscrucialtothesuccessofthecircle.Firstandforemostistoestablishwhothefocuspersonis.Thispersonistheonewhowillbethedrivingforce;thecenterofalldiscussionandplanning.Oncethishasbeenestablished,theplanningbegins.Theremustbea‘champion’orsomeonewhowillseetoitthatthiscircleisformedandthattherewillbefollowthroughfromtheplanningtotheimplementationstages.Inmanyinstances,thisisoneoftheparentsoracaregiverfortheindividual.Astimepassesandacircledevelops,thisrolemaybetakenonbyothers.

Decidewhomtoinvite.(ItisbestifCirclemembersarenotpaidtobethere,itisvoluntary!)Thefocuspersonhasagreatdealofsayaboutwhotoinvite.Createalistofindividualscommittedtochange,whobelieveinthefocusperson,andwhowouldbecommittedforthelonghaul.Memberscanbeneighbors,family,communitymembers,fellowchurchgoers,ormembersofclubs.Therearenolimits,butbeselective.Invitethosepeoplewhoarewillingtotakeachanceandavoidthepeoplewhoareskepticalorunsureofchange.

Obtainfacilitators.Itisbesttohavetwofacilitators;onetoleaddiscussionandonewritedowntheinformationanddographics.Interviewthemasneededtofindonethatthefocuspersoniscomfortableusing.

Decideonalocationandtime.�Meetingscanbeheldinahome,church,school,library,backyard,conferenceroom,oranybigmeetingspacethatisavailable.Thedayoftheweekandthetimecanvarydependingupontheavailabilityofpotentialmembers.Potentialtimescanbeimmediatelyafterwork/school,overthedinnerhour,orduringtheweekend.SometimesCirclemembersmaywanttoorganizeaspecialeventandgotoapark,gobowling,orhaveapizzaparty!Itisalwaysgoodtoincludesomerefreshmentsforthemeeting:makethemeetingassimpleorasinvolvedasthefocuspersondesires!

CreateandmailinvitationstoalloninvitationlistwithRSVPdate.�Theinvitationcanbeassimpleorascomplexasthefocuspersondesires.Somecircleshaveincludedthereasonforthemeeting,inasimpleandtothepointfashion.

Decideonanagendaformeetingwithfacilitator.�Whatwillbediscussed?Dopeopleneedtounderstandacircleofsupportortolearnmoreabouttheindividual?Therearenorealrulesaboutagendas,butitshouldbediscussedaheadoftime.


Hereisonesuggestedagendaforaninitialcirclemeeting:• Introduceallcirclemembers.Howlonghaseachpersonknownthefocuspersonandhowdid

theymeet?Otherquestionsthathelppeoplegettoknowoneanother.• Reviewtheindividual’slifeasitisnowtobuildapictureandaddtoexistinginformation.• Clarifyideasaboutthefuture.Reviewobstaclesandopportunities,discussthesedirections,

andselectapriority.• Recordobstaclesandopportunitiesastheyarise.• Makecommitmentsforaction.• Setthenextmeetingtimeandplace.

AccordingtoJudithSnow,listeningtothedreamsofthefocuspersonistheprimaryfunctionoftheCircleofSupport(PUSH,2001).Onthedayofthemeetingthefocusperson,facilitator,and“champion”willwanttoarriveearlytoensuretheroomissetupforthecircle,whichmeanschairsinacircleorsemi-circle.Thisensuresthatmembersofthecirclecanallseeeachotherduringthediscussion.Thisearlyarrivalwouldalsoprovidetimeforpreparationforthemeetingbyreviewinganyquestionsthatwillbeaskedofthefocuspersonandtobesurethatpersonhashadtimetothinkoforgeneratetheanswers.(Thiswouldbetrueespeciallyifthepersonisnon-verbalorusesaugmentativecommunicationandwouldneedtimetoprepareanswers).Thefacilitatorswouldopenthemeetingandfollowtheagendathathasbeencreatedinatimelymanner.Mostcirclemeetingsarenolongerthan2–3hours.Atthecloseofthemeeting,membersmayleavewithassignmentsthatwouldsupportthecircle’seffortstosupportthefocusperson.Examplesofwhatcirclemembersmayvolunteertodoare:helpingsomeonemoveintotheirownhome,orhelpingthemtodevelopmorerelationshipsbymeetingpeopleinthecommunity,schoolorothercommunitysettings.Progresswouldbereportedonatthenextmeeting,whichisalwayssetattheendofeachCirclegathering.Thatwayeveryonewillknowwhentheywillbesharingwhattheylearnanditislesscumbersometoplan.OncetheCirclehasbeencreatedandthefirstmeetinghashappened,itwillbecomeeasiertoestablishtheagendasforfuturemeetingsandthenumberofmeetingsthatwillbeneeded.Somecirclesmayinitiallymeetfrequentlyandthentaperoff,othersonlymeetquarterlyandstillothersmeetonlyasneeded.Itisbesttomaintainaconsistentmeetingpatterntoensurequalityandkeeptheinterestandcommitmentofthecirclemembers.ACircleofSupportcancreatemanywonderfulrelationshipsandopportunitiesforindividualswithdisabilities.Realfriendshipscanstartandleadtoamorefulfillingandrichlife.ItisnevertooearlyornevertolatetocreateaCircleofSupport.http://www.iidc.indiana.edu/?pageId=411


Anidealperson-centeredplanninggroup(circle)consistsofavarietyofpeopleandroles:

• Familymembers–providesahistoricalperspective,strongalliancewiththefocuspersonHomemaker–istheguardianofhospitalityforthecircle�personalassistants–areresponsibleforday-to-dayresponsivenesstotheperson�

• Warrior–focusesonimmediateandlong-rangeactionstohelpimplementtheplan�• Teacher–providesinformationandskillstothecircletohelpimplementtheplan�• Communitybuilder–mayhavemanyconnections,invitesandbringsothersintothe

circleandtheperson’slife,bothtostrengthenthecircleandhelpinimplementingtheplan

• Administrativeally–canseeandadvocateforadministrativechangesthatmightbeneededbothforthisfocuspersonandforlong-termchange�

• Mentor–canprovideinformation,guidanceandinsightthatwillhelpinlong-termchangeBenefactor–mayassistinprovidingwhat’sneededforlong-termchange�

