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    PreliminaryAnalysis

    oftheHealthandHumanResourcesBudget

    fortheSettlementAgreement

    RobertW.Anthony,Ph.D.*

    MemberoftheBoardParents&AssociatesoftheNorthernVirginiaTrainingCenter

    December4,2012

    *Dr.AnthonysqualificationsarefoundinAttachmentI.

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    ExecutiveSummary

    OnJanuary31,2012,HealthandHumanResourcesbriefedtheSenateFinanceCommitteeontheirbudget,estimatedtorequire$340.6millioninnewGeneralFund[s],tocoverthecostsofthenowfinalSettlementAgreementwiththeU.S.DepartmentofJusticeandtheexecutivebranchsdecisiontotransitioncurrent

    residentsofVirginiasTrainingCentersintocommunityplacements.SinceHHRdidnotpubliclydocumenttheirsourcesandmethods,thisanalysisreconstructstheHHRBudgetfrompostingsonthewebbyHHRandtheDepartmentofBehavioralHealthandDevelopmentalServices.ThisanalysisclarifiestheinterpretationoftheHHRBudgetandprovidesabasisforexaminingitsassumptionsandcoverage.

    LeavingallfiveofVirginiasTrainingCentersopenwouldlikelyhaveaneutraleffectorsaveVirginiasGeneralFundmoremoneythanwouldclosingfourofthem,asplanned.TheHHRBudgetassumesIDwaiverratesthatwererecognizedbyallpartiesnottobeadequatetosupportmostcurrentTrainingCenterresidents,manyofwhomcamethereafterfailingtofindadequateplacementsinthe

    community.Providersandpeer-reviewedscientificresearchbothestimatethatadequatecommunityplacementsforthisveryvulnerableandchallengingpopulationwillcostasmuchasTrainingCenterplacements.

    TransitioningresidentsofTrainingCenterstothecommunityincreasesmortalityrisks.Reducingthelevelofsupportaftertransitionorhurryingthetransitionprocessexacerbatestheserisks.Mostcommunityplacementsaretoosmalltojustifythecostoftwostaffontheovernightshiftthatprovidesemergencybackupandinhibitsabuseandneglect.Accesstonursingandprofessionalservicesiseitherdelayedorveryexpensiveifonsite.Characteristicssuchasthesecauseanestimated72percenthighermortalityforthosetransitionedtothecommunity.

    SmallregionalTrainingCenterswouldappeareconomicallyviableandpreservetheconnectionsbetweenresidentsandtheirlocalcommunity.Over97percentofAuthorizedRepresentativespolledwantthosetheyrepresenttoremainintheirlocalTrainingCenter.MoveswouldsevertieswiththefourvolunteersforeachresidentatNVTC.BycitinglowerperpersonratesatcommunityIntermediateCareFacilities,theHHRBudgetbriefopensupforconsiderationtheoptionofsmallerregionalTrainingCenters.

    Thisanalysisshowsthehugeleveragethatwaiverratesandcontinuedunmetneedsinthecommunityhaveoverthetotalbudgetforwaiverplacements.TrainingCentersmightprovidesomerelief.TheHHRBudgetdoesnotshowthe

    underlyingbaselinebudgetofapproximately$4.5billionforthosealreadyreceivingsupportsforID/DDin2012,abudget13timeslargerthanthenewGeneralFundrequestof$340.6million.Overall,communitysupportsconstitute80percentoftotalfundingforID/DD.Ifthe8.1percentgrowthrateofIDwaivercostsduringthelastdecadecontinuesthroughtheSettlementAgreementperiod,itwouldadd$1.9billionor48percentmoretothe10-yearbudget.OrganizationalintegrationandeconomiesofscaleatTrainingCentersofferoptionstocontaincostsforthosefewwiththemostintenseprofessionalservicesandbehavioralmanagementneeds.

    .

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    SummaryofFindings

    Thisanalysisisofferedinacooperativespirit.AlthoughitfocusesonapparentproblemswiththeHealthandHumanResourcesBudgettocoverthecostsofthe

    nowfinalizedcourtSettlementAgreementandoftheexecutivebranchsdecisiontoclosefourofitsfiveTrainingCenters,thepurposeistoalertpolicymakerstotheseproblemssothattheycanputVirginiaonthebestpathtoabetter,moreintegratedsystemofsupportsforthosewithIntellectualDisabilitiesandDevelopmentalDisabilities.

    OnJanuary31,2012,theSenateFinanceCommitteewasbriefedontheHHRBudgettocoverthecostsofthenowfinalizedSettlementAgreement.TheHHRBudgetalsoassumedthatallcurrentresidentsofVirginiasfiveTrainingCenterswouldtransitionintocommunityplacements.Sincetherearenopublicdocumentsgivingtheanalyticalsupportforthosefinalamounts,itisverydifficultforinterested

    partiestoidentifytheplanningassumptions,uncovertheunstatedcostbaselineuponwhichtheHHRBudgetbuilds,orassesstheappropriatenessofindividualperpersonrates.AnyoneoftheseaspectscouldsignificantlyimpactfutureGeneralFundobligations.

    ThisanalysisreverseengineerstheprincipalcostitemsintheHHRBudget,basedonannualperpersonratespostedonthewebbyHHRandtheDepartmentofBehavioralHealthandDevelopmentalServices.AftervalidatinganapproximateunderstandingoftheHHRBudgetconstruction,theanalysisexaminestheunderlyingassumptions,thediscrepanciesbetweendifferentsourcesofinformation,majorcostdrivers,andalternativesthatmightimprovethesystemofsupports.

    TheImpactofKeepingTrainingCentersOpen

    LeavingallfiveofVirginiasTrainingCentersopenwouldlikelyhaveaneutraleffectorsaveVirginiasGeneralFundmoremoneythanwouldclosingfourofthem,asplanned.

    ThereasonwhyleavingthecentersopenwouldcostthesameorlessthanclosingthemliesininaccuraciesintheHHRBudget.ItoverestimatesthecostofTrainingCenterplacementswhileunderestimatingthecostofcommunitysupportsforthoseleavingacenter.Onbalance,TransitionWaiverSlotsarelikelytocostasmuchasTrainingCenterplacements.

