Imagine life without OCD · Imagine life without believe! Welcome to Liverpool ... OCD and...

OCD

OCD-UKSaturday 29th October 2011

OCD-UK Annual ConferenceArt and Design Academy, Liverpool

Imaginelife without

believe!

Welcome to LiverpoolA very warm welcome to Liverpool, and to OCD-UK’s annual conference. Behind the scenes, we have spent recent months fine tuning the arrangements for our conference today. We are very excited to be offering you a vast array of specialist speakers, which offers the opportunities to listen to, and understand, a diverse range of OCD related topics. We have also been proactive in listening to feedback from our Cambridge conference last year, and are delighted to include presentations that have been requested by our service users. And, of course, our conference wouldn’t be complete without personal inspirational stories, that will offer hope and evidence that OCD can be beaten!Whatever your reasons for attending our conference (as a sufferer, a carer, a friend or family member, or a health professional wanting to gain more understanding of OCD), we sincerely hope that you find this conference to be informative and inspiring, and will help guide you further on your journeys.Enjoy the conference.

Kylie Cloke - Chair of [email protected]

http://www.facebook.com/OCDUKhttp://www.twitter.com/OCDUK

Meet the Conference TeamOCD-UK is unique in that we are an independent service-led charity, meaning that we have always been managed by the very people that we serve – people affected by Obsessive Compulsive Disorder.

All of our volunteers, staff and management trustees have direct personal experiences of OCD, either as individuals with OCD or as a family member of an individual with the disorder.

By having this first-hand experience of OCD, the charity are ensuring that the best people are working with, and for, children and adults affected by the illness and that they are providing informed and independent choices that benefit the OCD community as a whole.

All the members of the OCD-UK team are able to fully understand and appreciate the debilitating nature of the illness, and the depths of despair and loneliness that are felt as a result. They are on board the team as they want to ensure that others affected by OCD are given the correct information, advice and support necessary to help overcome it.

Several members of the management team will be around today, so please do take a moment to say hello to them.

Ashley Fulwood, Chief [email protected]

Vanessa Rogers,Management Team

Ruth Clarke,Management Team

Catherine Mills, Vice [email protected]

The pain was intense. But the need to finish,in order to prove that I could do it, wasstronger. This was when all I could thinkabout was my OCD. I thought about howmuch time it had taken from me, how muchjoy and love it had stripped me of over theyears. How much suffering not only I hadgone through, but my dear friends andfamily. All I felt was anger. There was no way Iwas going to let this beat me.

- Claire raised over £3500 for OCD-UK by completing the2011 Virgin London Marathon

“

”

Run for OCD-UKin 2012.

PROGRAMME FOR THE DAY

9:45 - Kylie Cloke, Chair of OCD-UKWelcome and Conference Introduction

9:50 - Catherine MillsMy OCD Journey

10:05 - Sheila HamiltonAccessing psychological help for OCD in Liverpool and Sefton

10:20 - Professor Mark FreestonThe secret life of the dragons slayer

10:45 - Diana WilsonMy recovery from OCD

11:05 - Break (tea and coffee served)

11:30 - Professor Roz ShafranOCD and Perfectionism

12:00 - Dr Blake Stobie Developing help for family members

12:30 - Ian Puleston-DaviesIn conversation with Ashley Fulwood

13:00 - Lunch

13:45 - Professor Shafran and Professor FreestonUnderstanding IAPT

14:10 - Dr Elizabeth ForresterDare to be Dirty: Overcoming Fears of Contamination

14:30 - Claudine FranksMy OCD Journey - Despair to Discovery

14:40 - Dr Elizabeth ForresterTales from the Therapist’s Couch

15:05 - Break (tea and coffee served)

15:25 - Dr Stephanie FitzgeraldExperiences of those living with a partner with OCD

15:45 - Dr Emma Warnock-ParkesMental Contamination

16:10 - Dr Alison Roberts and Dr Lauren CallaghanRelationship OCD

16:35 - Professor Paul SalkovskisChecking and Reassurance

17:05 - Ashley Fulwood, CEO of OCD-UKConference closing remarks

OCD-UK Annual ConferenceLiverpool - Saturday 29th October 2011

Presentation Abstract: Catherine will describe her journey through life so far with OCD and related disorders. This will include the challenges that OCD has presented and how these continue to impact upon her life. However, it is also a story of hope and inspiration.

