M A S C C • S u p p o r t i v e C a r e m a k e s e x c e l l e n t c a n c e r c a r e p o s s i b l e

Multinational Association of Supportive Care in Cancer • www.mascc.org

NEWSWelcome to the March Edition of the Society NewsMessage from Editors Anna Ugalde and Anna Boltong

We have now been in this editorial post for over two years, and the time has come to hand over our duties to a new editor. We have both thoroughly enjoyed the position as MASCC Society News Editors and engaging with the MASCC community. We will continue to be involved over the coming editions to support the new editor once announced.

We wish to extend thanks to several people who have assisted us with preparation of the newsletter each month: Fred Ashbury, Toni Clark, Åge Schultz, and Anne Young. Additionally, a big thank-you to Beth Hollen for her wonderful work of expertly and promptly formatting the newsletter and producing the final print-ready copy. Thank you to current and past MASCC presidents, David Warr and Dorothy Keefe, for their support and encouragement in gathering stories. It has been a pleasure to work with you all.

Thank you to all of you, the members, who have responded to our emails and helped develop the newsletter content. We will continue to read this newsletter with interest and will enjoy keeping up to date with all of the great work you are doing in supportive care. And of course, we will continue to be members of MASCC, so we look forward to meeting you all at an Annual Meeting in the future.

We hope that all members will continue to send in news items to the address masccnews@mascc.org. These can include achievements by members, such as awards or prizes, upcoming events or conferences, grants, publications, and any media coverage relevant to supportive care in cancer.

From your editors, Anna & Anna

March 2015

The Distinguished Service Award recognizes meritorious achievement and outstanding contributions to MASCC and its mission. This award is reserved for those with the highest levels of support to the MASCC Society.

Nominees should demonstrate exemplary leadership in supportive care in cancer in the fields of research, education, and/or clinical supportive care and cancer. All nominees must be current members of MASCC.

To nominate someone for this award, see the Awards, Grants & Scholarships page at the MASCC website, where you will find the award policy and nomination form. You will need to enclose a cover letter, information about the nominee and yourself, a detailed description of accomplishments, the nominee’s CV, and 3 to 6 letters of support. For more information or inquiries, please contact Åge Schultz, aschultz@mascc.org.

Applications close on 1 April 2015. The award will be presented at the 2015 Annual Meeting in Copenhagen, 25-27 June, 2015.

MASCC Distinguished Service Award: Call for Nominations

Anna Ugalde

Anna Boltong

M A S C C • S u p p o r t i v e C a r e m a k e s e x c e l l e n t c a n c e r c a r e p o s s i b l e

Multinational Association of Supportive Care in Cancer • www.mascc.org

Upcoming Conferences

World Congress in Psycho-Oncology. In August, the International Psycho-Oncology Society and the American Psychosocial Oncology Society are partnering to host a joint World Congress in Psycho-Oncology, with the theme, From National to Global:

Implementing the Standard of Psychosocial Care in Oncology. This conference will be held in Washington, DC, USA from 28 July to 1 August, 2015. Although the abstract submission period has closed, late-breaking abstracts (for posters only) will be considered from 6 April – 20 April, 2015. More information is available at www.ipos-society.org.

European Lung Cancer Conference. It’s still not too late to register for the European Lung Cancer Conference, to be held in Geneva, Switzerland, 15 April – 18 April, 2015. Hosted by the European Society for Medical Oncology (ESMO) and the International Association for the Study of Lung Cancer (IASLC), the multidisciplinary program will feature such topics as “Local control after treatment of early stage lung cancer,” “Mesothelioma: the rare disease we need to know better,” and “ H o w d o w e p rov i d e t h e b e s t psychological care for patients with thoracic malignancies?” Registration is available online until 25 March and on site as of March 26. More information is available at http://www.esmo.org/Conferences/ELCC-2015-Lung-Cancer.

