MARH 2014 HAPS ontinues Parkinson Foundation of Harris ...
Transcript of MARH 2014 HAPS ontinues Parkinson Foundation of Harris ...
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diagnosis or treatment. Always seek the
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conditions or drug interactions.
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contact the HAPS office at 713-626-7114
in this issue
Marathon 2-4
New Board Members 4
FDA Approves New Medicine 4
HAPS Exercise & Support Group Schedule
Insert
Article: New Insight Into How Pesticides May Increase Parkinson’s Risk
5
Pancakes for Parkinson’s 6
MJFF Clinical Trial Fair 6
Dance for PD® Master Class 6
Contributions and Tributes 7
MARCH 2014
2700 SW Freeway #296 • Houston, TX 77098 • ph 713-626-7114 • fax 713-521-3964 • www.hapsonline.org • [email protected]
Save the Date!
HAPS Annual Educational Symposium
Saturday, May 10th
Houston has been fortunate to have two Parkinson’s patient support organizations
offering programs and services that improve the quality of life for those who are affected.
For a number of reasons, Parkinson Foundation of Harris County (PFHC), which has
faithfully served Houston’s Parkinson’s community for the past 34 years, made a decision
to discontinue operations as of March 1, 2014.
Before PFHC made that decision, representatives of the organization and Houston Area
Parkinson Society met and considered merging the two organizations. The legal and
accounting costs required to pursue a formal, legal merger, however, were going to be
high. PFHC therefore elected to cease operations and asked HAPS to continue some of its
existing programs.
Through the years, PFHC and HAPS have collaborated on events and programs that have
assisted people living with Parkinson’s disease. In 1997, the organizations jointly hosted a
fundraising event that featured an appearance of Muhammad Ali on his 55th birthday.
PFHC and HAPS were both beneficiaries of the funding raised and the support generated
through that special event contributed to research, outreach and education. In 2012, the
two organizations in partnership began offering an ongoing Beginner’s Tango Class,
providing students with the opportunity to learn to dance the tango which research has
shown leads to improvements in posture, gait and mood for people living with
Parkinson’s.
With similar missions and long-standing histories of serving those with Parkinson’s
disease, PFHC and HAPS have been exploring ways to work together to ensure that
programs that PFHC clients have come to depend on will remain available. In recent years,
these programs have consisted of therapeutic groups, monthly luncheon seminar
meetings, a monthly newsletter and a lending library.
We are pleased to announce that HAPS will carry on the PFHC legacy by taking over and
continuing the majority of its therapeutic groups. In addition, HAPS will include PFHC
clients and families on its mailing list so they will receive HAPS’ monthly newsletter and
continue to be kept up to date on trends in Parkinson’s treatment, care and research, as
well as be informed about local events and HAPS programs.
We remain committed to our shared goals of delivering quality services and providing
critical programs that make a difference in the lives of those affected by Parkinson’s
disease in the greater Houston area.
Roslyn Waechter Mike Hendryx President, PFHC President, HAPS
HAPS Continues Parkinson Foundation of Harris County’s Legacy
2 | HOUSTON AREA PARKINSON SOCIETY
Jacque Abernathy
Thomas Adams
Laura & Frank Adamsky
Avalon Advisors
Dylan Aguilar
Manzoor Ali
Sarah Ali
Carroll & Phil Allison
Sarah Almy
Luis Alonso
Vicky Anderson
Granny & Pop Pops Anderson
Clifford Ando