    CommunitycostswillbemuchhigherthanestimatedbyHHR.ASeptember18,2012HHRbriefingestimatedtheTransitionWaiverswouldcost,onaverage,$104,000perpersonannually.ModelinganalysisoftheHHRBudgetagreeswiththisrateassumption.SincethosewhohavebeenabletosuccessfullyleaveTrainingCentersforcommunityplacementsatthislowratehavebeenthoserequiringtheleastchallengingsupports,onewouldexpectpeopleremaininginCenterstoneedmuchmorecostlysupport.Moreover,theDBHDShasrecognizedthatthewaiverfundingisinadequatetoservethispopulation.A2010DBHDSreportstated,The

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    disparity[infunding]makesitdifficultforthosewithcomplexmedicalorbehavioralconditionstoreceivesufficientcareandservicesundertheIDwaiverprogram.1So,whentheHHRBudgetintheJanuary31,2012,briefingdocumentassumedthatMedicaidwaiverstructureandproviderratesdonotchange,itwasassuminglowercostsforwaiversthanwillbeneededtocareforpeople

    transitioningfromTrainingCenters.

    AdditionalevidencecastsseriousdoubtontheHHRBudgetbriefingassumptionthatthemaximumcostfortransferstothecommunitywouldcost$138,000peryear.ThisrateappliedtocommunityIntermediateCareFacilitiesforthosewithMentalRetardationin2011,butunlikeTrainingCenters,theseICFsoftenwillnotacceptapplicantswhoarenotmobileorhaveotherchallengingconditions.Foradifferentyear,a2009analysisbyBraddockandothersshowcommunityICFratesforVirginiathatareapproximatelythesameasthoseforTrainingCenters.2TheiranalysiscitesperpersonratesincommunityICFsas$251,000forthosewith15orfewerbeds,withanaverageoverallsizesof$217,000.

    TrainingCentercostsarelowerthantheHHRBudgetestimate.InJanuary2011,DBHDSciteda$216,000perpersonrateforNorthernVirginiaTrainingCenterbutonlya$181,000rateasthestatewideaverage.3TheHHRBudgetusedthehigherratefortheirestimationofFacilitySavingsratherthantheloweraveragenumberconsistentwiththewaivercostsinthatearlierperiod.ThisapparentinconsistencyinchoosingtheNVTCrateartificiallyincreasedtheFacilitySavingsby$163.1million,whichis55percentofthe$295.5millionnetsavingsHHRestimatesforclosingTrainingCenters.

    Overall,communityproviderestimatesandpeer-reviewedacademicresearchindicatethatTransitionWaiversplusotherlocalgovernmentcostswillroughly

    equalthecurrentcostofsupportingresidentsinTrainingCenters.AssumingnodifferenceincostbetweenTrainingCenterandwaivercostswouldeliminatethe$295.4milliondollarnetsavingsfromclosingTrainingCentersestimatedintheHHRBudget

    MakingbetteruseofthepropertiescouldreduceTrainingCentercostsfurther.Forexample,theDBHDScouldhave,butdidnot,considerthecostsavingproposalsputforwardintheNorthernVirginiaRegionalPlandevelopedbystakeholdersfromacrossthespectrumofTrainingCenterandcommunityorganizations.4

    1NorthernVirginiaTrainingCenterDiversionPilot,DBHDSReport,Item314E.,November1,2010.2Braddock,Hemp,Rizzolo,Haffer,Tanis,andWu,StateoftheStatesinDevelopmentalDisabilities2011,DepartmentofPsychiatry,UniversityofColorado,2011.3JamesStewart,III,MajorIssuesFacingtheCommonwealthsBehavioralHealthandDevelopmentalServicesSystem,abriefingpresentationtoajointmeetingofSenateEducation&HealthandtheHouseHealth,Welfare&InstitutionsCommittee,January13,2011.4RecommendationsforservicedeliverywithinHPRRegionIItoenhanceservicesforindividualswithintellectualdisabilitiesthroughcollaboration,NVTC,CSBs,andothers,November19,2010.

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    ThesimplestestimateofcostsavingsfromnotclosingTrainingCentersis$89millionoverthe10yearsoftheSettlementAgreement.ThisisprimarilythemoneybudgetedtotransitioncurrentTrainingCenterstaffintootheremployment,andconstitutes26percentoftheHHRnewGeneralFunds.

    NeedlessRisksandFalseSavingsfromHurriedClosingsTransitioningresidentsofTrainingCenterstothecommunityincreasesmortalityrisks.Reducingthelevelofsupportaftertransitionorhurryingthetransitionprocesspossiblywithneedlessmovesexacerbatestheserisks.

    TheHHRBudgetplannersassumedthat213TrainingCenterresidentswouldeitherdieorotherwiseleaveTrainingCenterssothattheinitialstatewidecensusof1018couldbeaccommodatedoverthe10yearsoftheSettlementAgreementbyonly805waivers.ForthisHHRplantoworkasdesigned,thosevacatingTransitionWaiverslotsinthecommunitywouldhavetobereplacedbyotherTrainingCenterdischargestofillthosewaivers.Subsequently,modificationstotheSettlementAgreementshouldreducethisconstraintbyexplicitlystatingtherighttopermanentresidencybythosewhochosetoremaininaTrainingCenter.

    TheonlywaytoachievesignificantcostsavingsbydischargetothecommunitywouldbebyareductioninthelevelofsupportthatcurrentTrainingCenterresidentsenjoy,butthiswouldalmostcertainlyelevatethemortalityrateofthosedischargedtothecommunity.About84percentofTrainingCentercostsareforprofessional,directcarestaff,andotheressentialsupports;thus,cuttingcosts,cutssupports.Professionalsvisitingcommunityresidentsspendapproximately25percentoftheirtimeintravel.Traveltime,therefore,rendersimpracticalthefrequentshortpreventativecarevisitsnowenjoyedbyTrainingCenterresidents.Acultureofcaringwithever-presentsocialpressureistheprincipalimpedimenttoabuse,neglect,orerror.Butsmallfourbedhomescouldnotaffordtohaveone,letalonetwo,peopleondutyatnight.Suchareductioninsupportswould,baseduponthefindingsofpeer-reviewedstudies,exacerbateanobserved72percenthighermortalityrateincommunityplacements.Thistranslatesintoanestimated74excessfatalitiesoverthedurationoftheSettlementAgreement,a35increaseoverthatexpectedwithoutdischargesfromTrainingCenters.