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Art and Design Academy, LiverpoolSaturday 29th October 2011

OCD-UK Fact:The charity was formed in 2004 by two people with

OCD, Steve Sharpe and Ashley Fulwood

Presentation 1: 9:50amPresented by Catherine Mills

My OCD Journey

Presentation 2: 10:05amPresented by Sheila Hamilton

Accessing psychological help for OCD in Liverpool and Sefton

Presentation Abstract: This presentation will provide a short description of how people can access NHS help in Liverpool and Sefton.Sheila will explain the different NHS treatment options that are open to people with OCD and will cover the services provided by primary and secondary care in adult and adolescent services.

About Sheila HamiltonSheila Hamilton is a Consultant Clinical Psychologist at Mersey Care NHS Trust. In addition to her clinical role, Sheila is the Lead Psychologist for Sefton, Kirkby and North Liverpool.

OoOCD-UK Conference 2011

About Catherine MillsCatherine is Vice Chair of OCD-UK and is presently working with Mersey Care NHS Trust, with a specific brief to look at quality and patient experience of mental health services.Catherine started out as an OCD-UK volunteer back in 2004, and has been a stalwart of the charity ever since.Catherine is also the co-facilitator of the Liverpool Support Group which usually meets on the first Wednesday of the month between 5:30pm and 7:30pm. For further information please visit www.ocduk.org/liverpool or visit the support group desk in the exhibition area today.

Presentation Abstract: In order to overcome OCD one needs to be ready for the long haul – it can be a quest of heroic proportions. Each situation confronted, each compulsion resisted, each obsession quietly left to one side is like battling a series of invisible dragons. This is hard work. This presentation considers self-care, self-kindness, and seeking support from others; things that

can makes the dragon slayer’s life a little bit easier and sustain the hero in their quest.

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“Fantastic conference, very well organised, Thank you!”- Feedback from the 2010 OCD-UK Conference in Cambridge.

[email protected]

Presentation 3: 10:20amPresented by Professor Mark Freeston

The secret life of the dragons slayer

Presentation 4: 10:45amPresented by Diana Wilson

My recovery from OCD

Presentation Abstract: Diana Wilson will briefly outline the differing stages of her OCD throughout her life. As an ex-sufferer she will also reflect on some of the contributing factors which helped her towards a full recovery.

About Diana WilsonDiana Wilson is a wife and mother to four daughters, and someone who has successfully overcome her OCD. Diana suffered with OCD for twenty-six years and only needed five hours of CBT to live the life she intended to and was meant to. Diana has been a volunteer for OCD-UK since 2005, and is a former trustee of our charity.Diana regularly speaks about her OCD to help educate health professionals and members of the public, and also currently facilitates the Ticehurst OCD support group in East Sussex

About Professor Mark FreestonMark Freeston trained in Quebec, Canada and conducted research into anxiety disorders, especially obsessive thoughts and worry. He moved to Newcastle upon Tyne in 2000 where he has a remit for training CBT therapists within the NHS at Newcastle Cognitive Therapy Centre and teaching research skills at Newcastle University. He chaired the NICE (2006) guideline for OCD and BDD.


Presentation Abstract: People can have OCD without being perfectionists and people can be perfectionists without having OCD. However, the combination of both OCD and perfectionism can be toxic. This presentation will present the latest understanding and treatment of ‘clinical perfectionism’. You will be given ways to see if you might have clinical perfectionism and,

if so, to work out how it may be contributing to the persistence of your OCD and what you can do about it.

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OCD-UK Fact:Everyone involved in OCD-UK has been

affected by OCD, either directly or indirectly.