• Spiritualadvisor–renewsthefaithofthepersonandthegroupovertime�• Facilitator–providesfocus,keepstheprocessgoing,keepsthegroupfocusedonand

clearaboutthevisionandactiontoimplementit

IdealCircleofSupport

CommonDream

CommunityBuilder/sHome-maker

TeacherWarrior

Administrator

Mentor

CheeringTeam,Family,Friends

PersonalAssistants

SpiritualAdvisor

Facilitator


ParticipationThroughSupportCircles–JudithSnowTheverynatureofourculturallygivenperceptionofdisabilityandourresponsetoitseemstoobscureourperceptionofthepeoplebehindthelabels.Whatcanaconcernedpersondo?Becomingacirclebuildermayprovideopportunitiestoactuallymakeadifferenceinthelivesofsomepeople.Supportcirclesbreakthroughthedisabilityfocusinseveralways.Mostsignificantly,circlesarepowerfulbecausetheyexisttohonor,supportandmakeavailableaperson’scapacitiesandinterests,nothisorherdeficits.Supportcirclesareformedtobevehiclesforpeopletodiscoverandtotalkaboutwaysinwhichapersoncouldbecontributiontothewidercommunitythrough,interestsandtalents.Theyworktocommunicatetoawiderworldwhatcapacitythefocuspersonhastoenrichothers.Theydiscoverorcreateplaces,supportsandcontactsthatwillmakethisperson’sparticipationgrowanddevelop.Secondly,supportcirclesarepowerfulbecausetheirfocusisonrelationshipsandnotindividuals.Circlesfunctionprimarilybybringingthefocuspersonintoaricher,morediversenetworkoflisteningpeople.Theperson’snatureandabilityisunfoldedbythelisteningpeople.Theperson’snatureandabilityisunfoldedbytheinteractionsfosteredbythenetwork.Disabilitylosesitspowertofocuspeople’stimeandenergy.Disabilityisdisempowered.Asupportcirclebelongstotheworldofparticipation.Justtheinitialestablishmentofacircleisalreadyastepforwardtohavingsomeoneparticipateinthecommunity.Thefocusisononepersonyetallthemembersofthecircletypicallywillexperiencetheirparticipationinthecircleasavehicleforexaminingandimprovingtheirowncontributionstosociety.Althoughasupportcircleisnotalwaysnecessary,ithasauniquepowerforrapidlychangingthelifeexperienceofanindividualwhoisfacinggreatbarrierstoinclusion.Acircleisacreationintheareaofrelationship,meaningandinteraction.Peopleexperiencebeingpartofacircleas‘natural’andthey‘know’howtoofferbothformalandinformalsupporttoeachother.Circlesalsoempowercirclemembersandbuildersbecausetheyareunpredictable.Energizedbymultiple,complexrelationshipstheyoftenbecomemagnetsofsynergy,takingadvantageofopportunitiesthatcannotbepredictedorbureaucraticallymanagedintoexistence.Thislivingessenceofcirclesdrivesoutthedeadeningspiritofdisabilitythinking.Thelivesofpeoplewhohavebeen‘helped’areusuallyscarredbydisrespect,physicalandemotionalabuse,andbrokenrelationships.Atthebeginningandthroughout,itisimportanttorecognizethatsupportcircleshavepower–bothtosupportortohinder.Thepersonwhoisinterestedinstartingcirclescanstillbedrawnintodisabilityasafocus.Apersonaldisciplinewillhelprestrainthemfromdoingthisharminavulnerableperson’slife.Thispracticeisoutlinedbelow.


Buildasafecoursebyfollowingthesesteps.– Giveupdisability,itslanguageanditsforms.Peopleareopportunitiesandpeoplehave

opportunitiestoenrichcommunity.Learntoseethese.– Practiceinclusiontolearninclusion– Dream.Invitepeopletolistentoyourdreams– Listentootherpeople’sdreams– Say“Yes”– Listen– Giveupdoingwhatdoesn’twork– Invitediversityintoyourownlife– Recruitacoach.Beacoach.Togethersupporteachothertolearncirclebuildingmore

deeply.Inthegatheringofthecircletheintentionisestablishedtolistentoaperson’sdreamandtocreatetheresourcesandopeningsrequiredtobringthisperson’sdreamintothecommunity.Thefocusremainsonthepersonwhoisvulnerabletobeingisolatedandtobeinganonparticipant.Thefollowingarethestepsrequiredtocreateasupportcircle:

1. Figureoutwhothecircleisfor2. Invite3. Ensurethatdreaming,storytellingandlisteninghappenateverycirclemeeting4. Keepthecirclemeeting5. Makesurethatthefocuspersonsays‘yes’tosomethingthatthecircleoffers

Itcanoftenbealittlemind-bendingfiguringoutwhothecircleisfor.Inthesituationwherethefocuspersonisanadultwhospeaksforthemselves;thescenarioisfairlystraightforward.Suchasituationisrare.Moretypicallyonepersonisthenamedfocusbuttherealfocusisonaparentoranadvocatewhotypicallyspeaksforthisperson.Thereisnothingwrongwithaparentoranadvocatebeingthefocus.Infactwhenthecircleinvolveschildrenitisessentialthatthecirclebeformedaroundtheparent(s).Theissueissimplythatwhenthefocusisconfusedtheprocessgetsunclearandactionsstall.Thereforeitisessentialthatthisissuebesortedout.Occasionallythefocusofthecirclewillshiftforashortperiodoftime.Thisisagoodthingunlessforsomereasonitisdifficulttoreturnthefocustotheperson’thecirclestartedfor.Insuchasituationconsiderstartingtwocirclesthatareinterconnectedbyhavingsomejointmembership.Invitingisacriticalstage.Peopletypicallysaythattheydonotknowanyonetoinvite.Thisisabsolutelynottrue,yetinacertainsensetheexperienceisquitereal.Itisusualthattheperson’slifeisfullofpaidpeopleandothersfocusedontherapyandadvocacypluslotsofotherpeoplewhohavebeencarefullytrainedbysocietytoseethisindividualaslimitedandinneedoffixing.Thedynamicsofthedisabilityfocusmakeitalmostacertaintythatallthesepeoplehavebeeninteractinginwaysthatpusheachotheraway.Itdoesn’toccurtotheindividualinquestionthatsomeoftheseverysamepeopleareabletoandinfactwouldlovetohaveanopportunitytofosterparticipationandinclusion.