    TherearemanygoodreasonstodelaythescheduleforclosingSVTCandNVTC.Theadministrationhasset2014and2015asthedatesforSVTCandNVTCtocloseinordertomaximizetheiranticipatedcostsavingsneededtoimplementtheSettlementAgreement.AnyresidentswhoremaininaTrainingCenteratthe

    scheduledtimeofclosurewouldbemovedtoCVTC,whethertheyremainbecausetheychooseaTrainingCenterplacementorsimplycannotfindadequatecommunityplacementunderthecurrentwaiver.SuchanapproachvaluesanadministrativegoalmorethanthepreferencesoftheauthorizedrepresentativesfortheresidentstoremaininSVTCandNVTC.RemovaltoCVTCwouldalsodenyfamilyandfriendsreadyaccesstoseeingtheirlovedones.ItwouldalsodenytheresidentscontactwiththefourvolunteersforeachresidentatNVTC,andthemorethanthe20yearsofexperiencemanydirectcareworkershavewithNVTCresidents.

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    If,asexplainedabove,adequatecommunitysupportscostasmuchasTrainingCenterplacements,thenthereisnocostadvantagetoadheringtoanartificialscheduleforclosures.Instead,anyclosuresshouldbebasedonatimetablethatassuresthebestoutcomefortheresidents.OneobviousbenefitofaslowerclosurescheduleforSVTCandNVTCwouldbetotakeadvantageoftherestructuredwaiver

    tobeputinplacein2014or2015.Inaddition,aslowerschedulefordischargewouldprovidetimetotesttheeffectivenessofthenewcrisismanagementandqualitymanagementsystemsandtoanalyzetheoutcomesofcommunityplacementsforTrainingCenterresidentswhoelectthatoption.

    ReasonstoPreserveSmallerRegionalTrainingCenters

    SmallregionalTrainingCenterswouldappeareconomicallyviable,andtheypreservetheconnectionsbetweenresidentsandtheirlocalcommunity.

    NearlyallAuthorizedRepresentativeswanttheirlovedonestoremainintheircurrentregionalTrainingCenter.AtSVTC,AuthorizedRepresentativescontinuallyadvocateforretainingTrainingCenterplacements.AtCVTC,informalpollsofAuthorizedRepresentativesrevealednearunanimousdesiretoremainatCVTC.AtNVTC,97percentofthosepolledwouldchoosetoremain.SubsequenttotheearlierHHRBudgetbriefing,thefinalSettlementAgreementreaffirmedtherightofAuthorizedRepresentativestochoseaTrainingCenteroption.GiventhelargenumberofpeoplewhowishtoremaininTrainingCentersandthecomparabilityofcoststocommunitycosts,wouldntitmakemoresensetodevelopalternativeplansforasignificantnumberofresidentstoremainintheirexistingTrainingCenters?

    SmallerregionalTrainingCentersappeartobecostcompetitive.AccordingtotheHHRBudgetbriefing,smallcommunityICFsweregivenasanexampleofcostefficiencyforthecommunity.PerhapsDBHDScouldalsooperatesmallerstateICFs,thatisTrainingCenters,economically.

    AUnderlyingBaselineBudgetandCostDrivers

    Thisanalysisshowsthehugeleveragethatwaiverratesandcontinuedunmetneedsinthecommunityhaveoverthetotalbudgetforwaiverplacements.TrainingCentersmightprovidesomerelief.

    RestructuringthewaiveranditsrateswouldbethedominantfactordrivinguptheneedfornewGeneralFunds.WhiletheHHRBudgetbriefingshows$340.6millioninnewGeneralFundmoneyisneeded,HHRsBudgetdoesnotshowtheunderlyingbaselinebudgetofapproximately$4.5billionthatisbeingexpanded,13

    timeslargerthanthenewGeneralFundsof$340.6million.LookingattheentirebudgetforID/DDrevealsthat80percentofthecostsforsupportsdependdirectlyonwaiverrates.Giventhatthewaiverneedstoberestructuredanditsratesincreased,especiallyifthosewithinvolvedconditionsaretoleaveTrainingCenters,thiswillputgreatpressureonthetotalbudgetforID/DD.

    Methodologicalaside:Uptothispoint,theanalysisadoptedannualratesforwaiversandTrainingCentercostsgivenintheHHRBriefingorDBHDSreports,andthese

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    reproducetheHHRBudgetratherclosely.ButbroadeningtheanalysisrequiresmoreconsistencyinthetimeframeoftheratesHHRchoseandwhatsupportswereincludedinthoserates.Withconsistentrates,analysiscouldreconstructtheunderlyingbaseline,examinetheimpactofrateinflationover10years,assesstheconsistencyofthetimeframeamongtheratesHHRadopted,andestimatethe

    impactofrestoringthenumberofnewwaiversperyeartothe360enjoyedbetween2003and2010.

    Thevarioussourcesonratesappeartohavebeentakenfromdifferentyearsand,withoutbetterdocumentation,thisanalysisreconcilestheseasfollows:Thisanalysischosethe2012waivercostof$75,465fromtheHHRUpdatebriefingtomatchthe$224,245rateforTrainingCenterplacementsalsofromtheHHRUpdatebriefing.ButthisanalysiscouldnotdeterminefromthesepublicDBHDSsourceswhethertheratesincludechildren,DaySupports,AcuteCarecosts,orotherpossiblecontributions.Nonetheless,themajorconclusionsshouldhold,althoughactualdollarvaluesmightshiftwithmoreconsistentsourcesforrates.Assumingthatthe

    TrainingCentersremainopenshouldbebudgetneutral,hencetheartificialrateof$104,000forTransitionWaiversdoesnotapplytothisanalysis.

