Genki Caregiver - Social Caregiving
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Transcript of Genki Caregiver - Social Caregiving
Mom lived with me from 2007 to 2009. I was a remote caregiver for her remaining two years as she lived independently.
1963 1964 19811970 1972 1978 1983 1985 1998 2000 2007 2009
Daughter
Son (me)
Son*
BA
MA MA
EdD
2011
RIP
Heart Failure
Bipolar Disorder
COPD
Lung Cancer 1
Lung Cancer 2
Breast Cancer
Small Bowel Cancer
Liver Cancer (terminal)Tubal Ligation*
What Caregiving Means for CaregiversCaregiving reduces work time impacting short and long-term income
Source: Gallup July 2011 - http://www.gallup.com/poll/148670/caregiving-costs-economy-billion-lost-productivity.aspx
24% of caregivers say providing care keeps them from working more
36% of caregivers miss 1-5 days of work per year due to caregiving responsibilities
30% of caregivers miss 6+ days of work per year due to caregiving responsibilities
6.5Average Days
Missed Per Year
Caregiving Trips 2005 – 2007Mom Living Independently
Brother Sister
Mom
Me
Out-of-Pocket CostsSister: ~$2,000Me:~$600Brother: ~$200
Two Trips
Days of Work MissedSister: ~8Me: ~2Brother: ~1
Daryl
Caregiving Trips 2007 – 2009Mom Living with Me
Brother Sister
MomMe
Out-of-Pocket CostsMe:~$15,000Sister: ~$100Brother: ~$100
Two Trips
Days of Work MissedMe: ~10Sister: ~0Brother: ~0
Caregiving Trips 2009 – 2011Mom Living Independently
Brother Sister
Mom
Me
Out-of-Pocket CostsMe:~$8,000Sister: ~$2,500Brother: ~$1,000
Two Trips
Days of Work MissedMe: ~6Sister: ~6Brother: ~3
Daryl
Social Caregiving: How?
• Engage in Social Caregiving• Access everyone using multiple technologies• Organize• Connect• Involve!
Social Caregiving: Organize
• Choose an e-platform to organize information – preferably all in one place– Calendar– Appointment Book– To-Do List– Medication List– Emergency List– Journal– Friends
• Make sure you can access your e-platform from anywhere
Social Caregiving: Connect
• Get people who will help on the same communications platform
• Enter all organized information into that integrated communications platform
• Make sure everyone gets the messages so you know when you make a request for help, others are receiving it
Social Caregiving: Involve!
• Ask for help!
• Now that you have others involved, let them help you. Don’t be bashful, afraid, or prideful. These people are there unconditionally
• Help them help you. Make sure the request you’re making is clear and concise. Pictures help. Even record your instructions for others so they hear your voice.
• Create a list of third-party providers who can help if you or your family/friends network can’t– Transportation, adult daycare, home care, respite
services, etc.
Real-World: How Would Social Caregiving Help?
• Mom can’t remember doctor’s instructions
• Haven’t visited mom in a while
• Can’t get to the pharmacy to pick up meds
• Mom is not taking medication—but not telling anyone
• You’re remote and mom needs help
• Haven’t heard from mom in a few hours and not picking up the phone