Presentation 5: 11:30amPresented by Professor Roz Shafran

OCD and Perfectionism

Presentation 6: 12:00pmPresented by Dr Blake Stobie

Helping family members with OCD

Presentation Abstract: This interactive presentation will discuss the effects of OCD on family members and family members on OCD. Dr Stobie will summarise key points to consider when helping family members to fight OCD.Participants will be invited to ask questions and make comments in order to consider some of the challenges of

putting the theory into practice. Some common difficulties and possible solutions to these issues will also be considered.

About Dr Blake StobieDr Blake Stobie is a consultant clinical psychologist working at the Centre for Anxiety Disorders & Trauma (CADAT) at the Maudsley Hospital, and in private practice in London. Blake has specialised in the treatment of severe OCD for over 11 years, and runs a clinic which offers specialist national treatment for people with severe OCD and BDD. He is particularly interested in involving family members in treatment wherever possible, and has published in this area.


About Professor Roz ShafranRoz Shafran graduated from Oxford University in 1991 with a First Class Honours. She went on to work in Canada examining cognitive behavioural theories and therapies for a range of anxiety disorders, most notably OCD. After post-doctoral work in Canada, she returned to the UK to complete her clinical training. From 1999 to 2007 she received fellowships from the Wellcome Trust to work on cognitive behavioural theories and treatments of eating disorders.

Continued on page 11.

Presentation Abstract: Ian has suffered with OCD since childhood. One symptom of his illness is having to run through a mental checklist to help relieve his anxiety before he sets foot in the Rovers Return as tough talking businessman Owen Armstrong.Inspired by his own experiences he co-wrote the award-winning drama Dirty Filthy Love. Presented by fellow OCD

sufferer, Ashley Fulwood, they will chat unscripted about their experiences of coping with OCD and Dirty Filthy Love.

“This is first time at an OCD-UK conference, and I thought it was great. I feel much more hopeful now.!”- Feedback from the 2010 OCD-UK Conference in Cambridge.

[email protected]

Presentation 7: 12:30pmPresented by Ian Puleston-Davies and Ashley Fulwood

Dirty Filthy Love and my OCD

About Ian Puleston-DaviesIn 2004 Ian co-wrote the ITV drama, Dirty Filthy Love, a story about a man struggling to understand his OCD. In Ian’s own words. “I wanted to write about my experiences as an OCD sufferer-primarily to give people an insight into our strange little world! The film ‘Dirty Filthy Love’ was born out of that desire and I’ve been happy to talk about the film and my illness ever since. It has been unexpectedly quite liberating to be ‘out there’- sharing what were once my deepest darkest secrets. And, most importantly, without any shame or apology.”

They all supported OCD Awareness Week

October 2011

Sign up today to get involved forOCD Awarness Week 2012

OCD can be an isolating illness that leaves us feeling scared and alone, so please

do take a moment to introduce yourself and say hello to the person sitting next to you.Together, we can support each other.

Lunch: 13:00-13:45Our break for lunch allows attendees the opportunity to meet with other conference guests, or allows time to reflect on the morning’s proceedings. Whatever you choose to do, the OCD-UK Team will be around to answer any questions you may have.

OCD-UK ShopOur conference shop will be selling a selection

of informative self-help books, including the titles from some of our conference speakers.

Our shop products will be sold at special reduced conference prices today, with

all proceeds from each purchase helping support OCD-UK and

its work within the OCD community.

Presentation Abstract: Fears about contamination are one of the many ways in which obsessive-compulsive disorder presents itself. The nature of the worries can range from excessive concerns with dirt or germs, contact with certain substances, to ‘magical thinking’ type concerns like being tainted by association. Sufferers often do all they can to avoid feeling dirty and often

go to extremes. To be free of these kinds of worries, the challenge in therapy is to dare to be dirty…

Presentation Abstract: ‘Improving Access to Psychological Therapies’ has revolutionised the provision of talking therapies for those with anxiety and depression. This interactive discussion session will cover the basic aspects of these new services, help you to find your local service, and help you to work together with your IAPT therapist to get the most from treatment.

