The MossRehab TRauMaTic bRain injuRy Model sysTeM pResenTs

LIVING

BRAININJURY

WITH

Saturday, October 19, 2019 | 9 a.m. to 4:30 p.m. (Registration opens at 8 a.m.)

Pennsylvania Convention Center, 1101 Arch Street Intersection of 12th and Arch Streets

Philadelphia, PA 19107

WELL

The MossRehab Traumatic Brain Injury

Model System is funded by the National Institute on

Disability, Independent Living, and Rehabilitation Research.

Registration FeeThe fee for this event is $15 per person, to offset the cost of food (light breakfast, lunch, and refreshments). Conference materials are complimentary. Scholarships are available to those for whom this fee would be a hardship.

Registration Deadline: Thursday, October 10, 2019. Enrollment is limited, so please register early. See page 9 for registration form or register online at MossRehabConference.com.

Transportation and ParkingThe Pennsylvania Convention Center is adjacent to Jefferson Station, across from the Reading Terminal Market, in Center City Philadelphia. For directions, parking and public transportation information, go to www.paconvention.com/attendees/travel-to-pa-convention-center or www.septa.org.

The most convenient entrance to the Pennsylvania Convention Center is at the corner of 12th Street and Arch Street (northwest corner).

individuals wiTh bRain injuRy and TheiR faMilies and fRiends aRe inviTed to attend this special program offering a day of lectures, discussion groups, hands-on workshops, networking and resource-sharing focused on living well.

Look for conference guides, wearing orange aprons, who can assist you throughout the day.

Conference information is also available online at

MossRehabConference.com

Arch St.

N. 1

2th

St.

N. 1

3th

St.

Race St.

Pennsylvania Convention

Center

8 to 9 a.m. Registration and Continental Breakfast

9 to 9:15 a.m. Welcome and Orientation

9:15 to 10:15 a.m.

Keynote AddressLove Your Brain: The Life of Kevin Pearce

By Kevin Pearce

10:15 to 10:30 a.m. BREAK

10:30 a.m. to noon

A1

PANEL: Social

Connections

A2

PANEL: Caregivers

A3

Exercise is Key!

A4

Coping with Mood

Issues

A5

Be Active with … YOGA

noon to 1 p.m.

Lunch (provided)Information Booths Open

1 to 2 p.m.

B1

Is Mindfulness

for Me?

B2

Realistic- Holistic Pain Management

B3

Aging with a TBI

B4

Community Health

Choices

B5

Be Active with … TAI CHI

OPEN CAFÉ 1:30 to 3:30 p.m.

2 to 2:30 p.m. BREAK

2:30 to 3:30 p.m.

C1

Fuel the Brain

C2

Getting some Rest after TBI

C3

Exercise is Key![repeat]

C4

Coping with Mood

Issues[repeat]

C5

Be Active with …

MINDFULNESS

3:30 to 4:30 p.m. Unwind with the Jazz Sanctuary

conference

At-A-GlAnce*Program

* You will be asked to make your selections on the registration sheet (see page 9) for concurrent sessions. The following pages contain session descriptions.

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8 to 9 a.m.Registration and Continental Breakfast

9 to 9:15 a.m.Welcome and Orientation| Amanda Rabinowitz, Project Director, MossRehab Traumatic Brain Injury Model System

9:15 to 10:15 a.m.Keynote AddressLove Your Brain: The Life of Kevin Pearce | Kevin Pearce

Kevin Pearce is a champion snowboarder, sports commentator, motivational speaker, and advocate for those affected by traumatic brain injuries and Down’s Syndrome. At age 18, Kevin soared onto the professional snowboard stage, winning over ten snowboarding competitions all over the world, including four medals at the X Games. While training for the 2010 Vancouver Olympics, Kevin sustained a traumatic brain injury. His ongoing rehabilitation and training have been inspirational to both the international snowboard community and fans around the world. Kevin is the subject of the 2013 documentary, The Crash Reel. Kevin’s talk will focus on the importance of

family, friends and support in overcoming obstacles. He will also touch on always looking forward to the next opportunity, no matter what life throws in your way.

