Kirklees Annual Report

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    TouchstoneKirklees Mental Health Advocacy Service

    Annual Report 2012-2013

    EQUAL, HONEST AND COLLABORATIVE WORKING

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    Introduction

    Touchstone began delivering the Advocacy Service in April 2011. A summary of our

    previous work can be found in theAnnual Reportfor 2011/12.

    This year, our aim was to strengthen our model of collaboration and co-production,and to demonstrate the quality of what we do, by building on the successes of the

    previous year.

    You will find in this report the themes of volunteering, mutual learning and support, as

    well as a commitment to proving the wider benefits of an approach which encourages

    citizens to speak up for themselves, to assertively demand their rights, and to support

    others around them. Our Social Return on Investment exercise was a way of trying to

    work out the wider benefits of what we do, and attempting to put a price-tag on it.

    Although we may not all be professionalised advocates we take the quality of our

    work very seriously indeed.

    We regularly look at the impact our services have on excluded or marginalised groups

    (e.g. Black and minority ethnic; lesbian, gay, bisexual and trans people) or people who

    are under-represented in our service, in order to see how we can make things fairer.

    We undertook an internal Quality Audit, which was led by people who use

    Touchstones Services. A group of service users came to inspect the service and

    demanded we produce evidence that what we do is safe, fair and collaborative, and

    that we learn from our mistakes and make keep accurate records of what we do. They

    were very pleased with what they found.

    Perhaps our greatest challenge this year has been meeting ever increasing demand for

    what we do. Most people approach our service because they have a pressing need to

    sort something out to leave hospital, to get their housing sorted or to change the

    way in which they are supported. However, too much emphasis on helping people 1:1

    might mean we give less time to developing and growing our group support work, and

    the development of Peer Advocacy.

    As you would expect from a service built on the principles of co-production our

    solution emerged from discussions with the people who benefit from our service, andthe peer advocates (see page 3 for more details). We were pleased to find such a

    sensible

    We hope you enjoy the story of our service over the last year, as much as we have

    enjoyed working to make Kirklees a warmer, friendlier and more supportive place for

    everyone.

    http://www.touchstonesupport.org.uk/2013/02/kirklees-advocacy-service-annual-report-201112/http://www.touchstonesupport.org.uk/2013/02/kirklees-advocacy-service-annual-report-201112/http://www.touchstonesupport.org.uk/2013/02/kirklees-advocacy-service-annual-report-201112/http://www.touchstonesupport.org.uk/2013/02/kirklees-advocacy-service-annual-report-201112/
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    General Developments

    Our model of co-productive Advocacy is very different from some other, more

    traditional models of advocacy where someone seeks help from a professional

    advocate, who speaks on their behalf, in their best interest.

    Touchstones way of doing Advocacy delivers a more deeply collaborate experience.

    We still provide traditional 1:1 advocacy, but we also spend a lot of time trying to help

    people to find their own voice to advocate for themselves by encouraging them to

    share their experiences and to support other people with advocacy needs.

    We think our model promotes collaborative, equal, honest, reciprocal trusting

    relationship between the service users, their families, friends, peers, and neighbours

    paid workers, professionals and service providers.

    The service guided by principles of co-production is cautiously developing co-

    production in all aspects of service delivery and design by:

    Recognising people as assets

    Building on peoples existing capabilities

    Promoting mutuality and reciprocity

    Developing peer support networks

    Breaking barriers between professionals and recipients

    Facilitating rather than delivering the service

    Our self-advocacy and group advocacy sessions meet once a week at our offices in

    Dewsbury, and at Folly Hall in Huddersfield. These groups combine social activities

    with learning new skills, or hearing and learning from the experiences of others.

    We currently support a team of eight peer advocates who help us to deliver more than

    58 hours of peer support each week. The peer advocates provide one to one peer

    support, and support and facilitate group work. Touchstones volunteer co-ordinator

    provides additional support to these peer advocates offering ongoing training and

    support with new skillslike working with people who dont speak English, or helping

    to manage risks.