Jaquel & Jeremy Andrews
Fernando Aponte
Patricia Aquinto
Anna Archer
Jeandell Arcilla
Whitney & Greg Argyres
LaTanya Armstead
Paula Arnold
Farah Atassi
Deb & Tom Atchison
Dennis Atchison
Steve Atchison
Viva & Chris Bacorn
Steve Bair
R. Cameron Ballantyne
Melodie H. Ballman
Mahmood Banijamali
Bill Barney III
Gayle Bartlett
Janine & Greg Batterton
Cindy Bausch
Robin Beard
Walter Beard
Kelly Masters Beard
Lo & Doug Becker
Cate Bennett
Amber Berchiatti
Janice Berg
Julie & Brent, Shay & Brookie Bersin
Claudia Beseda-Burns
Amanda Black
Liz & Michael Black
Charles Blackwell
Diane Blanco
Blake Blazek
Sharon & Wes Blizzard
Suzanne Bloch
Margaret Blue
Bryce Blythers
Jan & Jack Boatman
Jeffrey Bohanski
Janica Boles
Maricel Bombasi
Harry Boykin
BP Fabric of America Fund
Azra Brackovic
Jane Bradley
Audrey Bradshaw
Molly Brady
Cherry Bramel
Lucy Brants
Iola Brave
Arline Breaux
Angela Brener
Peggy Brenner
Marianna & Chris Brewster
Lee Brochstein
Tira & Christopher Brom
Toby, Gregg, Ryan & Ariel Brown
Sherry & Rick Brown
Don Brown
Nina Brown
Pamela Brown
Susan & Mike Brown
Shirley & Michael Brown
Keith Brown
Karen & Steve Brown
Michael Brown
Susan Brown
Carl Bruice
Mon Bryant
Christy & Matt Bryant
Karen Buchler
Ed Buck
Cecilia Buice
Arsen & Ricky Bulos
Kay Burnell
Gina Buti
Gretchen Butler
Kelly & Billy Buzzett
Kellie Byerly
Diane & Dan Byers
Paula & Jack Cade
Ann Marie Cahill
Joanna & John Calabro
Lauren Caldarera
Sam Caldwell
Marianne & Michael Caliri
Alice & Aubrey Calvin
Joan Camacho
Kim & Keith Campbell
Debbie & Scot Campbell
Tania Campbell
Marlene & Walter Canty
Lou Caplan
Laura Cardella
Ashley Cardoza
Marion & Bob Cardoza
Barbara & Jerry Carlisle
Kathye Carpenter
Amado Carrillo
Christine & Chuck Carter
Patty & John Carter
Daragh Carter
Twila Carter Ilgen
Elizabeth & Steve Cartwright
Karen & Bob Cassidy
Monica Castellanos-Calderon
Jacqueline Cate
Kathleen Cejka
Paul Chamberlain
Lynn Champion
Ariana Chapman
Chevron
Rebecca Clark
Debbie Clark
Yvonne Clarke
Jay's Heating and Cooling
Stephanie & Justin Coates
Kathi & Ralph Coats
Chase Cobb
Richard Coffman
Chip Colburn
Marcia Cole
James Collins
Susie & Fred Collins
Anne & Val Comeaux
Liz & Blake Cook
Alan Cookson
Barbara & John Coon
Clare Cooper
Cathy & Bob Cooper
Craig Cooper
Kelly & Debbie Courter
Jennifer Cowan
Laura Cox
Kathleen Crist
Kay & Tracy Cross
Crown Geochemistry, Inc.
Ellie & Larry Csengery
Teddy Cuaping
Debbie & Mark Cuda
Patricia Culpepper
Sylvia & Charlie Cunningham
Patti Curtis
Cari Curtis
Amy Daly
Jeffrey Daniels
James Davis
Afsheen Davis
Norma & Dirk De Jong
Esmeralda De La Cruz
Derek Degeyter
Betty & Gregg Dejarnett
Del Rio Host Lions Club
Evelyn Denley
Marceline R. Devine
Ann Diggs
Mary Dignazio
Gilda Dimayuga
Traci Dimperio
Sandy & Jim D'Imperio
Roya Dinbali
Lisa Dixon
Lisa Dockall
Leslie & Shawn Doctor
Jerri Doctor
Stan Doctor
Scott, Ashley & Emily Doctor
Stacy Doctor
Sandra Dominguez
Don Donalson
Thomas Doneker
Brian Downs
Richard Doyle
Lin and Ron Drees
June & Bert Drexler
Kay & Wes Droke
Lynn & Tom Dunlop
Gladys Dworacek
Valeria Eastham
Sheri Eastman
Gary Ebdon
Nancy & William Edwards
Penny & Berk Egenes
Cary & Roberto Egusquiza
Colleen & Joe Elam
Ranya ElBeheary
John Elledge
Christi Elledge
Keith Ellison
Wendy Ellor
Linda & Phil Elting
Susan English
EP Energy
Carey Erdman
Colleen Ernst
Carl Estler, DDS
Judith Evans
Mark Evans
Husein Ezzi
Sheryl Falk
The Hepburn Family
Nick Faraklas
Jorge Faz
Al Fenoy
John Fetzer
Danell Fields
Jeannie Fisher
Stanley Fisher
Julius Fisher
Ian Fisher
Jenni & Brad Fleck
Ann Fleischmann
Veronica Foisy
Jody Folloder
Lisa Folloder
Macy's Foundation
Paul Francis
Debby Francis
Pamela & Curtis Frasier
Betty Frazier
Wendy & Eric Fredland
William French
Mark Frick
Ann & Kenny Friedman
Janet Friedman
