Issue 6 Summer Newsletter 20 2013
-
Upload
childrens-hospice-south-west -
Category
Documents
-
view
215 -
download
0
description
Transcript of Issue 6 Summer Newsletter 20 2013
Registered Charity No. 1003314
Registered Charity No. 1003314 Registered in England No. 2620879
Children’s Hospice South West Little Bridge House, Redlands Road, Fremington, Barnstaple, Devon EX31 2PZ Tel: 01271 325270
Children’s Hospice South West Charlton Farm, Charlton Drive, Wraxall, North Somerset BS48 1PE Tel: 01275 866600
Children’s Hospice South West Little Harbour, Porthpean Road, Porthpean, St Austell, Cornwall PL26 6AZ Tel: 01726 871800
Summer newsletter2013
www.chsw.org.uk www.chsw.org.uk
Help make a difference
How your money helps
Find an event happening near
you
p3
p14
p18
A regular gift makes a difference
You won’t need a stamp but if you choose to use one you’ll be saving valuable funds. Thank you.
You can make your donation worth even more when you
Decide what you can give
Complete this form (overleaf)
Return it FREEPOST to:Children’s Hospice South WestFreepost (SWB30894)BarnstapleDevonEX31 2ZZ
I want Children’s Hospice South West to treat all donations I have
made in the previous four years, and all donations I make from the date of this declaration as Gift Aid donations, until I notify you otherwise. I understand that I must pay an amount of United Kingdom income tax and/or capital gains tax (VAT and council tax do not qualify) at least equal to the tax that all charities and CASCs that I donate to will reclaim on my donations in the appropriate tax year (currently 25p for each £1 that you give).
In 2012 we claimed a staggering £165,000 in Gift Aid, it really is so valuable, so tick the box to Gift Aid and fill in the form on the back.
/chsw1991
@chswFor every pound you give us, we get an extra 25p if you Giftaid.
£10 a monthcould help run our specially
adapted mini buses, providing transport for family days out and
stays at our hospices
£10 a monthcould help run our specially
adapted mini buses, providing transport for family days out and
stays at our hospices
£5 a monthcould provide arts and crafts materials for fun-filled family
days in messy play!
£15 a monthcould provide families witha
home-cooked meal and the rare opportunity to eat together
during their stay
We
lcom
e / Re
gula
r giving
Welcome to our Summer Newsletter! Some of the children and families who find the care, support and companionship provided within our three hospices of help on their very difficult journey, have very kindly agreed to share their inspirational stories and beautiful pictures with you. This is very much a personal ‘thank you’ from them for the incredible support you give in raising awareness and funds for Children’s Hospice South West. We are also celebrating an extraordinary and most colourful first half of 2013, with the CHSW fundraising team and many of you across the South West creating your
own inspirational stories for us to share. This includes
CHSW holding the UK’s very first Rainbow Run and 80 very committed cyclists completing Ride for Precious Lives.
The funds and awareness raised by every supporter
are what allows Children’s
You can see this newsletter online too at www.chsw.org.uk/email-newsletter
In this edition are some wonderful supporter stories and friends group successes. Each one is inspiring and heartwarming and one of the many we are celebrating with you this summer.
Help make a difference by completing the short form on the back page.
Pass it on!When you’ve finished reading this share it with your family and friends.
Your regular gift really helps
32
Hospice South West to provide care across the whole of this extensive region of ours. When calling the CHSW Lottery ‘Our Raise a Smile Lottery’, that ‘our’ includes every person, group and organisation who has supported our charity. Together we are actually making a difference to children and families who have been given the most devastating news, and deal with such difficult circumstances every day. There are so many smiles and so much joy, as well as sadness, evident every time I step within Little Bridge House, Charlton Farm and Little Harbour. Thank you for your ongoing support, we are inspired by you and very privileged to be raising awareness and funds with you.Very best wishes
Alana Marie SmithDirector of Fundraising
Regular gifts are, along with Lottery subscriptions, our most reliable donations.You provide essential stability and continuation of service when signing up to a regular gift.Thank you for this continued support.