Keepthedreaming,storytellingandlisteningaliveisnotdifficult.Yetsomeonemustalwayswatchthatdreamsdon’tdropofftheagenda.Wehaveallbeencarefullytrainedtobecomebusyplannersandbehaviorpolice.Listenfordreaming,storiesandlisteningandkeepthecirclegoingneedsintentionintheinitialstages.Itusuallytakestimeforpeopletocatchtherhythmofdreaming,storytellingandlistening.Infactthepersonisincludedassoonasthecirclebeginstomeetsinceitisthejourneyofinteractionsandmeaningandthelisteningtodreamsthatcountsmuchmorethantheoutwardsuccesses.Intime,asthecircleexperiencestheinventionofitsownstoryandassuccessesemergefromunexpecteddirectionstheintentionofgatheringbecomeslesscritical.Thepointisthatthesupportcircleisthevehicleoflisteningtodreams.Thelisteningmustcontinueuntilthereareenoughotherpossibilitiesoflisteningintheindividual’srelationshipnetwork.Eventhen,lifeisveryfragile,andthecirclemayneedtobecalledtogetheriftheghostof‘disability’raisesitsheadagain.Insummary,circlebuildingisaprocessliberatingaperson’sparticipationandinclusionincommunity.Likeallsimplethingsinlifethereisanunderlyingintegritywhichmustbehonoredifsupportcirclesaretobeeffective.Thisintegrityrequiresacommitmenttogiveupdisabilityandit’sfocusonfixingpeople.Buildingrelationships,buildinginclusionandbuildingcommunitytaketimeandcommitment.Theyareaslowprocessthatoftentakesyearstoreachfullfruition.Yet,paradoxically,inclusionsandrelationshiparetheroadtotrulysupportingvulnerablepeople.Nothingelseworks.O’Brien,J.&LyleO’Brien,C.(2002,3rdPrinting).AlittlebookaboutPersonCentredPlanningInclusionPress(page83-87)Microboards:http://microboard.org.au/our-work

AMicroboard™isasmall(micro)groupofcommittedfamilyandfriends(generallyaminimumof5people)whojointogetherwiththepersontocreateanon-profitsociety(board).Together,theyhelptheindividual:

• Planhis/herlife;• Brainstormideas;• Advocateforwhattheyneed;• Monitorservicesandensuretheyaresafe;• Connecttohis/herwidercommunity;and• Dofunthingstogether.

InthefutureinAustraliaMicroboardsmayalsoplayaroleinmanagingfundinganddeliveringtheservicesthattheindividualneeds.Togetheryoucancreateservicesthatarecreative,flexibleandreflecttheneedsoftheindividual.

WewillnowstartworkingthroughtheJederNDISpre-planningworkbooktemplateandbeingpreparedtomeetyourNDISplanner.Wewillstartwithlookingatwhatmakesupagooddayandabaddayforthepersonwhoseplanitis.Usingwhatcomesupfromthegoodday/baddaylisttodescribethewaylifeisrightnow,howhe/shewantsittoliveinthefuture,thegoalstowardsitandwhatsupportisneededtoachievethefuturegoals.


GoodDays/BadDays:Bylookingatwhatmakesupagoodday,whatmakesupabaddayforyou/thepersonandwhatmakesupthebestday,wecanstarttoidentifywhatisimportanttoyou/theperson,howtobestsupportyou/thepersonandwhatthegoalsarethatweneedtofocuson.GothroughtheLifeAreastothinkaboutonthenextpageplusritualsandroutines.Thinkaboutthegoodday/badday/bestdaythingsfromdifferentperspectives,firstlythepersonthenthefamiliesandappropriateotherse.g.otherfamilymembers,paidsupport,friends.

GoodDay BadDay BestDay

From

thepe

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’spe

rspe

ctive

Goingout–movies,meals,theatre,shows,festivals,gym,swimmingBeingatfamilycelebrations,havingapartywithfamilyandfriendsLivingnearmumanddadandhavingaflatmatethatIlikeCookinglotsofnewrecipesandgettinghelptokeepmyflatcleanGoingshoppingwhenIlike

Nothavinganythingtodo,especiallysomeeveningsandweekendsDoinghouseworkbymyselfNotseeingMumeverydayNothavingajobNothavingenoughmoneytobuyeverythingIwant/needespeciallydataandphonecreditGettingconfusedwithtimeandmoneyNotbeingabletoreadwellNothavingapartner/relationship

HavingsomethingfuntodoHavingpositiverelationshipswithpeoplethatsheliveswith,everyoneisgoingwellinlifeandgettingonwell.Tryingsomethingnew,whetheritisanewrecipeornewactivityormeetingsomeonenewBeinginanintimaterelationshipHavingenoughmoneytobuywhatIwantHavingheapsofphonecreditanddataSeeingpeoplewhenoutinthecommunitythatIknowandlikeNotgettinghassledabouthousework

From

thefamiliesperspectiv

e

HavingaplaceofherownGettingthesupportsheneedsMummanagingthesupportswithJennyBeingclosetoherfamilyBeingavaluedmemberinthecommunity,beingknowne.g.movies,swimming(winningcomps),shopsChoosingherownactivitiesandsupportersHavingamobilephone&beingabletocallMumeveryday

Nothavingenoughsupport,eveningsandweekends–needmorefundingDoinghouseworkwithoutsupportHavingajob&havingenoughmoneyHavingtocallMumeveryday(uptoadozenormoretimes)HavingfriendstodothingswithandmakinggoodchoicesaboutfriendsGettingembarrassedinpublic(aboutmakingmistakeswithmoneyandreading)

Positive,supportiverelationshipswithfamilyandfriendsHavinganintimaterelationshipHavingajobanddoingsomethingpurposefulandofvaluetoothersHavingflexibilityinherdayKeepingherunitcleaninsideandoutManagingherbudgetandhavingenoughphonecreditanddataHavingenoughsupporttobeindependentindailytasksandinthecommunity


LifeAreastothinkabout:Whenthinkingabouttheselifeareasanddescribingthemintheplanmakesureyouaddthedetailsofwhat,whowith,howlongorhowoften,when,whereandanythingelsethatwillhelpmaketheinformationcleartoothersthatreadit.DailyLivingTobeindependentanddoingordinaryday-to-daythings

• Doingmorethingsforyourself/themselves• Learningnewlifeskillsandbecomingmoreindependent• Helpwithpersonalcare,gettingreadyorgoingtobed• Gettingtowhereyouneedtogointheday,travel/transportand/orlearninghowto

dothismoreindependently• Gettingouttoappointmentsandordoingshopping,payingbillsetc.• Equipmentorassistancetoengageindailyliving

SocialandCommunityParticipationAboutdoingthingsinyourcommunity

• Spendingmoretimewithotherpeopleinyourcommunity• Makingmorefriendsorspendingmoretimewithfamily• Tryingnewactivities,likejoiningacluborgroup• Sportactivities,hobbiesand/orleisureactivitiesyouenjoy• Beingmoreabletoattendeventsorspecialoccasionsinyourcommunity

RelationshipsAroundbuildingrelationshipswithfamilyandfriends

• Areyou(oryourson/daughter)happywiththerelationshipsinyour(their)life?• Areyou(oryourson/daughter)havingdifficultyinsocialsituationsorwithgettingalong

withyour(their)friends,familyorotherpeopleinyour(their)life?• Whatwouldyou(oryourson/daughter)likeyourrelationshipstolooklike?• Learnsocialskillsandwaystobuildnaturalsupports

HomeTobeindependentathome

• Doesyourcurrenthomesuityour(oryourson/daughter’s)needs?• Doyouneedtochangewhereyou(oryourson/daughter)live?• Doyouneedsomehelptomakesureyou(oryourson/daughter)staylivingwhereyou

are?• Arethereanymodificationsthatwouldhelpmaintainaqualityoflife?• Supportaroundthehometokeepitclean,insideandout?

