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Kate Swaffer. 27 th International Alzheimer’s Disease International Science Fact or Fiction 7 –...
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Transcript of Kate Swaffer. 27 th International Alzheimer’s Disease International Science Fact or Fiction 7 –...
27th International Alzheimer’s Disease International
Science Fact or Fiction
7 – 10th March 2012 London United Kingdom
Person Centred Care• Define us by our assets• Speak to us, not about us• Work with us, not for us• Don’t diminish our symptoms• Value us• Individualise our support
We are mothers, fathers, lovers, daughters, wivesor husbands, employees or employers, grandmothers, aunties, bloggers...
Issues to be faced• Who will we become• A daily struggle between emotion
and tasks• Further decline• Shame isolation and stigma• Grief and loss• Fear of loss of privacy• Death
Dementia represents the end of dreaming, a long and unforgiving one way odyssey into obscurity, clouded in a thick and unforgiving fog.
Dementia care is caring for people who often do not know they need care, and don’t want to be in care; no wonder they may become angry and upset!
References
Barnett, AE, 2000, Including the person with dementia in designing and delivering care, Jessica Kingsley Publishers, London, UK.
Brooker, D, 2007, Person-Centred Dementia Care: Making services better, Jessica Kingsley Publishers, London, UK.
NOLAN M., DAVIES S., BROWN J., KEADY J. & NOLAN J., Beyond ‘person-centred’ care: a new vision for gerontological nursing, International Journal of Older People Nursing in association with Journal of Clinical Nursing 13, 3a, 45–53, 2004.
O’Rourke, V, 2008, I Wish I Were a Leper, Lumino Press, Qld, Australia.
O’Connor, D. & Purves, B., (Editors) 2009, Decision-making, Personhood and Dementia: Exploring the Interface, Jessica Kingsley Publishers, London, UK.