World Congress on Gastrointestinal Cancer. Barcelona, Spain will be the site of the 17th World Congress on Gastrointestinal Cancer, 1 – 4 July, 2015. Abstract submission closes 9 March and discounted registration closes 18 June. Endorsed by leading

professional societies and organisations, including the European Society for Medical Oncology, this conference features the latest on gastrointestinal screening, diagnosis, and management options. For more information, visit http://worldgicancer.com/WCGI/WGIC2015/index.asp.

MASCC Annual Meeting, 2015. If you are thinking about conference attendance in 2015, make sure you consider the MASCC Annual Meeting held in Copenhagen, Denmark, 25-27 June. The program is filled with sessions on supportive care, including the management of nausea and vomiting in advanced cancer, the use of cannabinoids in cancer therapy, e-health and supportive care, supportive care of the elderly, and a discussion of euthanasia. We hope to see you there!

MASCC/ISOO Annual Meeting 2015 - Join us in Copenhagen!Abstract submission deadline: February 15, 2015

Early registration deadline: April 24, 2015

M A S C C • S u p p o r t i v e C a r e m a k e s e x c e l l e n t c a n c e r c a r e p o s s i b l e

Multinational Association of Supportive Care in Cancer • www.mascc.org

I’m a researcher (PhD) at the Netherlands Comprehensive

Cancer Organization in Eindhoven (IKNL). My research is

about scalp cooling to prevent chemotherapy-induced

alopecia. The use of this supportive care is increasing all

over the world, but has had minimal research attention

until now. The impact of hair loss varies hugely between

cancer patients; some consider it “not bothering at all,”

while others consider it “worse than losing a breast.” With

an international group of researchers (MDs, oncology

nurses, health scientists), I am developing a questionnaire

on the impact of alopecia and a common registration of

scalp cooling results. With other researchers, I am

performing more basic research on hair loss and scalp

cooling, including pharmacokinetics, biology, and pathology. I

completed my PhD on the effectiveness and safety of scalp cooling in 2013. I decided to join MASCC/ISOO because of the

opportunity to engage with enthusiastic and friendly people all over the world with an interest in alopecia and scalp cooling.

MASCC/ISOO is THE place to gather such a group to share knowledge and collaborate in research!

I am an Assistant Professor in the Department of Medical and Clinical

Psychology at Tilburg University, Tilburg, the Netherlands. My research has

mainly focused on long-term cancer survivorship. More specifically, it is focused

on signaling (and possibly preventing) problems caused by treatments that have

a negative influence on patient-reported outcomes, such as quality of life,

disease-specific complaints, anxiety, depression, and fatigue. The impact of

chemotherapy-induced side effects is my special interest. Nowadays, my main

focus is to gain insight into the prevalence and severity of chemotherapy-

induced peripheral neuropathy, and to determine who is at risk, by taking

socio-demographic, clinical, and psychological characteristics into account.

Furthermore, I will study its influence on patient-reported outcomes (health

related quality of life, anxiety, depression, fatigue, sleep) and patients’ lives

(health care utilization, physical activity, and employment). I have recently

published several papers on this topic, among others, in the Journal of Clinical

Oncology. The following review on quality of life in patients with neuropathy

gives a nice overview of this research field: Mols F, Beijers T, Vreugdenhil G,

van de Poll-Franse L. Chemotherapy-induced peripheral neuropathy and its

association with quality of life: a systematic review. Support Care Cancer. 2014

Aug;22(8):2261-9.

I decided to join MASCC/ISOO because it is, to my knowledge, the only

association that hosts an international workgroup on neurological symptoms. I hope that we can work together to study

chemotherapy-induced peripheral neuropathy and its impact on patients’ lives.

Meet a New MASCC Member, Floortje Mols

Meet a New MASCC Member, Corina van den Hurk

M A S C C • S u p p o r t i v e C a r e m a k e s e x c e l l e n t c a n c e r c a r e p o s s i b l e

Multinational Association of Supportive Care in Cancer • www.mascc.org

Publications from MASCC members1: Ekström M, Bornefalk-Hermansson A, Abernethy A, Currow D. Low-dose opioids should be considered for symptom relief also in advanced chronic obstructive pulmonary disease (COPD). Evid Based Med. 2015 Jan 6.

