Making a step change for young carers and their families: Putting it into practice ·...
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www.carers.org www.youngcarers.net www.childrenssociety.org.uk © Carers Trust and The Children’s Society Making a step change for young carers and their families: Putting it into practice Wednesday 2nd March 2016 Coin Street Neighbourhood Centre, London
Transcript of Making a step change for young carers and their families: Putting it into practice ·...
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www.youngcarers.net
www.childrenssociety.org.uk
© Carers Trust and The Children’s Society
Making a step change for
young carers and their families:
Putting it into practice
Wednesday 2nd March 2016
Coin Street Neighbourhood Centre, London
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© Carers Trust and The Children’s Society
Bill Badham
Chair, Making a step change
Co-Director of Practical Participation
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© Carers Trust and The Children’s Society
Matthew Reed, Chief Executive,
The Children’s Society
Gail Scott-Spicer, Chief Executive,
Carers Trust
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© Carers Trust and The Children’s Society
Simon Morrison
Policy Manager
Children in Care Portfolio
Department for Education
YOUNG CARERS IN ENGLAND: EVIDENCE FROM THE NATIONAL QUALITATIVE STUDY
Professor Jo Aldridge
The Lives of Young Carers in England:
• 18 month, two-phase study
• First phase – qualitative study of 22 ‘hidden’ and known
young carers aged 6-17.
• Second phase – quantitative study (currently underway –
reports end of March) to provide numbers of young
carers in England aged 5-17(current estimate: 166,000;
ONS, 2011).
Study background
• Study funded by DfE, and
conducted in partnership
with YCRG and TNS-
BMRB.
• Main report and
summary:
• https://www.gov.uk/gover
nment/publications/the-
lives-of-young-carers-in-
england
• TNS-BMRB:
• http://www.tns-bmrb.co.uk
• DfE intention was to
arrive at a definitive figure
of young carers and
understand more about
impact of caring.
Main findings
• Profile of young carers:
• More likely to care for
mothers and caring more
likely in lone parent
families (LPF).
• Parental mental health
most challenging –
unpredictability; lack of
timely and flexible
services.
• Older children (16-17)
took on more
responsibilities,
especially in LPF and
likely to have higher
needs; also more likely to
disclose caring.
Experiences and impact of young caring
Caring a positive experience
– rewarding.
Negative – increased stress,
fatigue, strain on family
relationships, education and
social life.
Parents concerned about
impacts but little
opportunities for long-term
planning.
• Those young carers
known to services
identified with term
‘young carer’; but also
recognised negative
connotations.
• ‘Hidden’ young carers did
not identify with ‘young
carer’ and both they and
their parents concerned
about being ‘labelled’
young carer.
Needs assessments and services
• Fear of disclosure of young caring among children and families.
• Confusion among families about whether children received needs assessment.
• More timely assessments needed following disclosure and at a time and place dictated by children.
• Greater clarity about outcomes of assessments needed.
• Referrals typically to YC projects via health and social care services and schools.
• Early, effective communication between professionals and families can help to allay fears.
• Young carers projects valued highly – help with disclosure, provide good and effective services, contact with other YCs and whole family support, which was valued highly.
Support propositions
• YCs and parents identified factors that would promote access to support: increasing availability of young carer services; better communication from professionals about the kinds of support available; standardising age appropriate activities across young carer services; improving support for the family member with care needs.
• Young carers said they need: someone to talk to – shared understanding; practical support (including aids and equipment for person with care needs); information about illness/disability and on managing finances and life planning (transitions to FE, HE, training, employment – ‘young adult carers’); help from teachers and schools – better understanding of YC needs and stressful times (eg exams).
Implications
• Prevention through early intervention – children who
have been caring for longer experience greater need
• We need to be careful about assuming ‘hidden’ means in
most need; and cautious about assuming (and
identifying) children who live in families with
parental/sibling illness/disability are young carers (and
the numbers of these).
