montco memo...October 2016 Page 4 montco memo Volume XXXVI Issue 2 Depression This convention...
Transcript of montco memo...October 2016 Page 4 montco memo Volume XXXVI Issue 2 Depression This convention...
Options for Seeking Help for Someone in a Mental Health Crisis
This presentation was first offered on behalf of Rep. Tom Murt on September 22nd at St. John’s Lutheran
Church in Hatboro. Due to the importance and timeliness of this topic, we are bringing it back to hold at our
monthly meeting.
Often when facing a mental health crisis involving someone who refuses to seek help, we turn to filing an
involuntary commitment for inpatient treatment (a 302 petition). This sometimes involves the family or the
police. Either way, a frequent outcome is strained relationships and further resistance to pursuing help. Mont-
gomery County now has alternatives that can engage the individual and provide needed help and support with-
out their relinquishing control. Come and hear about these from those who provide them. Speakers include Tory
Bright, Regional Mental Health Coordinator and NAMI MontCo Board member; Jess Fenchel, Director of Cri-
sis Services, ACCESS Services, Inc.; and Pam Howard, Montgomery County Office of Behavioral Health and
Developmental Disabilities.
Date: Wednesday October 5, 2016
Time: 7-8:30 PM
Location: 100 West Main Street, Suite 204
Lansdale, PA
Refreshments will be provided. This event is free and open to the public; however, an RSVP is appreciated
215-361-7784.
montco memo Montgomery County, PA October 2016 Volume XXXVI Issue 2
Please join us to honor
CAROL CARUSO Calendar 2
Message from Our President 3
Message from Our Executive Director
3
Another Report from the NAMI 2016 National Convention
4
Anti-Depressant Drugs Ineffective in Children, Teens
4
Alternative Form of Mental Health Care
5
Thanks to Sponsors of 5th Annual Benefit for the Brain
6
On Line Discussion Resource for Mental Health Community
6
Reserve Now for Our 5th Annual Benefit for the Brain
7
Tributes and Donations 7
Also in This Issue
As we show our appreciation for her many years of service to NAMI Montco
October 20, 2016
5:00 to 7:00 PM
Cedarbrook Country Club 180 Pennlyn Pike
Blue Bell, PA 19422
$20 per person Cash bar RSVP: October 7, 2016 For information: 215-361-7784
October 2016 Page 2
montco memo Volume XXXVI Issue 2
the montco memo is published monthly by
NAMI of PENNSYLVANIA
MONTGOMERY COUNTY
Board of Directors
President Neen Davis First Vice-President Dawn Hogan Second Vice President Dave Davis Secretary Beth Milton Treasurer Stephen Nelson
Victoria Bright Lauren Centola Armand DiYenno Rhea Fernandes Tricia Malott Donna McNelis Jerry Rudakevich Mike Solomon
Executive Director Carol Caruso Editor Beulah Saideman Co-Editor Mary Schuck Editor Emeritus Maryella D. Hitt Office Manager Debra Herbut Bookkeeper Kelly DiBetta Walk Manager Danielle Blanchard
Support Group Facilitators Coordinator Carol Caruso
Abington Presbyterian Church Joan Kozlowski Corinne Smith
Lansdale Rich Kelble Anne Magowan
Lower Providence Presbyterian Church Neen Davis Sue Soriano
Pottstown Nina & Alan McDaniel
NAMI of PA Montgomery County
100 W. Main Street Suite 204
Lansdale, PA 19446 Phone: 215-361-7784 FAX: 215-361-7786
Email: [email protected] Web page: www.namimontcopa.org
Letters to the Editor and other articles and contributions are welcome. Send them
to the NAMI Office or by Email to [email protected]
by the 15th of the preceding month
NAMI of Pennsylvania Montgomery County is an approved Donor Choice Agency of the United Way of Greater Philadelphia and
Southern New Jersey
United Way Agency Code # 5076
Calendar
Oct. 5 Nov. 7
NAMI Connection is a peer-run support group for individuals living with mental illness, which meets the first Monday of every month, except holidays, at 6:15 PM. William Jeanes Memorial Library, 4051 Joshua Rd, Lafayette Hill, PA (October meeting rescheduled for Wednesday, October 5th, 6:15 PM).