2: Chan A, Cameron MC, Garden B, Boers-Doets CB, Schindler K, Epstein JB, Choi J, Beamer L, Roeland E, Russi EG, Bensadoun R, Teo YL, Chan RJ, Shih V, Bryce J, Raber-Durlacher J, Gerber PA, Freytes CO, Rapoport B, LeBoeuf N, Sibaud V, Lacouture ME. A systematic review of patient-reported outcome instruments of dermatologic adverse events associated with targeted cancer therapies. Support Care Cancer. 2015 Jan 7.

3: Kuiken NS, Rings EH, Tissing WJ. Risk analysis, diagnosis and management of gastrointestinal mucositis in pediatric cancer patients. Crit Rev Oncol Hematol. 2014 Dec 19.

4: Ekström MP, Abernethy AP, Currow DC. The management of chronic breathlessness in patients with advanced and terminal illness. BMJ. 2015 Jan 2;349:g7617.

5: Tran E, Spiceland C, Sandhu NP, Jatoi A. Malignant Bowel Obstruction in Patients With Recurrent Ovarian Cancer. Am J Hosp Palliat Care. 2014 Dec 31.

6: Clement SC, Kremer LC, Links TP, Mulder RL, Ronckers CM, van Eck-Smit BL, van Rijn RR, van der Pal HJ, Tissing WJ, Janssens GO, van den Heuvel-Eibrink MM, Neggers SJ, van Dijkum EJ, Peeters RP, van Santen HM. Is outcome of differentiated thyroid carcinoma influenced by tumor stage at diagnosis? Cancer Treat Rev. 2015 Jan;41(1):9-16.

7: Dunlop SM, Dobbins T, Young JM, Perez D, Currow DC. Impact of Australia's introduction of tobacco plain packs on adult smokers' pack-related perceptions and responses: results from a continuous tracking survey. BMJ Open. 2014 Dec 18;4(12):e005836.

8: Brown AJ, Sun CC, Urbauer D, Zhukovsky DS, Levenback C, Frumovitz M, Thaker PH, Bodurka DC, Ramondetta LM. Targeting those with decreased meaning and peace: a supportive care opportunity. Support Care Cancer. 2014 Dec 18.

9: Loeffen EA, Mulder RL, Kremer LC, Michiels EM, Abbink FC, Ball LM, Segers H, Mavinkurve-Groothuis AM, Smit FJ, Vonk IJ, Vd Wetering MD, Tissing WJ. Development of clinical practice guidelines for supportive care in childhood cancer-prioritization of topics using a Delphi approach. Support Care Cancer. 2014 Dec 18.

10: Dianat SS, Carter HB, Pienta KJ, Schaeffer EM, Landis PK, Epstein JI, Trock BJ, Macura KJ. Magnetic Resonance-invisible Versus Magnetic Resonance-visible Prostate Cancer in Active Surveillance: A Preliminary Report on Disease Outcomes. Urology. 2015 Jan;85(1):147-54.

I am a dental oncologist, and I treat the oral and dental manifestations of cancer

therapy. I recently completed my fellowship in dental oncology at Memorial Sloan

Kettering Cancer Center. I am now working in private practice in Manhattan, New

York. Prior to my fellowship, I completed a general dental practice residency at New

York-Presybterian Weill Cornell Medical Center. Treating the oral and dental

manifestations of cancer therapy does not involve treating cancer, but rather some of its

side effects, thereby providing dental and oral supportive care. This includes caring for

patients before, during, and after they receive a stem cell transplant, chemotherapy, or

radiation treatment. I treat oral mucositis, oral graft v. host disease, osteonecrosis of the

jaw, and osteoradionecrosis of the jaw, treating patients throughout their radiation

therapy. I am extremely interested in supportive care in cancer, for I believe in its

multidisciplinary approach. I am currently writing a case series on osteonecrosis of the jaw not related to bisphosphonates.

