Identifying and addressing barriers for CALD carers · 2016. 4. 8. · Program (NCCP) • Carers...

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7 November 2013 Identifying and addressing barriers for CALD carers Yve Gritschneder Policy and Development Officer

Transcript of Identifying and addressing barriers for CALD carers · 2016. 4. 8. · Program (NCCP) • Carers...

Page 1: Identifying and addressing barriers for CALD carers · 2016. 4. 8. · Program (NCCP) • Carers NSW offers a range of counselling services to carers across the state • One‐on‐one

7 November 2013

Identifying and addressing barriers for CALD carers

Yve GritschnederPolicy and Development Officer 

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Contents

1. Overview of Carers NSW 2. Findings from the Carers NSW Survey 

20123. How to support CALD carers?

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Carers NSW

Carers NSW represents the849,700 people of all ages in NSW, who provide informal care and support for family members or friends with a disability, mental illness, drug and alcohol dependency, chronic condition or who 

are frail

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What does a carer do?• Personal care‐ showering, dressing, feeding• Collect prescriptions from pharmacies• Administer medications & observe side effects• Liaise with health professionals• Make appointments & follow ups• Arrange or provide transport to appointments• Emotional support • Purchase equipment/aids• Meal preparation, cleaning, shopping, gardening• Phone calls to check in • Interpret health information• Visit the consumer if they are hospitalised• Help family members & friends understand what is going on

• Care co‐ordinator• Advocate• Lifestyle coach• Home helper• System navigator

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Number of Carers

In Australia, there are 2.7 million carersincluding 769,800 primary carers 

(Australian Bureau of Statistics 2012)

In NSW, there are 849,700 carers including  264,300 primary carers

(Australian Bureau of Statistics 2010)

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Diverse carers in NSW There are at least:• 100,200 Young carers,(under 25 years old)

(Australian Bureau of Statistics 2009)

• 186, 934 CALD carers, and • 14, 989 Aboriginal and Torres Strait Islander carers (15+).

(ABS 2011)

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Value of care It is estimated that carers provide 74% of all care needs in the 

community 

Carers have been described by the National Health and Hospital Reform Commission as the “invisible health workforce”

Across Australia, unpaid care for adult family members and friends is worth $40.9 billion per year

In NSW, this equates to $13.5 billion

(Access Economics 2010)(ABS 2003)

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2. Carers NSW 2012 Carer Survey• Biennial survey of carers in NSW to inform our advocacy work

• 1,916 respondents in 2012:84% female17%  CALD carers 15% speaking a language other than English at home 

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Survey Findings CALD carers in the workplace

76%

65%68%

54%

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

An employer aware of caring role A workplace supporting them inworking and caring role

CALD working carers less likely to have: 

non‐CALD

CALD

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Findings (cont.)CALD carers and service providers

2.9

3.6

2.9

3

3.1

3.2

3.8

3.2

3.3

3.3

1 2 3 4 5

take carer's views/needs intoaccount

respected care relationship

 own needsacknowledged/respected

recognised/supported carer'schoices

recognised carerknowledge/experience

Rating scale out of 5

CALD carers were less likely to agree that the organisation supporting the person they care for

non‐CALD CALD carers

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Findings (cont.)

78%

50%

14%

27%

41%

62%

34%

30%

44%

53%

0% 20% 40% 60% 80% 100%

Carers who used GP for own support

Carers who have used psychologists for own support

Carers who used Carer Line for own support

Time constraints prevent carer fromgetting support

Carers not knowing where to go for support

Mental Health and CALD carers

CALD non‐CALD

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Findings (cont.)

6%

12%

12%

44%

12%

5%

7%

36%

0% 20% 40% 60% 80% 100%

Carers who don't know where to go for ownmental health needs

Carers who go to psychologist for own mentalhealth needs

Carers who go to counsellor for own mental healthneeds

Carers who go to GP for own mental health needs

Mental Health and CALD carers

CALD non‐CALD

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Summary of main findings• Employers are less likely to be aware of caring role of CALD carers and less supportive;

• Service providers are less likely to recognise experience and knowledge of CALD carer, to respect CALD carers caring relationship and to take CALD carer views into account.