Presentation 8: 13:45pmPresented by Professor Roz Shafran and Professor Mark Freeston

Understanding IAPT

Presentation 9: 14:10pmPresented by Dr Elizabeth Forrester

Dare to be Dirty: Overcoming Fears of Contamination in OCD

About Dr Elizabeth ForresterDr Elizabeth Forrester is a Consultant Clinical Psychologist at the Centre for Anxiety Disorders and Trauma (CADAT), which is a specialist service in the research and clinical treatment of anxiety disorders in the UK.Having gained a wealth of clinical experience working in various mental health settings in the Midlands, Dr Forrester developed a particular interest in the treatment of OCD after moving to a research therapist post funded by the Wellcome Trust at the University of Oxford.

Continued on page 12.

About Professor Roz ShafranContinued from page 8.

Professor Shafran became the Charlie Waller Chair of Evidence-Based Psychological Treatment in April 2007 and Co-Director of the Charlie Waller Institute in January 2008. Her role includes the provision of training as part of the ‘Improving Access to Psychological Therapies’ programme and she trains therapists in the provision of cognitive behavioural therapy for OCD nationally and internationally.Her primary clinical and research interests are in OCD, eating disorders and perfectionism. She is also one of the authors of Overcoming Perfectionism.

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[email protected]

“Thanks a million to everyone involved, it was an incredibly moving, inspiring, empowering and informative conference”- Feedback from the 2010 OCD-UK Conference in Cambridge.

Presentation Abstract: It’s all very well hearing about the theory, but what is it like to have the problem? And even more to the point, what is it really like to work towards overcoming fears of contamination? A real-life story of terror, treatment and tuna sandwiches!

Presentation 10: 14:30pm - Presented by ClaudineMy OCD Journey - Despair to DiscoveryPresentation 11: 14:40pm Presented by Dr Elizabeth Forrester and ClaudineTales from the Therapist’s Couch: an OCD sufferer discusses her experience of CBT for contamination fears

Presentation 12: 15:25pmPresented by Dr Stephanie Fitzgerald

Experiences of those living with a partner with OCD

Presentation Abstract: There is increasing recognition among mental health professionals that OCD is a disorder which affects those around the individual with OCD as well as the individual themselves. However, very little research exists in this area. As part of her Clinical Doctorate Dr Fitzgerald conducted research into the impact that OCD has on the partners of those with OCD. She will be presenting

the outcomes of this research and explaining the implications for mental health practitioners and their clinical practice in the future.

About Dr Stephanie FitzgeraldDr Stephanie Fitzgerald is a Clinical Psychologist, working at the Charlie Waller Institute (Reading) and is involved with teaching and training health professionals to use CBT effectively with individuals with anxiety disorders and depression. Stephanie has a long-held interest in OCD and completed her Doctoral thesis in this area, looking at how the partners of those with OCD are affected by the disorder.

About Dr Elizabeth ForresterContinued from page 11.

She worked for several years with Professor Paul Salkovskis and then moved to London in 2000, when the CADAT was first set up.In addition to her regular clinical work, supervision and teaching engagements, Dr Forrester has made several contributions to national media including House of Obsessive-Compulsives on Channel 4 television, a Radio 4 Woman’s Hour feature on hoarding, and various publications.

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OCD-UK Fact:OCD-UK receives no external funding, and remainsreliant on public donations and fundraising support.

Presentation Abstract: Some people experience ongoing feelings of dirtiness and urges to wash without having come into contact with anything typically seen to be contaminating. This has been termed ‘mental contamination’. Recent theory of mental contamination suggests that past experiences of betrayal might be key in explaining why some people feel persistently dirty and compulsively wash. However, is it possible to wash away the past?

If not, how can we overcome feelings of dirtiness that might be related to past experiences? This presentation will look at current understandings of mental contamination and recent developments in treatment.

