GAPS Area Parkinson’s · that help our Parkinson’s Community. Please contact Patty Rooney-Lingo...
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1 G eorgetown A rea P arkinson’s S upport Group GAPS Georgetown, Texas Issue 5 http://georgetowntxparkinson.weebly.com/ May 2019 Mary Jane Berry [email protected] 512-240-4167 (h) 512-658-3658 (c) G eorgetown A rea P arkinson’s S upport Group Meeting GAPS May 23, 2019 (4th Thursday of the month!) 3pm to 5pm (meeting begins promptly at 3pm) First Baptist Church Recreation Center, 1333 W University Ave, Georgetown, TX 78628 Meet in the Recreation Center Gym Contact: Mary Jane Berry db e r r y3@s u d d e n l i n k.n e t 512-240-4167 Speaker: Dr. Keilty Darnall h tt p://www .g e o r g e t o w n s l e e p c e n t e r .c o m Topic: “Parkinson’s Sleep Problems” Refreshment Sponsor: Comfort Keepers, Georgetown Lauren Urbanek 512-255-6633 Caregiver’s Support Group Meeting May 9, 2019 (2nd Thursday of the month!) 2pm to 3:30 pm Autumn Leaves Library, 3600 Williams Dr, Georgetown, (extra parking in back of building, ring buzzer at door). Contact: Debra Thurber d t h u r b e r@a u tu m n l e a v e s.c o m (512) 688-0159 Don’t forget, God cares for caregivers, and remember, he’s one too! Reminder: Wear your name tag to our Meetings and Classes…even if it is from another group! Thank you! Summary of Meeting Our April meeting was our annual Ice Cream/Cookie Social and Health Fair! We had an excellent attendance of members and vendors. Thank you all for the great cookies and for the in-formation on available resources from our 40+ vendors! Plan on next year, April 23, 2020 for Health Fair, with cookies/ice cream too! April Was a Success! GAPS was very active in April to help raise awareness about Parkinson’s and to even help raise money for Parkinson’s research. In April 2019, GAPS was directly involved in symposiums, gala, two walk/runs fundraisers; and our annual health fair! Thank you to everyone who helped with Parkinson’s Awareness month! GAPS Website is Updated We have a new webmaster; Deb Jones and she is doing a wonderful job on our website! It has been updated and will continue to get better with resources, information and pictures! We have a new page for veterans … “Parkinson’s and Agent Orange!” Check it all out! h tt p://g e o r g e t o w n txp a rk i n s o n.w e e b l y .c o m/ Also, all our pictures are on the home page of the website … click on “recent events” and scroll down! GREAT job, Deb!
Transcript of GAPS Area Parkinson’s · that help our Parkinson’s Community. Please contact Patty Rooney-Lingo...
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Georgetown Area Parkinson’s Support Group
GAPS Georgetown, Texas
Issue 5 http://georgetowntxparkinson.weebly.com/ May 2019
Mary Jane Berry [email protected] 512-240-4167 (h) 512-658-3658 (c)
Georgetown Area Parkinson’sSupport Group Meeting GAPS
May 23, 2019(4th Thursday of the month!)
3pm to 5pm(meeting begins promptly at 3pm)
First Baptist Church Recreation Center,1333 W University Ave,Georgetown,TX 78628Meet in the Recreation Center GymContact: Mary Jane Berry [email protected] 512-240-4167Speaker: Dr. Keilty Darnallhttp://www.georgetownsleepcenter.comTopic: “Parkinson’s Sleep Problems”Refreshment Sponsor:Comfort Keepers, GeorgetownLauren Urbanek 512-255-6633
Caregiver’s Support GroupMeeting
May 9, 2019 (2nd Thursday of the month!)
2pm to 3:30 pmAutumn Leaves Library,3600 Williams Dr, Georgetown,(extra parking in back of building,ring buzzer at door).
Contact: Debra [email protected] (512) 688-0159
Don’t forget, God cares forcaregivers, and remember,he’s one too!
Reminder: Wear your name tag to our Meetings andClasses…even if it is from another group! Thank you!
Summary of MeetingOur April meeting was our annual Ice Cream/Cookie Social and Health Fair! We had an excellent attendance of members and vendors. Thank you all for the great cookies and for the in-formation on available resources from our 40+ vendors! Plan on next year,April 23, 2020 for Health Fair, with cookies/ice cream too!
April Was a Success! GAPS was very active in April to help raise awarenessabout Parkinson’s and to even help raise money forParkinson’s research. In April 2019, GAPS was directlyinvolved in symposiums, gala,two walk/runs fundraisers; and our annualhealth fair! Thank you to everyone whohelped with Parkinson’s Awareness month!