• CALD carers less likely to use health professionals for their own mental health needs, rather calling CNSW Carer Line.

• CALD carers don’t know where to go to get mental health support. 

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Other issues and barriers• Different interpretation or lack of awareness of the term ‘carer’ and available carer supports;

• lack of identification as a carer by professionals, and subsequent lack of referrals due to the perceptions made about the carer's role in their family;

• lesser uptake of Centrelink carer payments, benefits and concessions;

• problems with the cultural appropriateness of assessment processes and eligibility criteria;

• lack of choice between mainstream and culturally‐specific carer services, such as respite, carer   counselling, and support groups;

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Other issues and barriers• concerns about the cultural appropriateness and competency of services;

• lack of involvement in service planning, implementation and evaluation;

• lack of availability of bilingual and culturally and linguistically diverse staff;

• lack of carer information and resources translated into different languages; and

• issues relating to the quality of interpretation services.Source: Carers Australia, 2013

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3. How to support CALD carers?

Carers NSW provides a variety of programs and services for carers and service providers:

• Carer Line • National Carer Counselling Program• Young Carers Program • Older Parent Carer Program • Better Start for Children with Disabilities• The together program• Education and Training 

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a) CALD carer focus groups• Focus groups with different CALD communities inform our program design and support services, e.g.The together program• A co‐ordinated state‐wide program resourcing a Network of 

support groups for carers of people with a disability across NSW. 

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b) CALD carer representatives• The Carer NSW Carer Representation Program • Aim:

Inform Carers NSW, service providers, government, professionals and the broader community of carers’ needs and views

• 17 CALD carer representatives out of 78 Carer representatives overall (22%)

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c) Tailored services for CALD familiesOlder parent carer (OPC) program

• Delivers a flexible, family‐centred Case Management service 

• In 2012‐13, 92 OPCs and their families were assisted:– 15.2% Greek, – 6.5% Lebanese, – 5.4% Italian, – 4.3% Columbian OPCs vs 46.7% Australian OPCs 

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Tailored services for CALD familiesBetter Start for Children with Disability program

• Early intervention initiative for children with eligibledisabilities and funded by the DSS

• Children who are registered can accessup to $12,000 in funding for early intervention services and additional Medicare items.

• In 2012‐13, 14.9% of children who registered for the program were from CALD families. 

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d) Tailored support for CALD carersCarer Line 1800 242 636• Provides carers and service 

providers with referral to services and tailored information and resources to support carers in their caring role.

• Free telephone interpreter services are usually available.

• In 2012‐13, 11.2% of callers to the Carer Line identified as CALD carers. 

National Carer Counselling Program (NCCP)• Carers NSW offers a range 

of counselling services to carers across the state 

• One‐on‐one counselling in LOTE is available on request. 

• In 2012‐13, 11.2% CALD carers accessed NCCP services. 

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Tailored services and support for CALD carers

Young Carer Program• Young Carers (YCs) are children and young people, 25 years or 

under, who are in a caring role.

• Young Carer program is:A central point of contact for YCRaising awareness about YCSupporting  YC to complete secondary education 

• In 2012‐13, 40% of YCs who contacted the YC program identified as CALD (new contacts).

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Tailored services for CALD carersCarers NSW Education and Training team

Carers:• Carers NSW provides education for carers and carer support groups

across NSW. • They provide information, knowledge and skills for carers. • The education sessions can be delivered with an interpreter if 

needed.

Service Providers:• Education for both government and non‐government organisations 

and service providers who work either directly or indirectly with carers. 

• To develop the awareness of service providers of carer issues and to build their capacity to provide information and support to carers.

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e) Projects targeted at CALD carersMulticultural Carer Awareness Initiative

• Raising awareness of CALD carers through the distribution of the posters to GP practices in the SESLHD area in collaboration with the Eastern Sydney and South Eastern Sydney Medicare Local offices.

Page 25: Identifying and addressing barriers for CALD carers · 2016. 4. 8. · Program (NCCP) • Carers NSW offers a range of counselling services to carers across the state • One‐on‐one

Contact 

Ph: (02) 9280 4744Carer line:1800 242 636

[email protected]

www.youngcarersnsw.asn.au