• These findings mirror those of research conducted more
than 20 years ago - ?
Resources
• Children and families first – children in need? Whole family working (legislative framework – 2014).
• Importance of screening when identifying young carers: screening tools; MASC (note, screening is not measuring).
• Mental health – the family model.
• YCRG screening tool (and explanatory model)
• http://www.ycrg.org.uk/youngCarersDownload/YCRG%20questionnaire.pdf
• See: http://www.ycrg.org.uk/resources.html
• Mental health – The Family Model Handbook: https://www.pavpub.com/the-family-model-handbook/
Inspiring Winners Since 1909
Thank you!
Jo Aldridge
Young Carers Research Group
www.ycrg.org.uk
New Rights for Young Carers: A Whole System Approach
John Bangs Carers Strategy and Development Manager Surrey County Council <[email protected]>
Whole System: Policy Background
• National Carers Strategy
• Every Child matters
• Care Act and Children and Families Act – Young Carers Needs Assessments - Whole family approaches to assessment - Preventing young carers being left with “inappropriate care” – New requirement for preventative services - Transition – Duties for NHS to cooperate
• Eligibility criteria for adult social care require consideration of parenting needs
More Policy Background
• Young Adult Carers – also have new rights and this is a developing policy agenda.
• BUT there is much more to be done and new National Strategy is a key opportunity to embed this change. We need to ensure the voices of young carers are clearly heard.
• Local Policy should include a multi agency young carers strategy and young carers in the Joint Strategic Needs Assessment
Trailblazers ? Or Just at First base ?
• In Surrey we have identified over 4000 young carers
• We know that partners from Devon have already identified more young carers than the Census says exist
• But in Surrey there are thought to be 14,000 young carers. Of those we do know ; many only have limited support. So today we can celebrate progress but it is way too early for congratulations or talking of success !
• Recognition that more work is needed to really make young carers “Everybody's Business”
Whole Council Approach • “No Wrong Doors” - agreement between
Surrey’s Adult and Children’s Social Care about who does what
• A whole council approach supported by multi agency training programme
• Strong links with education • Youth services also have a key role
(including)young carers groups in youth centres
• Training for Contact Centre staff
Work with Schools • Surrey Young Carers have Schools advisers • Work with Education Young Carers lead: with
regular items in Surrey Schools Bulletin • Training for School Governors • PHSE materials on young carers for use in Primary
and Senior Schools • OFSTED have identified Young Carers as
Vulnerable children that schools need to have regard to
• But much more to do. Schools in Surrey claim to have identified between 126 and 0 young carers !
Our Council: Who does what ? • The service supporting the “service user”
is responsible for initiating a response
• Childrens Services responsible for sibling young carers of disabled children
• Adult Social Care responsible where young carer looks after an adult
• The same is true for young adult carers
Who does what ? Continued
• Adult Services consult Children’s where young carer may be a child in need in need (of support and protection)
• Referrals to Surry Young Carers or Early Help
• Ensure carers and young carers rights and our obligations under the Care Act and Children Act are reflected in plans for integration (a council agreeing to plans without this would be planning to act unlawfully).
“About Me” and “iCare”
• Use of co-designed assessment tools “About Me” for younger young carers
• and “iCare” to assist practitioners in having child/young person focussed discussions.
• When completed these belong to the young carers but help the practitioners capture what is needed to complete the statutory assessment.
• Surrey Young carers undertake light touch assessments using an “outcome star”
Sharing Practice
• More information is available on line at: http://www.youngcarersstuff.org/
Liverpool’s Young Carer Assessment Pathway
Making A Step Change Conference
Wednesday 2nd March 2016
Jane Weller Louise Wardale
Commissioning and Contract Manager KFIM Co-ordinator
Liverpool City Council Barnardo’s, Liverpool
“They say things like ‘we only work with your
mum’ but my mum lives with me so its all
connected”.
