HepatitisWA Newsletter (Sept 2012)
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Transcript of HepatitisWA Newsletter (Sept 2012)
3HEPATITISWA Newsletter // Sept 2012
contentsExchange Program A Prickly Subject ....................................................................................................... 4The ACT will become the first jurisdiction in Australia to provide clean syringes to prison inmates.
Hepatitis Awareness Week Highlights ................................................................................................... 6Highlights from HepatitisWA’s workshops and events during Hepatitis Awareness Week and World Hepatitis Day.
HepatitisWA Celebrates 20 Years ...................................................................................................................8HepatitisWA Celebrates it’s 20th Year of evolution at the Empyrean, with Body Armour by Ilbijerri Theatre Company.
Body Armour Tours WA Feature ....................................................................................................................... 10Ilbijerri Theatre Company’s Body Armour tours Western Australia.
Bristal-Myers Drops Hep C Drug After Death ...........................................................................12Bristol-Myers Squibb Co. (BMY) has abandoned an experimental hepatitis C pill after a patient died.
Injecting Habits of Young People .................................................................................................................14WASUA’s Domain (WA Substance User’s Association).
Love Your Liver Roast Lamb with Pears Recipe .....................................................................18Lover Your Liver featured recipe.
Hurricane .............................................................................................................................................................................................19Non-alcoholic drink featured recipe.
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6 HEPATITISWA Newsletter // Sept 2012
AWARENESSHEpAtitiS
“Love Your Liver” Client Lunch (24th July)A “Love Your Liver” client lunch was held at Veggie Mama’s,
a cafe who specialize in wholesome healthy vegetarian food.
Nine of us - seven clients and 2 staff, dined on food such as
veggie patties, quiche, and pastries followed by fresh juice,
coffee and of course cake. We also used this as a forum to
discuss thoughts, feelings, and experiences in relation to
hepatitis C and B. Overall it was an experience enjoyed by all.
“Street Art” Showcase Gallery (23rd - 28th July)HepatitisWA implemented a health promotion initiative
called “Street Art 2012”, where we partnered with two youth
organisations (HALO and Outcare Youth).
The agency’s young people participated in workshops on
viral hepatitis and street art before producing their own art
piece based on issues related to hepatitis. Their pieces were
showcased at an exhibit at the Central Institute of Technology.
The exhibit was launched on Monday 23rd July and ran until
Saturday the 28th July.
It was an opportunity for the public to appreciate the artwork
and health promotion initiatives of the young participants.
Prizes were presented to the winner including The People’s
Choice winner. We also presented “thank you” certificates to all
participants and agencies involved.
As a result of the creative display, the Central Institute of
Technology asked to keep the exhibit open for an extra week
to showcase privately to the students at their institute.
HepatitisWA had an extremely busy month leading-up to Hepatitis Awareness Week (July 23rd - 28th) and World Hepatitis Day (July 28th), organizing various workshops and events.
Below are some highlights of what we did during Awareness Week, and on World Hepatitis Day.
HIGHLIGHTSWEEK
Educational Viral Hepatitis Workshop (25th July) HepatitisWA ran an education workshop at Kuditj Café on the
importance of liver health to highlight the 2012 Hepatitis
Awareness Week theme of “Love Your Liver”.
Sixteen attendees came including drug and alcohol workers,
mental health workers, region community health workers,
prison staff and clinic health workers.
The content of the workshop focused on strategies to
improve liver health and the general health outcomes of
people living with viral hepatitis.
Free “Love Your Liver” Soup Stall (25th July)HepatitisWA had a soup stall out the front of our premises,
where we gave out 2 different types of healthy soup options
taken from the “Love Your Liver” website – one was the
pumpkin and carrot recipe, and the other was the vegetable
soup recipe.
We staffed the stall from 11am to 3pm, and gave away
approximately 100 cups of soup branded with a “Love Your
Liver” sticker.
In all, it was a great opportunity to serve our local community
and offer them some of our resources in the process, while
raising our profile.
“Love Your Liver” Lunch at Hakea Prison & Outcare (26th & 27th July)HepatitisWA provided a healthy lunch at both Hakea Prison
and Outcare to promote healthy eating in the community.
PlayTheBloodRule.com Basketball GameHepatitisWA/Redbacks (28th July) The Perth Redbacks played their final game for the season at
the Active West Stadium in Geraldton.
The event was open to the public, and HepatitisWA was
identified as a sponsor with signage and promotion of the
“PlayTheBloodRule.com” website on each players’ jersey.
CaLD Workshops (28th & 29th July)The Hepatitis B Community Development Officer provided
two information sessions in the regional town of Katanning
for Hepatitis Awareness Week.
The session on Saturday 28th July was attended by fourteen
Burmese and one person of Chin background while fifty
people of Karen background attended the session on Sunday
29th July.
