Motivations and Challenges of ePatients in YouTube
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Motivations and Challenges of ePatients in YouTube
Luis Fernandez-Luque ([email protected]) -Norut, Tromsø, Norway
Vern R Beachy - e-Patient YouTuber - vbeachy
Bill Woods - e-Patient YouTuber - 1HappyDiabetic
Lauren Parrott - e-Patient YouTuber - laurenvparrott
Kerri Sparkling e-Patient YouTuber - sixuntilme
Medicine 2.0 Maastricht NL – 29, 30 November 2010
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Background
Health Information is moving to the Web 2.0 (blogs, YouTube) – For example, 20.000+ videos from US hospitals
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Background Many of the videos are created by ePatients
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ePatients in YouTube- Motivations and Challenges
4 e-Patients sharing their experience living with Multiple Sclerosis and Diabetes
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Vern R Beachy (Vbeachy)
http://www.youtube.com/watch?v=CuOVDAm6tlE
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Lauren Parrott (laurenvparrott)
http://www.youtube.com/watch?v=Atq0LP_mfYE
Old video Medicine 2.0 (2008): http://www.youtube.com/watch?v=Fb8_k-VIg4k
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Kerri Sparkling (sixuntilme)
http://www.youtube.com/watch?v=lc9hA4gmlhw
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Bill Woods (1HappyDiabetic)
http://www.youtube.com/watch?v=jsP9nZXIpME
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Challenges • It hurts when people don’t believe me – laurenvparrott
• some people told me… You are not a doctor, you shouldn’t be making videos.. I make very clear in all my videos I am only talking about my life – laurenvparrott
• I am not a doctor, I am just telling my story – vbeachy
• I have been solicited by companies promoting herbal supplements… - 1happydiabetic
• One of the challenges is privacy… I am sharing with the entire world -1happydiabetes
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Motivations
• Finding others make you feel less alone, and feeling less alone has an huge impact in how you manage your chronic illness. –SixUntilMe
• I have gotten so much feedback from my videos… a lot of people have told me they have helped – vbeachy
• I was looking for information on a video format and it wasn’t there – 1HappyDiabetic
• To share my experience… so others can learn from my mistakes – 1HappyDiabetes
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Join our conversation • Our YouTube e-Patients:
– http://www.youtube.com/user/1happydiabetic
– http://www.youtube.com/user/laurenvparrott
– http://www.youtube.com/user/sixuntilme
– http://www.youtube.com/user/vbeachy
• Slideshare: – http://www.slideshare.net/luis.luque
• Twitter: – @luisluque, @1happydiabetic, @laurenvparrott, @sixuntilme