GAPS Website is UpdatedWe have a new webmaster; Deb Jones and she is doing a wonderful job on ourwebsite! It has been updated and will continue to get better with resources,information and pictures! We have a newpage for veterans … “Parkinson’s and AgentOrange!” Check it all out! http://georgetowntxparkinson.weebly.com/Also, all our pictures are on the home pageof the website … click on “recent events”and scroll down! GREAT job, Deb!
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GADS (DBS) — GeorgetownArea Parkinson’s DBS SupportGroup MeetingGeorgetown Area DBS Support May 15, 2019(3rd Wednesday of the month!)2–3:30 pm(meeting begins promptly at 2 pm)
The Delaney at GeorgetownVillage, in The Residences section,359 Village Commons Boulevard,Georgetown.
Contact: Judy Mayo [email protected]
This month is a Question andAnswer Program. We’ll catch upon our journeys, share helpfuladvice, learn from each other.
Reminder: Friday, June 7 at11:30 am –1pm. MedtronicDBS Lunch and Learn. “DBSInformation and Education.”Hampton Inn & Suites, 160 RiverOaks Cove, Georgetown, TX78626. Please RSVP to Damon Dennett [email protected](702) 354-4100.Lunch will be provided.
GAPS Advisory GroupOur GAPS Advisory Group is encouraging volunteers to help with the many programs weare offering in the Georgetown Area Parkinson’s Support Group! We are all volunteers andhave “NO” dues for 950+ membership! THANKYOU to our current volunteers and sponsorsthat help our Parkinson’s Community. Pleasecontact Patty Rooney-Lingo [email protected] to volunteer! We needyour help for set up/clean up/greeting at themeetings and for administrative help, too!
Austin CurePSP Support GroupThis group focuses on familiesand patients diagnosed with PSP,CBD or MSA.Saturday, May 25, 2019(4th Saturday of every month)10 am to 12:30 pm ~ (10 am to 10:30 Coffee Social)Silverado Cedar Park MemoryCare Community,800 C-Bar Ranch Trail,Cedar Park,Tx 78613https://www.silverado.com/silverado-locations/texas/cedar-park/cedar-park/Contact: Contact Judi Nudelmanat 512-301-2268
YOPD — Support Group MeetingMay 25, 2019 (meets on the lastSaturday of the month!)10 amGo to website:Austin YOPD Meetup GroupContact: Bob [email protected]: open to everyone inthe Central Texas area with aninterest in Young OnsetParkinson’s Disease,YOPD.Thecommon theme is sharing andsupporting each other, whileenjoying good times together.We also have a running group!
GAPS 2019 Speaker and Meeting Schedule May to September
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CTAP, Central Texas Advocates for Parkinson’s Gala We all had a GREAT time at the Gala! CTAP, Central TexasAdvocates for Parkinson’s has a yearly gala that raises money tohelp Central Texas Parkinson’s Community and that includes GAPS!The money they raise pays the salary for our dancing and yogainstructors. Thank you to Ashley Hudson and her team for a wonderful gala with the Paris, France theme “Oh, La La!”Our own GAPS singers and dancers performed and did an excellent job.Watch the videos of these great performances!
Our singers:https://www.youtube.com/watch?v=wJ8fA_HDl_0&feature=youtu.beOur dancers:https://www.youtube.com/watch?v=C3HzYfEziu4&feature=youtu.beSee all the pictures on our GAPS website, under “recent events”click here: http://georgetowntxparkinson.weebly.com/ We did honor one of our GAPS members, Roy McDonald at theGala. His wife donated many of his photo’s that help to raisealmost $1000. Thank you, to Rhea!
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Plummer MovementDisorder Foundationhttps://www.bswhealth.com/specialties/neuro-science/Pages/plummer-movement-disor-ders-center.aspx✹ Parkinson’s 101 classes and
Research Opportunities !Contact Christy Herff at [email protected]
GAPS Movie NightLet’s go to the movies,every Tuesday at CityLights, all day/night youcan watch a movie for$5.25/$5.50. Senior discounts! To learnmore about the City Lights theaterhttps://georgetown.citylightstheatres.com/ We know that socialization is very important for Parkinson’s folks, so join us!
Davis Phinney Foundation Victory Summit — April 13, 2019The Victory Summit® event in Austin was asuccess and we were armed with informa-tion and tools that we can use to live wellwith Parkinson's. If you missed the sum-mit and/or would like to get the informa-tion, please click here:https://www.davisphinneyfoundation.org/events/past-vs-austin/
Click on “Event Materials & Presentations”for all the slides from the Austin Victory Summit.GAPS had an exhibit table and many of ourGAPS friends and members participated inthe Victory Summit. GREAT JOB everyone!