    ContinuedIDwaiverinflationof8.1percentwouldincreasetotalIDwaivercostsby$1.9billionor48percentovertheir$3.9billion10-yearbaselinewithoutinflation.TrainingCentercostsincreasedfrom$181,000to$224,245over33months,alsoan8.1percentannualincrease,yetonly33monthscannotestablishapreciseestimateofaveragerate.

    TrainingCenters,evenatsomewhatsmallersize,offervaluableeconomiesofscalethataremoreinsulatedfromnursingshortagesandwaiverrateuncertainties.Asanexampleofaneconomyofscale,TrainingCentersefficiently

    usenursingsupport.Inthecommunity,nursesupportwouldonlyavailablebyphone,withaboutanhourstraveldelay,ataTraining-Center-likecrisisstabilizationcenter,orathighcostforworkinginsmallresidences.

    ShouldtheGeneralAssemblychoosetofundonlytherequiredaverageof291waiversperyear,attheendoftheAgreement,theurgentwaiverlistwouldbelongerthanitisnowsinceitgrowsatroughly350peryear.TheSettlementAgreementcallsforanaverageof291newwaiversannually,mostforpeopleontheurgentwaitinglist.AstheGeneralAssemblyprovided360suchwaivers,onaverage,between2003and2010,oneshouldexpectthatcommunityadvocateswouldrequestacomparablenumberofnewwaiverseachyear.Possiblyadvocateswould

    evenasktheGeneralAssemblytohonortheir2009legislationpromising400newIDwaiversannually.Providing360Waiversinsteadof291wouldadd$145.2million,or43percentmoretotheHHRnewGeneralFunds.Providing400additionalWaiverswouldadd$208.9million,or61percentmoretothenewGeneralFunds.

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    AnalyticalSupportandDiscussion

    Tobeastransparentaspossible,thisanalysispresentsitssources,methods,andresultsinamannerthatinterestedreaderscouldtracefromassumptionstoconclusion.Italsopresentsusefulcollateralinformation,discussestheimplications

    oftheresults,andofferssomesuggestions.Hopefully,thiseffortwillimprovetheclarityandfocusofsubsequentdeliberationsandoffersomeinsightandoptionsforcontrollingcostswhileresponsiblysupportingthosewithsignificantIDorDD.

    1.SourcesandMethods

    ThisanalysistestsitsdatasourcesandmethodsbyreproducingtheHHRBudgetandthenappliesthatunderstandinginacritiqueofHHRsunderlyingplanningassumptions.ThelargestcostitemsintheHHRBudgetrepresenttheaggregatecostofsupportingmanyindividualswithIDorDD.ButsinceDBHDSdidnotpublishtheirsourcesusedtoderivetheHHRBudget,thisanalysisobtainstheindividualperpersoncostsmostlyfromwebpostingsofHHR,DBHDS,andotherreputable

    organizations.Toreproducetheanalysisbeginswiththeannualratesperperson,accumulatesthenumberofperson-yearsfromthescheduleintheSettlementAgreement,andmultipliesthosenumbersbytheirrespectiverates.CloseagreementbetweentheseestimateditemcostsandtheitemcostsgivenbyHHRBudgetshowsthatthemajorcontributionstothebudgethavebeenidentified.

    WithanunderstandingoftheannualratesusedbyHHR,thisanalysisoffersseveralreasonsandsupportingevidenceshowingthattheindividualizedannualratesforcommunityplacementsofthosetransitioningfromTrainingCentersareinadequateformostresidents.Measuredagainstthismoreappropriatesetofratesforthecommunity,leavingallTrainingCentersopenwouldlikelysavemoney.The

    onlyalternativewaytosavemoneyistoseverelyreducesupportsofferedinthecommunity,therebygreatlyincreasingthemortalityrateforthosedischargedfromTrainingCenters,anunethicalalternative.

    Otherfindingsofthisworkemploysourcesandmethodsthatareexplainedincontextalongwiththeirresults.Forsimplicity,MicrosoftExcelwasemployedforallcalculations,andotheranalystscouldeasilyreproducethecalculationsfromthisdescription.Asameansoflatercrosscheckingthecalculations,numbersarereportedastheycameouttoseveraldigits.Theseextradigitsarenotaclaimofhighprecisionasthesecalculationsareonlyapproximatevaluesgoodtothefirstfewdigits.

    EveryonereviewingtheHHRBudgetmustrealizethatitrepresentsamarginalcostcomparedwithaverylargeunstated,orunderlyingbaseline.Thisbaselineconsistsofthe10yearsofaccumulatedcostsofsupportingthosealreadyonwaiverinthecommunity,thenumberofwaiverslotsrequiredbytheSettlementAgreement,andthecostsoftheresidentscurrentlyinTrainingCenters,assumingtherewerenodischarges.Overthe10yearsoftheSettlementAgreement,aroughestimateofthisunderlyingbudgetbaselineisapproximately$4.5billion,whichis13

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    timeslargerthanthenewGeneralFundsintheHHRbudget,thatis,$340.6million.

    2.PerPersonAnnualRates

    ToestimatethelargerHHRBudgetitemcosts,thisanalysisneedstheratesfor

    individualsupports,whicharetheaverageannualcostsperpersonreceivingthesupport.Table1liststhenecessaryratesforID,DD,andTransitionWaivers,FamilySupports,andTrainingCenterplacements.Notethatmostsourcesareeitherfrom2010or2012,whichleadstosomeconfusion.

    TheItemandSourcecolumngivesthedocumentsourceand,insomecases,explainshowtherateswerederivedfromthesourceinformation.Boxesframethesourcenumber,andheavyboxesdesignatethosesourcesusedtoreconstructtheHHRBudget.IfthesourcedocumentdoesnotgivetheGeneralFundfraction,theTotalRatewassplitinproportiontotheGFandNon-GFamountsgivenintheHHRBudget.

