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Medical Home Key Clinical Activity Session 2: Family Centered Care
Jill Rinehart, MD FAAPAssociate Clinical Professor PediatricsUniversity of Vermont Medical School
Owner/PediatricianHagan, Rinehart & Connolly Pediatricians, PLLC
Florida Pediatric Medical Home Demonstration Project Learning Session I
September 23-24, 2011
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Disclosure
I have no relevant financial relationships with the manufacturers of any commercial products and/or provider of commercial services discussed in this CME activity. I do not intend to discuss an unapproved/investigative use of a commercial product/device in their presentation.
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Our Medical Home Program Burlington, Vermont
Three pediatricians, Dr. Joseph Hagan, Dr. Jill Rinehart, Dr. Gregory Connolly
Two Pediatric Nurse Practitioners, Maryann Lisak & Tonya Wilkinson
One main RN Care Coordinator KristyOffice manager, Accounts manager, one office assistant,
four additional part-time nurses, three medical assistants~4000 Active Patient ListDr. H 1991, Dr. R 1999, Dr. C 2010 Insurance mix: 35% Mcaid, 60% Private,<5% uninsured
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Family Centered Care: What?
Provides care that is “whole-person” oriented, consistent with unique needs and preferences of the families
Partners with patients and families to make treatment decisions
Has open communication between patients and care team, access to resources to help when communication is strained
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Family Centered Care
Accessible 24/7 Accessible (universal design) After Hours coverage Admit to children’s hospital
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Family Centered Care: Why?
“Increasing evidence that the care experience (which encompasses how health care practitioners communicate with patients and families and invite their active participation in clinical care) affects outcomes. The better the experience--relationship and communication with the provider--the better the outcome.”
Mackean, G.L., Thurston, W.E., Scott, C.M. (2005) Bridging the Divide between families and health professionals’ perspectives on family-centered care. Health Expectations, 8, 74-85
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National Study-CSHN, 2005-6
Surveyed 40,840 ChildrenMeasured 5 core medical home components:
1) Having a usual source of care2) Having a personal doctor or nurse3) Receiving all needed referrals for specialty care4) Receiving help as needed in coordinating health-
related care5) Receiving family-centered care
“New Findings from the 2005-06 NS-CSHN,” Strickland, B.et.al.Pediatrics, June 26, 2009 Vol. 123
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National Study-CSHN 2005-6
Good News:• 90% of CSHN and their peers had “usual source
of care” and a personal MD or nurseBUT only half of CSHN and peers had access to
medical home in all 5 aspects• As family income increases, access to medical
home increases• Access is affected by race/ethnicity, health
insurance status, severity of child’s condition
“New Findings from the 2005-2006 NS-CSHN,” B.Strickland, et.al.Pediatrics, June 26, 2009Vol. 123
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Access to Medical Home
• Parents of CSHN who do have medical homes report less delayed or forgone care and significantly fewer unmet needs for health care and family support services
• But limited improvements since success rates first measured in 2001 NS-CSHN
“New Findings from the 2005-2006 NS-CSHN,” B.Strickland, et.al., Pediatrics, June 26, 2009 Vol. 123
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Family Centered Care: How?
Interdisciplinary Teams Care Conferences Discharge Rounds at Vermont Children’s
Hospital Co-located Psychologist, psychiatry consultation
twice a month Pediatric Subspecialists are collaborating more
with one another (ENT, Pulmonary, GI)--> connecting to medical homes
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Interdisciplinary
Care Conferences: Family, Kidsafe Collaborative, Burlington Housing Authority, Howard Center, Bridge Program, Burlington School district, Shelburne School District, psychologist, CSHN social worker, school nurses, PT, OT, SLP
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Family Centered Care
Coordinates across settings and services
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Family-Centered
McKayla is a 12 year old with Nonketotic Hyperglycinemia
Developmental DelayChoreoathetosisSeizuresDysphagia (G-Tube)Friend, classmate,
daughter, niece
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Compassionate
Admitted for aspiration pneumonia
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Comprehensive
• Physician facilitates essentially all aspects of care
• Pediatric Resident communicates with neurometabolism program to adjust feedings/meds
• Family as experts: provides medication lists, dietary history, clinical expertise:“She’s herself again!”
