National Cancer Survivorship Initiative The survivorship vision Mike Richards & Ciarán Devane...
Transcript of National Cancer Survivorship Initiative The survivorship vision Mike Richards & Ciarán Devane...
National Cancer Survivorship Initiative
The survivorship vision
Mike Richards & Ciarán Devane Co-Chairs, NCSI
National Cancer Survivorship Initiative
Ciarán DevaneChief Executive, Macmillan Cancer Support
National Cancer Survivorship Initiative – September 2009• Seven workstreams:
– Assessment and Care Planning– Active and Advanced Disease– Consequences of Treatment– Self Management– Work and Finance– Children and Young People– Research
• 27 test communities
• Cross cutting themes – patient information, workforce, commissioning, equalities
• Involving service users, carers, clinicians, service commissioners, researchers, charities …
National Cancer Survivorship Initiative
Picker Experience of Care Questionnaire – overviewInterim results from the questionnaire highlight significant numbers of respondents who:
• lacked an up to date care plan• have a named key worker who they can contact if they have a concern• knew who to contact during office hours; although a larger proportion did not know
who to contact out of hours• were able to access specialist advice when they needed it all or most of the time• would have liked more information and advice on the following:
• physical aspects of living with and after cancer (e.g. side effects or signs of recurrence)• diet and exercise• psychological or emotional aspects of living with and after cancer
National Cancer Survivorship Initiative
Review of current practice
• professional led, medical long term follow up model• variation in practice, including use of assessment tools and care
plans. • majority of patients have no choice or control over follow up
assessment or planning• variation in service provision including in access to emotional and
psychological support• some areas of innovation e.g. risk stratified follow up for patients
after colorectal cancer in Taunton
National Cancer Survivorship Initiative
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We have six expectations of the National Cancer Survivorship Initiative
• A document describing our vision of the care of people living with or beyond cancer
• A supporting implementation plan• A set of models of care which we have piloted and we know
work • Acceptance of ‘survivorship’ as a priority for patients• Translation of the vision into action at a local level, using
approaches similar to those tested• A community of interested people who will continue to lead
this agenda
National Cancer Survivorship Initiative
NCSI Looking ahead
• 2008/09• Early work by workstreams, testing work underway
• 2009/10
• Principles from workstreams, results of testing work, developing commissioning guidance
• 2010/11
• Commissioning guidance available for 2011/12 planning
National Cancer Survivorship Initiative
National Cancer Survivorship Initiative
The survivorship vision
Mike Richards National Cancer Director
Five Shifts?
• Attitudes
• Information
• Care planning
• Support
• Measurement
National Cancer Survivorship Initiative
Are these right? What’s missing?
Please feedback – www.ncsi.org.uk
The QIPP Challenge
National Cancer Survivorship Initiative
QUALITYQUALITY
PRODUCTIVITYPRODUCTIVITY
INNOVATIONINNOVATION
PREVENTIONPREVENTION