Mission Statement: We are a volunteer operated nonprofit organization formed to create awareness and educate our communities about EDS so that those affected may have earlier recognition and better care. We will be a resource and provide support to people living with EDS, their families, friends, caregivers, and healthcare providers.

Vision Statement: Earlier recognition and better quality of life for people in New Hampshire living with EDS.

Date: June 3, 2017

Location:

NHTI - Concord’s Community College 31 College Drive Concord, NH 03301 NEDD/NHTI 5K certified course

Day of Race Registration: 7:30AM

Race/Walk: 9:00AM Kids Fun Run: 9:45AM Awards: 10:00AM

Wicked Awesome Raffle: 10:20-ish

Awards: Top 2 male & female overall, top 2 in

the following age categories: 14 & under, 15-

19, 20-29, 30-39, 40-49, 50-59, 60-69, 70+;

Special category because physical therapy

is a crucial treatment for EDS: Top 2 male &

female employed at a physical therapy office!

Real Race Time Provided By:

3C Race Productions

www.3craceproductions.com

Race Information…

About us…

Ehlers-Danlos Syndrome

Moving for Change https://www.mapquest.com

Proceeds Benefit:

Sign-Up Form

Name: ______________________________________

Address: ____________________________________

Phone #: ____________________________________

E-Mail: ______________________________________

Male: ____ Female: ____ Age (as of 6/3/17): _____

I work at a physical therapy office: Yes____ No____

T-Shirt Size (shirts limited to first 75 registrants):

S M L XL XXL

Cost: $20.00 Per Person before May 3, 2017, $25.00

after; $15.00 Kids 14 & Under

Make Checks Payable to:

NH EDS Coalition

Send Form & Payment to:

NH EDS Coalition

c/o Pang

60 Thayer Pond Rd.

Concord, NH 03301

Questions? Call 603.410.7497

Liability Waiver:

I know that participating in the Hoofbeats 5K is

potentially a hazardous activity. I also know there

may be through traffic, and other hazards on the

course. I assume any and all other risks associated

with participation in an event of this nature

including, but not limited to falls, contact with

other participants, effects of weather, all such risks

being known and appreciated by me. Knowing

these facts, and in consideration of your accepting

my entry fee, I hereby for myself, heirs, executors,

administrators or anyone else who might claim on

my behalf, covenant not to sue and waive release

and discharge of NHTI, all sponsors, volunteers,

and race officials from any claim or liability for

death, personal injury, or damage of any kind or

nature arising out of or in the course of participation

in this event. This release and waiver extend to all

claims of every nature, whatsoever, foreseen,

known or unknown.

Signature: ___________________________________

Signature of parent if under 18:

____________________________________________

Date: _______________________________________

Funds go to… § Awareness events in NH

§ Educating healthcare providers, schools, insurance companies & the community

§ Assessing the need for improved & consistent pre-sport screening

§ Support Group materials (books, brochures & other literature)

§ Scholarships to attend the Ehlers-Danlos Society Global Learning Conference

We Thank You

for Your Support!

Sign up online: https://g2racereg.webconnex.com/hoofbeats5K2017

Just a few of the gazillion complications

associated with EDS:

Widespread pain, joint dislocations/subluxations, easy bruising, dysautonomia, mast cell activation disorder, spontaneous rupture of large arteries, TMJ dysfunction, fragile gum tissue, tooth mobility, delayed stomach emptying, gastric reflex, nutrient absorption problems, food allergies, skin rashes, flushing, nausea, vomiting, low bone density, pelvic prolapse, premature membrane and uterine rupture, fragile easily torn skin, poor wound healing… For more info visit ehlers-danlos.com

What is EDS?

Ehlers-Danlos syndromes (EDS) are a group of connective tissue gene disorders that produce complex problems across multiple systems of the body. There are no cures. Connective tissue is the glue that holds the body together and gives structure. Glue in EDS is like old dried up Elmer’s Glue, while the glue in a healthy person is like Gorilla Super Glue.

Why the Zebra? Medical students are taught to think horses (common illnesses), not zebras (rare illnesses), when they hear hoofbeats (symptoms). This causes rare diseases to be frequently undiagnosed or misdiagnosed because physicians are looking for the most common cause of symptoms. Further pain and disability occur during the years it takes for an accurate diagnosis. The peculiar thing is that EDS is likely not rare, but rarely diagnosed.