See all the pictures on our GAPS website,under “recent events”click here:
http://georgetowntxparkinson.weebly.com/
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NEW LOCATION for Georgetown classes,3301 Shell Road, Suite 402, Georgetown! Congratulations to Georgetown fighter JimChapman for being named “Fighter of theMonth!” Jim was diagnosed in Novemberof 2017, and is a patientof Dr. Soileau. Jim joinedour Georgetown gymlast fall and regularlyattends classes with hiswife of 56 years, Karen.His favorite activity isthe get to know ya ques-tions, but his leastfavorite part is getting toclass on time. Jim foundout about 413 from theGeorgetown AreaParkinson’s SupportGroup. Jim was born in afarmhouse in TiptonCounty, Indiana. Heattended Western HighSchool in Russiaville,Indiana and PurdueUniversity before movingto California where he attended FullertonCollege and San Diego State University. Jimserved as a Captain in the US Air Force and
Boxing with Parkinson’s
he worked as a pharmaceutical businessconsultant.When not boxing Jim can be found singing
with the Parkinson’sTreble Tones or being asurrogate grandfatherand Superfan to theGeorgetown High SchoolLady Eagle Basketballteam. He also enjoysamateur radio, doing pri-vate financial consultingand international travel.Jim and Karen have twochildren, Susanne andMichael. Recently Jimmessaged me (Kristi) “Iam amazed at the posi-tive changes I have expe-rienced since startingwith this program six
months ago. I feel better,am taking six less medica-tions than before, and I
can do things I could not do before. I amequally amazed at the support availableand I join every clinical trial that I qualify
for.” Kristi Richards commented, …“SIX medications dropped, SIX and he feels better…What is not to love about that statement”
Great opportunities for you —shared by the 413 Boxing Family! ✦ May 18–19, 2019 from 9 am–5 pm
attend Parkinson’s RegenerationTraining ® Learn techniques to helpthe person with PD to reduce falls andimprove: Flexibility; Balance / Stability/ Agility; Strength; Breathing capacity;Posture; Cognitive & dual tasking abilities; Mobility and movement;Overall functionalityQuestions & Registration —Click here for more information.
✦ May 26 — June 1, 2019 Parkinson’sWellness Recovery Retreat and… ourown 413 Coach Kristi along with JimmyChoi will be instructors at thisParkinson’s Wellness Recovery Retreat!This will be a weeklong (7 day/6 night)retreat will be held at the beautifulScottsdale Resort in Phoenix,Arizona.Questions & Registration —Click here for more information
We believe all things are possible. www.413.Fitness
https://m.facebook.com/story.php?story_fbid=1184656668380701&id
=490664871113221
Chair Yoga for Parkinson’s
Just as important as meds!
Let’sExercise!
“Movin to Wellness Chair Yoga”Date: Every Wednesday (except during
the holidays, as noted)Time: 10 am–11 amPlace: 6200 Williams Drive at
Wellspring ChurchContact: Ki Browning [email protected]
512-876-0071.Socials: We stretch — We socialize! Join usfor lunch once a month! We encourage folkswith Parkinson’s and their caregivers to joinus for FUN and FELLOWSHIP!
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Dance for PD®Video’s for dance and exercise!https://danceforparkinsons.org/
Dancing For Parkinson’sDate: Every Tuesday (except during the holidays, as noted)Time: 1:30 pm–2:30 pmPlace: Georgetown Palace Theater Education and
Performance Center! Contact: Nancy Bain [email protected]
512-940-0148 Socials: We dance — We socialize! Join us for lunch once amonth! Remember that this is NOT a professional dancing but we encourage others with Parkinson’s, and their caregivers, to exercise, dance and sing through life!Please invite your friends and caregivers to join us to share the FUN!
Painting withParkinson’sAre you an artist or “artist wanna be”? Helpto get this group going! Call Mary Jane 512-240-4167 (h) or 512-658-3658 (c)Date: You schedule the date that works
for you!Time: You select the time that works
for you!Place: 2534 Shell Road, GeorgetownContact: Kimberly Keller at [email protected]: We need avolunteer lead forthis to set up paint-ing dates and socials!We know that arttherapy has beendemonstrated toreduce stress, lower blood pressure, andimprove dexterity. It’s one of a number ofcomplementary therapies that have beendemonstrated effective in helping peoplewith Parkinson’s disease (PD) both improvephysical condition and increase happiness.Website: www.paintwithmekeller.com
Free T-Shirts Made For GAPS! FREE GAPS T-shirts with the quote “WeAin’t Givin’ Up Hope…Nope!”Yes, we havemore…thanks to a donation by Medtronic.If you want a shirt, contact Mary JaneBerry! The quote on the T-shirt is fromRobert Kamper’s song he wrote the musicand lyrics! Thank you, Robert!