LearningLearningsomethingneworimprovingskills• Likeanewskillorqualification?• Areyou(oryourson/daughter)startingormovingtoanewschoolorotherformof

education?


• Whatdoyou(oryourson/daughter)wanttoachieve?• Arethereanytrainingprogramsorconferencesthatwillbenefit?

ChoiceandControlLearningsomethingneworimprovingskillstomakedecisions• Areyouhappywiththecontrolthatyou(oryourson/daughter)haveoverthechoicesyou

(they)makeindailylife?• Doyou(oryourson/daughter)needhelptomakechoicesaboutwhosupportsyouand

when?• Helpwithlearninghowtomakewiserchoices• Learninghoworteachingothershowyou(oryourson/daughter)communicatesyour

(their)choices• Supporttoimplementyour(yourson/daughter’s)plan

HealthyandWellbeingImprovingormaintaininghealthandwellbeing:• Doyou(oryourson/daughter)wanttogethealthier,changeyourdietordomore

physicalactivity,liketakingupasport?• Whatisityou(oryourson/daughter)wanttochangeorachieve?• Arethereanytherapists,specialistsorprofessionalsthatcouldhelpinbeinghealthyand

well?WorkandEducationFinding,gettingandkeepingajob(paidorvolunteer)orstudying:

• Doyou(oryourson/daughter)wanttogetajob,volunteerorstudy?• Doyouwanttoincreaseyourworkorvolunteerhours?• Doesanythingneedtohappenbeforeyou(oryourson/daughter)arejobready?• Doyou(oryourson/daughter)needanythingtokeepyoubeingabletoworkorschool,

college?• Doyou(oryourson/daughter)needanythingtohelpyoutogettowork,volunteerwork

orplaceofstudy?ManagingthePlanHowyou(yourson/daughter)wanttheplantobemanaged

• Selfmanagedofwholeplantohavefullcontrolandchoice• Engageaplanmanagertoprocessinvoicesandmanageexpenses• Coordinatorofsupportstohelporganisethesupportsandemploypeople• Planmanagertosupportimplementationoftheplan• NDISorserviceprovidermanaged


RitualsandRoutinestoThinkAbout:

Weallhavesomekindofregularritualsand/orroutinesinourlives.Theyhelpustomakesenseofourday/weekandhavecontroloverhowandwhenwedothings.Somepeople’sroutinesareexactlythesameeveryday/weeke.g.thewaywegetupinthemorningandgetreadyfortheday,whileforotherstheyaredifferentinthedetailofwhenthingshappen,butusuallythehowithappensisthesame.Forexample;thinkaboutthewayyoubrushyourteeth,everythingfromthetypeoftoothbrushyouprefer,toothpaste,temperatureofthewater,whichpartsoftheteethgetbrushedfirstandlast,wewillalldothisactivityinourownindividualway,tryanddoitdifferentlytomorrowmorningandseehowitfeels.Forpeoplethatrequiresupport,keepingroutinesthesameprovidespredictabilityandifthingshappeningdifferentlyallthetime,cancauseconfusionandupset.Thinkthroughwhatritualsandroutinesareimportanttotheperson:

Daily:• Gettingup&gettingready• Goingtobed• Arrivingatwork,school,ordaytime

activity• Arrivinghome• Whensleeping

WeekendsWeeklyMonthly

CelebratingwhensomethinggoodhappensComfortyourselfwhenthingsaren’tgoingsowellBirthdaysHolidays:

• Food• People• Places

Culture&Religion

Activity:LookingovertheLifeAreasandRituals&Routinesandmakealistofallthethingsthatmakeupagooddayandabaddayfromthedifferentperspectives.

GoodDay BadDay BestDay

From

thepe

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’spe

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From

thefamiliesperspectiv

e

From

otherpeo

ple’sp

erspectiv

e

Activity:Tellingthestory:Putacirclearoundthepointsthataregoalsforthefutureandusingallthepointsthatreflectthecurrentlifesituationaddinformationtothebelow.Usingwhatyouhavelearnedaboutwhatmakesupagoodday,abaddayandabestdayfromeveryone’sperspectives.CompletetheAboutMesectionoftheNDISpre-planningworkbook(handout)describing:

• Whereyou/thepersonlivesandwhoyou/theylivewith• Peopleinyour/theperson’slifewhosupportsyou/theperson• Your/theperson’sdailylife

Makesureallpointsfromthegoodday/badday/bestdaylistsarecoveredwithaddedexplanations.Thisisabouttellingthestory,howlifeisrightnow,howyouwouldlikeittobe,thegoodthings,thechallengesandwhatchangesyouwouldliketomake.


GoalSettingfortheNDIS:Goalsettinghelpsustotakeourdreamsandturnthemintoreality.Identifyingthegoals(steps)neededtoachieveadreamandmovingthroughthesestepshelpsustokeepmotivatedandcontinueonthejourneyofachievingourdreams.Goalsettingcanhelpyouorganiseyourtimeandyourresources.Bysettinggoalsyoucanmeasureyourprogressandcelebrateyourachievements.

Goal:Describetheactualgoal–thiscancomestraightfromthethingsyouhavepreviouslydocumented(in5valuedexperiences)oritcanbeapartofalargerdreame.g.adreamcanhaveanumberofgoals.DuringthisplanIwant:–broadlydescribewhatyouwanttoachieveorworkoninthenext12monthswhileworkingtowardsthisgoal.Goal:Describetheactualgoal:ToimprovemyabilitytocommunicatewithotherssoIcanspeaktomorepeopleandmaintainrelationshipswithmyfriends,family,colleaguesandcommunitymembersDuringthisplanIwant:TomaintainandincreasemycommunicationskillsbyusingAUSLAN,Proloquo2goIncreasemywritingandtextingskillssothatIcanmaintaincontactwithmyfriendsandfamilyMysupportstaff,family,friendsandcolleaguestohavetraininginAUSLAN,Proloquo2goandthewayIcommunicateThatalltheplacesIgotoe.g.footy,cafes,thelocalclub,thegymunderstandsthewayIcommunicateandcancommunicatewithme

Activity:Usingwhatyouhavedocumented(circled)in–Goodday/Badday/BestDayandthe5ValuedExperiences(future)startthinkingaboutthegoals.

