“I don´t need to be angry anymore, because now I can decide for myself!” (Ruth 66) Bjørn-Eirik...

“I don´t need to be angry anymore, because now I can decide for myself!” (Ruth 66)

Bjørn-Eirik Johnsen e- mail: ([email protected])Leif S, Lysvik e-mail: ([email protected])Terje Thomsen e- mail: ([email protected])

Academic staff at Harstad University College in Norway.

SHLD ConferenceThe Open University, Milton Keynes, 8th July 2013

SHLD Conference The Open University, Milton Keynes, 8th July 2013

All Norwegian institutions closed down in 1991 because of:

Unworthy living conditions inside institutions

Wrong to isolate people only on the basis of their

diagnosis


This is Ruth

• A lady in her 60- ties• A former inmate at an institution• Many interests• Creative

Collector

Writer

A photographer

Engaged in sports

Enjoys nature

http://www.google.no/url?sa=i&rct=j&q=&source=images&cd=&cad=rja&docid=8MfmPTIw7ubLLM&tbnid=lZZJWyQSsP1JIM:&ved=0CAUQjRw&url=http://www.oblad.no/ski/nerver-ga-teknisk-svikt-i-svomme-nm-1.6362994&ei=sN62Uf_eE4jltQb5t4CIDw&bvm=bv.47534661,d.Yms&psig=AFQjCNEuMdGDvhN3tOvq_ZYsDx0x4Z9ImQ&ust=1371025422456688

http://www.google.no/url?sa=i&rct=j&q=&source=images&cd=&cad=rja&docid=wlMQvTmmu6ZR7M&tbnid=eD0gf_GxEl66rM:&ved=0CAUQjRw&url=http://hegeslivsstil.com/en-herlig-skogstur/%E2%A8%AA&ei=7N62UaLzL4beswaixIHwCg&bvm=bv.47534661,d.Yms&psig=AFQjCNFXkAhLGC3YhJeBxuyTv7fLm8Hbnw&ust=1371025505881070

http://www.google.no/url?sa=i&rct=j&q=&source=images&cd=&cad=rja&docid=GIuKx-I0vELNOM&tbnid=j4HjegPiJBdKDM:&ved=0CAUQjRw&url=http://katrinekalmoe.blogg.no/1246834877_06jul2009.html&ei=A-S2UabINYmTtAb1r4DQDg&bvm=bv.47534661,d.Yms&psig=AFQjCNGCZZ_LhN1ZsFzFf6gCvYacu2tPLA&ust=1371026687697554

http://www.google.no/url?sa=i&rct=j&q=&source=images&cd=&cad=rja&docid=Zl1yEvNDtkpQRM&tbnid=87gH-SCBFp_DXM:&ved=0CAUQjRw&url=http://www.aasanetrelast.no/page.php?artid=6&selected=351&ei=Aee2UcKNMsLRtAaxwoHwDA&bvm=bv.47534661,d.Yms&psig=AFQjCNHdQg8yL4Jg2Vlq7Tl5bQSS2DgtJA&ust=1371027560214890

http://www.google.no/url?sa=i&rct=j&q=&source=images&cd=&cad=rja&docid=VZbu7imF32tMlM&tbnid=H1zro7mdEbVd1M:&ved=0CAUQjRw&url=http://www.bentesboutique.no/ting/index.html&ei=t-e2UePlGIfltQaHy4DwCQ&bvm=bv.47534661,d.Yms&psig=AFQjCNGjT1yPRYWvGk60P0oDJp9AjBff-Q&ust=1371027759775924


Ruths story: inside the institution

• Missed her parents and felt terrible

• Regarded as unstable

• Tried to adapt

• Forced to give up personal stuff

• No use in protesting

• Hoped to die.

• Ruth: It was hopeless– Denied free entrance– Denied free access to food or

drink– Force fed with medicine


Outside the institution: The first years

• Her own apartment inside the

municipally.

• Same staff – same regime - same difficulties

• Her own key, her own mailbox, her own telephone, and so on.