Capital AreaParkinson’s Society CAPS meet on Saturday from 2 – 4 pm,in the 5th Floor Conference Room of theMedical Office Building at St. David’sMedical Center. The address is 3000 NorthIH-35,Austin, 78705. http://www.capita-lareaparkinsons.org/ Next meeting isSaturday, May 18, 2 to 4 p.m. “SpeechTherapy” Presented by Shelly Carver ofAccolade Home Care.
Foundations Updates➣ Michael J Fox Foundation
Michael J Fox Website➣ Parkinson’s Foundation
Parkinson’s Foundation Website➣ Parkinson’s Research Foundation
Parkinson’s Research Website➣ Davis Phinney Foundation
Davis Phinney Website➣ St. Louis American Parkinson’s
Disease FoundationAmerican PD Foundation Website
➣ WOW! — a list of “world-wide”Parkinson’s Support Groups! World Wide Groups
Power for Parkinson’s
https://www.powerforparkinsons.org/ Don’t Forget Thursdays — “Power forParkinson’s Fitness for PD” — meets everyThursday at 1 pm in Round Rock at 2111Sam Bass Road in the N’Caliente Fitnessand Zumba Studio! Also, there are fivelocations throughout Austin and one inLakeway to attend FREE classes!
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Run/Walk Fundraisers for Parkinson’s ResearchMichael J Fox Trot 5KRun/Walk was Saturday April 27 and a great time! Thank you to the many GAPSmembers and supporters forparticipating in the inauguralAustin Fox Trot 5K for Parkinson'sResearch! With your help, this event hasraised almost $80,000 (and counting!) —100 percent of proceeds going directly tohigh-impact programs to speed bettertreatments and a cure for Parkinson's dis-ease. Together, we are doing our part inmaking even greater strides towards ourultimate finish line: a cure. Look at themany pictures of this really FUNdraising event!
Singing with Parkinson’s “Texas Tremble Tones”
Date: Every Monday (except during theholidays, as noted)
Time: 11:30 am to 12:30 pm
Place: First Baptist Church,1333 W University Ave,Georgetown. Room E2.103
Contact: Ron Franklin #210-392-0098 or [email protected]
Socials: In addition to singing we socialize!Join us after Choir for lunch once a month!
Join us for your health and for FUN tomake ‘joyful sounds’! Please invite yourfriends to join us for Texas Tremble Tones!
Remember that Caregivers are welcome too!
EVENT PHOTOS taken byFox Foundation. These aregreat photo’s! If you want to see the pictures that I took, go to our website, click on recentevents:
http://georgetowntxparkinson.weebly.com/
GAPS Next Support Group Meeting,Don’t Forget
For EVERYONE ~ patients,caregivers/care partners, family, friends,and health care!
May 23, 2019(4th Thursday of the month!)
Time: 3 pm to 5 pm - meeting beginspromptly at 3pm
Place: First Baptist Church Recreation Center,1333 W. University Avenue, Georgetown.Meet in the Recreation Center (Gym)
Contact: Mary Jane Berry [email protected] 512-240-4167
Speaker: Dr. Keilty Darnallhttp://www.georgetownsleepcenter.com
Topic: "Parkinson's Sleep Problems"
Refreshment Sponsor:Comfort Keepers, GeorgetownLauren Urbanek 512-255-6633
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GAPS Parkinson’s Awareness Walk for Parkinson’s Foundation Our Team Captain, Bob Gessler lead a great walk on Saturday,May 4! This walk was a beautiful 1.6 mile walk at San Gabriel Park.It was an easy and very FUN walk that raised over $400. We hadKristi Richards with 413 Boxing lead us in stretches and
See all the pictures on our GAPS website, under “recent events” click here: http://georgetowntxparkinson.weebly.com/
Councilman Steve Fought sent us off with encouraging words and“go!” Way to go, Captain Bob! You can still donate at online atwww.crowdrise.com/movingdaycommunitywalkGeorgetown
Parkinson’s Articles and Updates ✦ Parkinson’s VOICE Research — I met this young man at the
Davis Phinney Victory Summit and he has attended our lastGAPS meeting. Steven Darroh, is a speech-language pathologistinterested in working with voice issues in people withParkinson’s Disease. He would like to interview “you” either overthe phone or in person with some people with Parkinson’s. Theinterview will likely last between 5 and 10 minutes, and I willask a set of standardized questions. He is seeking to “hone in” onthe biggest issues facing people with PD from a speech patholo-gy standpoint. Please reach out to Steven, if you’re interested byemail, call, or text me. Thanks in advance for your time and con-
sideration, hope to meet many of you soon. Steven Darroh,[email protected] 713-899-6750
✦ WEBINAR, Looking Deep into Cells for the Answers toParkinson’s — Thursday, May 16, 2019 at 11a. Register HerePanelists will discuss efforts to better understand what goeswrong in Parkinson’s on the deepest level — in the genes andproteins that are the instructions and ingredients for life.Researchers will discuss how defining these differences canpoint to better ways to measure and treat Parkinson’s disease.