Terry G. Fry
Hayes Fuller
Lisa Fulton
David Fusselman
Karen Gallagher
Edward Gallner
Dana Gambino
Giselle & Doug Garcia
Bonet Garcia
Victor Garcia
Carol Garner
Maria Garza
James Gascoyne
Stan Gerber
John Gerke
Bridget Gibson
Judith & Bill Giddings
John Gilbert
Joyce Gilbreath
Dolores Goble
Alison Godbe
Maureen Goddard
Allison Goldberg
Stefani & Andrew Golub
Gregory Gomez-Mira
Maria Gonzales
Melanie Gonzales
Ann Gonzalez
Javier Gonzalez
Paige & Brandon Goodwin
Sally & Glenn Goss
Kyle Goss
Cara Goss
Rosalind Graham
Denise Grannon
Allen Grant
Jackie Gravois
Elizabeth & John Gray
Krista, Chris, Luke & Caroline Green
Cookie & Scott Green
Susan Greensage
Carlene Gregg Victor
Ann Grimes
Ellin & Robert G. Grossman
Michael Grover
Kristen Gruber
Steve Guinn
Eduardo Guity
Malcolm Hackney
Lana Hadlock
Laurie Haedtler
Dale Hahn
Earl Hale
Shawn & Jake Hallsted
Barbara & Will Hamilton
Gayle Hamilton
Melanie & Kerry Hamilton
Carol Hammacl
David Hampton
Jason Hanlon
Mr. & Mrs. Wm. Carson Hardt
Superheroes of all kinds came out in support of HAPS
in the 2014 Chevron Houston Marathon—from walkers
and runners to spectators, sponsors and donors, we
couldn’t have made this the most successful marathon
on record without your help! We topped last year’s
event by raising an epic $108,677 that will directly
fund the vital services, education and advocacy HAPS
provides to people with Parkinson’s in our community. We are especially grateful to our
returning marathon co-chairs, Debby Hurlbert and Kathy Smith; Sidewalk Squad Sponsors
Wärtsilä and Teva; our in-kind donors; the nearly 175 runners, walkers and fundraisers;
and the over 825 donors (listed below) who contributed to this great cause!
1. Fred Stephens $15,700
2. Debby Hurlbert $8,470
3. Diana Rutherford $7,855
4. Leon Keeble $5,625
5. Mike Hendryx $5,045
6. Mark Reiley $4,700
7. Stacy Doctor $3,750
8. Alfonso Hernandez $3,370
9. Thomas Woltz, Sr. $2,255
10. Tania Campbell $2,100
11. Anna Hyde $2,085
12. Wesley Keepers $2,050
13. Steve Atchison $1,660
14. Allan MacInnes $1,650
2014’s Top 14 HAPS
Fundraisers
MARCH 2014 HAPS HAPPENINGS | 3
Michael Harper
Lynn Harper
Alison & Robert Harrell
Bob Harris
Charles Harris
Martha Harrison
Keith Hartman
D. Willis Hartman
Carlanda Hassoldt
Juaniece & James Hazelwood
Douglas Hellmann
Barbara & Jimmy Hemphill
Paul Henderson
Trey Henderson
Ruth Ann & Carlos Hendrick
Mike Hendryx
Betty & Bob Henke
Cheryl Herring
Todd Hewgley
Kim & Jim Higbee
Laura & Bob Higley
Ricky Hilado
Jenny Hinkle
Fatmeh Hmaidan
Rosa Hmaidan
Jordan Hmaidan
Amy & Andrew Hoechstetter
Enterprise Holdings
Jamie & Jason Hollis
Kathy Hollis
Lindy Hood
Joan & Rich Hooper
Kimberly Hooper
Bettye Hooter
Debbie & John Horgan
Judith & Bobby Horne
Allison Horner
Tom E. Horton
Dena Houchin
Susan & Kevin Howard
Matthew Howell
Marilyn Hrach
Ronald Hricko
Kristen Hrncir
Debby & Jim Hurlbert
Kim & Tim Hurlbert
Ashley & Jeff Hurlbert
Joshua Huss
Dallas Hutchinson
Anna Hyde
Robert Hyde
Icon Bank
Berniece & David Ischy
Claudia & Kirby Iselt
Mark Jackley
Nausheen Jamal
Roxanne & Frank Jay
Scott Jensen
Jill & Kirk Johansen
Brian Johns
Glenda Johnson
Bev & Don Johnson
Christine & Stephen Johnson
Deba Johnson
Peter Johnston
Nan & Brent Johnston
Quyen Jones
Darragh Jones
Maura Jones
Lori & Ed Jones
Debbie & Tate Joyner
Daniel Junek
Phyllis Kalz
Dhani Kannan
Julika Kaplan
Leslie Karpas
Nancy Kauffman
Larry Kauffman
Sara Kauffman
Alexia Kazilas
Nana Breda Kearney
Laura Kearney
Diane Kearney
Courtney Kearns
Jack Keating
Leon Keeble
June & Bill Keepers
Nick, Brie, Bentlee & Drew Keepers
Matthew Keepers
Marilyn Keepers
Sarah & Rob Keepers
Wesley Keepers
Rosemary Keibler
Ellen Kent
Susan & Ron Kent
Bill Keyser
Ramisha Khan
Carolyn Killean
Kingwood Travel, Inc.