    Early in 2012 we found that we were facing capacity issues. The service was designed

    to support a maximum of about 100 people, and we were getting very close to this

    number. Many of these people were no longer in need of day-to-day advocacy

    support, but were still fearful of being discharged of losing the support they found in

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    the peer advocacy groups, and in the ability to pick up a phone and speak with an

    advocate without having to re-refer themselves.

    After discussions with individuals, groups, peer advocates and others, we agreed that

    each person we support would have their case reviewed every 3 months. When people

    had achieved their agreed outcomes, we would close their file if they wished it to beclosed. However, for those people who did not wish for their cases to be closed we

    decided we would refer to

    Active members: those who continue to play an active part in peer/group

    advocacy networks, and

    Members: people who after receiving advocacy support dot not want to give

    back to the service but would call the service as and when they require advocacy

    support.

    We are pleased to have found a way of describing the status of people who sometimeswant a little advocacy support and which allows them to keep a link to our service,

    without this affecting our ability to receive and act on new referrals.

    Other achievements of 2012 -2013:

    We increased the numbers of referrals from Care Management Mental Health

    teams

    We increased the numbers of women peer advocates

    We were successfully underwent a Quality Audit Inspection, led by Touchstone

    Service Users to ensure we are as good as we say we are

    We carried out aSocial Return on Investment auditwith the assistance of people

    who benefit from our services, referrers and commissioners. We worked out

    that for every 1spent on the Advocacy service, we generated a return of 3

    We completed an Equality Impact Assessment

    Appointed a paid female advocate and recruited more relief worker advocates.

    We expanded the capacity of the services and worked with more than 138

    people.

    http://www.touchstonesupport.org.uk/2013/02/feeling-uplifted-a-report-into-the-social-return-on-investment-of-kirklees-advocacy-service/http://www.touchstonesupport.org.uk/2013/02/feeling-uplifted-a-report-into-the-social-return-on-investment-of-kirklees-advocacy-service/http://www.touchstonesupport.org.uk/2013/02/feeling-uplifted-a-report-into-the-social-return-on-investment-of-kirklees-advocacy-service/http://www.touchstonesupport.org.uk/2013/02/feeling-uplifted-a-report-into-the-social-return-on-investment-of-kirklees-advocacy-service/
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    Barriers and Challenges

    Some of our ongoing challenges include

    a) Breaking barriers between professionals and recipientsSome people still expect mental health services to tell them what to do, and that their

    involvement is nothing more than ongoing consent. Similarly, some people who work

    in mental health services still seem to find it easier to present people with plans of

    care, drawing on their own knowledge and understanding of a persons best interest -

    rather than helping people to work things out for themselves. This day-to-day

    imbalance of power between Professionals and Patients, however well intentioned,

    remains an enormous barrier to people taking control of their own lives.

    b) Demand for one to one advocacyMost of our referrals come from people who need one to one advocacy support with

    support speaking up for themselves in meetings with Professionals e.g. ward rounds ,

    discharge meetings , managers meetings , tribunals, CPAs etc. As we have explored

    above this has sometimes put pressure on our small staff team, and impaired their

    ability to develop the capacity of peer/group advocacy networks.

    c) Geographical distribution of KirkleesThe vast expanse of Kirklees means that the one advocate and relief advocate workers

    have to travel long distances to reach out to people needing advocacy. This sometimes

    makes it difficult to see people face to face as soon as they would like. It also makes

    their participation in peer networks difficult if they do not have access to transport.

    d) Equal provision and access of the advocacy servicePeople from Black and Minority Ethnic (BME) communities often find getting what

    they need from mental health services difficult. This can be for lots of reasons such as

    language barriers or services who find it difficult to responding positively to cultural

    differences. We are very pleased at the number of people from BME backgrounds who

    have received our support - about 30% of all the people we have helped.