“ Its difficult enough living with mental health
problems, but it feels like me and the kids have all
our problems separated out and then no one gets
the whole picture and sees how we are all
affected”.
Where the journey began…
• 1991 – ‘You Grow Up Fast As well’ qualitative research across Merseyside
• 1992 - Barnardo's Action with Young Carers service established
• 2001 - Keeping the Family in Mind (KFIM) strategic development work
Increased desire to work more closely together in identifying the strengths and
opportunities for improvements across services in order to achieve better outcomes
for affected families
• 2007 - Practice Survey
• 2008 - FAMILY Collaborative
• 2009 - Memorandum of Understanding signed
• 2009 - 2012 - Implementer site for the SCIE ‘Think Child, Think Parent, Think
Family’ Guide
• 2012 – Liverpool Families Programme (Troubled Families) established
• 2013 - 2014 - Department of Education Integrated Interventions for England Project
• 2015 - Liverpool City Councils work to implement the Care Act and Children and
Families Act cited as best practice nationally
Historic context
Early Help – everybody’s business
• 2007 - Liverpool introduced the CAF and Team Around the Child to
provide opportunities to bring together individual assessments
giving an overview of family strengths, risks, relationships and
needs
• 2013 - CAF became EHAT which provided a more robust,
integrated, whole family framework to bring adult and children’s
services together creating resourceful and resilient families
• The EHAT Framework and Team Around the Family framework
can provide a good basis for taking a whole family approach to the
identification, assessment and support of children and young
people impact and young carers
The Care Act and Children and
Families Act: preparing for
legislative change • Existing and well-developed whole family approach to supporting young carers
and young adult carers including:
• Joint young carers assessment policy and procedure
• Care pathway for young carers embedded within early help
• Commission direct services for young carers, young adult carers and their families
• Message in a Bottle Emergency Planning Tool
• Keeping the Family in Mind Resource Pack
• Support and identification within schools and further education
• Workforce development
• Engagement with young carers and young adult carers led to:
• Single young carers service (up to and including 25 years of age)
• Delegation of young carers assessment to service provider within new contract
• Service provider inputs directly onto Council system - data processing agreement in place
The journey continues…
“I do want to say that the word assessment is not one that is
used by young people or the project workers as we understand
assessment to mean something that you pass or fail”
“I think if a social worker had asked me all the questions, I
would have been frightened that we would be taken into care. I
would be frightened about how they were going to use the
information”
“I was scared before coming to Barnardo’s because I didn’t get
it explained to me by my social worker”
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‘What works for us’
Video created by young carers
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Morning Break
Refreshments & Marketplace Neighbourhood Room
(Ground Floor)
Sessions resume at 11:30
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Implementing Joint Working
with Health Services
John Bangs, Carers Strategy and Development Manager,
Surrey County Council
Julia Ellis, Development Manager
(Primary Care and Community Reach), Carers Trust
Ruth Hannan, The Triangle of Care, Carers Trust
New Rights for Young Carers: Whole Systems and Health
John Bangs Carers Strategy and Development Manager Surrey County Council <[email protected]>
NHS England’s Commitment to Carers
NHS England Commissioning for Carers
NHS England’s 8 policy themes with 37 commitments :
1. Raising the profile of carers; 2. Education, training and information; 3. Service development; 4. Person-centred, well-coordinated care; 5. Primary care; 6. Commissioning support; 7. Partnership links; and 8. NHS England as an employer.