BUT

http://www.google.no/url?sa=i&rct=j&q=hvpu+bolig&source=images&cd=&cad=rja&docid=WKT2lpzzQb1yfM&tbnid=JG26o_qY3dS4gM:&ved=0CAUQjRw&url=http://www.nrk.no/rogaland/1.7905350&ei=fTPMUa6gK8nXsgaQn4DIBg&bvm=bv.48340889,d.Yms&psig=AFQjCNFuSlTDj9DiDJHulqQWO6GPt9JTZw&ust=1372423368983211

http://www.google.no/url?sa=i&rct=j&q=hvpu+bolig&source=images&cd=&cad=rja&docid=PIkdLDHNZQt0YM&tbnid=orUbn9_7s1fUhM:&ved=0CAUQjRw&url=http://www.aei.as/inneklimaspesialisten/html/refbolig.htm&ei=7jPMUZ3qKsXRtAaH7IHADg&bvm=bv.48340889,d.Yms&psig=AFQjCNHsw5hZNiUwMikWAb5QBOMPTH2jZg&ust=1372423478576378

http://www.google.no/url?sa=i&source=images&cd=&cad=rja&docid=tbW7lURwJJdvxM&tbnid=cBVYO_nXoL5wRM:&ved=0CAgQjRwwAA&url=http://blog.kak.net/2008/05/23/reklamefri-hverdag/&ei=NjvMUcnwCIXTsgaA84DIDQ&psig=AFQjCNFn4uIUZwJpy2Cc4EiVvYjls8KDhg&ust=1372425398209268

http://www.google.no/url?sa=i&source=images&cd=&cad=rja&docid=YKaO-6-pcmgynM&tbnid=VMbcoY6hZQZiwM:&ved=0CAgQjRwwAA&url=http://idrett.speaker.no/organisation.asp?WCI=wiKlubbKassaNews&WCU=1317541&CatId=196593&ei=2zvMUb2YEsmbtQa5_QE&psig=AFQjCNGRwBwDSvnX0AIH2mlnk7Zs2Q9OOw&ust=1372425563404900


Outside the institution: resent years

Gradually, Ruth experienced having more influence

Important milestones:

1. Ruth was given a say over which of the service providers was allowed to work with her

2. The service providers were trained to respect Ruth’s everyday wishes/ self determination

3. Ruth became a true participant in meetings where decisions regarding her everyday life were made.

http://www.google.no/imgres?imgurl=http://psyknyheter.files.wordpress.com/2011/09/downssyndrom.jpg&imgrefurl=http://psyknyheter.wordpress.com/category/psykisk-utviklingshemming/&docid=PFuDViarEiyKiM&tbnid=pHuphztuRvVxZM:&w=283&h=424&ei=sVHAUeCVF42Rswa5-IGoCg&ved=0CAIQxiAwAA&iact=rics


Summary

• Physical living conditions improved

• Same staff same problems

• A gradually change of attitude.

• Today she makes her own independent decisions regarding her everyday life.

http://www.google.no/url?sa=i&rct=j&q=hvpu+bolig&source=images&cd=&cad=rja&docid=PIkdLDHNZQt0YM&tbnid=orUbn9_7s1fUhM:&ved=0CAUQjRw&url=http://www.aei.as/inneklimaspesialisten/html/refbolig.htm&ei=7jPMUZ3qKsXRtAaH7IHADg&bvm=bv.48340889,d.Yms&psig=AFQjCNHsw5hZNiUwMikWAb5QBOMPTH2jZg&ust=1372423478576378

http://www.google.no/url?sa=i&rct=j&q=hvpu+bolig&source=images&cd=&cad=rja&docid=WKT2lpzzQb1yfM&tbnid=JG26o_qY3dS4gM:&ved=0CAUQjRw&url=http://www.nrk.no/rogaland/1.7905350&ei=fTPMUa6gK8nXsgaQn4DIBg&bvm=bv.48340889,d.Yms&psig=AFQjCNFuSlTDj9DiDJHulqQWO6GPt9JTZw&ust=1372423368983211

http://www.google.no/imgres?imgurl=http://psyknyheter.files.wordpress.com/2011/09/downssyndrom.jpg&imgrefurl=http://psyknyheter.wordpress.com/category/psykisk-utviklingshemming/&docid=PFuDViarEiyKiM&tbnid=pHuphztuRvVxZM:&w=283&h=424&ei=sVHAUeCVF42Rswa5-IGoCg&ved=0CAIQxiAwAA&iact=rics


The future

An open society? or a closed society?

FIGHT FOR IT !?

http://www.google.no/url?sa=i&rct=j&q=selvbestemmelse&source=images&cd=&cad=rja&docid=ctTscrMCm5O3NM&tbnid=EOAkf_cEESnTsM:&ved=0CAUQjRw&url=http://xn--rdt-0na.no/forside/arkiv/arkiv-2009/artikler-og-kommentarer/hva-mener-r%C3%B8dt-om-tamilsp%C3%B8rsm%C3%A5let/&ei=TjbMUYydAcXsswag8oGoCQ&bvm=bv.48340889,d.Yms&psig=AFQjCNHGnhiTBJbaFdfeBapToOinPjLwwA&ust=1372423925052443

“I don´t need to be angry anymore, because now I can decide for myself!” (Ruth 66) Bjørn-Eirik...

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