    ThereweretwosourcesforthecostofIDwaivers,onethatwouldapplytoplanninggoinginto2010andtheotherfor2012.ButmodelingwillshowthattheHHRBudgetemployedthe2010numbers.Thelarger2012numberforIDwaiversmighthaveincludedotherelementssuchasacutehealthcareorDaySupports,butthiswasnotmadeclear.Bycontrast,theHHRBudgetaveragerateforTrainingCenterswasfortheplanningyear2012.ASeptemberupdatebriefingfromHHRgaveanevenhigherrate.Futurebudgetestimatesshouldexplainwhatiscoveredincommunitysupportsandemploythesamebaselineyearfortheirplanningrates.

    AlthoughmostoftheserateswerepubliclypublishedbyDBHDSorothergovernmentagencies,theywerenotprovidedbyHHRinresponsetoaFreedomof

    InformationActrequest.5Intheinterestoftransparencyofgovernment,thesesourcesshouldbeprovidedforfuturebudgetbriefingsandreports.

    A.UnderstandingtheHHRBudget

    MortalityplaysalargeroleinreducingtheTrainingCentercensusover10years,andtheanalysisexaminesthemortalityassumptionsandthenmodelstheimplicationsoftheseassumptionsonboththenumberofTransitionWaiversandtheFacilitySavingsbudgetitem.SincethemethodsforanalyzingTrainingCentercostsapplyequallywelltotheCommunityWaiversandSupports,thefinalsection

    completesthecomparisontotheHHRBudgetbaseline.

    AllbudgetmodelingisovertheSettlementAgreementperiod.JustasfortheHHRBudget,thisanalysisassumesconstantdollarsanddoesnotadjustfortheexpectedannualincreasesinwaiverratesorTrainingCenterrates.

    5LetterfromMatthewCobb,DeputySecretaryofHHR,toRobertAnthony,Ph.D.,datedMarch19,2012.

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    Item%and%SourcePlanning%%%%%%

    Date

    General%%%%%

    FundNGF

    Total%%%%%%%%%%

    Rate

    Individual)ID)Waiver)from)Plan)to)Eliminate)Waiting)List*

    2010 $31,855 $30,195 $62,050

    Individual)ID)per)Capita)Cost)Including)

    Acute)Care)from)VBPD)Assessment,)2011**2010 $31,893 $42,834 $74,727

    Individual)ID)Waiver)Cost)from)HHR)

    Update,)September)2012*2012 $38,742 $36,723 $75,465

    Individual)DD)Waiver)from)Plan)to)

    Eliminate)Waiting*2010 $13,353 $12,657 $26,010

    Individual)DD)per)Capita)Costs)from)VBPD)

    Assessment,)2010**2010 $16,080 $18,379 $37,768

    Private)communication*** $3,000 OO OO

    DBHDS)Briefing,)Jan)2011)and)University)of)

    Minnesota)Report,)2010*2010 $92,922 $88,078 $181,000

    ICF/MR)Expenditures)per)Person)for)

    January)2011,)VBPD)2011)Assessment*2011 $100,404 $95,170 $195,574

    Annual)cost)of)a)TC)placement)from)HHR)

    Budget)Brief)and)DBHDS)Brief,)Jan)

    2011****

    2012 $110,899 $105,408 $216,000

    Annual)cost)of)a)TC)placement)from)HHR)

    Update,)September)2012*2012 $115,124 $109,121 $224,245

    DBHDS)Briefing,)Sept)2012* )2012***** $52,000 $52,000 $104,000

    Note)that)boldOline)boxes)designate)rates)used)in)reconstructing)the)HHR)Budget,)while)the)paleOline)

    boxes)designate)values)from)other)regerences.

    *)General)Fund)portion)was)calculated)in)proportion)to)HHR)Budget)item)split)between)GF)and)total)of)

    GF)and)NonOGF.

    **)General)Fund)portion)was)calculated)by)dividing)total)GF)expenditures)by)census.

    ***)Another)source)places)a)tight)limit)on)$3,000:)"DJ)Implementation)Update")DBHDS,)page)16,)July,)

    2012,)gives)the)total)cost)for)1,000)Family)Supports)in)2014)as)$3.2)million,)or)$3,200)per)person.

    ****)The)2011)DBHDS)Briefing)gave)$216,000)as)the)rate)for)NVTC)alone)but)the)statewide)average)as)$181,000.))Nonetheless,)the)HHR)Budget)calculation)from)this)time)period)employed)the)$216,000)rate)

    instead.))The)General)Fund)portion)was)calculated)in)proportion)to)the)split)between)GF)and)NonOGF)in)

    the)HHR)Budget.

    *****)HHR)Budget)was)assembled)from)numbers)as)recent)as)late)2011;)however,)the)origin)of)the)

    $104,000)rate)cited)in)the)HHR)Update)Briefing)remains)unclear.

    Table%1.%Rates%(Annual%Cost%per%Person)%and%Their%Sources%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%%

    for%the%HHR%Budget%Items%Estimated%by%Modeling

    ID%Waiver%Rates

    DD%Waiver%Rates%

    Family%Supports

    Training%Center%Rates

    Transition%Waiver%Rates%for%Discharges%from%Training%Centers

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    1.MortalityandWaiverSlotsforDischargesfromTrainingCenters

    Losstomortalityoverthe10yearsoftheSettlementAgreementaccountsformostofthe213otherwiseunaccountedforpeoplegiventhattheoriginalplanningbaselinecensuswas1018TrainingCenterresidentsbutonly805TransitionWaiverslotswereoffered.

    a.AssumptionsaboutMortality

    ReproducingtheeffectofmortalityonTrainingCentercensusrevealsHHRplannersmortalityrateassumptionsandillustratesthemethodsusedthroughoutthisanalysis.

    Table2showstwomethodsforcalculatingthedecliningcensusfrom1018to805over10years.Thefirstcalculatesthenumberoffatalitiesfromthemortalityrateassumingeveryonealiveatthebeginningoftheyearremainssothroughouttheyearandthensubtractsthosefatalitiesattheendofeachyeartoyieldthecensusforthesubsequentyear.Sincetherearesomefatalitiesduringtheyear,thesecondmethodestimatesfatalitiesbasedonthemid-yearcensus.Toreducethecensusfrom1018to805bytheJanuary2022,themid-yearmethodmustassumeaslightlyhighermortalityrateof23.5per1,000peryearratherthan23.2fortheend-of-the-yearmethod.Notshowninthetableisacontinuousmodelofmortalityforwhichamortalityof23.6per1,000wouldbenecessarytodropthecensusto805in10years.

