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Increasing Organ Donation in NSW– Action Plan February 2013

Milestone/Deliverables Gov. Plan Outcome

Lead Target Date

Legislation

1. Human Tissue Act amendments 1,4 MoH Complete

2. Make Health Records Information Privacy Act Regulation 2002 to enable disclosure of information to the AODR 1 MoH Complete

3. Implementation of Legislative changes - update training materials and orientation programs

1 OTDS Complete

4. Designated Officer e-learning training module 1 MoH Complete

5. Develop Fact Sheets regarding changes to Human Tissue Act 1983 and RMS Registry and accessing and checking registries (RMS & AODR) and disseminate information widely

1 OTDS Complete

6. Training and messaging for Donation Specialists in hospitals regarding changes to the HTA and closure of RMS registry and new operational requirements

1 OTDS Complete

Streamlining to a single organ donation register

7. Memorandum of Understanding with Roads and Maritime Services 1 MoH Complete

8. Community Information Campaign to inform NSW residents about the changes and to encourage family discussion

1 MoH / OTDS

Complete

9. Finalise arrangements with the Commonwealth for the transfer of NSW organ donor consent data for the AODR 1 MoH Complete

10. Establish snapshot database within the NSW Organ and Tissue Donation Service 1 OTDS Complete

11. Close RMS Register 1 RMS Complete

Delivering Quality Services – Improving outcomes

12. Education targeting health professionals regarding the two pathways to donation 2.2 OTDS Nov 2012-Jun 2014

13. Identify clinical and community organ donation ‘leaders’ 2.4 OTDS Ongoing

14. Work with clinicians to continue to promote leadership and culture change in hospitals 2.4 OTDS Ongoing

15. Support clinical donation specialist teams to identify change leaders and support change in hospital attitudes to donation

2.4 OTDS Nov 12 – ongoing

16. Engage hospital executives to support organ donation 2.4 OTDS Nov 12- ongoing

17. Identify all opportunities for organ donations in NSW hospitals OTDS ongoing

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Milestone/Deliverables Gov. Plan Outcome

Lead Target Date

18. Developing a new model for placement of organ donation specialist clinicians in facilities with higher caseload of potential donors

3.1 OTDS Complete

19. Enhanced auditing of death in all NSW hospitals 3.2 OTDS Complete

20. Engaging health professionals around the expanded eligibility criteria for donors that are now in place through regular forums

3.3 OTDS Complete

21. Establish non medical workforce capacity to retrieve cardiac tissue after death.

3.4 MoH Commenced

22. The OTDS and ACI will work together on models to promote a culture amongst all hospital staff that supports organ and tissue donation and to remove barriers to organ donation.

3.5 OTDS Ongoing

23. Expanding specialist training for clinicians in conducting donor families conversations and enhance specialist staff skills through national quality improvement reform training designed by the Gift of Life Institute.

4.1 OTDS Jan-Jul 2013

24. Trialling a new model for approaching donor families for consent (independent ‘designated requesters’) 4.2 OTDS Underway

25. Run Australasian Donor Awareness Program workshops for nursing and medical staff. 4.2 OTDS Underway

26. Monitor international trends and emerging evidence around effective and innovative approaches to increasing organ and tissue donation.

4.3 OTDS Ongoing

27. Develop a Practice Guideline to document reasons for family’s objection to donation despite patient consent (where doctors accede to objection)

4.4 MoH Complete-

28. Review NSW Health Policy documents to ensure they are aligned with the national paired kidney exchange program and enable recruitment of willing donor and recipient pairs into this program as well as ‘altruistic’ kidney donors.

5 MoH Complete

29. Ensure provisions for financial support for ‘living donors’ are better understood and their use encouraged. 1.3 OTDS / MoH

Feb – Dec 2013

General Communication

30. Partner with Transplant Australia and liaise with the Commonwealth to explore opportunities for innovation. 1.1 OTDS Underway

31. Support national and local social marketing campaigns to promote family discussion of organ donor intent. 1.2 OTDS ongoing

32. Partner with Transplant Australia and liaise with the Commonwealth to explore opportunities for innovation. 1.1 OTDS TBA

33. Explore opportunities for innovation with new technologies and social media to promote registration as an organ donor.

1.2 OTDS ongoing

34. Promote the AODR 1.2 MoH / OTDS

ongoing

35. Increase awareness about donation 1.2 OTDS ongoing

36. Introduce eliciting organ & tissue donation preferences after death into early phase management of patients with chronic life-limiting illness in the Connecting Care Program

1.3 MoH / OTDS / ACI

Feb – Jun 2014

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Milestone/Deliverables Gov. Plan Outcome

Lead Target Date

37. Partner with a range of community, government and corporate agencies to promote factual information, normalise the conversation and discourage misconceptions about donation.

2.1

38. Include information about two pathways to donation in all relevant education sessions and forums. 2.1 OTDS ongoing

39. Partner with a range of community organisations in campaigns targeted to a range of culturally and linguistically diverse communities.

2.3 OTDS Oct ’12 - June ‘14

40. Implement local community initiatives aimed at increasing OTD awareness 2.1 OTDS ongoing

41. Local DonateLife staff engagement in community awareness and education programs 2.1 OTDS Sept - ongoing

42. Develop a community initiatives plan 2.1 OTDS Mar 2013

43. Promote information regarding the different pathways to donation 2.2 OTDS ongoing

44. Develop and maintain a NSW Calendar of Events and promote events through media 2.2 OTDS Ongoing

45. Work with AOTA and community organisations to implement community grants and groups leading up to and through Donate Life Week

2.3 OTDS Oct-Mar ‘13

46. Develop a community awareness plan and implement of range of local community initiatives aimed at increasing OTD awareness

2.3 OTDS Jan 2013

47. Negotiate the inclusion of organ & tissue donation / transplant resources for implementation through the National curriculum

2.3 OTDS Complete

48. Work with the Commonwealth government to maximise uptake of resources in curriculum under development 2.3 OTDS Dec 2013

49. Continue promotion of the DonateLife community advocates 2.4 OTDS Ongoing

50. Identify and encourage donor family members and recipients who choose to share their story publically 2.4 OTDS Ongoing

51. Develop appropriate information resource to make existing leave entitlements known to those recipients and their families who may be considering living donation

5 OTDS ongoing

52. Promote living donor program 5 OTDS ongoing

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Performance

Performance – Increasing organ Donation in NSW (DL Audit) Target 2010 2011 Jan-Jun 2012

1. Identification rate 100% 91% 92% 90%

2. Request rate 100% 82% 85% 85%

3. Consent rate 75% 52% 51% 45%

4. Organ Donation rate 75% 35% 33% 30%

Referrals January 2013

Actual Donors (BD + DCD)

Medical contraindications

Intended donors

Patient refusals

Family refusals

Coronial refusals

GANTT CHART

5

GANTT CHART

6

GANTT CHART

7

GANTT CHART

8

GANTT CHART

9