David Kinnan
Jonathan Kinsworthy
Diane Kiser
Carrie Kittrell
Isabella Kleb
Cheryl & Roger Knott
Michael Koenig
Douglas Kohn
Paula Korber
Gere D. Korenek
Anthea Kotlan
Dee & Dick Kremer
Libby & George Krezinski
Laura & Jon Krome
Amy & Jeff Kuehnle
Tony Kupersmith
Marilyn Kusniss
Pogi Lacro
Brandon Lamb
Nicole & Paul Lambert
Jeff Langlois
Rand Lassus
Nancy Latimer
Sharon Lauder
Robert Lauer
Susan Laufman
Brian Laviage
Jeanette Lazarofsky
Dolores & Ernest Leal
U. Whitney Leavell III
Laura Ledbetter
Sharon Lederer
David Ledyard
Doreen & Robert Lee
Michele Lees
Bryan Legate
Tim Leheny
Cathryne Lempa
Tracy LeRoy
Erica Levit
Yolanda & Tracy Lewis
Sharon Lewis
Claudia Licona
Liza Littlefield
George Liverman
Diane Livingston
Fatema Lodgher
Randall Lofton
Jo Ann Long
Meggin Lorino
Kristi Love
David Lundahl
Kevin Lydon
Odette Mace
Allan MacInnes
Justin Mackie
Mary Madden
Barb & Randy Maffett
Ron Majewski
Alyssa Maloney
Ting & Tippy Maneewat
Krisni Manito-Tang
Wendy & Jim Markgraf
Danny, Jessica, Alexis, &
Kylie Markowitz
Andrew Marlow
Laura Marsh
Samantha Marshall
Charles Marshall
Melissa Martin
Tiffany Martin
Jamie Martin
Laura Martinez
Karen Mashburn
Eddie Massa
Lou Ann Masters
George Masterson
Wade Mattingly
Laurie Mattingly
Mark Mazoch
Lurie McAdow
Patsy & Roddy McAlpine
M. D. McCain
Dinah & John McClymonds
Mike McCracken
Nancy McCue
Reed McDonald
Barbara McGuire
Charlotte McIntyre
Jim McKay
Jim McKenna
Caroline McKnight
Alma McLemore
Michelle McMillan
Rachel McNeill
Quin McWhirter
Renee' Meals
Rachel Meals
Iain Mearns
Karla Medina
Heinz Meier
Evan Mendelovitz
John Menna
Susan Merrill-Paul
Peter Meyer
Cathy Modaro
Judith Monoghan
Tim Moore
Cassie Moore
Becky & Pat Moore
Carlette Moore
Fran & James Moran
Peggy Moro
Ursula Morris
Sam Morris
Michael Morse
Joyce M. Motyka
Jo Ann & Marvin Mueller
Barbra Munisteri
Debra Murphy-Luera
Hinna Musavvir
Morgan Napier Moore
Sharon & Dwight Nash
Moe Nasr
Nationwide Insurance
Debby Nelms
Barnabas Nemec
Noam Neusner
Tom Neville
Amy Nguyen
Dom Nguyen
Barbara Noonan
Brandon Ochoada
Ian O'Connell
Keith O'Connell
Louisa Oeding
Mari & Harry Okabayashi
Susann Oliver
Ann Ollo
Scott Olson
Andre Orban
Heather Orr
Karen Ortiz
Jose Oti
Morgan Otte
Katherine Overmyer
Jimmy Overton
P and C Carroll Foundation
Jackie Pace
Margaret & John Palacios
Roxie Palacios
Dawn Pando
Virginia Pape
Fran Parent
Terri Parker
Sarah Parks
Ruth Parrish
Sharon Parrott
Linda & Dave Patterson
Julie & Richard Payne
Bryant Pearce
Harvey Pearlstein
Jospeh Peddie
David Peden
Miranne Pellerin
Keith Pensom
Consuelo Perez
Armando Perez
Hal Perkins
Judy & Mike Peterzen
Malcolm Pettigrew
Marti Phillips
Kevin Pieh
Barb & Ken Pieh
Eileen & Frank Piergiovanni
Cindy Pilkenton
Michael Pilkenton
Angela Pina
Hannelore Plaschke
Linda Polarek
Rick Polens
Kate Pollard
Antonio Ponce De Leon
Mansoor Poonawala
Barbara & Tom Press
Richard Prickett
Houston Promotions
Gayla & Jeff Pruett
Rebecca Quantz
Leann Randolph
Aishwarya Ray
Mellisa Ray
John Read
Catherine Reading
Mike Rector
Warren Redd
Grey Redditt
Lees & Gary Reece
Emmett Rhodes
Jacqueline Rice-McKenzie
Michael Richard
Terry Richner
Laurie & Darryl Rickaway
Cheryl Rickert
Valerie Ricks
Carole Riekert
Cathy Rios
Connie & Eric Ritchie
Toni Rivera
Val & Tom Rizzoli
Treacy Roberts
Lori Robertson
Maurice Robinowitz
Carol Roche
Vicky Rodriguez
Lazaro Rodriguez
Josie & John Rodriguez
Karen Rogers
Tom Rollinson
Melissa Rootes
Joe Rosa
Naomi & Jim Rosborough
David Rose
Jennifer Rosen & Family
Sheila & Marvin Rosenberg
Ronald Rosenhagen
Joanne Ross
Kimberly & David Roth
Carla Roth
Jo Ann Rubin
Lorna Rudisill