    Year Census Fatalities Census Fatalities

    2012 1018 23.6 1018 23.6

    2013 994 23.1 994 23.12014 971 22.5 971 22.5

    2015 949 22.0 949 22.0

    2016 927 21.5 927 21.5

    2017 905 21.0 905 21.0

    2018 884 20.5 884 20.5

    2019 864 20.0 864 20.0

    2020 844 19.6 844 19.6

    2021 824 19.1 824 19.1

    2022 805 213 805 213

    Fatalitiesper1000 23.2 23.5AverageAnnualFatalities 21.3 21.3

    Table&2.&Discrete&Models&of&Training&Center&Mortality&over&10&Years

    Mid?YearDecrementEndofYearDecrement

    Althoughthismortalityrateisnearlythreetimesasgreatasthe8.6per1000forthenormalpopulation,itisstillasmallpercentage,about2.3percentperyear.Therefore,thediscretemethodsareaquitesatisfactorysubstituteforthemoreexactcontinuousmethod.

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    Nonetheless,HHRhasassumedaratethatishigherthanthetypicalrateforVirginia.ThefollowingtableshowsthatVirginiasTrainingCentershaveanexcellentrecordofpreservingthelivesoftheirresidentscomparedtothenationalaverage.

    Table&3.&Baseline&Mortality&Rates&per&1000&for&State&ICF/MRs

    2009 2010 2009 2010

    1,259 1,197 33,682 30,602

    28 24 870 820

    22 20 26 27

    Sources:Larkin,Larson,etal.,ResidentialServicesforPersonswithDD,

    Univ.ofMinnesota,2010and2012.

    Virginia USAItem

    Averagedailypopulation

    Numberofdeaths

    Mortalityper1000population

    Since213fatalitiesamongtheTrainingCenterpopulationoverthenext10yearsisastatisticalexpectation,within95percentconfidencetherecouldbeasmanyas21fewerdeathsandmoredemandforTransitionalWaivers.Subsequently,the

    SettlementAgreementwasrevisedsothatsomeresidentscouldremainiftheirAuthorizedRepresentativeschoseforthemtostay.ThisprovisionoftheAgreementwillprobablyreducethedemandforTransitionWaivers.

    b.UsingTransitionWaiverSlotsOpenedbyMortality

    FortheHHRplantoworkasdesigned,somewhatmorethan23residentsper1000wouldhavetodischargewithoutusingaTransitionWaiver,andthosevacatingTransitionWaiverslotsinthecommunitywouldhavetobereplacedbyotherTrainingCenterdischargestofillthosewaivers.Table4parallelsTable3whileshowingtheTransitionWaiverplacementsasagrowingcensusinthecommunity.Notethatfatalitiesinthecommunitymakeroomformoredischarges

    toOldWaivers.Overall,thetotaloftheEmptyingTrainingCentercensusplustheWaiverPlacementcensusequalstheoriginalcensuswithoutdischarges.Similarly,thefatalitiesintheTrainingCentersplusthoseinthecommunityalsosumtotheoriginalnumberoffatalities.

    2.HHRFacilitySavingsandTransitionWaiverSlots

    FacilitySavingsshownintheHHRBudgetaretheaccumulatedcoststhatwouldhavebeenincurredifresidentshadremainedintheTrainingCenters.Therefore,asimplewaytoestimateFacilitySavingsistomultiplytheperson-yearsinwaiverplacementsbytheportionoftheTrainingCenterratethatcomesfromGeneralFunds.Similarly,TransitionWaivercostsarethesamenumberofperson-yearsmultipliedbythewaiverrateforthoseleavingTrainingCenters.

    Table5showsbothoftheseaccumulations,mid-yearcorrections,andcomparisonswiththeHHRBudgetbaseline.FacilitySavingsestimatesagreewiththeHHRBudgettowithin3percent,andTransitionWaiverestimatestowithin6percent.BothoftheseestimatescanbebroughtintoexactagreementwiththeHHRBudgetbyshiftingthemid-yearpointtoMarchandFebruaryrespectively.

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    Year Census FatalitiesNew/

    WaiversCensus Fatalities

    Old/

    WaiversCensus Fatalities

    2012 1018 23.6 60 1018 23.6 0 0 0.0

    2013 994.4 23.1 160 934.4 21.7 1.4 60 1.4

    2014 971.3 22.5 160 751.3 17.4 5.1 220 5.1

    2015 948.8 22.0 90 568.8 13.2 8.8 380 8.8

    2016 926.8 21.5 85 456.8 10.6 10.9 470 10.9

    2017 905.3 21.0 90 350.3 8.1 12.9 555 12.9

    2018 884.3 20.5 90 239.3 5.6 15.0 645 15.0

    2019 863.7 20.0 35 128.7 3.0 17.1 735 17.1

    2020 843.7 19.6 35 73.7 1.7 17.9 770 17.9

    2021 824.1 19.1 0 19.1 0.4 18.7 805 18.7

    2022 805.0 213 805 0.0 105.3 107.6 805 107.6

    Fatalities/per/1000 23.2 Training/Centers 23.2 Community 23.2

    No/Discharge/ Emptying/Training/Centers Waiver/Placements

    Table&4.&Baseline&with&Discharges&to&Transition&Waivers&in&the&Community

    Facility(((((((((

    Savings*

    Tranistion(

    Waivers**

    GF#Portion#of#Rate#= $110,899 $52,000

    Year TC#Waivers All#Waivers Costs Costs

    2012 60 0 $0 $0

    2013 160 60 $6,653,944 $3,120,000

    2014 160 220 $24,397,795 $11,440,000

    2015 90 380 $42,141,646 $19,760,000

    2016 85 470 $52,122,563 $24,440,000

    2017 90 555 $61,548,984 $28,860,0002018 90 645 $71,529,900 $33,540,000

    2019 35 735 $81,510,816 $38,220,000

    2020 35 770 $85,392,283 $40,040,000

    2021 0 805 $89,273,751 $41,860,000

    Total 805 4640 $514,571,682 $241,280,000

    MidEYear#Correction 403 $44,636,875 $20,930,000

    Corrected#Total 5043 $559,208,558 $262,210,000

    HHR#Budget#Item $573,800,000 $278,400,000

    Difference#to#HHR#Budget ($14,591,442) ($16,190,000)

    Percent#Difference#= E3% E6%

    *#GF#cost#is#a#0.5134#fraction#of#$216,000#Training#Center#rate#given#in#

    ####HHR#Senate#Finance#briefing#on#January#31,#2012.

