19-20 JULY 2012WASHINGTON D.C

Global Advocacy Agenda:Process To Date

19-20 JULY 2012WASHINGTON D.C

ObjectiveA global consultative process under the umbrella of Positive Health, Dignity and Prevention designed to contribute to redefining the Global Advocacy Agenda for PLHIV with the three themes of:

1. Access to Treatment, Prevention, Care and Support

2. Human Rights3. Community Mobilization and Activism

19-20 JULY 2012WASHINGTON D.C

Phased Process

• 6 week process (May-June 2012), including:

E-survey (3-21 May 2012)

E-consultation (23 May to 17 June 2012)

• LIVING 2012 Summit 19-20 July

19-20 JULY 2012WASHINGTON D.C

E-survey• Respondents were requested to select six issues

which are important for them and their community, and they think should be explored further in the e-consultation

• Respondents were also asked to provide their perspectives on missing information and other concerns, and the importance of these as advocacy priorities. Additional comments received : Access to PTCS (n=156) Human Rights (n=65) Community Mobilization and Activism (n=45) Total (n=266)

• Survey in English, French, Russian and Spanish

19-20 JULY 2012WASHINGTON D.C

E-survey Demographics• 712 people registered • Gender: over twice as many male as female respondents (485

compared to 220) as well as 7 transgender• Age group:

71.2% aged 25-49 years24% were 50 years of age and older4.8% were 15-24 years of age

• Length of time living with HIV: 31.6% 16 years or more, 26.7% 10-15 years and approximately 20% 1-4 years or 5-9 years

• Region:Europe: 36.8%, n=262 Africa: 22.3%, n=159Latin America: 15.5%, n=110 North America: 13.8%,n=98Asia Pacific: 9.1%, n=65 Caribbean: 1.1%, n=8

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Results: Access to Prevention, Treatment,

Care and Support1. Increasing access to ARV drugs for all

those who need them (n=490)2. Diagnostics (viral load and CD4) (n=288)3. Socio-economic support (n=285)4. Psychosocial care (n=269)5. Treatment as Prevention (n=260)6. Treatment literacy (n=253)

19-20 JULY 2012WASHINGTON D.C

Results: Human Rights

1. Criminalization of transmission, exposure and non disclosure (n=401)

2. S&D in the community (n=389)3. Rights to confidentiality and privacy (n=386)4. S&D in the workplace (n=332)5. S&D in health care setting (n=330)6. Restrictions on entry, stay and residency

(n=317)

19-20 JULY 2012WASHINGTON D.C

Results: Community Mobilization and Activism

1. Funding for the HIV response (n=482)2. Involvement of PLHIV in policy and decision-making

(n=444)3. PLHIV involvement in service delivery (n=419)4. Local and national level advocacy (holding

governments accountable) (n=388)5. New science and research (n=372)6. Capacity building for networks of PLHIV (n=369)

19-20 JULY 2012WASHINGTON D.C

E-consultation

• Based on the e-survey and in consultation with GNP+, a moderated e-consultation process

• Hosted by NAM• Provide a platform for people living with HIV to participate

and have their voice heard in the development of the GAA, irrespective of whether attending LIVING 2012 or not

• English, French and Spanish(+ Google for translation into additional languages)

19-20 JULY 2012WASHINGTON D.C

E-consultation Results

• PTCS: 147 responses, 65 respondents• HR: 94 responses, 35 respondents• Com Mob and Act : 80 responses, 24

respondents

• Totals: 321 responses, 124 respondents

19-20 JULY 2012WASHINGTON D.C

Outcomes

1. The results of the e-survey and e-consultation are compiled in:

Three Thematic Papers Summary of Findings

2. Informed the development of the LIVING 2012 agenda

3. Will contribute to redefining the Global Advocacy Agenda

19-20 JULY 2012WASHINGTON D.C

LIVING 2012 Summit• Held 19-20 July 2012• Discusssions around 3 themes covering:

• What are the issues• Role(s) of people living with HIV• What are the main advocacy asks

• Mix of plenary sessions and group work• Discussions in English, French, Russian and Spanish• Highlights of these will be presented in the

following three presentations

19-20 JULY 2012WASHINGTON D.C

Process going forward• Global Advocacy Agenda aims to bring PLHIV movement

together• No prioritization of issues as will lead to ‘silo-ization’• Will look for areas of consensus. Highlight where we agree.• Where disagree will look for common language and principles

i.e. gender, violence, criminalization• Different lenses: age, region, gender, key populations

• Will send out data for validation and input from participants prior to developing Global Advocacy Agenda.

• The consolidated findings of the e-consultation process and LIVING 2012 Summit will be complied in the LIVING 2012 Report.

LIVING 2012 would like to thank the following sponsors

Thank you ….