I INTERNATIONAL CONFERENCE: TRANSFER OF

KNOWLEDGE ON RESPIRATORY MANAGEMENT

IN DMD

ORGANIZATION

Duchenne Parent Project Spain (DPPE)

Coordinator

Dr.Marisol Montolio (DPPE)

OBJECTIVES

To favor the transfer of knowledge in the Pneumological field within the DMD

I INTERNATIONAL CONFERENCE: TRANSFER OF

KNOWLEDGE ON RESPIRATORY

MANAGEMENT IN DMD

Hospital de la Santa Cruz y Sant Pau, Barcelona

SALA POLIVALENT

HOW TO GET TO THE WORKSHOP:

Metro

Linea 4: Guinardó / Hospital de Sant Pau

Linea 5: Sant Pau / Dos de maig

Autobuses

C/Sant Quintí: 192 C/ Sant Antoni Maria Claret: H8 - 19 - 20 - 45 - 47 - 50 - 51- 117

COLABORATORS

PROGRAM

13:15– 13:45 Adult Respiratory Physiotherapy

Physiotherapist of Hospital Vall d’Hebron: Mª Jose Pauta Puig

Physiotherapist of Hospital Sant Pau: Macarena Segura

DISCUSSION

13:45-14:00 Key learnings from an International Survey about respiratory care on people affected by Duchenne Muscular Dystrophy.

Vanessa Ferreira, PhD. Santhera

14:00-14:15 General Discussion & Closure

14:15-15:15 Brunch

09:30 –10:00 Reception & Registry

10:00 –10:10 Opening

Silvia Ávila, President Duchenne Parent Project Spain

10:10 –10:20 Objectives

Dr. Marisol Montolio, Scientific Director Duchenne Parent Project Spain

10:20 – 11:10 Respiratory: Pediatric

“Pathophysiology, Anamnesis and physical examination of the patient with DMD” Dra. Alba Torrent, Hospital Vall d’Hebron, Barcelona

“Respiratory function of the patient with DMD” Dra. Maria Cols, Hospital St. Joan de Déu, Barcelona

“Current evidences for the treatment of respiratory decline in patients with DMD” Andrea Vianello, MD, PhD Professor, Universidad Padua

DISCUSSION

12:00– 12:45 Pediatric Respiratory Physiotherapy

“Efficacy of Respiratory Physiotherapy in Children with DMD” Silvia González Zapata, PhD. Sevilla

“Pediatric Respiratory Physiotherapy” Enric del Campo Hospital Sant Joan de Deu, Barcelona

DISCUSSION

11:10 – 11:25 “DELOS & SIDEROS” Silvano Bertoli, Santhera, Switzerland

11:25 – 12:00 Coffee Break

12:45 – 13:15 Respiratory: Adults

“Adults Ventilation in DMD I” Eva Farrero, MD/ Enric Prats, MD. Hospital Bellvitge, Barcelona

“Adults Ventilation in DMD II” Emilia Barrot, MD. Hospital Virgen del Rocio, Sevilla

DISCUSSION