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    5

    Outcomes

    Social Networks

    The service has strengthened peer support, group advocacy and peer networks.Service users set up peer advocacy groups to explore areas of particular interest

    (experience of being on Ward, effective discharge, CPA meetings, managing

    safety) group advocacy sessions. In these peer advocacy networks, people are

    free to set their own agendas, and where they are encouraged to to build and

    sustain relationships new and old and to support one another through

    shared experiences, expertise and time.

    Average Improvement: 14%. People experiencing severe mental health

    problems can sometimes find themselves isolated people from friends and

    family - through hospital admission or other circumstances. Our groups helppeople to make rewarding relationships, help others and expand their social

    networks.

    I can not imagine where I would be without the peer support I receive from myfriends and two neighbours. They are always there for me as I am for them. We do

    things together e.g. go shopping, play bingo, volunteer at a local shop and

    accompany one another to GP appointments and medical reviews. At old age we can

    continue to live our lived experiences if we can access Self Directed Support (SDS) to

    fund those activities we enjoy most to remain active and reduce hospital admissions

    Supporting each other

    through peer advocacy,

    sharing our knowledge,

    experiences, skills and time.Ours is an equal, honest,

    reciprocal relationship that

    keeps us going

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    Housing

    The service provides advocacy support to people struggling to maintain their

    tenancy due to many factors the consequences of mental health difficulties;

    substance and alcohol abuse; problems with money /bills or harassment;

    bullying and discrimination. We have provided advocacy support in meetings

    with housing services, landlords, neighbours, the police and employers. We have

    also provided advocacy support to enable people to move from residential

    supported housing to independent living. We try to ensure people have a say in

    what they want and how they wish to live their lives - and ensuring that due

    process if followed, and that people are not pressured to live in places they do

    not want.

    Average Improvement: 10%: The service continues to successfully support

    people speak for themselves moving from residential homes to independent

    living, and those who lost their tenancies, suffered antisocial behaviour from

    neighbours, lost employment or had benefits and financial difficulties due to

    mental health difficulties.

    We are a happy couple who were supported by the advocacy service

    work through our housing, financial and harassment problems. We are

    paying back to the service attending peer /group advocacy sessions

    supporting other people sharing our life experiences as peers who are

    supporting each other. We successfully completed the Recruitment

    Selection & Interview training, and now take part in recruiting the best

    workers for the organisation. The advocacy service is our service which is

    service user run with support from paid workers

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    Physical Health

    The service provides advocacy support to people whose physical health affects

    their mental health and wellbeing. We support people to lead healthier life

    styles e.g. Stop smoking, drinking, drug abuse, conscious of healthy eating by

    providing them with information, and encouragement and helping them link to

    services where necessary.

    .

    TheAdvocacy service provides me with Advocacy support in Professionals

    meetings about my medication, treatment, support and care. They also help in

    Managers meetings, Ward rounds, and Discharge meetings. But what worksor me takin art in h sical activities and rou s

    Average

    improvement 9%.

    People are

    becoming aware

    of the relationship

    between their

    physical health

    and mental healthand the need to

    take part in

    physical activities

    to keep the mind

    occupied.

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    Education & Training and Social skills

    Through peer and group advocacy groups, people encourage and support each

    other to return to education and training, volunteering and attend mainstream

    educational training for basic living skills e.g. computer, art, craft at Pathways.

    Average Improvement: 39%: Although there is a significant improvement in this

    area, some people are scared of going to formal educational settings to meet

    new people. We help people voice their concerns, and help them overcome

    their difficulties.

    What works for you in your

    journey to recovery does not work

    necessarily for me. For some

    people Yoga and filming and

    spirituality are their best therapy

    but for me art makes me become

    creative keeping my mind

    occupied. Its not only about

    medication: explore the best

    intervention for you

    What is stopping you? Go join

    an art group close to where you

    live and develop your talent,

    build confidence and make

    friends discovering the beautyof art and how good it is for

    your mental health and

    wellbeing.

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    Self & Peer Advocacy

    Our peer/group advocacy helps people to learn from each other. We facilitate

    sessions where people can reflect on their own experiences by helping others to

    gain the skills to advocate for themselves and others. Our peer advocacy groups

    meet weekly at Folly Hall in Huddersfield and at our offices in Dewsbury.