10:15 to 10:30 a.m. Break

10:30 a.m. to noon

Sessions A1 to A5

A1

PANEL Discussion—Social Connections: Relationships Following Brain Injury| Todd M. Lewis, Neuropsychologist, Magee Rehabilitation Hospital

| Abigail Bruley, Person with Brain Injury| Howard Blumberg, Person with Brain Injury| Tom Cutbush, Person with Brain Injury| Betsy Ostroff, Person with Brain Injury

This panel discussion will focus on social connections specific to relationships following TBI. The panel will consist of individuals with brain injury who are addressing challenges and successes in relationships with significant others, family members, and friends.

Although everyone is welcome, this session is designed especially for persons with brain injuries.

SCHEDULE

2

A2

PANEL Discussion for Caregivers: Caring for Ourselves So We Can Care for Those We Love| Karen Rosenberger, Director of NeuroRehab Services, Success Rehabilitation

| Gillian Murray, Clinical Case Manager, MossRehab

| Elissa Lewin, Founder & Executive Director, Nancy’s House

| Ed Spess, Parent of Survivor| Sandra Graber, Partner of Survivor

This panel discussion features caregivers of persons with brain injuries. They will tell their stories, answer questions, and talk about coping in healthy ways. This will be a positive and uplifting event!

Although everyone is welcome, this session is designed especially for caregivers and family members.

A3

Exercise is Key! Healthy Body and Healthy Mind | Kimberly Miczak, Physical Therapist, MossRehab

| Thomas McCurnin, Neuro-Cognitive Instructor, Success Rehabilitation

| Jack Cavanaugh, Person with Brain Injury

This session will discuss the many advantages of exercise and physical activity, including physical, cognitive, mood, and quality of life benefits. Integration of exercise into life after a traumatic brain injury will be addressed, including demonstration and solutions to common barriers. Jack

Cavanaugh will describe the challenges he faced when attempting to integrate exercise into daily life and the benefits he obtained from his efforts.

A4

Coping with Mood Issues after Brain Injury | Ann Marie McLaughlin, Director, Community Outpatient Services, ReMed

| Todd Clark, Person with Brain Injury Survivors of brain injury often experience changes in how they experience or express emotions. Mood stability becomes a primary goal. This session will review specific strategies to support coping with anger or irritability, being positive, and gaining a sense of control over moods and reactions. Practical suggestions will be discussed and survivor input/examples will be incorporated via co-presentation and/or video.

A5

Be Active with … YOGA LoveYourBrain Yoga Program| Megan Cauley, Yoga Teacher, Philadelphia

| Charee Smith, Yoga Teacher and Reiki Master, Exton

Join us to explore a gentle and accessible yoga and meditation class. No experience necessary, just a desire to learn about how to move, breathe, and meditate in ways that support healing from brain injury. We’ll also talk about free yoga and meditation resources for people with brain injury, including how to access the LoveYourBrain Yoga program in Pennsylvania.

3

noon to 1 p.m. A box lunch is provided with registration.During lunch, please visit the information booths located in the concourse area.

INFORMATION BOOTHS | Brain Injury Association of Pennsylvania| Brain Injury Alliance of New Jersey| Council on Brain Injury (CoBI)| Disability Rights Pennsylvania| Division of Vocation Rehabilitation [New Jersey]

| Fighting Back| Legal Clinic for the Disabled| LoveYourBrain Yoga| Pennsylvania Department of Health Brain Injury Services

| Research Opportunities| Tri-State Advocacy Project….and more!

1 to 2 p.m.

Sessions B1 to B5

B1

Is Mindfulness for Me? What it Means to be Mindful| Claire Sitarz, Patient Services Coordinator, Einstein Medical Center Philadelphia

| Oscar Arrington, Person with Brain Injury

We hear a lot about mindfulness these days, but what does it mean to be mindful, and can you incorporate mindfulness practice into your life? Come hear one survivor’s story about exploring mindfulness and meditation, as well as some of the science behind why mindfulness works, and how it could be beneficial to you.