What your support can achieve:
Complete the form on the inside back page and return it Freepost.
Welcome
Without your help we could not provide this care
and support.
P 8/9: In celebration of Charlton Farm
P 6/7: Bristol alive with colour
P 10/11: A story from Little Harbour
P 12/13: An inspirational cycling event
P 14/15: Stories from Little Bridge House
P 16/17: Inspirational fundraising
P 18: Upcoming events
P 4/5: Bereaved mum runs the rainbow
P 19: Your regular gift really helps
Did you know....We supported 334 bereaved families in 2012.
Bere
ave
d m
um runs the
rainb
ow
Bereaved mum runs the rainbow
Support us ??????54 Why not share your story with us? – Contact your local hospice
One of our bereaved mums and her family and friends took part in the Rainbow Run in memory of her son Toby. Kim’s son Toby, who had cancer, died at Charlton Farm in 2008 aged 13. He was the first child to die at the hospice. This is Kim’s story in her own words:
CHSW has given our family so much support over the last
five years since our son Toby died; I don’t know how we would have coped without them. From the moment he first visited Charlton Farm Toby loved it, describing it as ‘cool’ – the staff always made him feel special.
The support we’ve had from the care team since Toby died has been amazing. I regularly meet up with the Star Mums. It’s such a help to talk to other people who are in a similar situation and to support each other.
Kim and Toby were able to share some great
times splashing around in the Jacuzzi (pictured opposite). Because they get the Jacuzzi to themselves,
families can totally relax and just enjoy being together.
Angie care team member at Charlton Farm
When we heard about the Rainbow
Run we thought it would be the ideal way to say
thank you to CHSW and a lovely thing to do in
memory of Toby.
Did you know....We support the whole family - including siblings, parents and carers.
Follow us on Facebook www.facebook.com/chsw1991 or Twitter @chsw
Did you know....we’ll be bringing a Rainbow Run to a town near you in 2014! Look out for details
Bristol alive
iwth c
olour for fam
ilies like
Loga
n’s
Support us ??????76
We brought Bristol alive in an explosion of colour when we celebrated the UK’s first ever 5k Rainbow Run. Runners started the event in white and ended up covered in all colours of the rainbow. It was a triumph - they raised a momentous £70,000
This is Logan with his Auntie Hannah and Charlton
Farm staff Jenny (one of our family contacts) and Karen. We had a wonderful
day and the atmosphere was as vibrant as the paint colours! Thank you to all who took part
and supported this event. I know all of the families that CHSW supports, including
ours, are very, very grateful!
I have done 100’s of runs and can honestly say
this one was one of the best by far.
Bristol alive with colour for families like Logan’s
Phot
ogra
phs,
this
page
& fa
r ri
ght,
by Jo
hn B
arw
ood
Phot
ogra
phy
a cracking event and I would encourage anyone to take part, the most fun I have had in
such a long time - Thank you!!
Thank you for an amazing day, ran in memory of
my nephew who you helped care for, he would of laughed his head
off seeing me do this for him!
Register to find out first whiere Rainbow Run will be in 2014 www.chsw.org.uk/rainbow-run-registerWe always need volunteers – contact your local hospice for more information
Phot
ogra
ph b
y th
e fa
mily
Did you know....A magnificent £8.5 million has been raised by our Friends Groups since the first group was set up in 1994.
In ce
leb
ration of C
harlton Fa
rm
In celebration of Charlton Farm
Did you know....We’ve made around 3,500 magnificent creations in Messy Play at Charlton Farm.
Support us ??????98
Cerys was born with a genetic disorder called Edwards Syndrome. Her parents Caroline and Sean describe her as beautiful, quirky and strong. Initially they were reluctant to use the hospice but all that changed with the care they received. Nothing was ever too much trouble and staff were on hand day and night if needed.
Charlton Farm whilst Cerys was staying at the hospice and have since gone on to form Cerys Cuddles - a local Friends Group - in her memory.From collections to speaking at corporate events, to taking part in events their drive and passion ensures the memory of Cerys will live on.
Children’s hospices are places of wonder
and happiness, filled with children and parents alike all of whom are truly inspirational.