    Average Improvement: 41%: There is a great improvement in this domain. We

    encourage a culture of giving and getting where as well as receiving advocacy

    support, people are encouraged to see the value in what they have to offer other

    people. From the group meetings, people often form friendships and provide

    informal support to one another. Six people who have used our advocacy service

    have gone on to completed the Touchstone Volunteering Training programme, and

    now provide support to other people as peer advocates and advocacy group

    facilitators. Our peer advocacy volunteers and interpreters training has been so

    successful that we are now delivering it in Dewsbury.

    I received advocacy support on my discharge and tribunal meetings, [I]went on

    to train as an advocacy volunteer with the Touchstone Volunteering Project. I am

    now providing advocacy support to other service users and help out as an

    advocacy facilitator

    There is a lot to give share and learn. I received advocacy support on my

    discharge from hospital and tribunal meetings, [I] went on to train as an

    advocacy volunteer with the Touchstone Volunteering Project. I am now

    providing peer advocacy support to other service users and help out as

    an advocacy facilitator. I am looking forward to become a relief

    advocacy worker and hopefully progress to gain paid employment

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    Confidence

    Many of the people we work with only want advocacy support to help them with

    their discharge from hospital, or in professionals meetings. On discharge, many

    do not wish to attend peer/group advocacy activities. Although we respect their

    viewswe think theres a lot that they might get out of being with others, and

    building confidence from their shared experiences and problem solving. Many ofthe people who do find ways to support others through peer/group advocacy

    report being better able to control their own thoughts, anger, fears, frustrations

    and anxieties.

    Average Improvement: 29%: The service supports people by referring them to

    other services for anger management and confidence building sessions with

    other service providers like Support 2 Recovery.

    Speaking Up for Myself

    One of our primary goals is to support and encourages people to speak up for

    themselves - by telling other people what they want, making their voices and

    choices heard, working out what they want and how to organise themselves

    better. People learn different ways of speaking up for themselves e.g. planning

    what they want to say, using pictures, and writing out their concerns.

    Average Improvement 14%: Outside the hospital and in everyday life situations

    people speak out for themselves, but many still have problems in formal settings

    when surrounded by professionals.

    I received advocacy support on my discharge and tribunal meetings, [I] went on

    to train as an advocacy volunteer with the Touchstone Volunteering Project. I am

    now providing advocacy support to other service users and help out as an

    advocacy facilitator

    While I have the confidence to speak for myself and others I find it

    difficult to speak out for myself in meetings where there are too many

    professionals who use medical jargon and tend to decide things for me.

    When I fall ill again/relapse I lose all the gained confidence

    I can speak up for myself as an individual and as part of a group todefend my rights as long as other people are prepared to listen.

    Unfortunately when I do so I get sectioned by professionals who argue

    that I will be ex ressin delusionar thou hts

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    Emotional/Mental Wellbeing

    The service helps people to be in control of their care and support, and ensures

    that they are listened to and involved in decision making on all matters.

    Understanding their rights and building confidence enables people to exercise

    greater control over their mental health difficulties and to trust in what works

    for them.

    Average Improvement: 18%. support service

    I need help.

    Community Participation

    The services continue to support and encourage people to be involved in taking

    part in things taking place in their communities so that they meet and help each

    other feeling valued and appreciated for their contributions.

    Average Improvement: 56%: There is a significant improvement. Due to mental

    health difficulties some people find it a daunting task to be involved in

    mainstream activities taking place in the community.I am as busy as a bee taking part in a number of activities in my local area

    ranging from volunteering looking after another service user, doing my cleaning

    job, going to see a psychological therapist, going to Pathways and attending

    events in the community. I am well connected and feel occupied and valued which

    keeps me going able to cope with my panic attacks and anxiety.

    I am now stable, managing my mental health and wellbeing making

    positive choices about my mental health and wellbeing. I know where

    support services are if I need help.

