General Disability General Disability Measurement in Measurement in

UgandaUganda

Focusing on Improvement in Methodology and

Concepts used

By Nabukhonzo Pamela

Uganda Bureau of Statistics

Introduction

Population and Housing

Censuses

CBR Programme

Conclusion

Disability Disability Measurement in Measurement in

UgandaUganda

IntroductionIntroduction

Population and Housing Censuses remain major source of nation wide Disability Statistics

Regional workshop on disability Statistics in Africa

Land mark in the area of disability measurement

Introduction

Population and Housing

Censuses

CBR Programme

Conclusion

Disability Disability Measurement in Measurement in

UgandaUganda

MethodologyMethodology

1991 Census 2002 Census

1. Two questionnaires

2. Only Households

1. One questionnaire

2. Complete coverage

Questions AskedQuestions Asked

1991 CensusIs there

anyone who was in the HH on the census night disabled?

2002 CensusDoes “NAME” have

any difficulty in moving, seeing, hearing, speaking or learning, which has lasted or is expected to last 6 months or more?

Definition of DisabilityDefinition of Disability

1991 Census

Any condition, which prevents a person from living a normal social and working life.

Definition of DisabilityDefinition of Disability

2002 CensusA person who is limited in the kind of or amount of activities that he or she can do, because of on going difficulty(ies) due to a long-term physical condition or health problem that has lasted 6 months or more. This includes all those difficulties that are expected to last more than 6 months.

SummarySummary

1991 Census1991 Census

The term “disability” was used in the Global question.

One disability

Prevalence rate of 1.1%

SummarySummary

2002 Census2002 Census

Included information on rehabilitation measures

The term “disability” was avoided in the global question

Multiple disability(at most 2)

Duration was taken care of.

Introduction

Population and Housing

Censuses

CBR Programme

Conclusion

Disability Disability Measurement in Measurement in

UgandaUganda

Community Based Community Based Rehabilitation Rehabilitation

ProgrammeProgrammeImplemented under MGLSD

Weaknesses related to Weaknesses related to Data collectionData collection

Existing gaps in developing specific indicators

Lack of reliable data & information systems

Difficulty to collect comparable data Assessment forms were too complicated CBR staff hardly filled these forms Data from some districts was not

correlated and systematized

Data Collection Data Collection InstrumentsInstruments

Identification, registration & baseline information forms

Assessment, follow up & referral forms

Supervision & monitoring guidelines

Reporting guidelines

Definition of DisabilityDefinition of Disability

CBR ProgrammeCBR Programme

Difficulties/restrictions in performing daily activities leading to failure to participate like other people.

Question asked & Question asked & MethodologyMethodology

Data collection is mainly be observation of the PWD

Questions touch on:

•Severity

•Duration

•Cause

•All domains of well-being

Environment and Environment and participationparticipation

Home environment Accessibility Nutritional practices Hygiene of PWD Waste disposal Source of water Cultural beliefs/practices related to

PWD

Mapping to ICFMapping to ICF

Most of the chapters are not touched at all

At least one component/chapter is touched

Introduction

Population and Housing

Censuses

CBR Programme

Conclusion

Disability Disability Measurement in Measurement in

UgandaUganda

ConclusionConclusion Nation wide data on disability in

Uganda is from censuses Administrative data collection from

CBR will be the only comprehensive source though not nation wide

Issues under question matrix were to a great extent covered in both programmes

(census excludes severity, CBR includes it