Oct. 3 Nov. 7
Pottstown Family Support Group, 1st Monday at Creative Health Services, Consumers Library, 11 Robinson Court,, 7-8:30PM.
Oct. 3 Nov. 7
Lower Providence Family Support Group, Lower Providence Presbyterian Church, 3050 Ridge Pike, Eagleville, Room 205. 7 PM. First Monday except on holidays.
Oct. 4 Nov. 1
Lansdale Family Support Group at St. John’s United Church of Christ, Main Street and Richardson Avenue, Lansdale. First Tuesday, 7:00 PM.
Oct. 5 Monthly Information Meeting, Options for Seeking Help for Someone in a Mental Health Crisis, NAMI Office, 100 W. Main St., Suite 204, Lansdale, PA, 7:00 to 8:30 PM.
Oct. 13 Nov. 10
Glenside Family Support Group, Abington Presbyterian Church, 1082 Old York Road, Abington — 2nd Thursday, 7:30 PM.
Oct. 20 Nov. 17
Montgomery County CSP (Community Support Program). 3rd Thursday, 12-2:30 PM, Montgomery County Library, 1001 Powell St., Norristown
Oct—no meet-ing
Board of Director’s Meeting, 3rd Thursday, Lansdale Office, 6:30 PM.
A Note About Our Meetings
Although some of our meetings are held at religious institutions, they are non-denominational and open to people of all beliefs.
At the picnic...
Everyone enjoyed playing Bingo and selecting prizes, especially the kids.
October 2016 Page 3
montco memo Volume XXXVI Issue 2
Message from Our President Dear Friends of MONTCO NAMI-
As you read this, many previously highlighted events will
have already taken place. Our 19th Annual NAMICARE Picnic
took place on September 18th. Great food, music, BINGO and
prizes were a fun part of the day. We had over 125 people attend.
On September 21st, the workshop featuring recipients of the Ben-
efit for the Brain Research and Impact awards took place at the
University of Pennsylvania Hospital. Over 60 people registered
for this exciting event. We partnered with Representative Thom-
as Murt on September 22 when we hosted “Options on Seeking
Help for Someone in a Mental Health Crisis.”
Our Board of Directors has been busy continuing to work on
our strategic plan. This is an exciting time for our affiliate. The
plan will help shape the direction our affiliate will move.
Our Fall Family to Family class has begun in Lansdale. This
12 week evidence based course is highly recommended to all
those family members who have a loved one living with a seri-
ous mental illness. Our next class will be offered in the Spring.
I’d like to give a shout out to two of our dedicated volun-
teers: Rob and Marianne. Thank you! Rob and Marianne are
often seen at our office helping staff with varied tasks.
If you are not yet a member of NAMI of PA Montgomery
County, I ask you to please consider joining.
As always, please contact me with any questions or comments.
Happy Fall!
Neen Davis President, NAMI of PA Montgomery County
The momentum from last month (with our three events, each
very successful; 5 monthly support groups and the start of our
fall Family to Family class) continues. You’ll want to hear our
presentation on engagement strategies and options available in
Montgomery County for individuals living with mental illness
who refuse to seek help on Wednesday, October 5th, 7 PM in our
office.
A reminder: our monthly meetings have moved to the second
Wednesday of the month; however, due to the Jewish holidays,
in October the meeting will be held on the first Wednesday. Our
NAMI Connection Peer Support Group will be held on October
5th rather than October 3rd for the same reason.
In November we will meet on November 9th with a program
on an update on the Stepping Up Program and the work of our
Montgomery County Forensic Coalition, an effort to reduce the
number of people with mental illness who are incarcerated. This
initiative involves collection of data on reasons for incarceration,
charges and length of incarceration, diversion options and re-
entry into the community. This issue hits too many of us and it is
good to know what is being done about it and steps you can take
to help.