Goal:Describetheactualgoal:

DuringthisplanIwant:


WeeklyActivityTimetableWeallusesometypeoftimetabletoorganiseourlivese.g.calendaronthekitchenwall,ourdiaries,onlinediariessharedwithothers,etc.Theweeklyactivitytimetablewillhelpustoorganisetimestoworkonourgoals,dothingsinlifethatkeepushealthy,funthingswewanttodowithourfamilyandfriendsandmore.Settingoutthetimesthingshappenhelpsustoorganisethingsforthepeoplewesupportinanumberofways:

• Tofigureoutabudgetforpaidsupport• Scheduleactivitiesforfunandforlearning• Scheduleactivitiesforthingsthatneedtobedonetohelpthepersonstayhealthy• Sharingwithotherswhatishappeningintheweek• Organisingsupportfortimesit’sneeded• Knowingthetimesthatpersonwantstoandcanbealone• Knowingthetimesthatneedpaidsupportandthetimesthataresupportedbyfamilyandfriends

Activity:Completethetimetablebelowwithwhathappensonausualweek;addthedetailsofthetimese.g.Mondaymorning,7.30am–9am,gettingupandgettingready.Shadethedifferentsectionstoindicatepaidsupportandunpaidsupport.Iftherearesomethingsthathappensregularlybutnoteveryweek,makeanoteaboutthate.g.Fridayevening,8.30pm–11pm,onceamonthvisitsCousinsfordinnerandgames.Anythingthathappenslessthanonceamonth,e.g.onceayearholiday,addnotesontotheJederNDISpre-planningtemplateintheSometimesIdo….Usethetemplateonthenextpagetodocumenthowlifeiscurrently.UsthetemplateontheJederNDISpre-planningtemplatetodocumenthowitwillbeinthefuture.


Monday Tuesday Wednesday Thursday Friday Saturday Sunday

EarlyMorning

Morning

Midday

EarlyAfternoon

LateAfternoon

Evening

Overnight


Example Timetable Teenager’s activities calendar TIME Monday Tuesday Wednesday Thurs Friday Saturday Sunday

Earlymorning

7.00am-8am

Supported

PersonalCare

>SchoolTransport

7.00am-8am

Supported

PersonalCare

>SchoolTransport

7.00am-8am

Supported

PersonalCare

>SchoolTransport

7.00am-8am

Supported

PersonalCare

>SchoolTransport

7.00am-8am

Supported

PersonalCare

>SchoolTransport

8am-9am

Supported

PersonalCare

>pickupforSport

8am-9amPersonal

supportcare>

readyforChurch

Morning

8:30am-12:00pm

Highschool

Socialactivities

1hour

8:30am-12:00pm

Highschool

SPEECH

PATHOLOGYSocialactivities

1hour

8:30am-12:00pm

Highschool

Socialactivities

1hour

8:30am-12:00pm

Highschool

Socialactivities

1hour

8:30am-12:00pm

Highschool

PSYCHOLOGYSocialactivities

1hour

10:00am-12pm

FitnessClub.

10am-12pm

Churchwithmy

family

Earlyafternoon

12:00-3:15pm

Highschool12:00-3:15pm

Highschool

12:00-3:15pm

Highschool

12:00-3:15pm

Highschool

12:00-3:15pm

Highschool

Lunch,laundry,

vacuuming,

mowingor

brushingdogs

12:30–1:30pm

LunchwithChurch

friends

LateAfternoon

4:30pm-6:30pm

supportedCricket

Trainingwithmy

friends

3:30pm-6:00pm

BusTraveltraining

fromschoolto

FitnessClub

4:30pm-6:30pm

TenPinBowling

withmyfriends

thenborrowbooks

Library.

3:30pm-6:00pm

FitnessClub

&

Cookasimplemeal

forfamily

6:30pm

Mealoutwithmy

friends

3:00pm–4:30pm

Technology

SupportforVisual

Scheduling&social

storybookmaking

ondevices.

Athomeorvisiting

Familyfriends,

swimatCluborgo

tandembike

riding.

Evening

6:30pm-8:00pm

Dinner,Shower

GuidedReading

TV,laptop,iPad

6:30pm-8:00pm

Dinner,Shower

GuidedReading

TV,laptop,iPad

6:30pm-8:00pm

Dinner,Shower

GuidedReading

TV,laptop,iPad

6:30pm-8:00pm

Dinner,Shower

GuidedReading

TV,laptop,iPad

9:30pm

YouthClub

Fellowship

4:30pm-9:30pm

Occasionallive

SportorPlay,or

Movieordinner

6:30pm-8:00pm

Dinner,Shower

TV,laptop,iPad

OvernightAthomewith

family

Athomewith

family

Athomewith

family

Athomewith

family

Occasional

sleepoverat

friendsplace.

Athomewith

family

Athomewith

family

OnceamonthPersonwillsleep-overatfriends’homestohavetimeawayfromfamilyanddeepenhissocialconnectionswithotherfamilies.

DuringSchoolholidaysPersonwillgoonYouthWorkscampsandsupportedDayExcursionswithfriends(beach,liveevents,bushwalks).

Paid Support Unpaid support Family Support


TheBudgetUsetheweeklyactivitytimetabletofigureoutthehoursofsupportrequiredforyourselforthepersonwithadisability.Thisbudgetisayearlybudget,sostartwithfiguringoutthehoursperweekthenmultiplybythenumberofweeksintheyearthesupportisrequired.Whenconsideringthebudgetlookat:TheNDISPricinglisthttp://www.ndis.gov.au/providers/pricing-and-paymentSocial&CommunityServicesindustrypayrates-http://www.fairwork.gov.au/pay/minimum-wages/social-and-community-services-industry-pay-rates

Staffcosts:• PersonalAssistant• LivingSkillsAssistant• Mentor• CommunityLinker

TravelExpensesOccasionalstaffcosts:

•

Weekday7am-8pm$?+9.5%super=$?p/hxhrs.p/yWeekday8pm-12pm$?+9.5%super=$?p/hxhrs.p/ySaturdayallday$?+9.5%super=$?p/hxhrs.p/ySundayallday$?+9.5%super=$?p/hxhrs.p/yMileage:78cperkmwithanaverageof?kmperweekEveningmonthly–1pm–10pm$?+9.5%super=$?p/hxhrs.p/y

$$$$$$

Activitycostexpenses $?perweekx?weeksperyear $Therapists $?perweekx?weeksperyear $Oneoffpurchasese.g.continence,modifications,conferences

$

Planmanagement• Financialintermediarysetupcosts• Co-ordinatorofsupports• Monthlyprocessing• Serviceactivities• Training