• Reinforced in NHS England’s guide Commissioning for Carers that includes young carers issues throughout
Young Carers and Health • If there really are to be “No Wrong Doors”, health
services and integrated services need to identify young carers and provide support or refer to sources of help
• NHS England Memorandum of Understanding: Identification and assessment of carers health and wellbeing needs (includes young carers). Is due later this month
• This will be a key support mechanism for ensuring carers needs are addressed in the Integration programmes and promoting whole systems working
Young Carers and Health (2)
• Role of Health and Wellbeing Board and Local Joint Commissioning Boards. NHS England advise these should oversee local implementation
• All NHS care pathways should reflect need to identify carers including young carers – including those around hospital discharge
• Should be in NHS Contracts (has commenced in Surrey)
The School Nurse Pathway
Young Carers and Health ....continued
• Role of school nurses is highlighted in pathway
• other community based health staff have key role including district nurses (needs joined up discussion between Public Health and CCGs)
• Mental Health Trusts should work to the Triangle of Care for young carers and young adult carers
• CAHMS services also need to identify and support young carers
Young Carers and Health ....continued
• GPs also have role in identification and referral
• As have Pharmacies
• Need to include MOD Practices for identification of “Military Young Carers”
NHS Surrey Young Carers Pathway
1. Identification
• Identify whether there are children in the household • Identify whether these children are caring
2. Parental consent
• Request parental consent to refer young carer for support • If parental consent not forthcoming – Gillock Competency test
3. Refer for Help
• Use Surrey Carers Prescription to refer to Surrey Young Carers • Safeguarding roles apply
Sharing Practice Young Carers and Health “Making it Real for Young Carers”
• Thursday 31 March 2016 • 9:30 am to 3:45pm • Coin Street Neighbourhood Centre, London
Carers World Radio
• The Carers World Radio team will be making a programme for podcast the following day. If you are interested in sharing something you are doing by being interviewed on the day please contact [email protected]
The Primary Care and Community Reach Programme Julia Ellis, Development Manager, Carers Trust.
FACT: Most of England’s 5.4 million carers are missing out on support Fewer than 1 in 10 carers are
receiving services to support them in their caring role
Fewer than 1 in 10 carers are recorded as a carer by their GP practice.
So how can we reach more carers and let them know that help is available?
How can we link them up with support? 48
Could community pharmacies
hold the key?
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© Carers Trust
The Pharmaceutical Services
Negotiating Committee – a
pivotal partner
Drop off and collect prescriptions for a partner, relative or
friend.
Buy products associated with ill health, frailty or
disability.
Ask the pharmacist for advice about someone else’s
health condition.
May want to be involved in
discussions about medications.
Take delivery of medicines from
pharmacy delivery drivers.
May often seem anxious and in a hurry to get back
home.
Visit the pharmacy with someone who seems to need their
support.
May be a young person collecting prescriptions for
someone.
May be a young person asking for
advice about medications.
Community pharmacy teams meet carers every day
Give advice on
medications
Offer a home delivery service
Have long opening
hours
Arrange repeat
prescriptions
Sell products linked to
caring
Close to home
Approachable, friendly staff
Provide health advice
without appointment
Now offer free NHS flu vaccinations
Community pharmacies are already carer-friendly..
But could community pharmacies go further?
What if community pharmacy teams could also..
Systematically identify carers?
Confidently engage with carers and offer them support?
Refer carers to their local carers service?
Let the carer’s GP practice know that their patient is a carer?
Make sure carers know about all the services their pharmacy can offer them?
Make a real difference to the lives of carers visiting their pharmacy?
57
Carers service providers City Healthcare, Hull North Lincolnshire Carers Support Centre Blackpool Carers Centre Brighton and Hove Carers Northamptonshire Carers Gateshead Carers Association Carers First Kent Devon Carers Centre Carers Leeds The Carers Resource, Rochdale Salford Carers Centre
Two-hour training workshop
Train the trainer webinar
Train the trainer guide Pre-workshop activities Evaluation tool Minimal-fill forms and
leaflets Posters Badges Dedicated Facebook
group Bulletins Regular reports on
numbers of carers identified.