Thanks to all who attended our 19th Annual NAMICARE
Family Picnic. The event was a huge success; many friends, par-
ents, children and grandchildren took part in this day of fun and
being together. Thanks also to those who attended our Research
Benefit for the Brain Workshop. Featuring our Benefit for the
Brain Award recipients and their work, this was also well at-
tended (filled to capacity) and offered a look to the future as to
what is needed next to promote mental health recovery. Food for
our advocacy efforts!
Our presentation requested by Representative Tom Murt was
also very well received and offered resources for engagement
strategies and available services for individuals experiencing a
mental health crisis who are not willing to go for help and their
families. This will also be presented in our office at our monthly
meeting on October 5th at 7 PM.
My Retirement Party will be held this month on the 20th at
Cedarbrook Country Club. I hope to see many of you there!
The search for a new Executive Director is in high gear. I
will continue through December and remain active after that as a
volunteer (back to my NAMI roots). We will have a smooth tran-
sition to our new E.D. with no interruption of services.
As always, thank you for all that you do on behalf of persons
living with mental illness and their families!
Carol Caruso
Message from Our Executive Director
Approximately 100 adults and children enjoyed the festivities of our 19th Annual NAMICARE Family Picnic on September 18th at Mermaid Lake in Blue Bell.
October 2016 Page 4
montco memo Volume XXXVI Issue 2
Depression
This convention session was presented by Keri Duckworth,
M.D., Medical Director of NAMI,Arlington, VA. He admitted
his presentation was “off the cuff” since there was a last minute
cancellation and he only had 20 minutes to get to the conference
room from home. His presentation was excellent none the less.
A few points he made were:
Because depression is a mood disorder, there is a risk
of it becoming bi-polar.
It is possible bi-polar is genetic.
Practice cognitive therapy.
Social rythym therapy is for mood moderation.
TMS (Trans Cranial Magnetic Stimulation) is an FDA-
cleared non-drug depression treatment for patients who are not
satisfied with the results of standard drug therapies. This treat-
ment does not have the side effects often associated with antide-
pressant medications. The therapy uses precisely targeted mag-
netic pulses and stimulates key areas of the brain that are under-
active in patients’ depression.
For more information on TMS go on-line to TMS.
Suicides have increased according to a recent CDC study.
One of the reasons is the pressures of social media. There has
also been an increase in major depression patients.
Each year at the NAMI convention there is an update on what
is new in the field of Depression. I’m sure 2017 will offer some-
thing new to talk about as well.
Dawn Hogan
Another Report from the NAMI Convention in Denver
Antidepressant Drugs Are Ineffective for Children and Teens Suffering Major Depression
By Nicole Lyn Pesce, New York Daily News, Wednesday, June 8,
2016
Most drugs treating kids and teens suffering major depression
are majorly ineffective - and even dangerous.
A new Lancet study analyzed 34 trials for 14 antidepressants
involving 5,260 patients ages 9 to 18. It found that only one drug -
fluoxetine, better known by the brand names Prozac and Sarafem -
relieved severe depression symptoms better than the sugar-pill pla-
cebo. Worse, the kids taking venlafaxine (also known by brand
names Effexor, Lanvexin, Viepax and Trevilor) actually showed an
increased risk of suicidal thoughts and attempts.
“When considering the risk–benefit profile of antidepressants
in the acute treatment of major depressive disorder, these drugs do
not seem to offer a clear advantage for children and adolescents,”
concludes the report. “Fluoxetine is probably the best option to
consider when a pharmacological treatment is indicated.”
Medicating children and adolescents suffering depressive disor-
der has long been controversial. The Food and Drug Administra-
tion even slapped a black box warning - its strictest - against the
use of antidepressants in young people up to age 24 in 2004 over
concerns about increased risk of suicides - although no children in
the FDA’s sweep actually killed themselves. But despite the FDA
warning, the use of antidepressants among U.S. and U.K. children
and teenagers up to age 19 has continued to increase.
“Delay in implementing responsible data sharing policies has
negative consequences for medical research and patient outcomes,
as demonstrated by this study,” wrote lead author Dr. Andrea
Cipriani at the University of Oxford in the report.