Marie & Pete Rupp
David Rushing
Andrea Russo
Wendy Rutherford
Diana & Jim Rutherford
Lauren Rymer
Jeremy Sabio
Joshua Sabio
Jay Sabio
Beatrice & Vincent Saenz
Guadalupe Saiz
Victor Salas
Scott Salas
Jane Salazar
Josephine M. Salazar
Amer Saleh
Maya Samardzija
Teresa & Charlie San Miguel
Lauren Sands
Jonathan Sands
Yvonne Sarmiento
Matacha Saul
Janis & Bruce Savatsky
Denise Saylor
Robert Scarfo
Joyce Schechter
James Schindler
Cristy & Mike Schmidt
Judy Schultz
Kayden, Logan, & Seth Schumacher
Charlotte & Walter Scott
Judy Seely
Rene Shapiro
Shell Oil Company
Charles Shepherd
Rosetta Shepherd
Bonnie Sherk
Misty Sherrill
Taha & Tasneem Shipchandler
Taiyeb Shipchandler
Lovai Shipchandler
Mustan Shipchandler
Shoeb Shipchandler
Ruqaiya Shipchandler
Dave Shoup
Bryan Siegel
Robert Sime
Doug Sivula
Madeleine Skaufel
Pamela & Rod Skaufel
Mr. & Mrs. George Skipper
Slay Industries
Nina Smith
Kai & Miles Smith
Michele Smith
Paul Smith
Meryl Smith
Karen Smith
Sylvia Smith
Pat & Creed Smith
Tracy & Ken Snodgrass
Amanda & Michael Snowden
Yinka Solola
Heather Sommer
Patricia Sommer
Jennifer Sommers
Corinne & Rob Sorge
Pat & Gordon Sorrells
Gary Sowyrda
Lance, Cindy, Charlie, & Ben Speck
4 | HOUSTON AREA PARKINSON SOCIETY
Kathy & Paul Spicer
Susan & Bryan Spiegel
Janine & Russ Spiller
Donna & Craig Stahl
Craig Stanfield
Renee' & Tony Stanley
Marshall Stein
Kimberly Steinmetz
Fred Stephens
Susan & Gordon Sterling
Julie Stevenson
Jim Stewart
Karen & Karl Strauss
Mike Strech
Paul Street
Janis Street
Binky & John Strom
Judy Sullivan
Barbara Sutherland
Tammy & Stacy Swedenburg
Rebecca Symmank
Judith Tamayo
Lisa & Ferdie Tanjuatco
C. Lee Taylor
Kimberley Taylor
Connor Taylor
Lynn Taylor
James Taylor
Wendell Taylor
Steve Tefteller
Judy Tefteller
Teva Neuroscience
Timothy Thurmond
Pat Timpanaro
Marcia & Max Tindell
Jan Tinker
Beth Tornes
Kim Torres
Jason Tracy
Sandra Turner
Ashley & John Tyler
Mark Ulrich
Greg Urban
Roberta Urbanczyk
Judy & Richard Valdez
Jan Van Dyke
Maarten Van Ess
Jean Vann
Velocity Business Products
Sherry Verret
Robert Villeneuve
Barbara Virany
Dotti Visosky
Darcie Vlahos
Mary Jean & David Volpe
Jennifer Volpe
Cindy Vratil
Catherine Wallace
Jane Wallace
Heather Wallis
Brian Walsh
Peggy & Walter
John P. Wandel, Jr.
Karin Wang
Gayle & Don Warren
Bernie Warriner
Wärtsilä North America, Inc.
Leslye & David Weaver
Lee Weaver
Anne Weinheimer
Darin Weinheimer
Nick Weinheimer
Philip Weinheimer
Kathleen Weir
Barbara Weis
Colleene & Todd Weiser
Betty Jo Weiser
Gretchen & Mike Welch
Lisa Westarp
Andrew Wheeler
Murrell Whelan
Evangeline R. White, SLP
Lee Whitley
Donna Wiener & Rod Felts
Janet Wiersema
Hillary Wiese
Sarah & Benjamin Wilbanks
Chris Wilkins
Barbara Wilkins
Bonnie Williams
Patsy Williams
Brittani Williams
Jan Willis
Monica Wolf
Helen & Dallas Wolf
Beth Wolf
James W. Woltz
Tom Woltz
Clifton W. Woltz
Dorothy Wong
Pauline & Rob Wood
Pam Wood
Maritza Wood
Will Worthington
Christian Wrampelmeyer
Hirofumi Yamamoto
Susan & Michael Young
Timothy Young
Hassan Zaidi
Maria Zambrano
Stephanie & Gabriel Zamora
Victoria Zanelli
Bob Zavala
Robert S. Ziegler
Dayla & Sam Zieman
On January 23, 2014 as Houston Area Parkinson Society ushered in its 40th anniversary at the Annual Meeting of the HAPS Boards, it celebrated the passing of the presidential torch from Frank Donnelly, Jr. to Michael Hendryx. As the historic year also marks the end of long tenures of a number of members of the Board of Directors, the organization recognized those individuals for their many contributions and welcomed new Board members who begin their terms this year.