The Centre for Pharmacy Postgraduate Education also created a new ‘Supporting Carers’ floor in their online learning pharmacy http://www.thelearningpharmacy.com/content/programme.asp?topic=39
Local carers
services
Carers GP
practice
PharmOutcomes: Quick and easy referrals with very little paperwork
Results Between November 2014 and Feb 2015 • 247 previously unidentified carers
referred to their local carers service • 83% of carers requested a phone call
or carer information pack • Many went on to access much-needed
support • Majority wanted their GP to be notified • Others took information away to read
at leisure • Pharmacy staff enjoyed making a
difference to people they knew were carers but had been unable to help
Key learning and recommendations
Huge potential for pharmacy teams to reach and support carers
Important to get ‘head office’ on board along with wider network of local stakeholders
Management needs to give staff ‘permission’ to engage with carers
Toolkits alone are not enough
“I thought getting a new telly to replace the broken one was just a joke until I had it delivered to my door. Thanks for giving me something to occupy my lonely evenings.”
“I never knew I could go back to work and still care for my mum. With the info and support you’ve provided, I now have confidence to go back into teaching”
“I was worried about my benefits being stopped, I can’t believe how much carers can get without losing their benefits.”
With special thanks to Gateshead Carers Association for sharing feedback from carers identified during the pilot.
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© Carers Trust and The Children’s Society
• Pathway for School Nurses: ‘Supporting the health and
wellbeing of young carers’
• Training of School Nurse Champions for the Department
of Health
• Badge and charter
• Online training QNI and RCN
For more information, visit http://www.professionals.carers.org and search for “carer-friendly pharmacies”
Thank you. Email Julia Ellis [email protected]
Carers Trust’s Triangle of Care – a therapeutic alliance between, carer, patient and professional
Six Key Standards to ensure carers are included and supported:
1. Carers and the essential role they play are identified at first contact or as soon as possible thereafter.
2. Staff are ‘carer aware’ and trained in carer engagement strategies.
3. Policy and practice protocols regarding confidentiality and information sharing are in place.
4. Defined post(s) responsible for carers are in place.
5. A carer introduction to the service and staff is available, with a relevant range of information across the care pathway.
6. A range of carer support services is available.
Making a Step Change:
Putting it into Practice .
Evaluation – Findings
James Whitley, Ecorys
2 March 2016
0113 290 4105
Sound analysis, inspiring ideas
Sound analysis, inspiring ideas
Focus of the Evaluation
1. Models of collaborative whole family approaches to support
individuals with care needs to prevent young carers having to offer
inappropriate levels of care
2. Models of developing assessment and support services which
specifically address the needs of young carers and their families
3. Processes for identification of the number of local young
carers
4. Measures to assess the impact of the new duties in the Care
Act 2014 and Children and Families Act 2014
5. Work collaboratively with schools to better identify and support
young carers their families
Sound analysis, inspiring ideas
1. Collaborative whole family approaches
Sound analysis, inspiring ideas
makingastepchange.info/resources-2/key-resources
1. Collaborative whole family approaches
“To do list”
Sound analysis, inspiring ideas
Young Carers "To do list"
Planned Action
1a Project Lead: Rt Hon David Cameron MP
Draw down £1 trillion
for young carers02/03/2016 03/03/2016
Rt Hon George
Osborne MP
GO meeting bank
manager to discuss
overdraft Thursday
morning.
N1. FUNDING
Project
Completed
(Y/N)
Update or SummaryStart Date End Date Named Lead
1. Collaborative whole family approaches
“It doesn’t matter how good a service is. It is only one part of a system. [Making
a Step Change] has re-focused us on the wider context and has brought others
to the table. That is fantastic.”
“Young carers aren’t everybody’s priority…they are the forgotten young people.”
“If you win hearts and minds, everything else falls into place.”
Sound analysis, inspiring ideas
Assessments
• Clarity – Young carers needs assessment, Transition assessment,
Carers assessment?