B2

A Realistic-Holistic Approach to Pain Management in Brain Injury| Leonard Kamen, Physiatrist, MossRehab

This presentation will focus on a biopsychosocial approach to pain management, with appreciation of the individual nature of traumatic brain injury. It will address the physical and behavioral contributions to pain along with the role of the support system in approaching this chronic condition. Medical and rehabilitation resources for pain management will be discussed.

4

B3

Aging with a TBI: Know the Risks and Remedies| Amanda Rabinowitz, Project Director, MossRehab Traumatic Brain Injury Model System

Persons with TBI may be at risk for certain medical conditions, re-injury, and social isolation as they age. However, research suggests that much of this risk can be offset with attentive medical care and healthy lifestyle choices. This session will present a summary of the state-of-the-science on aging after TBI, and provide specific recommendations for aging well with brain injury.

B4

Community Health Choices: The New Medicaid Waiver Program for Pennsylvanians who Have a Disability | Amy E. Lowenstein, Supervising Attorney, Pennsylvania Health Law Project

| Drew A. Nagele, Board Secretary, Brain Injury Association of Pennsylvania

The Community Health Choices (CHC) waiver program made its debut in 2018, beginning in 14 southwestern PA counties, and in 2019 was made available in the five southeastern PA counties. By January 2020, the CHC waiver program will be available in every Pennsylvania county. This presentation will discuss what CHC means for people transitioning from other Office of Long-Term Living Waivers or who have a newly acquired disability, the CHC evaluation

process, and important information for individuals with brain injuries and their families to know about accessing brain injury services and supports through CHC.

B5

Be Active with … TAI CHI Tai Chi with the Doc| Barry Silverman, Chiropractor, The Healing Arts Center

Tai Chi Chuan (Tai Chi/Taiji) is a practice that integrates martial arts movements with Qi (pronounced Chee), circulation, breathing, and stretching techniques. Dr. Silverman will show us how Tai Chi is capable of healing, rejuvenating, and prolonging life.

2 to 2:30 p.m. Break

5

2:30 to 3:30 p.m.

Sessions C1 to C5

C1

Fuel the Brain: Cook More, Eat Well, Move More| Kayla Joseph, NeuroCog Instructor, Success Rehabilitation

| Christopher Higgins, Person with Brain Injury

| Shawn Rosenblum, Person with Brain Injury

Nutrition has an enormous impact on our overall health and is a key tool to help the brain heal and function at its highest capacity. This presentation will discuss some educational tools and nutrition facts, along with adaptive cooking techniques, to allow individuals to cook and create healthy meals for themselves.

C2

Getting Some Rest after TBI| Thomas Watanabe, Medical Director, Traumatic Brain Injury Program, MossRehab

| Sheryl Berardinelli, Senior Neuropsychologist, Bancroft

| George Stergion, Person with Brain Injury

TBI often leads to poor quality of sleep and daytime fatigue, which interfere with a return to full community participation. This presentation will describe how a TBI causes changes in sleep, as well as the most common sleep problems that result

from TBI. We will provide practical guidance about how to get an accurate diagnosis of a sleep problem and describe some of the most useful treatment strategies that can result in improved restful sleep.

C3

Exercise is Key! Healthy Body and Healthy Mind [This is a repeated session.]

| Kimberly Miczak, Physical Therapist, MossRehab

| Thomas McCurnin, Neuro-Cognitive Instructor, Success Rehabilitation

| Jack Cavanaugh, Person with Brain Injury

This session will discuss the many advantages of exercise and physical activity, including physical, cognitive, mood, and quality of life benefits. Integration of exercise into life after a traumatic brain injury will be addressed, including demonstration and solutions to common barriers. Jack Cavanaugh will describe the challenges he faced when attempting to integrate exercise into daily life and the benefits he obtained from his efforts.

6

C4

Coping with Mood Issues after Brain Injury [This is a repeated session.]

| Ann Marie McLaughlin, Director, Community Outpatient Services, ReMed

| Todd Clark, Person with Brain Injury Survivors of brain injury often experience changes in how they experience or express emotions. Mood stability becomes a primary goal. This session will review specific strategies to support coping with anger or irritability, being positive, and gaining a sense of control over moods and reactions. Practical suggestions will be discussed and survivor input/examples will be incorporated via co-presentation and/or video.