HepatitisWA launched its trial of a GP Handycard at the
sessions. The GP Handycard has been developed in
partnership with Cancer Council WA and is designed for
people of CaLD background to take to their GP to request
hepatitis B testing.
Regional Community GrantsIn collaboration with the Drug and Alcohol Office and the
BBV Yarning project, HepatitisWA provided community grants
of up to $2000 for agencies to host an event during Hepatitis
Awareness Week with an Aboriginal focus. These grants were
awarded to nine community organisations and the events
were carried out across Western Australia.
BY FELICIA BRADLEY
8 HEPATITISWA Newsletter // Sept 2012
eptember 17th, 2012 marked the 20th Year of
the evolution of HepatitisWA. Celebrating our
milestone in style at The Empyrean, it was
an eventful afternoon for all who attended.
All were entertained with a performance by Ilbijerri’s Body
Armour, then later reunited with colleagues in a relaxed
atmosphere of beautiful Western Australian wildflower
centerpieces, while indulging some delightful cupcakes with
our logos on them.
A “Welcome to Country” was made by Aboriginal elder Mingli,
which then was followed by a performance of Body Armour
by the Ilbijerri Theatre Company of Victoria. The play lasted 50
minutes, but kept all 70 attendees captivated. Please read our
feature-spread for a detailed synopsis.
HepatitisWA released a self published book entitled “Growing
and Regenerating Across 20 Years”. All attendees were
encouraged to take a copy, as the book documents the stories
of some of the “movers and shakers” of HepatitisWA over the
20 years.
A cascade of short speeches from Frank Farmer, the Executive
Director of HepatitisWA, Susan Carruthers, Chairperson of
HepatitisWA, Dr Charles Watson, Patron of HepatitisWA,
Dr Paul Armstrong, Director of Communicable Disease
Control Directorate, and Stuart Loveday, Chairperson
of Hepatitis Australia, reiterated the main messages of
dedication and support from all, reflected in our book.
Food and drinks were served along with delicious cupcakes.
Among the 70 attendees were past staff, board members,
volunteers of HepatitisWA, fellow agency members,
members of the Western Australian Health Department, WA
AIDS Council, WASUA, and supporters.
We were overwhelmed by positive feedback after the event
and would like to thank everyone that attended our 20th
birthday.
Thank you to WED for the beautiful Western Australian
flower arrangements, and Cupcake Cravers for the delicious
customised cupcake tower!
S
CELEBRATES
20 YEARS
HEPATITISWA
Sept17tH2012
“Well done (HepatitisWA) on a fantastic
celebration yesterday. I really enjoyed the
play and the book is great and I will enjoy
reading it again in 5 years, 10 years and
another 20 years. Everyone should be
proud.”
BY FELICIA BRADLEY
Quotes are taken from attendees of the HepatitisWA 20 Years Celebration. Photography by Felicia Bradley © 2012.
12 HEPATITISWA Newsletter // Sept 2012
BRISTAL-MYERS DROPS HEP C DRUG AFTER DEATH
ristol-Myers Squibb Co. (BMY) has abandoned an experimental hepatitis C pill it bought for $2.5 billion earlier this year after one patient died and otherswere hospitalized while taking the drug
in a study.
Bristol-Myers will take a charge of $1.8 billion in the third quarter related to research and development of the therapy, the New York-based company said in a regulatory filing today. The drugmaker suspended testing the medicine, known as BMS-986094 on August 1, after a patient developed heart failure.
Bristol-Myers said yesterday (August 23rd, 2012) it has discontinued development of the drug, part of a class of medicines called nucleotide polymerase inhibitors, and was consulting with U.S. regulators to assess the treatment’s effects. Along with the death, eight patients suffered from heart and kidney toxicity, the company said in a statement.
“Bristol-Myers paid a fortune for a pearl that turns out to be fake,” said Erik Gordon, a University of Michigan business professor, who follows the health industry, in an e-mail today, referring to the company’s “string of pearls” name for its acquisition strategy. “The Inhibitex acquisition shows the dangers of paying huge premiums for late-stage drug candidates in hot areas. They still can fail.”
B Bristol-Myers rose (BMY) 1.3 percent to $32.57 at the close in New York.
Key TherapyThe hepatitis C drug was thought by researchers and analysts to be a key therapy in a push by companies, including Gilead Sciences Inc. (GILD) and Vertex Pharmaceuticals Inc. (VRTX), to replace the standard injectable treatment with pills that are more convenient and have fewer side effects. Analysts estimate the market may be $20 billion for the new therapies.
“We’re still focused on our HCV development program, and will continue to follow the science as we execute on our strategy”, Cristi Barnett, a Bristol-Myers spokeswoman, said in an interview. “We’re going to do whatever it takes to get the best treatment to patients.”