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✦ Questions to Ask Your Loved One — The people we love aregoing to die one day, but their stories don’t have too! I attended a recent lecture on learning more about your “loved one” by Mike Okrent. Here are 15 great questions to ask your loved “one now! If you would like to have this professionally videotaped you can contact Mike through his website.https://www.lifestoriesalive.com/.(In no particular order of importance)1. If you had just one more day with a deceased loved one, who
would it be and what would you do with them that day?2. What is the most important lesson you've learned in life
from a mistake you’ve made?3. What are you most grateful for in your life?4. What, or whom, are you most proud of in your life?5. Is there anything you’ve never told me but want to tell me
right now?6. (If a parent) How did it feel to hold your first-born in your
arms for the first time?7. As you look back on the life you've led, do you have any
regrets?8. What advice would you give to future generations regarding
dating?9. What advice would you give to future generations regarding
choosing a lifelong mate?10. What was the happiest moment in your life? The saddest?11. What is your earliest memory?12. What do you forward to?13. How would you describe a perfect day when you were
young?14. What is the most important thing in life?15. (Always the last question I ask) Do you have any closing
comments to leave for future generations?✦ “Duopa as a Treatment Option" Presentation —
Thursday, May 30 at 1pm. Presentation by Dr. Michael Soileauand FREE lunch at Saltgrass Steak House, 2300 N IH35, RoundRock. Duopa is a prescription medicine used to treat motorfluctuations in advanced Parkinson’s disease. Duopa containstwo medicines: carbidopa and levodopa, which are among themost commonly prescribed medicines used to treat Parkinson’s.MUST RSVP at 844-261-5230.
✦ Books: The Brain’s Way of Healing and Reverse Parkinson’s Disease — I am sharing these two books that wererecommended to me. I have not read them! The Brain’s Way of Healing was written by Norman Doidge, M.D.,a psychiatrist and psychoanalyst. It describes natural, noninva-sive avenues into the brain provided by the energy around us-inlight, sound, vibration, and movement that can awaken thebrain’s own healing capacities without producing unpleasantside effects.
Reverse Parkinson’s Disease was written by John Pepper, a SouthAfrican author who was president of Parkinson AssociationSouth Africa four times. This inspirational book, emphasizes therefusal to accept the pervasive, grim attitude conjured by themere mention of PD. The author believes the lack of hopefulinformation feeds depression and negative attitudes:“You can-not maintain or improve your quality of life if you believe that itis not possible.”Book Review for “Reverse Parkinson’s Disease”:https://nwpf.org/stay-informed/blog/book-review-reverse-parkinsons-disease/ Book Review for “The Brain’s Way of Healing”:https://sciencebasedmedicine.org/mind-over-matter-the-brains-way-of-healing/
✦ Living with Parkinson’s Video — This is an excellent resourceto share with family and friends to learn more about “Livingwith Parkinson’s.” It very open, informational, interesting andonly 27 minutes long. Meet men and women from all walks oflife who struggle to delay their disease progression, includingformer Sacramento Kings power forward Brian Grant.http://www.kvie.org/viewfinder Well worth watching it …https://www.youtube.com/watch?v=RSCEoiVxLL0
✦ Tai Chi May Improve Balance and Quality of Life —Tai chi is an ancient Chinese martial art that incorporatesbreathing, visualization, and specific movements called forms.Some experts say it may be an effective therapeutic tool for people with neurologic disorders. Several studies have foundthat tai chi can help with balance, reduce the incidence of falls,and enhance quality of life for people with Parkinson’s disease,multiple sclerosis (MS), and stroke. Read more here:https://www.brainandlife.org/the-magazine/article/app/15/2/11/tai-chi-may-improve-balance-and-quality-of-life?utm_source=informz&utm_medium=email&utm_campaign=19%20bl%20new%20issue%20alert&utm_content=april%2Fmay%20a
✦ Brain & Life Magazine — Brain & Life is a free patient andcaregiver magazine and website from trusted neurologists of theAmerican Academy of Neurology. Excellent resources that youcan receive in print copy or digital copy! Click here: Contactor Start a Free Print Subscription or Start a Free Digital Subscription
