Kenneth Pakenham PhD Alyssa Ryan Matthew Mawdsley Felicity Brown Nicola Burton
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Evaluation of an ACT Resilience Training Program (READY) for People with Diabetes or Multiple Sclerosis
Kenneth Pakenham PhDAlyssa RyanMatthew MawdsleyFelicity BrownNicola Burton
School of Psychology, The University of Queensland, Australia
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Resiliency and Psychological Flexibility
• resilience = “the process of negotiating, managing and adapting to significant sources of stress or trauma. Assets and resources within the individual, their life and environment facilitate this capacity for adaptation and “bouncing back” in the face of adversity.” (Windle, Bennett & Noyes, 2011, p. 2)
• Psychological flexibility is related to resiliency (Kashdan & Rottenberg, 2010)
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Resiliency and Psychological Flexibility
ACT informed resiliency training:
READY (Resilience for Every Day)
• Targets key protective factors associated with resilience (Southwick, Vythilingam & Charney, 2005):• Positive emotions / acceptance• Cognitive flexibility• Coping strategies• Meaning• Social support
• ACT Intervention approach
• Therapist and Participant manuals
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READY Model of Resilience
AcceptanceCoping
strategies
Cognitive flexibility
Social support
Meaning
Being
Thinking
Feeling Doing
Relations
RESILIENCE
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5 Life Domains
Acceptance Coping strategies
Cognitive flexibility Social
support
Meaning
Being
Thinking
FeelingDoing
Relations
RESILIENCE
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Protective factors
Coping strategies
Social support
Meaning
Being
Thinking
Feeling Doing
RESILIENCE
Relations
Acceptance
Cognitive flexibility
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What is READY?• 11 x 2 hour modules delivered in group setting
• Mix of intervention strategies:• experiential activities• information giving• large/small group discussions• individual critical reflection• metaphors• skills rehearsal• homework
• Resources:• Workbook • CDs • READY personal plan
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What is READY?• Modules:• Introduction to resilience, stress and the READY model• Mindfulness• Acceptance• Defusion I• Defusion II and Observer self• Values/meaning• Positive emotions/pleasurable activities• Physical activity• Positive relations• Review sessions
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READY Prior Research
• Pilot Study (n = 18) • Burton, Pakenham & Brown (2010) Psych, Health & Med
• RCT, colorectal cancer; telephone delivered (n = 410) • Methodology• Hawkes, Pakenham et al. (2009) BMC Cancer
• Health Behaviour Outcomes: • Hawkes, Chambers, Pakenham et al. (2013) Journal of Clinical
Oncology• Quality of Life Outcomes: • Hawkes, Chambers, Pakenham et al. (2013) Annals of Behavioral
Medicine
• RCT (n = 100)• Burton, Pakenham & Brown, (2009) BMC Public Health
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READY: Diabetes• Single intervention condition • pre- & post-intervention assessment (n = 20)• 3 month follow-up (n = 11)• 10 two-hour weekly group sessions
• 3 groups
• All READY modules used:• Introduction to resilience and stress• Mindfulness• Acceptance• Defusion I• Defusion II and Observer self• Physical activity• Values/meaning• Positive relations• Positive emotions/pleasurable activities• Review session
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READY: Diabetes
DEMOGRAPHICS• mean age = 54 yrs; range =
24 - 74 yrs
• 70% female• 75% Anglo Australian • 45% with partner• 60% employed
• Education:• 15% high school• 60% certificate/trade• 25% university edu
HEALTH• 70% Type II diabetes
• General health:• poor 35%• fair 25% • good 35%
• mean BMI fell in the moderate obese range (WHO, 2000)
• range 16.23 (underweight) to 57.85 (very severe obese)
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READY: Diabetes• MEASURES:• Primary Outcomes:• Resilience (15-item Resilience Scale; Neill & Dias, 2001)
• Quality of life• WHO Quality of Life Questionnaire – Brief Form• Diabetes Quality of Life Measure (Jacobson et al, 1988) • Diabetes-related distress (Polonsky et al, 1994)
• Mood: depression, anxiety, stress (DASS-21; Lovibond & Lovibond, 1995)