• Moving beyond referring to a ‘young carers project’ to conduct an
assessment…
• Age appropriate materials – examples of good practice
Support
• Increasing focus on one-to-one / tailored support significant
• Young carers found peer support valuable
“We don’t need more support from agencies, but
some agencies need to respond differently.”
Sound analysis, inspiring ideas
2. Assessments and support to address the needs
of young carers and their families
3. Processes for identification of the number of
local young carers
Awareness is key to identifying young carers
“We have to make every contact count”
“I’m not in the business of making my job easier, I’m in the business of making a life
better”
Identification is crucial across a range of agencies…as soon as possible
“Young carers are everybody’s business…they don’t care what service it comes from”
“Early intervention is paramount”
There are moral and economic arguments for the importance of identifying young
carers…these are not fully understood by everyone yet
“We should be spoken to as adults – we’re basically adults. We’re saving the
government money” (Young carer)
“The Department of Health says that non-investment in carers is a false economy”
“Most referrals come through a crisis approach”
“You can do it without lots of money”
Sound analysis, inspiring ideas
3. Identification of young carers
Sound analysis, inspiring ideas
4. Measures to assess the impact of the new duties
in the Acts
“If it gets monitored, it gets managed”
Sound analysis, inspiring ideas
Rosenberg Self Esteem Scale
Follow-up assessments
WEMWBS Warwick-Edinburgh Mental
Well-being Scale
Outcomes Star
PANOC Positive and Negative
Outcomes of Caring
MACA Multidimensional Assessment of
Caring Activities
“What keeps coming up is schools and colleges” (Young carer)
Young carers want school support – Self-referral?
Young Carer Champions (or dedicated resource)
Events:
• Young carers conference
• Young Carers Awareness Day
• Play about young carers
Awareness is key!
Sound analysis, inspiring ideas
5. Work collaboratively with schools to better
identify and support young carers
Sound analysis, inspiring ideas
6. Work collaboratively with health to better
identify and support young carers
Final Report – available April 2016
makingastepchange.info
makingastepchange.info/project-learning/project-evaluations
Sound analysis, inspiring ideas
Making a Step Change:
Putting it into Practice .
Evaluation – Findings
James Whitley, Ecorys
2 March 2016
0113 290 4105
Sound analysis, inspiring ideas
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© Carers Trust and The Children’s Society
Learning from the Making a step change
Trailblazers
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Panel Questions
1.What were your initial challenges?
2.What are your best achievements?
3.What are your next steps?
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Q & A
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Lunch Break
Lunch & Marketplace Neighbourhood Room
(Ground Floor)
Sessions resume at 13:45
Local Authority engagement with the
Young Carers in Schools Programme
Emily Carter, Schools Policy & Development Manager,
Carers Trust
Toni-Marie Smith, Operational Coordinator, The
Children’s Society
Session overview:
• Why young carers need support in education
• What support Young Carers in Schools provides
• What are the benefits to schools, local authorities and young
carers services to engaging with the programme
• Examples of how local authorities and young carers services
have been involved to date
• Key next steps you can take
What young carers say about support in schools.
For me I am stress free and calmer because of the better support in school and the support group Schools are more understanding, key people know My school signed up because I gave a speech, many schools in my area have signed up. I know my schools system has let me down as a young carer – I live it Information about me is not transferred to my next teacher
Key findings….
Young carers experience particular challenges and demands that impact on their capacity to enjoy and achieve in education:
•BBC research suggests as many as one in 12 secondary aged pupils are young carers.
•35% of young carers said that nobody in their school was aware of their caring role.
•27% of young carers miss school or experience educational difficulties
•They have significantly lower attainment at GCSE level – the difference between 9 Cs and 9 Ds
•A quarter of young carers said they were bullied at school because of their caring role
•They are more likely than the national average to be not in education, employment or training at 16-19.
The need for a whole school approach
A whole school approach is crucial to
meeting young carers’ needs across
Ofsted judgement areas.