✦ Davis Phinney Parkinson’s Research — The Davis PhinneyFoundation is unique to focus research funding on therapiesand programs that have the potential to improve the quality oflife of people living with Parkinson’s! Look at their time line inthe past 15 years to see just a few of the life-changing studiesthat Davis Phinney Foundation has funded:davisphinneyfoundation-research
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✦ Great articles from Parkinson’s News — This is an excellent resource from the Parkinson’s News. It is FREE to subscribe. Here are a few articles, click on the link to learn more,:My Joy of Gardening Is More Than Skin DeepSalivary Gland Biopsy Detects Abnormal Alpha-Synuclein inEarly Stages of Parkinson’s, Study FindsMindfulness Yoga May Reduce Anxiety, Depression inParkinson’s Patients, Study SuggestsMy Partner Also Has a Chronic Disease. The CHRONDICreed Helps UsAlabama Parkinson’s Patient Helps Raise Awareness,Especially in Black CommunityStudy Establishes Complex Relationship Between Statin Useand Parkinson’s RiskBetter Social Support Linked to More Positive LivingExperience, Study ShowsMaking Sense of the SenselessI’m Learning Not to Make AssumptionsHigh Levels of Inflammatory Biomarker Evident in Patients,Study Says, But Cause-Effect UnknownHeel, Toe: Walking with Mindfulness
✦ Parkinson’s Cruise in 2020 — Parkinson’s Disease EducationalCruise on March 8, 2020 on Royal Caribbean’s Adventure of theSeas with ports of call in Grand Cayman, Costa Maya andCozumel. There will be a conference on the two sea days withprograms by Dr. Riley and Marilyn and an Exercise Instructor.It is a wonderful time to learn about the latest informationregarding Parkinson’s Disease and socialize with fellow passen-gers. This cruise is open to everyone so please feel free to inviterelatives, neighbors, friends or anyone else that would like to joinus for a wonderful cruise and socialize with great people. Pleasecall me for details and get booked for the next great Adventureof the Seas. My numbers are 941-727-8371 and 800-583-9586.
✦ Liberty Pharmacy is open! Yeah,the gas leak problems have allbeen fixed! However, GAPS hasnew, permanent meeting locationsfor our monthly meeting, caregiv-er’s meeting and weekly yogaclasses! A tremendous THANKYOU to Georgetown HealthFoundation and Linda Owen formeeting at your location for the past eight years!
✦ Going to Japan? — If you are, you may want to attend theWorld Parkinson Coalition® 5th World Parkinson Congress thatwill be held in Kyoto, Japan on June 4-7, 2019. World ParkinsonCongress Conferences are designed, hosted, and run by theWorld Parkinson Coalition Inc., a US-based nonprofit organiza-tion dedicated solely to this event and to ultimately bringing theglobal Parkinson's Disease (PD) community together to helpexpedite the discovery of both the cause and cure of PD.Visit the website
✦ Webinar Your Deep Brain Stimulation (DBS) QuestionsAnswered — Wednesday, May 22 at 1pm, the Davis PhinneyFoundation will host a webinar to learn more about DBS.Register: To register for this free webinar, click here
✦ Parkinson’s Disease and Diet,A Practical Guide — TheMichael J Fox Foundation has a FREE diet guide for “YOU”!Diet can affect energy levels, sleep and mood. For people withParkinson’s, eating habits can boost medication benefits andease symptoms. Our updated guide on Diet and Parkinson’s covers these topics along with research on popular regimens(such as the ketogenic and Mediterranean diets) and muchmore. Click here and download the guide:https://www.michaeljfox.org/files/041819_MJFF_DIET_GUIDE.pdf
✦ Fox Foundation and 23andMe Launch Data Platform FoxDEN to Help Accelerate Research Efforts — The Michael J.Fox Foundation for Parkinson’s Research (MJFF) and 23andMeannounced the launch of a data and analytics resource forresearchers, based on patient experiences, that aims to improveclinical trial design and, subsequently, therapies for Parkinson’s.Called the Fox Insight Data Exploration Network (Fox DEN), it’sthe platform for Fox Insight, an online, MJFF-sponsored clinicalstudy about health-related experiences from volunteers withand without Parkinson’s disease. Fox DEN features patient-reported outcomes, de-identified (for privacy) genetic data, andinformation exploration tools from what’s known as the mostexpansive cohort in Parkinson’s investigations. click on thislink to learn more:
Fox Foundation and 23andMe Launch Data Platform FoxDEN to Help Accelerate Research Efforts
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✦ Davis Phinney Foundation “EveryVictory Counts Manual” —Free for you! Davis Phinney Foundation announcedthat the latest printed version of theEvery Victory Counts manual (click on this link) is in-stock and available to ship to your home.