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READY: Diabetes• MEASURES:• Protective Factors:• Physical activity • sitting time (Sitting Time Questionnaire; Marshall et al, 2009) • step count (Pedometers)• time in physical activity (The Active Australia Survey; AIHW,
2003) • Positive affect (PANAS; Watson & Clark, 1988) • Problem-focused coping (Brief COPE; Carver, 1997) • Social connectedness (Brief COPE; Carver, 1997)• Acceptance (AAQII; Bond et al, 2011) )• Mindfulness (Mindful Attention Awareness Scale; Brown & Ryan, 2003)• Valued living (VLQ; Wilson et al, 2010)
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PRIMARY OUTCOMES ANOVA (n = 11)p
t-test (n = 20)p
Resilience .015* .007**
Total QoL .019* .053
Physical QoL .019* .020*
Self-rated QoL .019* .000**
Self-rated health .009** .008**
Overall Diabetes QoL .038* .278
Diabetes Satisfaction .002** .084
Diabetes-related Distress .073 .010**
Depression .059 .002**
Anxiety .083 .041*
Stress .016* .004**
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PROTECTIVE FACTORSANOVA (n = 11)
pt-test (n = 20)
p
Positive affect .067 .010**
Problem-focused Coping .059 .013*
Mindfulness .021* .029*
Acceptance .015* .001**
Valued Living .022* .015**
Physical Activity Step Count .001** .001**
Physical Activity Sitting Time .019* .003**
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READY: Diabetes• qualitative data from participants and facilitators
supported the statistically significant changes
• participants reported greater:• resilience • stress management skills• mindfulness• acceptance• defusion• values driven living
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READY: DiabetesEngagement and Satisfaction• 20 completed the intervention• 2 dropped out• 90% attended more than half the program• 55% attended more than 80% of sessions • Homework completion:• Mean rating = 3.50
• 5-point scale:• 1 = unable to complete homework• 2 = read materials only• 3 = made brief notes and practiced some activities• 4 = did most activities• 5 = did all activities
• Lowest mean ratings for any week:• session 4 Defsion 3.17• session 9 Positive emotions/pleasurable activities 3.17
• Mean satisfaction rating = 4.70; 5-point rating scale
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MS Context• complex neurological disorder
• typically degenerative
• prevalence is twice as high in women as in men
• onset 20 - 40
• no known cause or cure
• course is unpredictable
• clinical symptoms vary widely
• symptoms affect most, if not all, areas of a person’s life
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READY for MS• Modified READY:
1. Introduction2. Mindfulness3. Acceptance4. Defusion 5. Defusion & Observer self6. Values/meaning (self-care/pleasurable activities & positive relations)7. Review session
• Booster session 5 weeks later
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READY for MS• Single intervention condition with pre- & post-intervention and 3
month follow-up assessments• 3 groups completed to date (n = 35)• 27 completed pre- and post-treatment questionnaires
• Mean age = 49.30 years (SD = 11.58); range = 28 – 70 years
• 67% females
• Mean illness duration = 8.26 years (SD = ); range = 4 months – 30 years
• 78% relapse remitting
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READY for MS• Primary outcomes:• Resilience• Quality of life (MS QoL-54; Vickrey, 1995)• Positive affect• Emotional distress
• Secondary outcomes (ACT processes):• Defusion (Drexel Defusion Scale; Forman et al, 2012)• Values• Mindfulness• Acceptance (MS Acceptance Q’aire; Pakenham & Flemming, 2011)
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READY for MS: Preliminary ResultsOutcomes t-value pPRIMARY OUTCOMES
Global Distress 2.37 .028 Depression 2.61 .016 Stress 2.52 .021 Anxiety Resilience ACT PROCESSES Defusion -3.01 .007Values -3.49 .002Acceptance Willingness -3.05 .006Acceptance Action
Mindfulness
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READY for MS: Preliminary Results
• Engagement and Satisfaction:• Of the 35 participants, 5 drop-outs:
• 2 prior to commencement• 1 at session 2• 1 at session 3• 1 at session 5
• 80% attended all 7 sessions
• Homework completion (5-point scale) Mean rating = 3.7• Overall mean rating of skills learned (eg. Values, defusion)• Helpful = 4.2• Enjoyable = 4.4• READY program helped me become more resilient = 4.1• Recommend the READY program to others with MS = 4.5