$?Peryear$?Perhourx?hoursperyear$?Permonthx12months$?Perhourx?hoursperyear$?Perhourx?hoursperyear

$$$$

Insurancese.g.publicliability&workerscomp. $Sub-Total $Total-Annual $


Youngpersonleavingschool,livingathome

Staffcosts:• IndependentLivingskills

• CommunityAccess

TravelTraining

ExercisePhysiology

PersonalTraining

Findingajob

0011Weekday-$41.18x13.5hoursperweekwhileatschoolx21.5weeks

Weekday-$41.18x10.5hoursperweekpostschoolx25.8weeks

Weekend(Sat)-$57.13x5hoursperweekx48weeks

Weekend–(Sun)$73.11x4hourspermonthx48weeks

Weekday-$41.18x20hoursperweekwhileatschoolx21.5weeks

Weekday-$41.18x19.5hoursperweekpostschoolx25.8weeks

Weekend–(Satnight)$57.13x7hourspermonthx12months

Weekday-$41.18x11hoursperweekx48weeks

Weekend-$140.06–2hoursperweeksx4weeks

Weekend-$52.48–2hoursperweekx48weeks

0010Weekday-$18.16x18hoursperweekx25.8weeks

$11,952.50

$11,155.66

$13,711.20

$14,037.12

$17,707.40

$20,717.65

$4,798.92

$21,743.04

$1,120.48

$5,038.08

$8,433.50

Activitycostexpenses $35perweekx48weeksperyear $1,680.00

Therapists 0004-$172.13

SpeechTherapist2hourspermonthx12months

Psychologist2hourspermonthx12months

Nutritionist2hourspermonthx12months

$4,131.12

$4,131.12

$4,131.12

Oneoffpurchases Orthotics $800.00

Planmanagement• Financialintermediarysetupcosts• Monthlyprocessing• Co-ordinationofsupports• TransitionPlanningsupport

$209.92Peryear

$31.49Permonthx12months

$90.46Perhourx2hoursperweekx48weeks

$55.50perhourx4hourspermonthx12months

$209.92

$377.88

$8,684.16

$2,664.00

Total-Annual $157,224.87


IACadviceonreasonableandnecessarysupportacrossthelifespan:Anordinarylifeforpeoplewithdisability:http://www.ndis.gov.au/about-us/governance/IAC/iac-reasonable-necessary-lifespan#exec

ExecutivesummaryTheNationalDisabilityInsuranceScheme(NDIS;theScheme)hasbeenestablishedtoprovide

‘reasonableandnecessarysupports’toindividualswithasevereandpermanentdisability.

‘Reasonableandnecessarysupport’referstothenatureandquantumofsupporttoenablea

participanttopursuegoalsandaspirations.ItmustgiveeffecttoAustralia’sobligationsunderthe

UnitedNationsConventionontheRightsofPersonswithaDisability(UNCRPD)bysupporting

peoplewithdisabilitytoliveindependentlyandbeincludedinthecommunity,todeveloptheir

capacitiesandtoenablethemtoexercisechoiceandcontrol.Reasonableandnecessarysupport

mustalsobevalueformoney,effectiveandbeneficialfortheparticipant,whiletakingintoaccount

whatisreasonabletoexpectfamilies,carers,informalnetworksandthecommunitytoprovide

andbemostappropriatelyfundedbytheNDISratherthanthroughothergovernmentsystemsof

servicedelivery.

Thepapertakesan‘ordinarylife’in21stcenturymulticulturalAustraliaasitsstartingpoint

becausepeoplewithdisabilitysharetheordinaryaspirationsoftheirpeerswithoutdisabilitybut

needreasonableandnecessaryNDISsupporttoachievethem.Theordinarylifeprovidescluesas

tohowtheseaspirationswouldtypicallybemetprovidingausefulbenchmarktoguide

understandingofreasonableandnecessarysupport.

Itishopedthatthisdocumentisused:

• bytheNDIAinitsongoingdevelopmentoftheScheme• byparticipantsinconceptualisingtheirgoalsandaspirations• aspartofconversationswithmainstreamserviceprovidersaboutassistingpeoplewithdisabilitytoachieveanordinarylife,and

• asaneducationaltoolforthebroaderAustraliancommunityontheroleandpurposeoftheNDIS.

Inreadingthispaper,thereadershouldbeawarethatcoretotheNDISaretheinsurance

principlesandschemesustainability.Thismeansthatinprovidingreasonableandnecessary

supports,theNationalDisabilityInsuranceAgency(NDIA;theAgency)takesalong-term

investmentapproach,notingthatearlyinterventionandothersupportcanincreasefunctioning,

independence,andeconomicandcommunityparticipation.TheNDISisonlyonepartofabroader

disabilitysystemthatrequiressystemicchangestoensuretheNDIScanflourish.Theprovisionof

‘reasonableandnecessarysupport’willbyitselftransformthelivesofpeoplewithdisability.It

requirescommunityinvolvement,theremovalofstructuralbarrierstoeconomicandcommunity

participation,theprovisionofservicesbymainstreamprovidersandthedevelopmentofadeep

androbustmarket,whichwillonlydevelopwithtime.


Thinkingaboutsupports:

Thesearethesupportsthathelpme/thepersontoworktowardsmygoals,you/theymight

havealreadylistedsomeoftheminthe‘AboutMe’sectionand/orgoalssection.Nowyou/they

canbringthemalltogetherandseeifthereisanymissing.

Familyandfriends

ThisiswhattheNDIScall‘informal’supports.Tellusabouttheinformalsupportsyou/the

personhave/hasthatyouthinkcouldhelptoachievethegoalsnowandintothefuturee.g.

parents,friends,siblings,grandparents,neighbours,extendedfamily.

Whowillprovidethesupport? Now/future

Typeofsupport

Example:Mum Now Organisesallmyactivities/drivesme

toschool

Addmorerowsifrequired.

ServicesandCommunityGroups

Thesesupportsmightincludethingslikehealthormentalhealthcareservices,schoolsor

educationservices,communitygroups,sporting,recreationorhobbyclubsorothergovernment

services.ThisiswhattheNDIScall‘mainstreamandcommunity’supports.

Tellusaboutthecommunityandmainstreamsupportsyouhavenowandtheonesthatyouthink

couldhelptoachievethegoalsandthingsyouwantduringthisplantoworktowardsthegoals.


Typeofsupport

Example:YouthGroup,RSLClub Now Socialgroup,Disco,

Addmorerowsifrequired.


AnythingElse

Anythingelseyouwouldlikeustoknowaboutyourneedsincludingtheareasyouneedsupport

orhavedifficultieswith,duetoyourdevelopmentaldelayordisability.