The sun shone for the Charlton Farm Summer
Fete, an annual event loved by families and supporters.
See how your donations make a difference, visit us on an open day at Charlton Farm 01275 866600Making the most of short and precious lives across the South West
With a strong support network of family, friends and colleagues Caroline and Sean are instrumental in raising large amounts of money and tremendous awareness of our charity. They started fundraising for
Nicole’s illness means a part
of her brain is missing, which has left her with profound disabilities. She can’t walk or talk, has lots of seizures, requires a lot of medication and is registered blind. She is allergic to the sun, and very poorly so we have to stay in a lot. Despite this she is very vocal, likes to shout and loves people.
Family life though lively is very hit and miss as we have to make regular visits to the hospital.
I was apprehensive on our first visit as I expected to be bored
Little H
arb
our fam
ily story
Little Harbour family story
Join Sherry & Ashley on a Memory Walk; Falmouth 21st September or Saltash 5th October.
Sherry and her daughter Ashley have taken part in previous Memory Walks and are walking again this year in Falmouth.
Listening to the poems and the readings in the ceremony before
the walk is very moving. It’s an amazing event and I would encourage everyone to be part of it. You can’t describe the atmosphere, or how you’re going to feel. I’m no fitness fanatic but five miles is very achievable. It’s wonderful that people come out to support our children, to raise funds for Little Harbour. I’ve got my Memory Walk medals on my wall as I took part for Nicole. Everyone is walking for a reason,, whether for a child,
Support us ??????1110 Register, or help volunteer, for the Moonlight Memory walks at www.chsw.org.uk/moonlight See how your donations make a difference, visit us on an open day at Little Harbour 01726 871800
Family life can be hit and miss for our families but visits to the hospice enable them to feel part of a larger family. The hospice experience can appear daunting before a first visit but concerns are soon put to rest.Sherry Parsons and her partner Daniel use Little Harbour with their daughter Nicole who has Aicardi Syndrome, and her four siblings; Ashley, Toni, Mark and Harvey.
not allowed in public swimming pools so to see her in the Jacuzzi was amazing.
When we left it was only the second time in nine years that someone said “thank you for letting me look after her.”
The fact they enjoyed it meant the world to me, it tugged on my
heartstrings.
Our experience there was wonderful and the kids can’t wait to come back.
memory walk5th October 2013
moonlightSaltash
21st September 2013Falmouth
without all the caring, washing and cooking to do but it was so nice to do nothing and have Nicole with us without the responsibility. Nicole can deteriorate quite quickly but the care team took care of everything with confidence and skill. She even enjoyed her first splash in a Jacuzzi. Because of the risk of a skin infection she’s
mum, or brother or to support someone else. The walk introduces you to other people who have lost someone precious. Do it once and you’ll want to do it again!
The m
ost inspiring
cyc
le e
vent in the
South We
st
Support us ??????1312 Sign up for Ride for Precious Lives 2014 www.chsw.org.uk/ride
80 cyclists rode over 200 miles from Little Harbour to Little Bridge House and on to Charlton Farm in June. Inspired by the wonderful welcomes they received from the families staying at our hospices, the ride brought laughter, tears, pain and exhilaration and raised £70,000!
To have visited the hospices and met some
of the families and children was overwhelming and really
put everything into perspective as to where the money goes
and what a difference it can make.
An inspirational cycling event
Phot
ogra
phs
by T
his
Life
Pho
togr
aphy
Your support at events like this is invaluable – thank you!
We’re feeling a little nervous,
anxious and excited! But it’s a great way to raise money for
such a worthwhile cause. CHSW were brilliant at looking after Emily
and this was our way of giving something back.
The atmosphere has been great and the
camaraderie excellent. It’s tough but thoroughly
enjoyable.