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Family Centered Care
Coordinates a patient’s health care access across care settings and services, over time, in consultation and collaboration with patient and family understand the families’ strengths identify gaps in services
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What the Julius Medical Home Was at HRC
Incredible reputationAmazing Physicians24/7 CoverageNurses that were
lactation specialistsIntegrated approach and
interest in Matt’s whole life
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Our Medical Home Until 1:30pm 2/15/01
SupportFamily &
Friends
FAMILYFAMILY
MEDICALHOMEPRIMARY DOCTOR CARE COORDINATOR
DAYCARE
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And Then…Along Came the Amazing Miss Kate
Congenital Hydrocephalus
Multiple revisions, infections, complications
Cerebral Palsy, Epilepsy
Downright remarkable
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Our Medical Home Post Diagnosis 1:35 pm 2/15/01
FAMILYFAMILY
MEDICALHOMEPRIMARY DOCTOR
CARE COORDINATOR
On-Going Care TeamSocial WorkerOT/PT/SLP TherapistsDaycare Staff & Aide
SpecialistsNeurosurgeryNeurologyPhysiatristEndocrinology
FundingInsurersMedicaidFITCSHN
CSHNClinicsFundingEquipment
RespiteMedicaid ArisFIT
SupportFamily,
Friends, Groups, Advocacy
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Family Centered Care
Provides care that is “whole-person” oriented, consistent with unique needs and preferences of the families We get to know our patients, prepare prior to
visit (C.C.) Strengths based (S. family) “Flags” in the EHR Registry “Reminders” section
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Family Centered Care
Partners with patients and families to make treatment decisions Especially with subspecialty recommendations,
medical home often “sells” the intervention
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Family Centered Care
Has open communication between patients and care team, access to resources to help when communication is strained Access to pediatric ethicist Co-located child psychologist
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Building Medical Home Teams
• Care Coordinator
• Team Huddles
• Provider Meetings
• Staff Meetings
• Co-located Psychologist
• Pediatric Psychiatrist-Case consults every 2-3 weeks
• New alliances: Community Health Team, Medical social worker, Pediatric Registered Dietician
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Family Centered Care: Specific Strategies
Mission Statement of your Medical Home “Our practice partners with families and
community to build relationships that nurture children's physical and emotional health and well-being.”
Identify Care Coordinator RolePhone follow up after dischargeRegistry of CSHN“Reminders” Box
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Engaging Patients and Families
• Family Centered Care
•Motivational Interviewing
• Team building
• Empowering parents as experts and partners
• Medical Home Index
• Family Advisory Board
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Practice Organization
• Preparing for Office Visits (pre-visit forms)parent, youth
• Patient Registry-flag in E.H.R. for CSHN, or “more time needed”
• Access to clinical guidelines: (Bright Futures, ADHD, Asthma)
• Care coordinator(nurse): connects with families with newborns, after ED visits, discharge from NICU, or Children’s Hospital
• Care Conferences: brings families, communities together
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Quality Improvement Strategies
• Practice Improvement Partnerships (Blueprint for Health, NCQA)
• Medical Home EQIPP Course
• Bright Futures EQIPP Course
• PDSA cycles on building a team, ways to engage families, implementing clinical guidelines (Bright Futures, acute conditions, implementing a recall/reminder system)
• Self-assessment! (Medical Home Index, FCC Self-Assessment)
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Thank You to Our Parent Partners
Carolyn Brennan Kimberly CooksonSandy JuliusScott MetevierPeggy Mann Rinehart Wendy RugglesTheresa SoaresKate & Michael Stein
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Resources
Antonelli RC, Stille CJ,Care , Antonelli DM, “Coordination
for CYSHCN: A descriptive Multisite Study of Activities, Personnel Costs, and Outcomes,” Pediatrics, July 2008
Baruffi G, Miyashiro L, Prince CB, Heu P. “Factors associated with ease of using community-based systems of care for CSHCN in Hawaii,” Maternal Child Health J, 2005
Broyles RS, Tyson JEH, Heyne ET, et al. “Comprehensive follow-up care and life-threatening illnesses among high-risk infants: a randomized controlled trial,” JAMA. 2000
Christakis D, Mell L, Koepsell TD, Zimmerman FJ, Connell RA. Association of lower continuity of care with greater risk of emergency department use and hospitalization in children. Pediatrics. 2001
Cooley C, McAllister J, “CMHI National Outcomes Study Cost/Utilization,” Pediatrics, July 2009
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ResourcesResources
Christakis D, Mell L, Koepsell TD, Zimmerman FJ, Connell RA. Association of lower continuity of care with greater risk of emergency department use and hospitalization in children. Pediatrics. 2001
Hagan, J.F, Duncan, P., Shaw, J., Bright Futures: Guidelines for Health Supervision of Infants, Children and Adolescents, p.4
Homer CJ, Klatka K, Romm D, et al. “A review of the evidence for the medical home for children with special health care needs.” Pediatrics. 2008
MCHB/NCHS. National Survey of Children with Special Health Care Needs, 2002
National Center for Medical Home Implementation “Building Your Medical Home Toolkit,” website:http://www.pediatricmedhome.org/
Strickland, et.al.,“New Findings from the 2005-2006 NS-CSHN,” Pediatrics, June 26, 2009
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Family as Expert
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