His analysis of the 34 trials compared the effects of 14 antide-
pressants in young people with major depression up to the end of
May 2015. His team ranked the drugs by how well they treated
depressive symptoms, whether discontinuing the drug caused ad-
verse side effects, and whether the drugs were associated with sui-
cidal thoughts and attempts.
The results? Only fluoxetine (Prozac, Sarafam) showed benefits
that outweighed the risks....And most troubling, venlafaxine was
linked with increased suicidal thoughts or attempts compared with
the placebo and five other antidepressants.
But the authors warn that this doesn’t paint a full picture, since
a lack of reliable data did not allow them to fully assess the risk of
suicidality for all drugs. That’s partly because 65% of the trials
they reviewed were funded by pharmaceutical companies, so al-
most one third were rated as high risk of bias, and another 59%
were rated moderate risk of bias. So those reports could have over-
estimated how well
their drugs worked,
and minimized the
side effects.
The authors sug-
gest that for now, par-
ents and medical pro-
fessionals monitor
children and adoles-
cents taking antide-
pressants closely, re-
gardless of the drug
chosen.
(L to R) Board members Armand DiYenno
and Tory Bright call Bingo with helper Mark
at the 19th Annual Family Picnic on September
18th.
One More Picnic Photo...
October 2016 Page 5
montco memo Volume XXXVI Issue 2
An Alternative Form of Mental Health Care Gains a Foothold By Benedict Carey, The New York Times, August 8, 2016
HOLYOKE, Mass. — Some of the voices inside Caroline White’s
head have been a lifelong comfort, as protective as a favorite aunt.
It was the others — “you’re nothing, they’re out to get you, to kill
you” — that led her down a rabbit hole of failed treatments and
over a decade of hospitalizations, therapy and medications, all
aimed at silencing those internal threats.
At a support group here for so-called voice-hearers, however,
she tried something radically different. She allowed other mem-
bers of the group to address the voice, directly:
What is it you want?
“After I thought about it, I realized that the voice valued my
safety, wanted me to be respected and better supported by others,”
said Ms. White, 34, who, since that session in late 2014, has be-
come a leader in a growing alliance of such groups, called the
Hearing Voices Network, or HVN.
At a time when Congress is debating measures to extend the
reach of mainstream psychiatry — particularly to the severely psy-
chotic, who often end up in prison or homeless — an alternative
kind of mental health care is taking root that is very much anti-
mainstream. It is largely nonmedical, focused on holistic recovery
rather than symptom treatment, and increasingly accessible
through an assortment of in-home services, residential centers and
groups like the voices network Ms. White turned to, in which
members help one another understand each voice, as a metaphor,
rather than try to extinguish it.
For the first time in this country, experts say, psychiatry’s crit-
ics are mounting a sustained, broadly based effort to provide peo-
ple with practical options, rather than solely alleging abuses like
overmedication and involuntary restraint.
“The reason these programs are proliferating now is society’s
shameful neglect of the severely ill, which creates a vacuum of
great need,” said Dr. Allen Frances, a professor emeritus of psy-
chiatry at Duke University.
Dr. Chris Gordon, who directs a program with an approach to
treating psychosis called Open Dialogue at Advocates in Framing-
ham, Mass., calls the alternative approaches a “collaborative path-
way to recovery and a paradigm shift in care.” The Open Dialogue
approach involves a team of mental health specialists who visit
homes and discuss the crisis with the affected person — without
resorting to diagnostic labels or medication, at least in the begin-
ning.
Some psychiatrists are wary, they say, given that medication
can be life-changing for many people with mental problems, and
rigorous research on these alternatives is scarce.
“I would advise anyone to be carefully evaluated by a psychia-
trist with expertise in treating psychotic disorders before embark-
ing on any such alternative programs,” said Dr. Ronald Pies, a
professor of psychiatry at SUNY Upstate University, in Syracuse.
“Many, though not all, patients with acute psychotic symptoms are
too seriously ill to do without immediate medication, and lack the
family support” that those programs generally rely on.
