National Network of Parent Carer Forums ‘Our Strength is our Shared Experience’ Parent Carer...

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National Network of Parent Carer Forums ‘Our Strength is our Shared Experience’ Parent Carer Participation and the Special Educational Needs and Disability Reforms

Transcript of National Network of Parent Carer Forums ‘Our Strength is our Shared Experience’ Parent Carer...

National Network of Parent Carer Forums

‘Our Strength is our Shared Experience’

Parent Carer Participation and the Special Educational Needs

and Disability Reforms

Family

Health

Social CareCommunity

Education

Parent carers -Who and Why? ?

A Bit of History ‘Aiming High’ came with a new

impetus to focus on partnership working between Parent Carers and the Statutory Authorities

Parent Carer Forums started up across England and were funded directly by DfE

Supported Contact a Family Short Breaks were initially the key

focus In 2010 SEND Green Paper brings

new opportunities 2011 NNPCF established

The National Network of Parent Carer Forums

Member Forums open to all parent carers of children and YP 0-25 yrs

Organised in regional areas with a national Steering Group

Pan-disability, across all sectors of the community, working on issues across all relevant service boundaries

How the NNPCF Works

A consultation and consensus network

Peer to Peer support

Information sharing

Sharing good practice

Ensuring the voice of Parent Carers are heard

Linking with local, regional and national organisations

The NNPCF Steering Group

Has ten members, one from each region (London two)

Provides a national focus for parent participation

Aims to model and grow participation at all levels

Supports the Network to respond to national agendas

Has termly meetings with membership of local PCF

Regular communication bulletins to local PCFs

NNPCFWest Midlands

North West

North East

Yorkshire and

Humberside

East Midlands

East of England

South East

South West

London

London

Parent Carer Forums Offer;

An opportunity to work positively with the local parent carer community

An insight to what life is like for families who care for children and young people with a disability or additional need

An opportunity to understand what works and what doesn’t work for families

A chance to co produce solutions with parent carers

‘Welcome to my world’

Key Principles of the SEND ReformsPlacing young people and parent carers at the centre of decision making – individually and at a strategic level

Providing information and support to enable young people and parent carers to participate in decision making

Focusing on outcomes and preparing for adulthood

Services working together to deliver holistic support

The SEND Reforms and Health ServicesFrom September 2014 CCGs must;

Commission services jointly for children and young people (up to age 25) with SEND, including those with Education Health and Care (EHC) plans

Work with the local authority to contribute to the Local Offer of services available

Have mechanisms in place to ensure practitioners and clinicians will support the Integrated EHC needs assessment process

Agree Personal Budgets where they are provided for those with EHC plans

0-25 SEND Code of Practice: A Guide for Health Professionals

https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/357645/Health_professionals_guide_to_the_SEND_code_of_practice_-_Sept14.pdf

Health Services Working with Parent Carers and

Young peopleCan lead to a better fit between families’ needs and the services provided Parent carer forums established in most local areas and many already working with the local authority on implementing the SEND reforms.

They can help health identify shortfalls in health services and work with you to find solutions

Sharing Good practice in Health Settings http://www.cafamily.org.uk/pcp/health

CAF Health and SEND Project12 month project funded by DfE to support CCG’s and Health practitioners and clinicians to work with Parent Carer Forums to implement the SEND Reforms

9 pilot areas throughout England to identify and develop best practice around partnership working between health decision makers and local parent carer forums

Share best practice with all areas

Develop resources for Health practitioners / clinicians and CCG’s to support their role in the new SEND system

For More Information

Maureen Morris Sarah ThomasCo – Chair Health ManagerNNPCF Contact a Family [email protected] [email protected]

www.nnpcf.org.uk www.cafamily.org.uk