Pictured are Gerald Rideaux, Joiner Cartwright, Jr., John McClymonds, Tom Ganucheau, Joan Cupic, Chris Brewster and Jim Thorp. We look toward HAPS’ new leadership with great excitement as they guide the organization into the next 40 years and further our mission to improve the quality of life for those affected by Parkinson’s disease.
HAPS welcomes new Board members
FDA Approves New Drug to Treat Low Blood Pressure in Parkinson’s
On February 18th, the US Food and Drug Administration approved a new medication, called droxidopa (Northera™), to treat a form of low blood pressure called neurogenic orthostatic hypotension (NOH). NOH is chronic and often debilitating drop in blood pressure upon standing that is associated with Parkinson's disease, multiple-system atrophy and pure autonomic failure with symptoms that include dizziness, lightheadedness, blurred vision, fatigue and fainting when a person stands.
The FDA wrote in a press release: The FDA is approving Northera under the accelerated approval program, which allows for approval of a drug to treat a serious disease based on clinical data showing that the drug has an effect on an intermediate clinical measure (in this case, short-term relief of dizziness) that is reasonably likely to predict the outcome of ultimate interest (relief of dizziness during chronic treatment)…
Northera has a boxed warning to alert health care professionals and patients about the risk of increased blood pressure while lying down (supine hypertension), a common problem that affects people with primary autonomic failure and can cause stroke. It is essential that patients be reminded that they must sleep with their head and upper body elevated. Supine blood pressure should be monitored prior to and during treatment and more frequently when increasing doses.
If you experience symptoms of NOH, talk to your doctor to find out if this new drug is right for you.
MARCH 2014 HAPS HAPPENINGS | 5
New Insight Into How Pesticides May Increase Parkinson’s Risk
People who were exposed to pesticides that interfere with a key human enzyme showed up to a three-fold increased risk of developing Parkinson’s disease (PD). For those who were more genetically susceptible to Parkinson’s disease, the risk for developing PD increased five-fold. The results appear in the February 4 issue of Neurology.
Many studies have associated exposure to pesticides with an increased risk of PD, but the underlying mechanisms have remained unclear. The study authors, led by Jeff M. Bronstein, M.D., Ph.D., at the University of California, Los Angeles, suspected that an enzyme called ALDH might play a role. ALDH normally helps detoxify dopamine-related substances within cells. The researchers first carried out studies in the lab, exposing neurons to 26 different pesticides and measuring the effect on ALDH.
The scientists also analyzed data from the Parkinson’s Environment and Genes (PEG) Study, including 360 people with PD and 816 healthy individuals who lived in a rural, agricultural area of California. Using a computer model based on state records of pesticide use, they estimated exposures at the participants’ work and home addresses. In addition, they tested the DNA of 354 people with PD and 518 healthy participants for variations in their ALDH gene.
Results
Eleven of the 26 pesticides tested (all used in farming) inhibited ALDH in neurons studied in the laboratory. Meanwhile 15 of the pesticides, including organophosphates and the pesticide paraquat, did not affect ALDH.
Exposure to an ALDH-inhibiting pesticide at both the workplace and home was associated with an increased risk of PD. Workplace exposure alone was not associated with an increased risk of PD.
There was a trend of increasing risk with increasing exposure to multiple pesticides. Having a genetic variation in ALDH exacerbated the risk of developing PD if a person was also exposed to pesticides. Having the genetic variation in ALDH alone did not make a person more likely to develop PD.
What Does It Mean
Pesticides have been previously shown to increase PD risk. Still, most people exposed to high doses of pesticides do not develop PD. This study supports the generally accepted hypothesis that PD is caused by a combination of genetic and environmental factors by pointing out one possible way that genes and environment may interact to lead to PD.
Specifically, the study showed that having a genetic variation in ALDH exacerbated the risk of developing PD if a person was also exposed to certain pesticides. This theory is scientifically plausible. The enzyme is known to detoxify dopamine-related toxins; therefore, reduced activity of the enzyme, may be linked to PD.