Additionally, I am involved in the MASCC/ISOO Oral Care Study Group. I decided to join MASCC/ISOO for its excellent

reputation, and I was looking for a network of colleagues where I could discuss dental oncology-related issues. MASCC seemed

like the perfect organization!

Meet a New MASCC Member, Lauren Levi

M A S C C • S u p p o r t i v e C a r e m a k e s e x c e l l e n t c a n c e r c a r e p o s s i b l e

Multinational Association of Supportive Care in Cancer • www.mascc.org

Publications from MASCC members 11: Martin L, Senesse P, Gioulbasanis I, Antoun S, Bozzetti F, Deans C, Strasser F, Thoresen L, Jagoe RT, Chasen M, Lundholm K, Bosaeus I, Fearon KH, Baracos VE. Diagnostic criteria for the classification of cancer-associated weight loss. J Clin Oncol. 2015 Jan 1;33(1):90-9.

12: Aldiss S, Baggott C, Gibson F, Mobbs S, Taylor RM. A Critical Review of the Use of Technology to Provide Psychosocial Support for Children and Young People with Long-Term Conditions. J Pediatr Nurs. 2015 January - February;30(1):87-101.

13: Silbermann M, Fink RM, Min SJ, Mancuso MP, Brant J, Hajjar R, Al-Alfi N, Baider L, Turker I, ElShamy K, Ghrayeb I, Al-Jadiry M, Khader K, Kav S, Charalambous H, Uslu R, Kebudi R, Barsela G, Kuruku N, Mutafoglu K, Ozalp-Senel G, Oberman A, Kislev L, Khleif M, Keoppi N, Nestoros S, Abdalla RF, Rassouli M, Morag A, Sabar R, Nimri O, Al-Qadire M, Al-Khalaileh M, Tayyem M, Doumit M, Punjwani R, Rasheed O, Fallatah F, Can G, Ahmed J, Strode D. Evaluating palliative care needs in middle eastern countries. J Palliat Med. 2015 Jan;18(1):18-25.

14: Jackson LK, Johnson DB, Sosman JA, Murphy BA, Epstein JB. Oral health in oncology: impact of immunotherapy. Support Care Cancer. 2015 Jan;23(1):1-3.

15: Keefe DM, Chan A, Kim HK, Hsieh RK, Yu S, Wang Y, Nicholls RJ, Burke TA. Rationale and design of the Pan Australasian chemotherapy-induced emesis burden of illness study. Support Care Cancer. 2015 Jan;23(1):253-61.

16: Chan A, Kim HK, Hsieh RK, Yu S, de Lima Lopes G Jr, Su WC, Baños A, Bhatia S, Burke TA, Keefe DM. Incidence and predictors of anticipatory nausea and vomiting in Asia Pacific clinical practice-a longitudinal analysis. Support Care Cancer. 2015 Jan;23(1):283-91.

17: Loeffen EA, Brinksma A, Miedema KG, de Bock GH, Tissing WJ. Clinical implications of malnutrition in childhood cancer patients-infections and mortality. Support Care Cancer. 2015 Jan;23(1):143-50.

18: Hegerova LT, Leal AD, Grendahl DC, Seisler DK, Sorgatz KM, Anderson KJ, Hilger CR, Loprinzi CL. An analysis of fosaprepitant-induced venous toxicity in patients receiving highly emetogenic chemotherapy. Support Care Cancer. 2015 Jan;23(1):55-9.

Have any news items to share?Please send contributions for the MASCC News to MASCCnews@mascc.org or the co-editors:

Anna Ugalde a.ugalde@deakin.edu.au Anna Boltong anna.boltong@cancervic.org.au

For more information please contact: Åge Schultz, MASCC Executive Director: aschultz@mascc.org