It Starts with One: Self-care & Retention

27
1 It Starts with One: Self-care & Retention April 19, 2012 For Audio: Dial-in#: 866.394.2346 Participant Code: 4182576142#

description

It Starts with One: Self-care & Retention. April 19, 2012. For Audio: Dial-in#: 866.394.2346 Participant Code: 4182576142#. Welcome & Introduction Agenda. Welcome & Introductions, 5 mins in+care Campaign Overview, 5 mins Self-care and Retention, 15 mins Learning from Each Other, 15 mins - PowerPoint PPT Presentation

Transcript of It Starts with One: Self-care & Retention

Page 1: It Starts with One: Self-care &  Retention

1

It Starts with One:

Self-care & Retention

April 19, 2012

For Audio: Dial-in#: 866.394.2346 Participant Code: 4182576142#

Page 2: It Starts with One: Self-care &  Retention

2

Welcome & IntroductionAgenda

Welcome & Introductions, 5 mins in+care Campaign Overview, 5 mins Self-care and Retention, 15 mins Learning from Each Other, 15 mins Promoting Self-care through Partners in+care, 5 mins

Conversation and Q&A opportunities throughout webinar

Page 3: It Starts with One: Self-care &  Retention

3

At the end of this webinar, you will know more about . . . What is self-care The role of self-care in retention Practical strategies for using self-care to support

retention How to use Partners in+care to support self-care and

retention

Welcome & IntroductionLearning Topics

Page 4: It Starts with One: Self-care &  Retention

4

Welcome & IntroductionGround Rules for Webinar Participation

Welcome This is a “public event.” If you have confidentiality

concerns . . .- Your names appear on-line in the list of webinar

registrants--consider just listening to the audio or viewing the webinar at a later time after it is posted at incarecampaign.org

- All webinars are recorded--do not use identifying information when asking questions

For Audio: Dial-in#: 866.394.2346 Participant Code: 4182576142#

Page 5: It Starts with One: Self-care &  Retention

5

Welcome & IntroductionGround Rules for Webinar Participation

Actively participate and write your questions into the chat area during the presentation; we will also pause for conversation during the webinar

Do not put us on hold Mute your line if you are not speaking (press *6, to

unmute your line press #6) Slides and other resources will be available on our

website at incarecampaign.org

For Audio: Dial-in#: 866.394.2346 Participant Code: 4182576142#

Page 6: It Starts with One: Self-care &  Retention

6

Welcome & IntroductionIntroduce Guests

Deloris DockreyDirector of Community OrganizingHyacinth AIDS FoundationNew Brunswick, NJ - [email protected]

Michael HagerManager, TA/DisseminationNQC, NY, NY – [email protected]

Bob TracyNQC Peer ConsultantSt. Paul, MN – [email protected]

Mike MaginnExecutive Director, Friends of People with AIDSPeoria, IL – [email protected]

Page 7: It Starts with One: Self-care &  Retention

7

The goal of the in+care Campaign is to bring patients back to care and keep others from falling out of care.

In+care Campaign Overview Welcome

For more information: www.incarecampaign.org

Page 8: It Starts with One: Self-care &  Retention

8

In+care Campaign Overview A Little More Information about in+care

Five Parts

Webinars/Meet Authors

Coaches

QI Projects &Data

Champions

Partners

Page 9: It Starts with One: Self-care &  Retention

9

The Role of Self-care in RetentionWhat is retention?

For more information about retention, visit the in+care Campaign website: www.incarecampaign.org

Stay in care / Return to care

Retention –having a routine for seeing your doctor/health care provider on a regular schedule

Doing this persistently – year-after-year-after-year

There is a relationship—a seemingly obvious relationship— between regular medical visits and improved health and reduced mortality. Research published in 2010 provides the first data to demonstrate the survival advantage of regular HIV care. [Giordano, 2010]

Page 10: It Starts with One: Self-care &  Retention

10

The Role of Self-care in RetentionModel for Chronic Care

YOU

Page 11: It Starts with One: Self-care &  Retention

11

The Role of Self-care in RetentionChallenges to Retention & Self-care

Personal. [e.g. disease knowledge, perceived illness, acceptance]

Structural [help remembering appointments, transportation] Financial

[insurance, public support – housing, food, etc.]

For more information about self-care, visit the NQC website: http://nationalqualitycenter.org/index.cfm/5943

Page 12: It Starts with One: Self-care &  Retention

12

Improve engagement & retention through self-care education: [personal]

Improve knowledge; dispel negative beliefs

High level of health literacy

Patient education combined with relationships

The Role of Self-care in RetentionEducation Promotes Retention

Visit www.incarecampaign.org – “Resources Tab” to learn about effective retention initiatives.

Page 13: It Starts with One: Self-care &  Retention

13

The Role of Self-care in RetentionSupport Promotes Retention

Visit www.incarecampaign.org – “Resources Tab” to learn about effective retention initiatives.

Improve engagement & retention: [structural & financial]

Reminder calls or texts

Transportation or other supports

Insurance that enables routine access to health care; know how to use care

Page 14: It Starts with One: Self-care &  Retention

14

Additional Questions? Contact us at [email protected]

The Role of Self-care in RetentionConversation

What “supports” work best?