However, further research is needed. For example, since most of the study participants were exposed to more than one of the ALDH-inhibiting pesticides, the study authors could not conclude that any one of them causes PD. Furthermore, they do not yet know how genetic variations may make some people more susceptive. To explore this further, they would need to test cells with the same genetic backgrounds to confirm that ALDH is inhibited. Additionally, the findings should be replicated in other populations to confirm the scientists’ findings that ALDH-inhibiting pesticides are linked to higher risk for PD, and that certain genetic alteration in the ALDH gene may make carriers more susceptible
to the effects pesticides.
They also suggest that boosting ALDH enzyme activity or finding alternative ways for cells to neutralize toxins could lead to potential PD therapies for those exposed to pesticides. Further work in the lab will need to explore whether boosting the activity of this enzyme will help
people with PD more generally.
The study authors state that ambient exposure to these pesticides should be avoided. It should be noted that the majority of people do not develop the disease due to pesticide exposure, and the exposure the participants likely received was well above what one would encounter
from simply eating fruits and vegetables.
This article was originally published as part of "Parkinson's Science News: What Does it Mean?" on the Parkinson’s Disease Foundation (PDF) website on February 3, 2014. It is reprinted, in its entirety, with permission from PDF. For other science news, please visit www.pdf.org/science_news.
Many thanks to Erin Furr-Stimming, MD, Assistant Professor of Neurology, UT Health, Co-Director
UT MOVE, Chief of Neurology, LBJGH and HAPS Medical Advisory Board member who led the
presentation of the Newly Diagnosed Education Program February 22nd. We appreciate your time
and expertise.
Thank
You!
6 | HOUSTON AREA PARKINSON SOCIETY
Come and enjoy freshly flipped pancakes and support
The Michael J. Fox Foundation for Parkinson’s Research!
Sunday, March 23, 2014
11:00 am—3:00pm
Rice University RMC Grand Hall
6100 Main Street Houston, TX 77005
Free Parking • Entertainment • Guest Speakers • Activities for Kids
SPA, Houston Ballet and HAPS Bring Dance for PD® to Houston for Master Class Workshop
Nearly 50 people attended the Dance for PD® class on Saturday, February 1st presented by
Society for the Performing Arts, Houston Ballet and HAPS. This fun-filled workshop was led
by special guests Sam Black, Rita Donahue and Benjamin Freedman from Mark Morris
Dance Group with live piano accompaniment by Jo Ellen Hubert. Participants enjoyed a
morning of various types of dance choreographed to pop, jazz and Broadway show tunes.
The Dance for PD® class, developed thirteen years ago by Mark Morris Dance Group and
Brooklyn Parkinson Group, was the inspiration for HAPS and Houston Ballet’s current
weekly class, Dance for Parkinson’s, in its fifth year.
Special thanks to Sam, Rita, Benjamin, Jo Ellen and SPA
for making this special class possible and to Houston
Ballet for our valuable ongoing partnership!
To learn more about our dance classes, call the HAPS
office at 713-626-7114 or go to hapsonline.org.
Houston Clinical Trials Fair presented by The Michael J. Fox Foundation and HAPS
This free event is a prime opportunity for individuals with Parkinson’s, their families and friends to interact with
representatives from the leading research centers in the area currently recruiting for Parkinson’s disease clinical trials
and to learn more about how you can play a part in accelerating clinical research. The day will feature an expert
panel presentation moderated by a senior leader of The Michael J. Fox Foundation and will provide you with a forum
to answer frequently asked questions such as:
Can I participate even if I don’t have PD?
How can I fit this into my busy schedule?
What’s required of me if I participate?
How do I get started?
Registration is now open. Please RSVP by Tuesday, April 1st at www.michaeljfox.org/houstontrialsfair or 212-509-0995 ext. 261
Questions? Email: [email protected]
When: Saturday, April 5, 2014
8:30 am – 1:00 pm
Where: United Way of Greater Houston
50 Waugh Drive Houston, TX 77007
Velma Hayes
Sherry Lancaster
Jack Kephart
Aurelia Brogan
Miriam Kestenbaum Spangler
Guion Kleinpeter
Anne and Larry Martin
Nancy Martone
Bob Martone
Thomas McCue
Michelle French
Jan Ingram-Delgado
Bill Pennington
Linda Williams
Houston Calligraphy Guild
Juan Vicente Perez
Marge and Nick Cantalamessa
Myrna Rodman
Hope and Ed Causey
Perry Bekerman
Michael Koop
Jacqueline and James Alfred
Rod Rose
Mona and John Vittone
Evelyn and John Vittone
Kathy and Charlie Harlan
Ben Trammell
Edith Kachnik
Christine Brownhill
Kay Jenkins
Lily Rosenberg
Jacob Rosenberg
Mildred Rubin
Mr. and Mrs. Alvin Miller
John Wildenthal
Carolyn Wildenthal
We are extremely grateful to the following individuals for their generous support of HAPS.