Presentation 13: 15:45pmPresented by Dr Emma Warnock-Parkes

Can we wash away the past? Current understandings and treatment for mental contamination

Presentation 14: 16:10pmPresented by Dr Alison Roberts and Dr Lauren Callaghan

Relationship OCD - should we approach this differently to other OCD

Presentation Abstract: ‘Is this relationship right for me?’, ‘Do I really love my partner?’, ‘Am I really attracted to my partner?’ These are common doubts that people may experience in relationships. However, for people with OCD, these doubts can be persistent and cause a lot of anxiety and distress. Relationship OCD, otherwise known as R-OCD, attracts a lot of attention in OCD forums, but is not given individual attention in OCD treatment manuals or guides. Alison and Lauren explore whether the obsessions people experience in Relationship OCD are qualitatively different to obsessions experienced in other forms of OCD, and what treatment strategies may be helpful in treatment for people with Relationship OCD.

About Dr Alison Roberts and Dr Lauren CallaghanLauren Callaghan and Alison Roberts are Clinical Psychologists based at the Centre for Anxiety Disorders & Trauma (CADAT) at the Maudsley Hospital, London. They work as part of the National Specialised Commissioned Treatment (NSCT) service which offers Cognitive Behavioural Therapy for people with treatment refractory OCD.

About Dr Emma Warnock-ParkesDr Emma Warnock-Parkes currently works as a clinician and researcher at the Centre for Anxiety Disorders and Trauma (Maudsley Hospital, London) and the Institute of Psychiatry (Kings College London). She obtained a degree in Psychology at Sheffield University before graduating in Clinical Psychology from the Institute of Psychiatry where she later also completed a diploma in Cognitive Behavioural Therapy.

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“Excellent conference, well organised. I was made to feel very welcome.”- Feedback from the 2010 OCD-UK Conference in Cambridge.

[email protected]

Presentation 15: 16:35pmPresented by Professor Paul Salkovskis

Why checking IS NOT reassuring, and why seeking reassurance IS checking


OCD-UK Fact:Remains the only OCD charity completely

run by sufferers, for sufferers.

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Presentation Abstract: One of the less obvious but highly problematic ways in which people with OCD carry out checking is by seeking reassurance. In this presentation Paul will explain how and why checking itself is counter productive, particularly focussing on the problems which arise from efforts to feel “just right”. Paul will explain the way in which reassurance seeking is in fact best thought of as a kind of “turbo-checking” which is part of the problem in OCD rather than part of the solution. However, he will also try to show how reassurance seeking is, for the many people suffering from OCD who are not receiving appropriate help, the only option open to them and to those around them.He will explain how the advice given by some mental health professionals to carers of those with OCD to stop giving reassurance is at best pointless and at worst harmful. It is unhelpful to suggest that people stop giving reassurance; instead, as part of CBT the person with OCD and those around them need to be helped to understand the way reassurance functions like checking. Once this is understood properly, the person with OCD can them work with their loved ones in ways which support them when they try to stop seeking reassurance. Reassurance is for many people suffering from OCD a major part of the problem; support is a major element of the solution to OCD for all those who suffer from it.

About Professor Paul SalkovskisPaul Salkovskis is Professor of Clinical Psychology and Applied Science at the University of Bath and visiting Professor at King’s College Institute of Psychiatry, London. He has worked on researching and treating OCD for many years, and recently co-authored the book, Break free from OCD.

Paul is a Patron of OCD-UK, and we very much welcome his longstanding commitment and support to our charity.

DR FIONA CHALLACOMBE, DR VICTORIA BREAM OLDFIELD and PROFESSOR PAUL SALKOVSKIS

This practical guide, written by three leading cognitive behavioural therapy (CBT) experts, enables you to make sense of your symptoms, and gives a clear plan to help you conquer OCD.

Published by Vermilion, £10.99 paperbackAvailable now from all good bookshops and online retailers

JOINTHE CHARITY!