TellusaboutthePaidsupportsyouhavenowtohelpwithyourneedsandtheonesthatyouthink

couldhelptoachievethegoalsandthingsyouwanttododuringthisplantoworktowardsthe

goals.E.g.Therapy,MobilityAssistance,HomeandVehicleModifications,PersonalCare,

Equipment,CommunicationAssistance,Helpingwithdomestictasks,Interactingwithothers,

BuildingRelationships,etc.


Typeofsupport

Example:OccupationalTherapy Now Tohelpbuildmusclestrengthinlegsto

walkanddance

SuccessionplanningWhatneedstobedonenext?WhathappenswhenIamnotaround?Thesearequestionsthat

everyoneasksfromtimetotime.Thesequestionsalsocanleadtothebeginningsofsuccession

plans.However,thinkingaboutwhatneedstobedonewhentheprimarycarerisnolonger

aroundcanbechallengingtodo.Insomecases,peopleassumeafamilymemberwillstepinto

providesupportormanagementofsupports.Thisprocessneedstobere-visitedfromtimeto

timee.g.whenfamilymemberschangeoracquirenewpartners,orasfamilymembersthemselves

becomeillorhavetomoveinterstateoroverseas.Lifechanges–andweneedtothinkaboutthis

withinthesuccessionplanningprocesses.

Asafamilymemberofapersonrequiringextrasupport;oneimportantelementtoconsideris

yourwill.Youwillneedtofindasolicitorwhohasagoodappreciationforyoursituation&whois

alsomindfulofthewayyousupportthepersonwithdisabilitiestoliveifyouarenotableto

providecare&support,whetherthroughyourownill-healthordeath.Findingasolicitorwith

thislevelofexperiencecanmakeagreatdealofdifferenceinmakingsureyourswillcoverthe

requirementsofthepersonwithdisabilities,aswellasotherbeneficiariesyoumayhave.This

sortofsolicitormaynotbethesolicitoryouwouldusuallygotoe.g.whenbuyingorsellingyour

home,orforaverygeneralwill.

Anotherimportantpersonyouwillneedtoincludeinthesuccessionprocessisyouraccountant.

Thispersonshouldalsounderstandyourfinancialwishes,aswellasthoseofthepersonwith


disabilities.Somepeoplecanbesupportedtoobtainadisabilitytrustwiththeguidanceofan

accountant–andperhapsalsothesolicitor.ContactinganagencysuchasPavetheWayin

Queensland,aswellaslocalcommunityserviceswouldbeagoodhelp.

Youmayalsohavetothinkaboutwhowillimplementyourinstructions.Thismayormaynotbe

peopleinyourimmediatefamily.Theyneedtoknowwheretofindyourwill,whatitcontains

(evenroughly)&wheretofindthepracticaldetailsassociatedwithsupportingthepersonwith

disabilitiesintheirday-to-daylife.

Thefollowingisanexampleofasuccessionplan&someofthecomponentsthathadtobethought

oftoensurethepersonwithdisabilitiescontinuestoenjoyagoodlife,regardlessofwhetherthe

primarycarerisaroundornot:

AnexampleofasuccessionplanthatIhaveinplacecoverswhathappensifIdiebeforemy

daughter.Ihavehadtothinkaboutthisalot,particularlywhenIrealisedthatmyassumption

relatedtomyadultchildrensupportingthestaffwasproventobewayofftrackafewyearsago.

Therewerevalidreasonsforthewaymyotherchildrenthink&believe–thatisOK.However,I

sawrealproblemsformydaughterwithdisabilitiesifIsimplyassumedpeoplewould‘dotheright

thing’byherifsomethinghappenstome.Toaddressthisgap,Italkedtosomepeoplewhoknow

mereallywell&alsoknowmydaughterreallywell.Theyagreedtobemyadministrators.This

basicallymeansthattheywouldstepin&makedecisionsaboutfunding&keepmydaughter’slife

goinginitsusualcalmway,regardlessofwhetherIwasthereornot.Theyagreedtotakeonthe

foundationrole,whichiswhatIhavebeendoingformanyyears–meaningthattheyareactively

addressingissuesinmydaughter’slifebuttheyarenotgoingtobe‘inherface’aboutit.Myother

childrencanmakehealthdecisionsforme,ifneeded,buttheydon’thavetoworryabouttheir

sister&whatsheneedsovertime.Doingthissortofback-upplangavemetimetothinkofallthe

safeguardsthatcouldbeneededifIwasn’taround.ThishasnowmeantIcangetonwithmylife,

knowingthatmydaughter’sneedswillbeaddressedthewaythatIwouldwant–andnothaveher

onlyoptionbeinganimmediatemoveoutofherhomeintoaresidentialfacility.Ithinkthatthe

timeattendingtothesafeguardshasbeentimewellspent.

SelfCareActivity(DaphneHewson,2011)

Physically Emotionally Mentally SpirituallyWhatcurrentlyenergisesme?


Whatsapsmyenergy?

Whatwouldhelptoenergisememore?

Whatholdsmebackfromdoingthethingsthatwouldhelptoenergisememore?

Someexamplesthatyoumightenterintoeachcolumn:Physicalenergy:Eating;Drinking;Sleeping;Exercise;Breaks;RelaxationEmotionalenergy:Relationships;Intimacy;Empathy;ProcessingEmotions;Balance;Safety;Down-timeMentalenergy:Timemanagement;Creativity;Thinkingskills;Challenge;Mentalpreparation;ReflectionSpiritualenergy:Commitment;enthusiasm;Values;Adeeperpurpose;Prayer/meditation;Givingtoothers;Nature;StillnessResilience:Resilience-whataninterestingterm!Doweeventhinkaboutourlevelsofresiliencewhenexhaustingsituationsareoccurringonadailybasisoryoufeelyouliveinacontinualblenderofcrisis&mayhem?Orwhenlifeisontrack&thingsaregoingreallywellforourfamilymemberwithadisabilityaswellasforourfamilyingeneral?Resilienceisprobablysomethingwetakeforgrantedinmanyways,butissomethingthatisincrediblyimportantinpeople’slives.Resilienceincludesthoseresourceswecancalloninchallenging&stressfultimes,orwhenwearelearningnewskillsorneedtoremainpositive.Resiliencehasoftenbeendescribedastheabilityto‘bounceback’whenadversitystrikes,ortheabilitytoturnadversityintoanadvantageornewopportunity.Weactuallyneedresiliencetomanageeverydaypressuresaswellasthriveinapositive&sustainableway.


