Introduction

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Cystic Fibrosis Tia Martin Rita Ripley Debbie Fields Heather Dorough Kyle Kopytko University of Phoenix June 28, 2009

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Cystic Fibrosis Tia Martin Rita Ripley Debbie Fields Heather Dorough Kyle Kopytko University of Phoenix June 28, 2009. Introduction. History of CF. Causes and Treatments. Data on affected population. 30,000 people in the US have CF 1,000 are babies Life expectancy 30s - PowerPoint PPT Presentation

Transcript of Introduction

Page 1: Introduction

Cystic Fibrosis

Tia MartinRita Ripley

Debbie FieldsHeather Dorough

Kyle Kopytko

University of PhoenixJune 28, 2009

Page 2: Introduction

Introduction

Page 3: Introduction

History of CF

•

Page 4: Introduction

Causes and Treatments

Page 5: Introduction

Data on affected population

• 30,000 people in the US have CF

• 1,000 are babies

• Life expectancy 30s

• Approximately one in 31 people are carriers of the CF gene

http://www.netterimages.com/images/vpv/000/000/000/131-0550x0475.jpg

Page 6: Introduction

Data on affected population

• Infants show early signs

• Symptoms: diarrhea, greasy stools, persistent cough, poor growth http://graphics8.nytimes.com/images/2007/08/01/health/adam/18135.jpg

Page 7: Introduction

Data on affected population

Ethnic Background

Risk of CF Mutation

Risk of Child with CF

Caucasian 1 in 29 1 in 3300

Ashkenazi Jewish

1 in 29 1 in 3300

Hispanic 1 in 46 1 in 8000-9000

African American

1 in 65 1 in 15,300

Asian 1 in 90 1 in 32,100

Page 8: Introduction

Economic Impact

• The annual cost of medical care in 2009 averaged $18,300 and ranged from $9200 among patients with mild disease to $83,300 among patients with severe disease.

• Of total costs:• 47% were from hospitalization• 18% were from DNase (Pulmozyme)• 12% were from clinic visits• 10% were from outpatient antibiotics.

• When the observed costs were used to estimate the costs of medical care for the entire population of CF patients in the United States, these costs were estimated to be about $814 million per year in 2009 .

• (Cystic Fibrosis Foundation, 2009)

Cystic fibrosis is the most common life-shortening genetic disorder among white individuals worldwide. Estimates of the costs of medical care have been based on expert opinion rather than observed costs.

Page 9: Introduction

United States Budget for Cystic Fibrosis

Page 10: Introduction

Prevention in the Community

• Keep children’s immunizations up to date

• No SMOKING and avoid secondhand smoke

• Use airway clearance techniques• Eat nutritious meals that are high in

calories• Have regular checkups • Seek care from specialized CF

centers

Page 11: Introduction

Education Resources

• Books and Other Written Materials- “Spirit of Lo” An Ordinary Family’s

Extraordinary Journey….life’s dance on the edge

of mortality by Terry & Don Detrich

An Introduction to Cystic Fibrosis for Patients and Families by James C. Cunningham, M.D. and Lynn M. Taussig, M.D.

“Now That I Have CF” Information for Men and Women Diagnosed as Adults by the editors of Cystic Fibrosis Australia, national CF site

Page 12: Introduction

Online Education Resources

• www.healingwell.com

• www.CysticFibrosis.com

• www.cellscience.com

http://www.livingwell.com/
http://www.cysticfibrosis.com/
http://www.cysticfibrosis.com/
http://www.cellscience.com/
Page 13: Introduction

Conclusion

• Gene therapy• Allele-specific therapies• Pharmaceutical approaches

http://www.discovery-diagnostics.com/Nanoduct_Neonatal_Sweat_Analysis.asp

Page 14: Introduction

References

Detrich, Terry, & Detrich, Don (2003). The Spirit of Lo: An ordinary family’s extraordinary journey (1st ed), Tulsa, Oklahoma, Mind Matters.

Cunningham, James C., Taussig, Lynn M (2003). An introduction to cystic fibrosis for patients and families (5th ed), Bethesda, MD: Cystic Fibrosis Foundation, Birmingham, AL: Axcan Scandipharm Inc.

Palys, B, Palys, J.R., Widerman, E. (2003), “Now that I have CF” Information for men and women diagnosed as adults,Western Australia, Solvay Pharmecueticals.

Alma, L. (2008). Treating Cystic Fibrosis. About.Com. Retrieved June 20, 2009, from http://cycticfibrosis.about.com/od/treatment/a/CFtreatment.htm.

Hamann, B. (2007). Disease: Identification, Prevention and Control. McGraw-Hill. RetrievedJune 20, 2009, from The University of Phoenix, rEsource, Introduction to Health and Disease Trends.

Littlewood, J. (2202). The History of the Development of Cystic Fibrosis Care. The UK CF Trust. Retrieved June, 23, 2009, from http://www.cystic fibrosismedicine.com/htm/docs/CFText/historyof.htm.

North, S. (2008). Cystic Fibrosis: A Brief History of the Disease in the United States. Associated Content. Retrieved June 23, 2009, from http://www.associatedcontent.com/article/516097/ Cystic_fibrosis_a_brief_hisotry_of.htm?cat=37.

Cystic Fibrosis Foundation, 2009. Economic Impact. Retrieved: June 19, 2009. Website: http://www.cff.org

Images-http://www.discovery-diagnostics.com/Nanoduct_Neonatal_Sweat_Analysis.asp

Davis, Pamela B., 2005, Cystic Fibrosis Since 1938, Centennial Review, American Journal of Respiratory and Critical Care Medicine, Vol 173

http://www.associatedcontent.com/article/516097/
http://www.cff.org/
http://www.cff.org/

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