NATIONAL CANCER PATIENT EXPERIENCE SURVEY

R E Q U E S T F R O M L E A D C A N C E R N U R S E S :

T O P U T T H E N A T I O N A L C A N C E R P A T I E N T E X P E R I E N C E S U R V E Y R E S U LT S A N D A C T I O N S O N T H E S S G M E E T I N G A G E N D A S A S A P E R M A N E N T R E C U R R I N G I T E M

 

P U R P O S E O F T H E R E Q U E S T :

T O P R O M O T E P A T H W A Y S E R V I C E I M P R O V E M E N T S I N T H E W A Y T H A T T H E C L I N I C A L N U R S E S P E C I A L I S T S W O U L D L I K E T O S E E T H E I R S E R V I C E S M A I N T A I N E D O R C H A N G E D

KEY POINTS FOR DISCUSSION

• Trust level best practice to be shared

 

• Trust / network level priorities identified for pathway improvements

 

• Actions required to address identified priorities

 

• Progression of the action plan

 

UHBRISTOL • Over all disappointing results for UHBristol

• No ‘urological’ level specific results (only 15 respondents)

• UHBristol prostate results (26 respondents)• Good practice• 100% of patients felt carefully listened to by the CNS• 100% told by staff that they could get free prescriptions• 96% patient had seen information about cancer research in the

hospital• 95% GP given enough information about patients condition and

treatment• 89% staff did everything to control side effects of chemotherapy

• Areas for improvement• 65% possible side effects explained in an understandable way• 54% hospital and community staff always worked well together• 33% given information about getting financial help• 19% offered written assessment and care plan (HNA)

UHBRISTOL APPROACH TO ACTION PLANTwo stage approach to action planning, following these results

Stage 1 – gain thorough understanding of what’s its like to be a ‘UHBristol cancer patient’ (national results reflect inter-organisational pathways)

Focus groups with Patient Association (UHBristol patients and shared patients) In-house repeat of survey Feedback from UHBristol staff – providing cancer care on general wards Healthwatch Bristol undertaking city–wide exercise to better understand cancer

patient experience Cancer CNS pathway mapping across Network Trusts

Stage 2 – service improvement Participation in NHS Improving Quality national programme to buddy with a

peer Trust that performs well in the NCPES. Address local and cross-organisational issues for UHBristol and ‘shared patients’

as identified in Stage 1

WESTON GENERAL UROLOGY DEPT

• National results are difficult to interpret as they do not identify patient groups, tumour site, intention of treatment etc.

• Location of inpatient stays are not identified and may be Southmead or at WGH.

• Therefore in order to formulate a meaningful work plan for Urology for 2014-15, a local survey of cancer patient’s was undertaken in 2014. Patients were diagnosed between Dec’ 13 and April ’14 and had not been sampled in the national survey. Type of cancer was identified and questions reflected the usual treatment pathway.

• Patients were satisfied with the service and felt their needs were addressed in a holistic fashion.

• Areas that need redesign were identified and agreed by the local MDT.

Plan.

• Identify and modify patient information to reflect normal pathway.

• Devise a triage clinic for non macroscopic haematuria patients, Include protocol and business plan. Take into consideration the administrative needs for new clinic set up, where it sits in time table and the CNS role within this clinic

YEOVIL HOSPITAL

AREAS FOR IMPROVEMENT

• TO IMPROVE CANCER RESEARCH INFORMATION

• ENSURE TAKING PART IN UROLOGICAL RESEARCH IS DISCUSSED WITH PATIENT

• TO IMPROVE METHODS OF PAIN CONTROL WHILE THEY ARE AN IN-PATIENT

• NAME/CONTACT OF CNS TO BE GIVEN TO PATIENT

YEOVIL HOSPITAL

ACTIONS CURRENTLY IMPLEMENTED

• HOSPITAL LETTERS HAVE FOOTER ADDED TO INFORM PATIENTS THAT THE HOSPITAL IS A RESEARCH BASED HOSPITAL. CLINICAL TRIALS NURSE ATTENDS WEEKLY MDT MEETINGS

• NURSE-LED FOLLOW UP CLINICS IMPLEMENTED WITHIN ONCOLOGY. THIS HAS INCREASED CAPAPCITY FOR ONCOLOGIST TO SEE NEW TRIALS PATIENTS

ACTIONS IN PROGRESS

• RESEARCH INFORMATION PAGE HAS BEEN ADDED TO THE PATIENT BLUE DIARIES

• WORKING PARTY FORMED TO LOOK AT PAIN CONTROL ISSUES WITHIN THE TRUST.

• CNS/KEY WORKER ROLES TO BE REFLECTED IN JOB PLANS.

RUH BATH

All generally good

Excellent staff – all grades, lots of praise for the NHS

Prostate – good pathway from initial OPA, biopsy, results, scans, joint clinic to treatment

Seeing same CNS each visit

Appointments on time

RUH BATH

Not so good

Parking

Not seeing the same medical staff each time

Appointment time frames different to what consultant stated

Lack of liaison between medical teams and departments