I rode my bike the other dayOver the hills and far awayTo help a child I have not metBut a child that I cannot forget For this child is a special oneNot my daughter, not my sonBut someone’s loved one just the sameA cherished Jack or Jill by nameA child who, unlike mine it seemsMay never grow like parents dreamTo run and play out in the sunBut who is still a special oneA child who has a familyWho need support and empathyWho need to know someone to careA helping hand, a problem shareA child who needs a special placeWhere they can leave a little traceOf their life here with us and knowA world of caring, not of woeSo think of little Jack or JillAs you pedal up life’s hillIt’s worth a lot of pain and strifeTo help a little precious life
A poem by Bob Richards, a Ride for Precious Lives cyclist. RIDE FOR
PRECIOUS LIVES
The Chlopecki’s are a close-
knit family who benefit greatly from being able to spend time together at Little
Bridge House. The Games Room is the place they have most fun, a place they get to switch off
from the daily round of care. Their smiles and cheers were in abundance as they greeted
the riders. Pictured here with sponsors Edwards and their tandem.
Stories from
Little Brid
ge
House
Support us ??????1514
New outfits bought, and treatments applied for a girl’s night out at a local restaurant. Hair was curled, straightened, tweaked and back-combed. Nails were filed, polished and coloured and faces were made up like film stars. Lots of chatting and laughing meant the atmosphere and sheer enjoyment of the occasion was shared by all. Reflections on the day with night care staff show how much these occasions mean to our teenagers. Going out in the evening for our teens is a treat which we can facilitate at Little Bridge House – at home they would love to be spontaneous but often carers finish work at 6pm and as a teenager you don’t always want to go out with mum and dad!
I love the nails and pampering. Mum and dad get
to take my brother out and I get to come on my own.
Sophie, at Little Bridge House
From the moment you walk in
everything is special! The welcome, the care, the
activities, we are so grateful
We know she is being looked after
and they’re used to all her health problems. She’s been going for a year now and the staff all know her. You don’t
get just anyone looking after her.
It’s got really good facilities, the
people are incredibly caring and they do try very hard to get her
out and about
The Copp household is a busy one and life is unpredictable as 2 of their 4 children have a life-limiting illness. Family visits to Little Bridge House enable them to unwind, de-stress and spend time together before heading home to their hectic lives full of hospital appointments and caring for the boys.
Stories from Little Bridge House
Thoughts from families at Little Bridge House
Hearing the warm hellos,
Seeing all the familiar faces,
Smelling the outstanding cooking,
Tasting the amazing food,
Bouncing around in soft play,
Chit’ chatting all day,
Relaxing in the Jacuzzi,
Getting creative in messy play,
Putting on some tunes in the games room,
Having a magical time in Narnia.
All these things cheer me up when I
Come to Little Bridge.
A poem by Chloe Leigh (a sibling) age 12
about how she feels when the family stay at
Little Bridge House
Individual care and needs makes
a difference.
See how your donations make a difference, visit us on an open day at Little Bridge House 01271 325270Follow us on Facebook www.facebook.com/chsw1991 or Twitter @chsw
Inspira
tional fund
raising
Support us ??????1716
This small selection of your amazing events and activities celebrates your inspirational support of Children’s Hospice South West.
From the oldest to the youngest our Friends Groups demonstrate their commitment, creativity and care for the charity and through their tireless work raise awareness and funds across the whole of the South West to ensure we can give our families the best possible care - to name just a few:
Years were no barrier: supporter Ray Hales took to the skies at the tender age of 85
Showing no fear for raising funds Dave and his Golf Days have made more than a hole in one over the years – in fact they have raised £74,000
Proving no idea is too big or too small, Bridgwater FG has raised a staggering £250,000 (and counting) through events, collecting tins, and in-store collections.
Not for the faint hearted – more than 200 runners scrambled the Hartland Hartbreaker.
280 miles of non-stop riding for Georgia as Martyn and Stuart cycled from Exeter to Lands End
26 teams took part in the first ‘It’s a Charity Knockout’, raising in the region of £15,000. Pictured are the ‘Rockpool Rejects’, our Little Harbour care team.
Future editions of our newsletter will feature more of our supporters’ stories Join or start up a Friends Group – contact your local community fundraiser www.chsw.org.uk/friends-groups
The Launceston FG, which started in 1993, came about because Eddie and Jill asked them to join their ‘crazy scheme’. Each member has a role they feel comfortable with and gives as much or as little time as they can, including one lady who turns up at events with her rubber gloves and pinny, and is in the kitchen until everything’s clean.