• Enabling identification
• Ensuring young carers feel confident
and able to access support
• Enabling effective and appropriate
sharing of information
• Delivering appropriate flexibilities and
interventions to raise outcomes.
Young Carers in Schools programme enables
schools to… • Identify manageable steps to improve outcomes
• Get recognition and demonstrate to Ofsted you meet young carers’
needs (specifically mentioned in the Common Inspection
Framework, 2015)
Young Carers in Schools is a free England-wide initiative
that makes it as easy as possible for schools to identify
and support young carers and awards good practice.
Professional Development and
online support
Benefits of utilising the tools and support available
through YCiS in your local area
• Supporting local authority-wide identification of young carers
• Drawing on England-wide best practice
• Effective use of local time and resources
• Encouraging multi-agency working in your local working
• Linking in with national drivers for change for young carers in
schools
What have we heard about YCiS?
100% positive feedback on events and webinars
I feel like after many years of trying to engage schools, [the Young Carers in Schools Professional Development event in York] was a real step forward”. -Liz Roberts, Senior Young Carer Worker, York Carers Centre]
“I’ve had experience of using and working with lots of other programmes and I have found them not to be as supportive or as useful as the tools available through Young Carers in Schools – Asst. Director of Inclusion, Milthorpe School York.
“inspirational” “excellent” “hugely informative” – school staff.
Different ways in which LAs and YC services have embedded YCiS in their ways of working to date:
• Award schemes/inclusion quality marks/healthy schools
• Launch events
• 1:1s/network meetings
• Developing 1 school first
• 5400+ views of Step-by-step Guide
• 1000+ subscribers to termly Enewsletter
• 300+ attendees at workshops/events and 200+ views of
webinars
• 400+ downloads of the Award application pack and 54
schools awarded to date
• Three Young Carers Panel held with 60+ young carers to
input into the verification of awards
Where are we now….
• Highlight how young carers link to schools priorities
• Utilise your authority’s existing connections or
programmes within schools
• Reflect YCiS tools and resources when commissioning
schools engagement
• Hold an event
• Run a local network
• Include young carers as a data requirement
Next steps…
•Basic resource pack
•Webinars
Coming imminently:
• Fuller resource pack
•Targeted eNewsletter
•New webinar series showcasing different local
approaches to school engagement and disseminating key
learning from the project
What are we doing to
support you…
Emily Carter
Schools Policy and Development Manager, Carers Trust
@emily_ecarter
Toni-Marie Smith
Operational Coordinator, Young Carers in Focus, The Children’s Society
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Workshops Round 1
14:00-14:45
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Afternoon Break
Refreshments & Marketplace Neighbourhood Room
(Ground Floor)
Workshops Round 2 begin at 15:10
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Workshops Round 2
15:10-15:55
ADASS Carers Policy Network
An Overview
Luke Addams Joint Chair
Carers Policy Network
Care and Support Reform Programme (a partnership between DH, LGA and ADASS).
Programme to implement these reforms up to 2016/17.
Programme is highly detailed and has many inter-connected work streams and groups.
What are Policy Networks?
Carers
Learning Disability
Equalities and Diversity
Mental Health, Drugs and Alcohol
Physical Disabilities/HIV/Sensory Impairment
Safeguarding
Workforce development
Standards and Performance
Examples of Policy Networks
Interested parties from a wide spectrum/regional networks.
Front line practitioners.
Experts in the field (including ‘by experience’).
Civil servants with policy responsibility.
Organisations representing ‘The Carers Voice’.
Members Of Carers Policy Network
Promote good practice in supporting carers (e.g. Technology report).
Produce Policy Documents.
Produce Good Practice guidance
Influence Central and Local Government develop their own policy lines.
Set benchmark against which other organisations can test their own ideas.
What we do
Guide and influence commissioners
Specifically, contributed substantially to the thinking about the role of carers, the ways in which local and central government can support them & provide them with greater resource & power to help them care for others.