✦ Core Strengthening Exercise for Parkinson’s —Dr. Sarah King, PT, DPT from Invigorate Physical Therapy andWellness has teamed up with the Davis Phinney Foundation tolaunch new information on core strengthening exercises forParkinson’s, but what exactly does it mean to have a “strongcore”? And why is it important for someone with a Parkinson’sdiagnosis? In this four-part mini-series, we’re going to discusswhat your "”core” is, why it matters and guide you through aseries of exercises that will help you build one that is flexible,strong and coordinated. What is “Core Strength”? The “core” ismade up of the major muscle groups that move, support andstabilize your spine.Click here: core strengthening exercises for Parkinson’s
✦ Hiding / Not Hiding with Parkinson’s Disease —In the world of disabilities, one of the top “don’t say this to me”statements is “but you don’t look sick.” In what it can infer (quityour whining, pull up your britches, and get on with it), it’s easy to see why. No one wants people to call them a dramaqueen/king, let alone a liar or someone looking for false sympathy. Instead, we want people to show real empathy for our plight, even if we know it can’t be fixed. Simple comfortingfeelings go a long way, especially if many of our symptoms arehiding or “invisible.” Read more here: ... Read More
✦ Parkinson’s Foundation — Special Parkinson’s Awarenessissue of the Parkinson’s Report newsletter focuses on a topicimportant to our community: genetics and Parkinson’s “disease (PD). Find out more about our newest study,PD GENEration: Mapping the Future of Parkinson’s.This issue also features:Ask the Doctor: Genetics EditionTips: Talking to Children About Parkinson’sSocial Media as an Empowerment ToolPD and VertigoDon’t miss our #KeyToPD article,Your Keys to Living Well with Parkinson’s,where we asked our community to share everyday tips that help make life with Parkinson’s just a little easier.Having trouble reading the newsletter? Download it here.
✦ Exercise your brain: Tips for Daily Living: 12 Ways to BoostYour Brain Power — Try this out:https://parkinson.org/blog/tips/boost-brain-power
✦ Peripheral Neuropathy and Parkinson’s: The Connection —People with Parkinson’s sometimes experience weakness,numbness, and pain in their hands and feet. They may questionwhether these are symptoms of Parkinson’s disease (PD) oranother condition. There is an increasing medical discussionabout the existence of peripheral neuropathy (PN) in peoplewith PD. Peripheral neuropathy is a medical condition caused bydamage to the peripheral nervous system (PNS), part of thebody’s communications network. The PNS transmits sensoryinformation signals between the central nervous system (CNS),the brain and spinal cord, and other parts of the body. The messages allow you to sense variance in temperature andinstruct muscles to contract, enabling movement. Other types ofPNS signals control general body functions including the heart,digestion, and immune system. Peripheral nerves are essentialregulatory messengers. Read More
✦ Genetics and Parkinson’s — People with Parkinson’s disease(PD) experience major differences in their symptoms, responsesto medications and side effects to treatments. Understandinggenetic differences across people with Parkinson’s can helpuncover important clues about how and why each person’s experience with Parkinson’s differs. The Parkinson’s Foundationis here to answer your frequently asked questions about geneticsand Parkinson’s: If I have Parkinson’s will my child get it too?What if my genetic test is positive for a Parkinson’s gene? Should I take an at-home genetics test to see if I will getParkinson’s? Am I more likely to get Parkinson’s because of my genes or my environment? Should I see a genetic counselor if a family member has Parkinson’s? Whatresearch is being done on genetics and Parkinson’s? Read all the most frequently asked questions about geneticsand Parkinson’s now.Click on all the highlighted links to read!
✦ Study Establishes Complex Relationship Between Statin Useand Parkinson’s Risk — A new study suggests a relationshipbetween the use of statins (medications used to lower choles-terol) and the risk of developing Parkinson’s disease. The study,“Association of statin use with Parkinson’s disease: Dose-response relationship,” was published in the journal MovementDisorders. Statins are one of the most commonly prescribedmedications to prevent cardiovascular disease. Conclusion:more research needed! The post Study Establishes ComplexRelationship Between Statin Use and Parkinson’s Riskappeared first on Parkinson’s News Today.