Alternative care appears to be here to stay, however. Private
donations for such programs have topped $5 million, according to
Virgil Stucker, the executive director of CooperRiis, a residential
treatment community in North Carolina. A recently formed non-
profit, the Foundation for Excellence in Mental Health Care, has
made several grants, including $160,000 to start an Open Dialogue
program at Emory University and $250,000 to study the effect of
HVN groups on attendees, according to Gina Nikkel, the president
and CEO of the foundation. Both programs have a long track rec-
ord in Europe.
About three quarters of people put on a medication for psycho-
sis stop taking it within 18 months because of side effects or other
issues, studies suggest. Some do well on other drugs; others do
not.
“I was told by one psychiatrist at age 13 or 14 that if I didn’t
take the meds, my brain would become more and more damaged,”
said Ms. White, who began hearing voices in grade school. “Of
course I believed it. And I became hopeless, because the drugs just
made me feel worse.”
On a recent Tuesday, Ms. White and seven others who hear
voices gathered at the Holyoke Center of the Western Massachu-
setts Recovery Learning Community, which hosts weekly 90-
minute hearing voices groups, to talk about what happens in those
sessions. The group meetings themselves, guided by a person who
hears voices, sometimes accompanied by a therapist, are open to
family members but closed to the news media.
The culture is explicitly nonpsychiatric: No one uses the word
“patient” or refers to the sessions as “treatment.” “We need to be
very careful that these groups do not become medicalized in any
way,” said Gail Hornstein, a professor of psychology at Mount
Holyoke College and a founding figure for the American hearing
voices groups, which have tripled in number over the past several
years, to more than 80 groups in 21 states.
Most of the people in the room had extensive experience being
treated in the mainstream system. “I was told I was a ticking time
bomb, that I’d never finish college, never have a job, never have
kids, and always be on psychiatric medication,” said Sarah, a stu-
dent at Mount Holyoke who for years has heard a voice — a child,
crying — and in college started having suicidal thoughts. She was
given diagnoses of borderline personality disorder and put on
medications that had severe side effects. She asked that her last
name not be used, to preserve her privacy. In the group, other
members prompted her to listen to the child’s cries, to ask whose
they were, and why the crying?
Those questions led, over a period of weeks, to a recollection
of a frightening experience in her childhood, and an effort to
soothe the child. This altered her relationship with the voice, she
said, and sometimes the child now laughs, whispers, even sings.
“That is the way it works here,” said Sarah, who is set to grad-
uate from college with honors. “In the group, everyone’s experi-
ence is real, and they make suggestions based on what has worked
for them.”
(continued on page 6)
Research News You Can Use
October 2016 Page 6
montco memo Volume XXXVI Issue 2
We want to thank our sponsors to date of our 5th Annual
Benefit for the Brain:
Champion: Creative Health Services, Inc.
Progressions Companies Inc.
Hero: PMHCC
Star: Magellan Behavioral Health
Brooke Glen Behavioral Hospital
New Vitae Wellness and Recovery
Lundbeck Inc.
Friend: Mental Health Association of SE PA
Rubin & Badame Attorneys at Law
Dawn & Jerome Hogan
There is still time to be a part of and support this very worth-
while effort to promote research of and recovery from mental
illness. Email [email protected] or call 215-361-7784.
Thank you!
Alternative Form of Mental Health Care
Like many of the other alternative models of care, Hearing
Voices Network is not explicitly anti-medication. Many people
who regularly attend have prescriptions, but many have reduced
dosages.
“I walked in the door on Thorazine and thought I couldn’t get
better,” Marty Hadge said. “About all I could do is lie on the
couch, and the doctors would say, ‘Hey, you’re doing great —
you’re not getting in trouble!’”
Mr. Hadge is now a group leader who trains others for that
role. He no longer takes Thorazine or any other anti-psychosis
medication.
Not everyone benefits from airing their voices, therapists say.
The pain and confusion those internal messages cause can over-
whelm any effort to understand or engage.