What we do continued…
Network Meetings and Workshops.
Virtual materials/networking.
Participation/Contributing/developing involving inputs into national networks and strategy development.
Sharing good practice.
Best Practice material / Product development.
Work examples
Supporting Young Carers
ADASS/ADCS MOU Template
“No wrong Doors-working together to support young carers and their families” in partnership with The Children’s Society and Carers Trust
Duties and powers of ‘Care Act’ and ‘Children and Families Act’ 2014
Identifying young carers
Promoting well being
Policy Network and Young Carers
Assessment
Whole family approach
Information advice and advocacy
Transition
Safeguarding
Partnerships
Tool to support “No wrong Doors…”
Recognition of cared for and young carer assessments.
Provides legislative framework- highlights key sections of both Acts.
Holistic approach- setting out responsibilities and practice guide for assessors.
Young Carers Needs Assessment
Local Authority responsibility to reduce inappropriate caring roles.
Local Authority should have effective, flexible services capable of responding to identified and unmet needs.
Needs analysis and mapping of services for young carers; linked to outcomes.
Multi-agency, holistic ‘team around the young carer’ and joint decision making.
Future Directions For Young Carers
Improved commissioning outcomes - ensuring a high quality range of options for young carers.
Young carers’ projects or other targeted services be available to provide safe, quality support.
Young carer hubs to ensure that every young carer is able to participate in group activities near home.
Continued partnerships with schools/school nurses to identify young carers.
Further examples
Crisis plans for young carers so they know what to do if the person they care for has an emergency or if they feel they are not coping.
School Nurses pathway - training and understanding young carer pressures - ensuring young carers get the support they need.
Ensuring health needs are addressed by registering young carers with their GP, dentist and optician.
www.carers.org
www.youngcarers.net
www.childrenssociety.org.uk
© Carers Trust and The Children’s Society
A Final Word
Jenny Frank National Strategic Programme Manager
The Children’s Society
www.carers.org
www.youngcarers.net
www.childrenssociety.org.uk
© Carers Trust and The Children’s Society
Making a step change for
young carers and their families:
Putting it into practice
Daniel Phelps
Project and Development Manager
(Young and Young Adult Carers)
www.carers.org
www.youngcarers.net
www.childrenssociety.org.uk
© Carers Trust and The Children’s Society
Foundations and Building Blocks
www.carers.org
www.youngcarers.net
www.childrenssociety.org.uk
© Carers Trust and The Children’s Society
Measuring Impact
‘If you don't know where you're going, you will probably end up somewhere else.’
Laurence J Peters
www.carers.org
www.youngcarers.net
www.childrenssociety.org.uk
© Carers Trust and The Children’s Society
Next Steps
• www.makingastepchange.info
• Local authority questionnaire
• Final evaluation report
• MASC Briefings
• E-bulletin
• Keep in touch
• Evaluation form
• One step?
www.carers.org
www.youngcarers.net
www.childrenssociety.org.uk
Carers Trust is a registered charity in England and Wales (1145181) and in Scotland
(SC042870). Registered as a company limited by guarantee in England and Wales
No. 7697170. Registered office: 32–36 Loman Street, London SE1 0EH.
The Children’s Society. Charity Registration No. 221124.
© Carers Trust and The Children’s Society
Thank you
Follow us on twitter
@CarersTweets
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Daniel Phelps
Project and Development Manager
(Young and Young Adult Carers)
www.carers.org
www.youngcarers.net
www.childrenssociety.org.uk
Carers Trust is a registered charity in England and Wales (1145181) and in Scotland
(SC042870). Registered as a company limited by guarantee in England and Wales
No. 7697170. Registered office: 32–36 Loman Street, London SE1 0EH.
The Children’s Society. Charity Registration No. 221124.
© Carers Trust and The Children’s Society
Thank you
Follow us on twitter
@CarersTweets
@childrensociety
Like us on Facebook