C5

Be Active with … MINDFULNESS| Areli Pellegrino, Neuro-Cognitive Instructor, Success Rehabilitation

| Annawyn Laing, Senior Admissions Coordinator, ReMed

This active session will explore what it means to be mindful through multiple activities. Participants will get a chance to try sound meditation, a mindful art activity, and more, to see what mindfulness is like, and how it can work for them.

3:30 to 4:30 p.m.

unwind wiTh The jazz sancTuaRy band: The alan segal QuinTeTMusicians:Alan Segal, Person with Brain Injury Leon Jordan Sr., Eddie Etkins, Randy Sutin, James Dell’Orefice

In 2006, Alan Segal’s life was changed forever after experiencing a cerebral arteriovenous malformation (AVM). Not only did he learn to walk and talk again, but he was inspired to give back to the community that aided his recovery process. The Jazz Sanctuary, a Council on Brain Injury grantee, is committed to bringing music and its healing powers to the brain injury community. The Jazz Sanctuary will close out the conference by playing a short concert.

7

new This yeaR!In the afternoon, our large meeting room will be transformed to offer a variety of information, set up in stations for browsing. Here are a few of the topics and activities planned for conference goers in the OPEN CAFÉ:

o Handouts from ALL sessions will be available in one spot!

o Meet the Speakers table, where you can ask questions.

o Education about Driving Rehabilitation

o Demonstration: What can you gain with Apps for the Brain?

o Brain injury information pamphlets on selected topics will be available.

o Unmasking Brain Injury: This is an opportunity to create a mask to express what it is like for you to live with brain injury. Created to promote brain injury awareness, this activity is sponsored by Bryn Mawr Rehab Hospital and the Dana Jones Art Therapy Fund.

o And more!

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Saturday, October 19, 2019 • 9 a.m. to 4:30 p.m. (Registration opens 8 a.m.)

Pennsylvania Convention Center1101 Arch Street, Philadelphia, PA 19107

Registration Deadline: Thursday, October 10, 2019

NAME

EMAIL ADDRESS

STREET ADDRESS

CITY STATE ZIP

(AREA CODE) TELEPHONE NUMBER

We strive to host inclusive, accessible events that allow all individuals to participate fully. Please inform us about any accommodations you need to participate.

You will be contacted directly about this request. Attendance Fee: $15 per personNumber of people attending: ______

Payment can be made online at MossRehabConference.com or detach this form, enclose your check (payable to MossRehab) and mail it to:Sheila WallaceMossRehab Education Department60 Township Line Road | Room 303 WestElkins Park, PA 19027

Please indicate how many people will attend each session.

10:30 a.m. to noon___ A1 Social Connections PANEL___ A2 Caregiver PANEL___ A3 Exercise is key!___ A4 Coping with Mood Issues___ A5 Be Active with … YOGA

1 to 2 p.m.___ B1 Is Mindfulness for Me? ___ B2 Realistic-Holistic Pain

Management___ B3 Aging with a TBI___ B4 Community Health Choices___ B5 Be Active with … TAI CHI

2:30 to 3:30 p.m.___ C1 Fuel the Brain ___ C2 Getting Some Rest after TBI___ C3 Exercise is Key!___ C4 Coping with Mood Issues___ C5 Be Active with … MINDFULNESS

OPEN CAFÉ from 1:30 to 3:30 p.m.

Closing program from 3:30 to 4:30 p.m.Unwind with the Jazz Sanctuary

RegisTRaTionThis form may be copied, or additional names and addresses may be listed on a separate sheet of paper.

Questions? Please call 215-663-6457.

9

Moss Rehabilitation Research Institute50 Township Line RoadSuite 114Elkins Park, PA 19027

PARTICIPATING PARTNERS

MossRehab, Bancroft, Beechwood NeuroRehab, Bryn Mawr Rehab Hospital,

Community Skills Program, Council on Brain Injury, Good Shepherd Penn

Partners, Magee Rehabilitation Hospital, Mind Your Brain, ReMed, Success Rehabilitation, and the Brain Injury

Association of Pennsylvania

The MossRehab Traumatic Brain Injury

Model System presents LIVING WELL WITH

BRAIN INJURY