Chulmleigh Friends Group have had so much fun over the years raising money for CHSW and at one of their earliest events, were joined by Jessie Fullbrook who has served the teas and coffees ever since. Their annual events include Jazz by the Riverside and Welly Boot Day, not to mention their Harvest Festival event in a pub, raising £139,665.70 since they started in 1991.
Bubbly Bubbles FG – Our newest and possibly youngest Friends Group – they started off by raising money on a sponsored 5mile bike ride and continue to organise regular Teddy Bears Picnics
Inspirational fundraising
Somerset Music Festival - ‘Sat In a Field’ 23rd - 25th August [email protected]
10 1918Up
com
ing e
vents
Could you challenge yourself, for us, this year? www.chsw.org.uk/challenge
I would like to help make the most of short and precious lives
Instruction to your Bank or Building SocietyPlease pay HSBC for the account of Children’s Hospice South West DD Account, A/C No: 12201712, Bank Sort Code: 40-14-13 subject to the safeguards assured by the Direct Debit Guarantee. I understand that this Instruction may remain with Children’s Hospice South West and if so details will be passed electronically to my Bank/Building Society.
Signature Date
I want to support your work but I am unable to give at the moment. We would be pleased to send you an acknowledgement, but if you would prefer not to be thanked for your gift, please tick here. We may wish to contact you in the future. If you do not want to receive any further information, please tick here. All the data we hold is gathered and managed in strict accordance with the Data Protection Act (1998). We will not disclose any information supplied by you to any third party organisations.
I wish to give £ each month starting on 16th of (month) (year) until further notice.
Mr Full name
Date of birth
Your address
Postcode
Tel no. Email
Mrs Miss Ms Other
Full name and address of your bank / building society
To: The Manager Bank/Building Society
Address
Postcode
Banks and Building Societies may not accept Direct Debit Instructions for some types of account
Please make an Instruction to your Bank or Building Society to pay by a Direct Debit
Originator’s Identification Number
FOR CHILDREN’S HOSPICE SOUTH WEST official USE ONLY. This is not part of your Bank or Building Society.
7 1 0 0 4 1
Account no.
Branch sort code
Name(s) of account holder(s)
A re
gula
r gift m
ake
s a d
iffere
nce
Upcoming EventsAugust4th Prudential Ride, London-Surrey11th Doggie Trek, Exeter
September7/8th Skydive, Perranporth 8th Skydive, Honiton14th Mountain Bike 4 Life, Dulverton15th Bristol Half Marathon21st Moonlight Memory Walk , Falmouth22nd Grand Pier Half Marathon, Weston-Super-MareOctober5th Moonlight Memory Walk , Saltash6th Royal Parks Half Marathon, London13th Great West Run, Exeter16th Firewalk, Marazion20th Portishead Half Marathon30th Firewalk, Newquay31st Firewalk, Street
2, 8 or 13 miles to enjoy aimed at all levels and designed for fun not endurance.
www.chsw.org.uk/bike4life01271 325270
Bring your four-legged friend and join us for a 9k or 4k walk.
www.chsw.org.uk/doggietrek01271 325270
FIREWALK01271 325270 www.chsw.org.uk/fire
ATLANTIC C H A L L E N G E
2014
Precious Lives
New for June 2014...
Celebrating memories with every step.
www.chsw.org.uk/moonlight01726 871800
memory walkmoonlight
In June 2014 Elliott Dale and Chris Walters will undertake arguably the toughest transatlantic rowing challenge, 3,246 miles from New York to the Isles of Scilly, as they attempt to break the current two men in a boat transatlantic record of 55 days, which has stood for 117 years.
2 men . 3246 miles . 55 daysgruelling Atlantic Oceanone world r ecordfor short and p recious lives
Remember to tick the Gift Aid box on the back of this form
www.chsw.org.uk/precious-lives-atlantic-challenge
Donate nowor find out more at