Two of the eight patients from the study remain hospitalized, Bristol-Myers said in its statement.
Hepatitis C is a viral infection that can cause liver damage and is estimated to affect 180 million people worldwide, according to the National Institutes of Health. The disease can lay dormant for decades before harming patients. Rising deaths among baby boomers from the infection prompted U.S. health officials to declare in May that all of those born from 1946 to 1964 are at risk and should be tested.
Source: Flinn, R, 2012. Bloomberg Businessweek. Image available under a creative commons license at www.sxc.hu. Photography by Esther Groen © 2005.
13HEPATITISWA Newsletter // Sept 2012
Clinical HoldAfter Bristol-Myers earlier this month suspended its mid-stage trial of BMS-986094, the Food and Drug Administration put a clinical hold on Idenix Pharmaceuticals Inc. (IDIX)’s testing of a similar therapy, IDX 184. The agency was looking at others as well, Idenix Chief Executive Officer, Ron Renaud, said on August 16.
Gilead, which spent $10.8 billion to acquire its nucleotide polymerase inhibitor GS-7977, hasn’t had the same safety issues, said Cara Miller, a company spokeswoman.
“In all studies to date, GS-7977 has been well tolerated and has exhibited a favourable safety profile”, Miller said.
Vertex hasn’t been contacted by the FDA regarding safety issues for its nucleotide polymerase inhibitor drug, said Megan Pace, a company spokeswoman.
“Our drug is structurally different” than those from Bristol-Myers and Idenix, Pace said in a telephone interview. “We’re moving forward with our studies.”
Vertex shares fell less than 1 percent to $53.56. Gilead rose 2.2 percent to $57.29. Idenix fell 1.3 percent to $6.01.
Inhibitex PurchaseBristol-Myers gained the compound in January with the acquisition of Inhibitex Inc. as it seeks new drugs to diversify its products and replace revenue from Plavix, its best-selling drug, that lost patent protection this year. Plavix generated $7.09 billion in 2011, about one-third of the drugmaker’s revenue.
In July, another of the company’s experimental prospects, the blood thinner Eliquis being developed with Pfizer Inc. (PFE), was rejected by U.S. regulators, who asked for more data from existing trials. Approval of the drug may be pushed into next year, according to the company, and the diabetes drug dapagliflozin was rejected in January when the FDA asked for more safety information.
August 24, 2012 for Bloomberg Businessweek.http://tinyurl.com/bms-drops-hepc-drug
BY RYAN FLINN
Source: Flinn, R, 2012. Bloomberg Businessweek. Image available under a creative commons license at www.sxc.hu. Photography by Esther Groen © 2005.
14 HEPATITISWA Newsletter // Sept 2012
Young peopleThe group did acknowledge that there was an element that still roll the dice and take the risk of sharing equipment. This was particularly evident when using or injecting with “friends” or “brothers” or” lovers”. The group said that it was very difficult when you first started using because you really didn’t know much and you relied on mates/ lovers to show you what to do. They were seen as the experienced users and were considered as “those who know what to do”. It was also difficult to speak up against a peer group and risk being considered “uncool”. When the group was asked about what they had known about sterile injecting techniques when they commenced injecting, most of the group acknowledged that they knew “nothing” or “very little”. They acknowledged that they usually relied on their “peers” or those who were already injecting to show them what to do.
The subject about the importance of having sterile ancillary (other equipment such as spoons, water, filters, tourniquets) to accompany the clean needle and syringe was also canvassed. This area seemed less important, especially when younger people are using in groups. Although, it seemed that those who were steadfast in using their own clean needle, and who insisted on knowing that all needles were unused and fresh out of its wrapper, that it was this group who also insisted on using other sterile equipment.
When asked about cleaning and re-using equipment, it
appeared that those that used barrels would often clean them
out and re-use them. It was disturbing to note that it was still
common to assume that warm or hot water was necessary
and was more effective than the use of cold water. Did you
know that cold water is more effective in flushing out blood from
syringes? It was also disturbing to note that the group knew
of mates who also commonly flushed out butterfly apparatus
(butterflies) and re-used this equipment. This was highly
dangerous behaviour as the incidence of infections,
septicaemia and dirty hits would be extremely high.
When asked about disposal of used equipment; those who were more rigid in their ideas around safe using also carried this through to safe disposal, primarily taking advantage of the needle and syringe program where they could also safely discard their equipment. However, twenty percent stated that
they still disposed of fits unsafely and had not adapted any
INJECTING HABITS OF
WASUA conducted a workshop for young people to canvass their knowledge around injecting behaviours amongst their peer group (17-27 years of age) and their knowledge about hepatitis C and
the treatment for this disease.