Any questions?

What self-care strategies do you

use to stay in care?

Page 15: It Starts with One: Self-care &  Retention

15

Learning from Each OtherStories of Experience

Self-care education

Resource barriers

Lack of experience with routine health care

Personal strategies

Page 16: It Starts with One: Self-care &  Retention

16

Learning from Each OtherSuccess Stories from the Field

Download “Making Sure” at http://nationalqualitycenter.org/index.cfm/6176/13886

Order Copies: [email protected]

Offer “Making Sure” MCM clients

“Making Sure” curriculum / Self-care and advocacy skills

• Personal definition of quality• Introduction to clinical measures of quality• Learn about HIV• Seeking advice• Problem-solving and taking action; practicing health-promoting behaviors• Communication skills• Finding and valuing support of others peer support /

Page 17: It Starts with One: Self-care &  Retention

17

Learning from Each OtherSuccess Stories from the Field

Download “Making Sure” at http://nationalqualitycenter.org/index.cfm/6176/13886

Order Copies: [email protected]

• Improve routine visits with HIV care provider and routine viral load measurement

• Use curriculum to introduce “retention” and clinical measures for “retention” to help assess quality

Adapting “Making Sure” for Partners in+care

Page 18: It Starts with One: Self-care &  Retention

18

Learning from Each OtherStories of Experience

For more information: Contact Mike Maginn – [email protected]

Promoting Self-Care & Retention through . . .

Health education and self-care skill development Emotional support

Activities include . . .

Train peer navigators for state of Illinois 3-day training Prepare for formal or informal system support [i.e. work employment or volunteer peer support]

Central IL Friends of People Living with AIDS

Page 19: It Starts with One: Self-care &  Retention

19

Learning from Each OtherStories of Experience

Activities include . . .

Variety of tools for reflection & expression Advocacy skills [ID practical needs, advocacy plan, communication skills] Therapist, navigator, peer-to- peer experiences & support

Promoting Self-Care & Retention by . . .

Addressing impact that depression, isolation or stress can have on delaying care or inconsistent use of care

For more information: Contact Deloris Dockrey – [email protected]

The Wellness Community

Page 20: It Starts with One: Self-care &  Retention

20

Learning from Each OtherStories of Experience

Visit www.incarecampaign.org – Resources Tab to learn about effective retention initiatives.

What do we do to keep ourselves in care?

I want to strengthen my community. [Mike]

I just need to make sure I can get to the clinic without much hassle. [Bob]

I work on developing good communication and a good relationship with my provider and clinic staff. [Deloris]

Page 21: It Starts with One: Self-care &  Retention

21

Additional Questions? Contact us at [email protected]

Learning from Each Other Conversation

Any questions?

What’s your self-care plan to stay in

care?

What are some of the common

characteristics?

Page 22: It Starts with One: Self-care &  Retention

22

Partners in+careImproving Retention through Self-care

Visit Partners in+care web page

Sign-up to join the Partners in+care network

Encourage others to join the network

Visit www.incarecampaign.org – Partners Tab

Page 23: It Starts with One: Self-care &  Retention

23

Partners in+careImproving Retention through Self-care

www.incarecampaign.org

Submit your tips Describe the strategy

you use Post on Partners

in+care web page Need to be signed up

Page 24: It Starts with One: Self-care &  Retention

24

Partners in+care Webinar Series

in+care – Homelessness and Retention – Apr 26 [2 pm ET]

Partners in+care - Sharing the Benefits of Care: Reaching Out to Others – May 24 [2 pm ET]

Partners in+care - Making Retention Easier: Creating Systems that Work – Jun 28 [2 pm ET]

Partners in+care Webinar Archive at www.incarecampaign.org - Retention: Partners Make It Happen – Mar 22 - It Starts with One: Self-care and Retention – Apr 19

Page 25: It Starts with One: Self-care &  Retention

25

Partners in+care What We Will Accomplish

Share what we know so we all get better at: Seeing our doctor and HIV care providers on a regular

basis Reaching out and supporting others so they see their

doctors and HIV care providers on a regular basis – especially those who are new to HIV care or who have stopped regular visits

Making sure we all get the full benefit of care and treatment in order to improve our health

Page 26: It Starts with One: Self-care &  Retention

26

Sign up to be a Partner!

Campaign Headquarters:National Quality Center (NQC)90 Church Street, 13th floorNew York, NY 10007Phone 212-417-4730

[email protected]

incareCampaign.org

Page 27: It Starts with One: Self-care &  Retention

27

Partners in+care Selected References

Cheever, Laura. Engaging HIV-infected Patients in Care: Their Lives Depend on It, Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp 1500-1502. www.ceciliagrierson.org/puma/Retention%20in%20HIV%20Care%20%28Editorial%29.pdf

Giordano TP, Gifford AL, White AC Jr, et al. Retention in Care: A Challenge to Survival with HIV infection. Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp 1493-1499.

HIV AIDS Bureau. Self-Management and the Chronic Care Model. HRSA CARE Action. January 2006.

Rukeyser, Joseph. Making Sure You HIV Care is the Best It Can Be: A Consumer Quality of Care Training Workshop. National Quality Center. June 2002/Revised March 2010.