    With advocacy support I now have structure in my week: I volunteer at

    the fire station, I attend supporting services, the Dewsbury peer/group

    advocacy sessions, the Keep the parks clean project in Wakefield and

    actively take part in Touchstone organisational activities I completed the

    one day Selection Interviewing & training course. All this has helped me

    fight my panic attacks and regain my confidence

    Taking part in activities in

    my local community makes

    me feel valued and

    belonging which supports

    my mental health and

    wellbeing.

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    Support Services

    The service continues to promote co-productive working between service users,

    their friends and families, professionals, agencies and services providers in an

    open honest and reciprocal way, a collaboration of equals.

    Average Improvement: 21%: Advocacy has enabled people to achieve greater

    dialogue and collaborative arrangements with statutory and voluntary services.

    Table of Changes, by Advocacy Star domains 2012/13

    Social

    Networks

    Housing Physical

    Health

    Education

    &

    Training

    Self &

    Peer

    Advocacy

    Confidence Speaking

    Up For

    Myself

    Emotional/

    Mental

    Wellbeing

    Community

    Participation

    Suppo

    Servic

    Average 1st

    Review-8.3 -5.6 +0.0 +13.3 +1.6 +12.3 +6.0 -1.8 +15.9 +4.4

    Average 2nd

    eview+11.8 +9.0 +4.7 -1.4 +11.3 +4.4 +2.9 +11.1 +7.4 +12.

    Average 3rd

    eview+0.6 +0.4 +2.0 +2.2 +0.6 -0.6 -0.4 -3.5 +0.7 -0.2

    Averagecurrent

    +1.4 -3.8 -3.0 +1.4 +2.7 -4.5 -2.9 +1.5 -1.5 -8.6

    Average

    change+1.4 +0.1 +0.9 +3.9 +4.1 +2.9 +1.1 +1.8 +5.6 +2.1

    %

    mprovement14% 10% 9% 39% 41% 29% 14% 18% 56% 21%

    I feel empowered, involved in decision making as an equal partner in

    services in my treatment, support and care getting the kind of support I

    want although some professionals want to decide things for me.With

    advocacy support I was listened to and my views were sort as I went

    through ECT treatment.

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    Annual Statistics

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    Finance

    The total value of this contract is 51,295 and comes from both NHS Kirklees and

    Kirklees Council. This is how we have spent this money. All the figures are in s.

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    Vision and targets for 2012-2013

    In the next year we will

    Remodel the Touchstone Kirklees Advocacy service to increase overall service

    activity by 20%.

    Ensure the service is dementia friendly and provide advocacy opportunities

    for people living in their own homes experiencing mental health problems

    related to dementia.

    Increase access to Self Directed Support/ Peer led Self Directed Support.

    Promote paid employment opportunities to the people we work with,

    progressing from being beneficiaries of the service to peer advocacy volunteers

    and interpreters, to become relief workers and paid staff members.

    Increase the number of self-advocacy and peer advocacy groups in a wider

    variety of locations eg Batley, Mirfield.

    Work co-productively with service users and stakeholders to refine the Kirklees

    Advocacy risk assessment tool.

    Ensure a third of the people we work with are from BME groups.

    Provide a greater array of training and development sessions for advocacy group

    members, tied to Touchstones wider programme of volunteering opportunities.

    Make particular efforts to address and boost peoples self-confidence issues.

    Establish peer/group advocacy for informal patients on ward at Priestly Unit

    ward 18, Ashdale ward 3, and Wakefield hospital.

    Seek a better match between volunteers and the wider demographics of Kirklees to ensure more equal representation.

    For more information or to find out more, contact us at

    Touchstone Kirklees Advocacy Service

    Dewsbury Business Centre

    1st Floor Office, 13 Wellington Road

    Dewsbury

    WF13 1HFPhone: 01484 490 130

    Email:[email protected]

    Website: www.touchstonesupport.org.uk

    mailto:[email protected]:[email protected]:[email protected]:[email protected]