“People will come to our program because they’re deter-
mined not to be on medication,” said Dr. Gordon, the medical
director of Advocates. “But that’s not always possible. The idea
is to give people as many options as we can, to allow them to
come up with their own self-management program.”
To do that, proponents of alternative care have much work to
do. The programs are spread thin, and to scale up, they will prob-
ably have to set aside their native distrust of mainstream psychia-
try to form alliances with clinics. In parts of Europe, including
Britain and Denmark, such integration has occurred, with Hear-
ing Voices groups and Open Dialogue-like programs widely
available.
In this country, there is very little collaboration. Ms. White
runs a Hearing Voices group in the forensic psychiatry unit of a
hospital in Springfield, Mass., and there is a scattering of other
medical clinics that work with Voices groups. But the culture
gap between alternative and mainstream approaches to psychosis
and other mental problem remains deep, and most psychiatrists
and insurers will need to see some evidence before forming part-
nerships.
Last month, the influential journal Psychiatric Services pub-
lished the first study of the Open Dialogue program in the United
States, led by Dr. Gordon and Dr. Douglas Ziedonis of the Uni-
versity of Massachusetts.
The results are encouraging: Nine of 14 young men and
women enrolled in the program for a year after a psychotic epi-
sode were still in school or working. Four are doing well without
medication; the others started or continued on anti-psychosis
drugs. Insurance covered about a quarter of the overall costs.
“It’s tiny, just a pilot study,” Dr. Gordon said. “But it’s a start.”
http://www.nytimes.com/2016/08/09/health/psychiatrist-
holistic-mental-health.html?smprod=nytcore-
ipad&smid=nytcore-ipad-share&_r=1
(Continued from page 5)
Thanks to the Sponsors of Our 5th Annual Benefit for the Brain
Tumblr Offers On Line Discussion Resource for Mental Health Community
According to Crain’s, the Manhattan-based blogging site
Tumblr is taking a more discussion-oriented approach to promot-
ing mental health in a space set aside to talk about mental health
issues.
Post It Forward offers the opportunity to view mental health
resource materials amongst a number of personal postings; all
told, there’ve been 16,000 posts to date.
Advocates are posting "a ton of content," including research
studies, resource links and videos on mental health issues, with
the tag "Post It Forward," a Tumblr spokeswoman told Crain’s.
"We can make sure our audience sees it on their dashboards and
it can live beside artwork from users."
"The idea of sharing stories is really important and would
have saved me a lot of suffering as a kid," said one user.
October 2016 Page 7
montco memo Volume XXXVI Issue 2
Tributes and Other Contributions
The Tribute Fund is a good way to mark anniversaries, weddings and other special occasions, and to express sympathy for the
loss of a loved one. We will send a note of appreciation to anyone you designate. Send your check to NAMI of Pennsylvania Mont-
gomery County, 100 W. Main Street, Suite 204, Lansdale, PA 19446. When designating NAMI in an obituary notice, please speci-
fy NAMI of Pennsylvania Montgomery County.
In Tribute:
In memory of Beth Laws Neen and Dave Davis
In memory of Beth Laws Jarema N. Rudakevich and Carol Caruso
In memory of Domenic Leone Jarema N. Rudakevich and Carol Caruso
In memory of David L. Rackow, MD Stephen and Cynthia Ruzansky
Individual Donations
Marie Biddy Ruth Esquirell Scott Evert Bernadette T. Haertsch
Elliot V. Hersh Susan P. Jacobs Richard P. Kelble Anthony J. Malloy
James & Miriam McCauley James Alexander Rauer Peter & Bonnie Schorsch Noelle Wheatley
Corporate Matching Gifts
Emily and Chris Lupcho, Aetna Foundation
Tom Vander Neut, Aetna Foundation
Yingchun Zhang, UnitedHealth Group
Reserve Now for Our 5th Annual Benefit for the Brain November 16th
PENNSYLVANIA MONTGOMERY COUNTY
Dues are for one year and are Tax Deductible. Donations are welcome and are also Tax Deductible.
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PENNSYLVANIA
MONTGOMERY COUNTY
100 W. Main Street, Suite 204
Lansdale, PA 19446