After talking to young people about their injecting drug use, it was interesting to observe their participation in the group and what information they shared with the group. From our experience as outreach workers, who visit and educate young people in their own homes on matters around safe injecting procedures, hepatitis C transmission and information on hepatitis C treatments, it was obvious that some of the young people described best practice advice from what they had learned but we were able to see that they often did not put this information into practice.
For instance, three quarters of the young people interviewed were able to say that they always swabbed before injecting and some again afterwards. However, from our observations as outreach workers, many do not undertake this most elementary procedure to prevent unsterile injections and thus prevent blood infections (septicaemia) or dirty hits. There was the notion also that because they had good hygiene practices (e.g. washing hands or clean storage of injecting gear) that it was not necessary to swab. So further education on the importance of swabbing is always going to be an ongoing issue, with the importance of describing good hygiene practices as well as STERILE procedures. It was encouraging to hear the amount of young people who claimed that they made it a primary concern to always use a clean needle and syringe when injecting. However, from our experience as outreach workers, many young people report that their friends are not aware or rather, DON’T CARE, about using clean fits every time they inject. They often rely on their peers or young friends that do go to needle exchanges to provide them with a fit. And if there isn’t a clean fit then they will use their mate’s equipment. This can even extend to rummaging through bins, drawers, cupboards, etc. where their friend may have stored their dirty used fits. This was especially prevalent amongst users who were given opportunistic shots, “freebies”, those not in stable living arrangements or in groups where there were not enough clean fits for use.
16 HEPATITISWA Newsletter // Sept 2012
NEEDLE & SYRINGEorientation &training package
17HEPATITISWA Newsletter // Sept 2012
If you would like more information regarding the online program, please contact the BBV Team on 08 9388 4841 / [email protected]
NSP Online Orientation and Training Package for NSP Staff and Pharmacy WorkersThe Sexual Health and Blood-borne Virus Program, in collaboration with the Workforce Development Branch of the Drug and
Alcohol Office (DAO), have developed two Online NSP Orientation and Training Packages for NSP staff and for pharmacy workers.
Online training for NSP staffThis training aims to enhance the knowledge, confidence and skills of health workers who deliver NSP services and is available
via the following link: http://www.dao.health.wa.gov.au/nsp
The training can be undertaken for people new to working in the area of NSP, as a refresher for those who already work in NSP
and/or have attended the NSP Coordinator training in the past, or for anyone who is interested in learning about NSP.
The entire program takes approximately 3 hours to complete and consists of ten stand-alone modules which can be done at
your own pace, with the ability to stop and start at any time. There are a series of questions at the end of each module with a
final assessment on completion of the program.
For registered nurses involved in providing NSP services, this online learning program has been endorsed by Royal College of
Nursing, Australia. Completion attracts 3 RCNA Continuing Nurse Education (CNE) points.
Online NSP training for pharmaciesThis training aims to enhance the capacity of pharmacy staff to assist customers purchasing injecting equipment and is
available via the following link: http://www.dao.health.wa.gov.au/nsppharmacy
The program is shorter than the training package for NSP staff and contains eight stand-alone modules with learning objec-
tives, activities, questions and a reference list. The duration of each module varies; however the total program duration is
approximately one and a half hours (participants do not have to complete this at once and can return to the course as and
when they are able to).
The activity has been accredited by the Australian Pharmacy Council for 1.5 hours and 3.0 Group 2 PCD upon successful
completion of the assessment. These credits are suitable for inclusion in an individual pharmacist’s CPD plan.
AssessmentFollowing completion of all of the modules there is a final assessment for each of the training packages, which includes
20 questions, with a pass mark of 75%. A certificate of completion will be provided once the assessment has been passed.
CD-ROMA copy of the online programs are available on CD-ROM for anybody who has difficulty accessing the internet. To obtain a copy
of the CD-ROM, please see our contact details below.
19HEPATITISWA Newsletter // Sept 2012
Image used with permission. Photography by Saleem Bradley © 2012.
ou’re out with your mates, and you’re sick of
ordering boring soda water, orange juice, or lemon,
lime and bitters... next time you’re out and about
with a friend, ask the bar tender to make you a
kiddy-cocktail. Yes, it might sound a little juvenile,
but you should be kind to your liver, and these non-alcoholic
cocktails can be just as tasty as an alcoholic one!
This issue’s drink recipe is called a “Hurricane”.
Tell the bar tender you want orange juice,
pineapple juice, cranberry juice, and some grenadine syrup, and
you have your self a very tasty beverage.
Switch it up. Next time, instead of orange juice, try peach
syrup or lime, and if you’re at home, add some crushed ice
with a dollop of whipped cream, topped with some
maraschino cherries. Be creative. You will not be bored with your
drink again!
Y
Hurricane