    **DBHDS#adopted#current#total#cost#of#waivers#for#those#leaving#

    #####Training#Centers#of#$104,000#per#year#as#their#planning#baseline.##

    ####General#Funds#pay#half#of#each#Waiver.

    HHR(Budget(Item

    Table(5.(((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((((

    HHR(Budget(General(Fund(Items:(Facility(Savings(and(Transition(Waivers((((((

    and(HHR(Budget(Anticipated(Net(Savings(from(Training(Center(Closures

    $295,400,000

    HHR#Budget#Net#savings#=#[Facility#Savings]#E#[Trainsition#Waivers]

    Fromthisanalysisitisobviousthatthenet$295.4millionthatHHRanticipatestogainbyclosingTrainingCenterresultsfromthedifferenceintheTrainingCenter

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    rateperpersonandtheTransitionWaiverrate.SectionBbelowwillanalyzethisanticipateddifferencefromseveralperspectives.

    3.BaselineCostsforCommunityWaiversandFamilySupports

    TherearethreeseparatecomponentstoHHRBudgetitemCommunityWaiversand

    Supports:IDwaivers,DDwaivers,andFamilySupports.Eachhasadifferentperpersonrate(GFPortionofRate)andscheduleofnewslots(New)intheSettlementAgreement.

    GF#Portion#of#Rate#= $31,855 GF#Portion#of#Rate#= $13,353 GF#Portion#of#Rate#= $3,000

    NewPerson######

    YearsCosts New

    Person######

    YearsCosts New

    Person######

    YearsCosts

    2012 275 275 $8,760,244 150 150 $2,002,965 0 0 $0

    2013 225 500 $15,927,717 25 175 $2,336,792 700 700 $2,100,000

    2014 225 725 $23,095,189 25 200 $2,670,620 1000 1700 $5,100,000

    2015 250 975 $31,059,048 25 225 $3,004,447 1000 2700 $8,100,000

    2016 275 1250 $39,819,292 25 250 $3,338,275 1000 3700 $11,100,0002017 300 1550 $49,375,922 25 275 $3,672,102 1000 4700 $14,100,000

    2018 325 1875 $59,728,938 25 300 $4,005,930 1000 5700 $17,100,000

    2019 325 2200 $70,081,954 25 325 $4,339,757 1000 6700 $20,100,000

    2020 355 2555 $81,390,633 50 375 $5,007,412 1000 7700 $23,100,000

    2021 360 2915 $92,858,589 75 450 $6,008,895 1000 8700 $26,100,000

    Total 2915 14820 $472,097,526 450 2725 $36,387,196 8700 42300 $126,900,000

    MidDYear#Correction 1458 $46,429,294 225 $3,004,447 4350 $26,100,000

    Corrected#GF#Total 13363 $425,668,232 2500 $33,382,749 37950 $113,850,000

    I/#Waivers#Family#Supports $572,900,981

    HHR#Budget#Item $575,400,000

    ifference#= ($2,499,019) Percent#= D0.4%

    ID#Waivers# DD#Waivers Family#supports

    Table#6.#General#Fund#Costs#of#Providing#Community#Waivers#and#Family#Supports#on#Settlement#Agreement#Schedule:###################################

    Estimation#and#Comparison#with#the#HHR#Budget

    Year

    EstimatesforthesethreecommunitybenefitscombinedpredicttheHHRBudget

    within0.4percent.ThiscompletesthecomparisonwiththeHHRBudgetshowingthatHHRandDBHDSsourcesprovidesufficientinformationtoreconstructthelargestcontributions.

    B.NoFacilitySavingsfromTransitionCosts

    IftheTransitionWaiverratesandotherassociatedgovernmentcostsequalorexceedtheTrainingCenterrates,thendischargingaresidentfromaTrainingCentertothecommunitywouldhavenoeconomicbenefit.ThereisampleevidencethattransitioncostswouldinfactequalorexceedTrainingCenterplacementcostsifthe

    qualityofcommunitysupportswerecomparable.Butthereisahighriskofsavingcostsbyofferingmuchinferiorsupportsincommunityplacements.Thisriskmightexplainthegreatermortalityratesobservedinthecommunityforthosewithcomparablelevelsofdisability.

    1.NoSavingsforTransitionwithComparableSupports

    Asbestthisanalysiscoulddiscern,theHHR/DBHDSemploysthemostoptimisticannualwaiverratesfortheirestimateofcommunitycostsandpessimisticratestoestimateTrainingCentercosts.MorerealisticexpectationswouldbethatTransition

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    WaiverswouldcostasmuchasTrainingCenterplacements,onneteliminatinganysavingsfromtransitioningresidents.

    a.CommunityCostsWillBeHigherthantheHHRBudgetAssumed

    AhostofreasonsindicatethatTransitionWaiversarelikelytocostasmuchas

    TrainingCenterplacements. TheHHRplannersmistakenlyusedcurrentwaivercostof$104,000for

    dischargingaresidentfromaTrainingCenterasrepresentativeofthewaivercostforallfuturedischarges.6Todate,thoseabletofindcommunityplacementswithinthecurrentwaiverlimitationssystematicallyrepresentapopulationwithlessinvolvedconditions.Forexample,manyresidentsofTrainingCentersaretherebecausetheyfoundrefugeafterfailingtobesuccessfullysupportedinthecommunityasaresultofhealthorbehavioralissues.