Become a member of OCD-UK today to help us, help you

Become a member of OCD-UK today for just £16.50OCD-UK members received discount on their conference tickets today, in addition to other benefits, like copies of our magazine,

Compulsive Reading, website benefits, including access to previous conference recordings. You can still benefit from those savings by

becoming a member today for just £16.50 for the year (usually £24).www.ocduk.org/join

Let’s help support others still struggling with OCD!and let’s make a noise about OCD around the country

“About OCD-UKOCD-UK is unique in the fact that we are the only OCD charity in the UK that is completely independent and service user led, run by people affected by OCD, for people affected by OCD.The charity’s objective is to make a positive and meaningful difference in the everyday lives of people affected by OCD, by providing accessible and effective support services, and by campaigning for improved access and quality of treatment and care for people with the disorder.One of the ways we help people with OCD is by facilitating a safe environment for them to communicate with each other and to provide mutual understanding and support. Below is a list of the core aspects of OCD-UK’s work:- Offering direct individual support to those affected by OCD- Hosting OCD events around the whole of the UK- Facilitating support groups and social events- Providing one-to-one advocacy support- Lobbying the NHS for improved access to treatment- Supporting research into the cause and prevention of OCD- Producing and distributing specialist OCD information literature- Increasing awareness around the impact of the illness- Hosting OCD training workshops for health professionals

”OCD-UK AGM: 17:15-17:45The OCD-UK Annual General Meeting takes places immediately after our conference from approximately 17:15. All OCD-UK members are invited to attend our Annual General Meeting and meet the Chair and Management Team. Although this is a formality requested by the Charity Commission, we actually welcome the opportunity to present to our members about our achievements during the past year, how we have been helping those affected by OCD and our plans for the forthcoming year.

Charity userendorsements

You won’t need to be reminded of how important it is that OCD-UK goes from strength-to-strength. However, it’s a fact of life that funding is the key to OCD-UK’s ability to

further the aims of the charity.

WE RELY ENTIRELY ON PUBLIC SUPPORT!

“ OCD UK has changed my life and I can’t thank you enough for that! ”Paul - December 2010

“ Thank you to you and all at OCD UK - you really are life savers at times. ”Laura - December 2010

“ 5 weeks ago I was feeling pretty suicidal, I in-vestigated my symptoms and after finding your fantastic website I think I may now have some form of OCD. This has helped me greatly, I thank every one of you who help with this site, as now you have given me knowledge and strength. THANK YOU SO MUCHSteven - January 2011 ”

Take a leap of faith like Simon,

and fundraise for OCD-UK

Mersey Care NHS Trust has a national reputation for service user and carer involvement.

Based in and around Liverpool, the Trust aims to enable serv-ice users and their carers to make the most of their health, life experience and citizenship.

It takes a human rights-based approach to the way it provides its mental health, learning disability and addiction services.

Mersey Care is keen to engage with everyone affected by mental health and ensure accountability is at the heart of en-gagement. One way it is doing this is to establish a Members’ Council, an advisory committee to the Trust Board.

You can help us by simply joining in…

Mersey Care is establishing a membership of people who have an interest in mental health – whether that’s a specific service, championing rights or tackling stigma, we want to hear from you.

Please fill in an application form at the conference. For further information telephone 0151 473 2885 or

Email: [email protected]

Or go on line to Join In…

Improving Mental Health

JOIN IN...

www.merseycare.nhs.uk

OCD-UKOCD-UK, PO Box 8955, Nottingham NG10 9AUTelephone: 0845 120 3778 Website: www.ocduk.org Email: [email protected]

If you found this conference helpful, please consider supporting the work of OCD-UK by becoming a member or participating in a fundraising event during 2012.

Registered Charity Number: 1103210

Dr Linda Papadopoulos and model and TVpresenter, Lisa Butcher running for OCD-UK.

Imagine life without OCD · Imagine life without believe! Welcome to Liverpool ... OCD and...

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