Thefollowingaresomethoughtsaboutenhancingyourownpersonalresilience.Nodoubtthereismanyothers,buthereisastart:v Dothingsthatyouenjoy.Findthingsthathelpyoutobere-vitalised&tofeelgoodabout

yourself–andthendothemonaregularbasis.v Developyourself-awareness.Considertheroleofreflectionwhenyouarelearning,asthiswill

helpyoutogainsomenewperspectivesaboutthingsthatyoumaynothaveconsideredbefore,ortothinkofnewwayswhenyouthoughtyouknewalltherewastoknow.Lookbackthroughmemorable&challengingexperiences(positive&negative)&lookatwhatyouhavelearnedovertime.

v Getplentyofsleep.Soundsobvious,doesn’tit?Butwhenyouarestressed,itisveryeasytoneglectyouownneeds.Whenyouloseyourappetite,don’tgetoutinnatureorexerciseverymuch,ordon’tgetregularsleep,yourabilitytonavigatethroughcrisiscanbecompromised.Bytakingcareofyourownhealth&wellbeingneeds,youcanboostyourownresiliencelevels&becomemoreabletofacelife’schallenges.

v Embracechange.Beingflexible&adaptabletothechangesthatoccurthroughoutlifeisanessentialcomponentofbeingresilient.Sometimesgettingoutofyourcomfortzonethroughdoingthingsdifferently(eventravellingtothesameplaceviadifferentroadseverytime)canhelpyoutolookatdifferent&challengingsituationsasanopportunitytodosomethingsdifferently.

v Developyourownproblemsolvingabilities.Everyonehastheseabilities,butsometimesitismoreabouthowweperceiveproblems&situationsthatcanshowhowresilientweare–ornot.Thinkabouttakingastepback,considerhowyouapproachdifficultissues,whetheryouarelogicalinthewayyouconsideryourresponsesorwhetheryourjudgementiscontinuallycloudedbyemotionalresponsesorirrationalthinking.Perhapsthereareotherwaystolookatthesituation–ifyoudid,whatotherpossibilitiesmighttherebe?

v Findyourownsenseofpurposeinlife.Often,resilientpeoplefindthathavingsomestructure,meaning&commitmentintheirlifehelpsthemtoassesssituationswithinaframeworkthatincludesthe‘biggerpicture’.

v Becomeadedicated‘lifelonglearner’.Learningnewskills,gainingunderstandingindifferentways,allhelptobuildyourresiliencelevels&helpyoutoadaptthroughtimesofchange.Sometimesyouhavetofacethefactthattheoldwaysyoudothingsactuallydon’tworkthesamewaythattheyalwaysdid–sonowmightbeagoodideatostartlearning&practicingsomenewskills.

v Developastrongnetwork.Whetheryouareamanorawoman,havingsupportive&caringpeoplearoundyoucanreallyhelpwhenyouareincrisis.Thesepeoplemustbeindividualsyoucantrust&caneasilyconfidein.True,thecrisisortroublewon’tgoawayasifbymagic,butbysharingyourfeelings,hearingyourselftalkabouttheissue&gettingfeedbackcanhelpyoutofindpossiblesolutionstoyourissues.

v Buildpositivebeliefsinyourabilities.Remindyourselfofyourstrengths&accomplishments–theseallhelpyoutohaveagoodself-esteem.Ifyourself-esteemissound,youwillfindthatyourabilitytocopewithstress&subsequentlyrecoveringfromstressfuleventscanbeimportantcomponentsthatbuildyourresilience.


v Beoptimistic.Yes,thiscanbedifficult,especiallywhenyouareinthemiddleofacrisisoradifficultchallenge,butmaintainingapositiveoutlookisanimportantaspectofresiliency.Onewaytodothisistomaintaina‘gratitudejournal’whereyourecordthethingsthatyouaregratefulforeveryday.Therealityisthatdifficulttimesaretransient&ebb&flowthroughourlives,butremainingpositive&gratefulabouttodayaswellasthepossibilityofabrighterfutureiswhathelpsourresilienceaswell.

v Establishgoals&takestepstosolveproblems.Everycrisisisdaunting&youcanfeeloverwhelmedaboutyourabilitytocope.Whenthesetimesoccur,resilientpeoplefindtheycanviewthesesituationsinarealisticway,thensetsomereasonablegoalstodealwiththeproblembeforetakingsmallstepstowardssolvingtheproblem.

References:Zolli,A.&Healy,A.2012.Resilience:Whythingsbounceback,HeadlineBusinessPlus,London,UK.What’snext:ShareanddiscusswiththegroupwhatyouhavelearnedwhiledevelopingtheJederNDISPre-

planningforyourselforfamilymember.

Discussanddecide:-

• Areyouinterestedinmeetingwithothersthathavecompletedthisworkshop?

• BasedonwhatyoulearnedwhatisonethingyoucandoonMonday?

ActionPlan Who ByWhen


Ten Principles to Live by in Fiercely Complex Times - Tony Schwartz http://blogs.hbr.org/2011/07/ten-principles-for-living-in-f/ Here are ten that work for me: 1. Always challenge certainty, especially your own. When you think you're undeniably right, ask yourself "What might I be missing here?" If we could truly figure it all out, what else would there be left to do? 2. Excellence is an unrelenting struggle, but it's also the surest route to enduring satisfaction. Amy Chua, the over-the-top "Tiger Mother," was right that there's no shortcut to excellence. Getting there requires practicing deliberately, delaying gratification, and forever challenging your current comfort zone. 3. Emotions are contagious, so it pays to know what you're feeling. Think of the best boss you ever had. How did he or she make you feel? That's the way you want to make others feel. 4. When in doubt, ask yourself, "How would I behave here at my best?" We know instinctively what it means to do the right thing, even when we're inclined to do the opposite. If you find it impossible, in a challenging moment, to envision how you'd behave at your best, try imagining how someone you admire would respond. 5. If you do what you love, the money may or may not follow, but you'll love what you do. It's magical thinking to assume you'll be rewarded with riches for following your heart. What it will give you is a richer life. If material riches don't follow, and you decide they're important, there's always time for Plan B. 6. You need less than you think you do. All your life, you've been led to believe that more is better, and that whatever you have isn't enough. It's a prescription for disappointment. Instead ask yourself this: How much of what you already have truly adds value in your life? What could you do without? 7. Accept yourself exactly as you are but never stop trying to learn and grow. One without the other just doesn't cut it. The first, by itself leads to complacency, the second to self-flagellation. The paradoxical trick is to embrace these opposites, using self-acceptance as an antidote to fear and as a cushion in the face of setbacks. 8. Meaning isn't something you discover; it's something you create, one step at a time. Meaning is derived from finding a way to express your unique skills and passion in the service of something larger than yourself. Figuring out how best to contribute is a lifelong challenge, reborn every day. 9. You can't change what you don't notice and not noticing won't make it go away. Each of us has an infinite capacity for self-deception. To avoid pain, we rationalize, minimize, deny, and go numb. The antidote is the willingness to look at yourself with unsparing honesty, and to hold yourself accountable to the person you want to be. 10. When in doubt, take responsibility. It's called being a true adult.

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