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Caregiving/Care Partner Support✦ Caregiver Conference — Pflugerville Senior Conference,
Thursday, May 9 at 9 am to 2 pm Pflugerville CommunityChurch, 1214 Pfennig Lane, Pflugerville, TX 78660. Hosted byAGE of Central Texas and Pflugerville Community Church 9 am–10 am Registration and Light Breakfast 10 am “Medicare Tricks, Traps, and Trends” with Lynn
Shank, Certified Senior Advisor at TexasAssurance Care Inc. and A+ LongevityManagement
11 am “Avoiding Estate Planning Mistakes” with RobHugos,Attorney, CPA, LLM (Tax), and Director ofAdvanced Planning at The Wiewel Law Firm
12–12:30 pm Resource & Information Fair and complimentary lunch
12:30–1:30 pm “Aging Boldly” round-table discussionwith area experts on healthy agingresources in the Pflugerville area,including the Pflugerville Public Libraryand Pflugerville Recreation Center
The Conference is free, but advance registration is required, sowe can be prepared with enough materials for all attendees,please call Natalie Alcorta at (512) 600-9275.
✦ Seniors Living Smarter Seminars — The Seniors LivingSmarter Seminars are presented monthly by Seniors Real Estate Specialist® Virginia Lazenby as a service to seniors, theirfamilies, and the community. The goal of the free seminars is toequip, educate, and inspire seniors to make informed choicesand empowered decisions concerning their lifestyle goals.Please join us for this series of very candid and real conversations about the unique and often complex housing-related issues facing seniors and their families.
May 16 What's What with Personal Assistance, Home Careand Home Health
April 18 Communicating with Adult ChildrenJune 20 How to Pay for Assisted LivingRegister at: https://www.seniorslivingsmarter.com/seminar
or call 512-862-7339 ✦ How to find the right assisted living facility — Must-Ask
Questions Before Moving to Assisted Living Transition Plan.Click on the link to Read The Article
✦ “The 18th Annual Striking A Balance Caregiver Conference” —Save the date for Saturday,August 24 at 8:30 am to 2 pm at theDoubletree by Hilton Hotel Austin, 6505 N Interstate Hwy 35,Austin, TX 78752. AGE of Central Texas and the Area Agency onAging of the Capital Area come together every year to co-hostthe largest, longest-run FREE caregiver conference in CentralTexas. Registration info coming soon!
✦ What Happens When a Caregiver Needs a Caregiver? —Great article in https://blog.silverlinkusa.com/First, here are some tips to keep the caregiver healthy so thecaregiver does not end up needing a caregiver. These tips areunder the broad theme of being proactive, of caring well foroneself, the caregiver. One good first step in being proactive is to listen to the body and to be aware of symptoms. Stop andrecognize the pain! It’s wise to pause long enough to analyze theunwell feelings. This means considering the answers to two keyquestions:“Do I need to take corrective action? Do I need toconsult with a doctor or nurse?” Thank you to Chris Grant,with Senior Helpers for sharing!
Quick Summary For Meetings and Classes Monday’s — “Singing with Parkinson’s with the Texas TrembleTones” every Monday at 11:30 am Location: First Baptist Church,
1333 W. University Ave, GeorgetownContact: Ron Franklin 512-392-0098Tuesday’s — “Dancing with Parkinson’s” every Tuesday at 1:30 pmat Georgetown Palace Theater – Education and Performance Center216 W 8th StreetContact: Nancy Bain #512-940-0148
[email protected]’s — “Chair Yoga with Parkinson’s” every Wednesday at9 am Location: 6200 Williams Drive at Wellspring ChurchContact: Ki Browning 512-876-0071 [email protected] — “DBS Support Group” on 3rd Wednesday at 2 pmLocation: The Delaney at Georgetown Village, in The Residences
section, 359 Village Commons Blvd, GeorgetownContact: Judy Mayo 512-943-9084
Thursday — “Caregiver’s Support Group” on 2nd Thursday at 2 pmLocation: Autumn Leaves 3600 Williams Drive,GeorgetownContact: Debra Thurber #512-688-0159 dthurber@autumn-
leaves.comThursday — “Parkinson’s Support Group” on 4th Thursday at 2 pm Location: First Baptist Church1333 W. University Ave, GeorgetownContact: Mary Jane Berry 512-240-4167
[email protected]’s — “Power for Parkinson’s Round Rock Fitness”every Thursday at 1:30 pm at 2111 Sam Bass Road, Round Rock Contact: 512-464-1277 https://www.powerforparkinsons.org/Monday/Wednesday/Friday — “Boxing Classes” start at 9:30 am Location: 2522 Shell Rd, STE C, Georgetown, TX 78628
(Inside Georgetown Brazilian Jui Jitsu)
Contact: Kristi Richards 512-695-4649 email: [email protected]: http://413.fitness/