Without the continued support of our donors, none of our programs or services would be possible.
IN MEMORY
Jonathan Shear
Kathy and John Long
Deoprya Dayal Misir
Rosenberg Family Fund
Cynthia Crellen
Faye and Ray Wilson
Ron Brieger
Rebecca Barsalou
Dominic Lopez
Peggy and Alfonso Hernandez
L.R. Tatum
Judy and Don Gorewitz
Ann W. Jones
Janet and Donald Beckmann
Evelyn and Gene Denley
Porfirio Rodriguez
Crews Sprovach
IN HONOR
GIFTS
Aubrey Calvin
Scott Camp
Phillip W. Edwards
Patricia Edwards
Jim Foley
Ginger Heath
Tom Horton
Shirley A. Brown
Kevin Owen
Roberta Owen
Margaret Romeo
Michael Romeo
Harvey Barber
Charlotte Furrow
Joe Brown
Robert Martone
Reba Brunk
Kristin and Jeffrey Potts
Howard W. Derrickson
Anonymous
Robert Frank Dyer, PhD
David Araujo
Veronica Mata
Beverly Fontcuberta
Carol J. Baird
Madelyn and Raymond Garrity
Dr. Sam McClugage
Angela Pepin
John Dolan
Elwood Leon Eichler
Priscilla Pittman
Linda Eichler
Louis Fick
Jo Anne and William Haugh
Todd Gilpin
Sue Crawford
Faye Hagner
Marilyn and Rock Robinowitz
Ann Bradford
Michael Lawch
Anonymous
DiMaria Custom Carpet & Fine
Floors, LLC
Shirley and Lynn Lott
Gail Jewell and Bob Rathbun
Barbara and Larry Fraser
Sledge & Wen, P.C.
Daisy and Joe Pybus
Marge and Merrel Schilling
Bobbie J. Muhlinghause
Leila Nasser and Family
While we make every effort to be accurate and thorough, it is possible to accidently omit or misspell a name. Please contact the HAPS office with corrections.
MARCH 2014 HAPS HAPPENINGS | 7
Steve Rose
Ben Trammell
Pamela Skaufel
Debra Rudisill
Douglas Fisher
Anonymous
Robert Noel
Pamela Skaufel’s Father
John Schoepf
Ronald Suchart
Jacob Rosenberg
Houston Area Parkinson Society
Anne Thobae - Executive Director
Kathleen Crist, LMSW - Director of Social Services & Program Development
Midge Claiborne - Director of Development
Alfonso Hernandez - Director of Therapeutic Programs & Community Outreach
Chris Bell
Ron Bernell
Nina Brown
Aubrey Calvin
Joiner Cartwright, Jr.
Bob Casey
Rich Clifford
Robert Cruikshank
Roy H. Cullen
Madhureeta Achari, MD
Leanne Burnett, MD
Steve Croft, MD
Albert Fenoy, MD
Stanley Fisher, MD
Erin Furr-Stimming, MD
Robert G. Grossman, MD
Staff
Board of Advisors
Ellin Grossman, EdD
John E. Hankey
Harriet Hart
Kamden Kanaly
Liz Lary
Harriet Latimer
Dan Lauck
Anne Martin
Robert A. Martone
Medical Advisory Board
Richard K. Simpson, Jr., MD, PhD - Chair
Cindy Ivanhoe, MD
Joseph Jankovic, MD
Joohi Jimenez-Shahed, MD
Eugene C. Lai, MD, PhD
Laura Marsh, MD
Greg McLauchlin, MD
Kimberly Monday, MD
William Ondo, MD
Terry K. Satterwhite, MD
Mya Schiess, MD
Desiree B. Thomas, MD
Gage Van Horn III, MD
Ashwin Viswanathan, MD
Michele York, PhD
Marti McWhirter
Quin McWhirter
W.O. Neuhuas III
Malcolm Pettigrew
George Puig
Jeff Rosenberg
Arthur Schechter
Joyce Proler Schechter
Binky Stephenson Strom
John Strom
Board of Directors
Kelly Nicholls - Coordinator of Marketing & Communications
Leann Randolph, LMSW - Social Worker & Advocacy Outreach Coordinator
Celeste Harris, LMSW - Coordinator of Special Programs
Mike Hendryx - President
Frank Donnelly, Jr. - Chair
Gabriel Zamora - Vice President/Treasurer
Leslye Weaver - Vice President/Secretary
Chris Brewster
Joan Cupic
Jo Furr
Joyce Gilbreath
Tom Ganucheau
Joshua Huss
Rob Kerr
John McClymonds
Jim Nicklos
Gerald Rideaux
Terry K. Satterwhite, MD
Richard K. Simpson, Jr., MD
Pamela Skaufel
Randi Smith
Jim Thorp
Michael Young
Courtney Zavala