How to Measure Functional Vision and O&M...

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CRICOS 00111D TOID 3069 How to Measure Functional Vision and O&M Outcomes with VROOM & OMO Lil Deverell COMS PhD

Transcript of How to Measure Functional Vision and O&M...

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CRICOS 00111D

TOID 3069

How to Measure Functional Vision

and O&M Outcomes with VROOM & OMO

Lil Deverell COMS PhD

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Outline

1. Measuring O&M outcomes

• Constructivist (not objective) measures suit O&M

• “Functional” inquiry defined

• O&M environmental complexity scale

2. VROOM & OMO tools

• Practice

• Critique

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We need measures in O&M

1. To benchmark functional status• Compare needs, triage referrals

2. To account for fluctuations• Lighting, fatigue, stress

3. To track disease progression• Deteriorating vision, arthritis, aging

4. To evaluate functional outcomes• O&M programs – aids, travel strategies

• Vision restoration treatments – bionic eye

• Lifestyle/wellbeing programs – social skills, diet, exercise

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Problems measuring O&M

Hybrid research – incongruentHuman behaviour can be interpreted many ways

Objectivity vs constructivism

Mixed methods research Clinical trials = QUANT/qual priority

Functional research = QUAL/quant priority

Checklists and rating scalesMost don’t aggregate to a single score

What to measure?Speed and obstacle tallies are not important to clients

Need to capture functional, dynamic complexity

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The solution needs to…

Fit with ordinary O&M assessment

– Practice-based evidence

Embrace person-centred practice

– Anyone, any age, any ability, anywhere, any time

Be holistic

– Reflect walking and wellbeing

Show precise changes

– Aggregate to a single numberhttps://twitter.com/bbcwritersroom/status/721407649162653696

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Developing constructivist measures

Holistic fu

nction

al a

ssessm

en

t

A B C

Development of functional measures over time

A. Clinical O&M studies measuring

selected variables give only

partial/proxy findings

B. Holistic O&M assessment informs

Grounded Theories

C. Behaviourally anchored rating

scales are built from Grounded

Theories

- need to aggregate to a single score for easy comparisons

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Defining functional inquiry (can’t be objective – this is constructivism)

Six essential characteristics:

Authenticity – what matters to the client

Embodiment – showing, not just telling

Community – the client’s cultural context

Integration – the client manages the variables

Diversity – investigate variety of times and places

Learning – knowledge builds through engagement

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Community model of O&M Ax

Client’s O&M action is

the focus

Client is always located

in a particular context,

space and time

Multiple opinions

Fluid power

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O&M Environmental Complexity Scale(Deverell, 2011, International Journal of O&M)

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1 3 5

2 4 6

Simple

Complex

No action Pedestrian-paced action Traffic-paced action

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Rate these places 1 – 6

- Speed?

- Simple or Complex?

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Why two measures?

VROOM = vision-related outcomes in O&M

OMO = orientation and mobility outcomes

Vision ≠ O&M

Vision for reading ≠ vision for O&M

Both use behaviourally anchored rating scales

Both are co-rated = assessor + client + other stakeholders

Both are scored out of 50

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Implementation

Informed consent

Ordinary O&M Ax• Interview + Observation + Rating conversation

• Scores + comments = results

• Line-ball decisions: always rate lower

Benchmark• Day travel with any aids the client normally uses

Comparisons/outcomes:• day/night (light, night-blindness)

• morning/afternoon (fatigue, ABI)

• with/without aids (e.g., guide, cane, dog)

• pre-post training (outcome measure)

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Practice, questions, critique

[email protected]

Melbourne-Sarawak Research Collaboration Scheme Digital Health Project, September 2016 – September 2018

Optimising technology to measure functional vision, mobility and service outcomes for people with low vision or blindness