    ThecurrentwaiverisinadequateforthoseinTrainingCenterswiththemoreinvolvedconditions.AsearlyasOctober17,2007,DBHDSsubmittedareporttotheGovernorlistingthedeficienciesofthecurrentWaiver.7ThesummaryhasalreadyquotedDBHDSfromtheItem314E.report,NorthernVirginiaTrainingCenterDiversionPilot,dated2010expressingtheinadequacyofcurrentwaivers.Morerecently,SecretaryHazelsApril17,2012,lettertoMr.MartinNohe,ChairmanoftheNorthernVirginiaRegionalCommission,stated,IwanttoassureyouthattheGovernorandIarecommittedtorestructuringtheMedicaidwaiverprogramsthatcurrentlyserveindividualswithintellectualanddevelopmentaldisabilities.TwoofthesesourcespredatedtheHHRBudgetBriefingtoSenateFinanceonJanuary31,2012,thatmadethegeneralassumption,Medicaidwaiverstructureandproviderratesdonotchange.

    TheHHSBudgetbriefingalsoassumedacaponcommunityservicecostsof$138,000perpersonperyear.InclusionofthisfigureimplicitlyrecognizesthatsomepeoplemovingfromtheTrainingCenterswillrequireanICFlevelofcare,whichispermissibleundertheSettlementAgreement.Later,aDBHDSbriefingandanotherreportverifiedthatthiscostrepresentsa2010averageforexistingcommunityICFs.8SincemanyofcommunityICFswillnotacceptTCresidentswithcomplexconditions,forexample,thosewhoarenotmobile,thiscostcapisunreasonablylow.

    Recentacademicanalysiscitesperpersoncostsas$251,000forcommunityICFswith15orfewerpersonsinVirginia,andanaverageof$217,000forcommunityICFsofallsizes.9

    6Slide4ofSecretaryHazelsbriefing,UpdateonVirginiasSettlementAgreementwiththeU.S.DepartmentofJustice,totheJointCommissiononHealthCare,September18,2012.7PlanforEliminationofWaitingListunderMedicaid:ID&IndividualFamilyDDSupportsWaivers,OfficeoftheGovernor,October1,2009.8Alsoonslide4ofSecretaryHazelsSeptember2012briefingandVirginiaBoardforPeoplewithDisabilities,AssessmentoftheDisabilityServicesSysteminVirginia,June2011.9Braddock,Hemp,RizzoloHaffer,Tanis,andWu.TheStateoftheStatesinDevelopmentalDisabilities2011,Dept.ofPsychiatryandColemanInstituteforCognitiveDisabilities,UniversityofColorado,2011.

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    Peer-reviewedacademicresearchshowsthereisnodiscernablesavingsfromtransferringTrainingCenterresidentstocommunityplacements.10Walshetal.pointoutthatmanycostsareshiftedtootherGeneralFundorlocalbudgetsandthereforehiddenfromthesimplecomparisonofwaivertoTrainingCenterplacement.

    PrivatevendorssuchasResourcesforIndependenceofVirginia(RIVA)estimateitwouldrequire$600to$650perday($219,000to$237,250peryear)tosupportmanythatliveinNorthernVirginiaTrainingCenteriftheymovedtothecommunity.

    b.TrainingCentersCostsWillBeLowerthantheHHRBudgetAssumed

    TworeasonssuggesttheHHRBudgetbaselinecostsforTrainingCenterplacementsareinflated.

    WhiletheHHRBudgetbriefingtoldSenateFinancetheaveragecostofaTrainingCenterplacementwas$216,000perpersonperyear,aDBHDSbriefing

    toSenateEducationandHealthCommittee1yearearliergavetheaveragecostas$181,000,whilethe$216,000figurewasjustforNVTC.11TheDepartmentofJusticeusedothersourcestociteastateaverageof$195,000thatcorrespondsintimewiththe$138,000figurequotedbyHHRBudgetbriefingforacaponcommunitycosts.12Adoptingthe2010annualTrainingCenterrateof$181,000peryear,tobeconsistentwiththeotherratesintheHHRBudget,wouldreducetheFacilitySavingsby$161.0million,henceincreasingtheHHRestimateofnewgeneralfundingby47percent.

    DBHDShasnotconsideredorimplementedoptionsforreducingthecostsofoperatingTrainingCenters.Forexample,DBHDSdidnotevencommentontheNorthernVirginiaRegionalPlanworkedoutbyabroadcoalitionofcommunity

    andTrainingCenterstaffandparentstosavemoneywhilepreservingthequalityofsupports.13 TheratesatNVTCareartificiallyhighbecausetheyinclude11newdischarge

    officerpositionstobepaidbytaking$700,000fromtheNVTCbudget,non-essentialpositionsthatprovidenocaretoresidents.Similarpositionsatsomeothertrainingcentersalsoartificiallyincreasecentercosts.

    10KevinK.Walsh,TheodoreA.Kastner,andReginaGentleskGreen,MentalRetardation ,Vol.41,No.2:103-122(April2003).11James,W.Stewart,MajorIssuesFacingtheCommonwealthsBehavioralHealthandDevelopmentalServicesSystem,apresentationtotheJointMeetingoftheSenateEducation&HealthCommitteeandtheHouseHealth,Welfare&InstitutionsCommitteeVirginiaGeneralAssembly,January2011.12AssessmentofDisabilityServicesinVirginia,VirginiaBoardforPeoplewithDisabilities,June2011.13RecommendationsforservicedeliverywithinHPRRegionIItoenhanceservicesforindividualswithintellectualdisabilitiesthroughcollaboration,NVTC,CSBs,andothers,November19,2010.

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    2.SavingsfromReducedSupports

    Unfortunately,thecostsoftransitioningpeoplefromTrainingCenterstocommunityWaiverscouldalsobesavedbyrestrictingorlimitingaccesstoessentialservices.Thesesavingsalmostcertainlywouldleadtothehighermortalityrates.

    a.ReductioninServicesThereislittlelatitudeforreducingNVTCcostswithoutreducingprofessionalanddirectstaffsupports.Forexample,personnelcostsaccountfor83.8percentoftheNVTCbudget,andanother8.9percentgoestowardvocationalplacements,food,medical,andothersupplies;seeTable7below.Atleast90percentofstaffcostgoestowardsupportstoresidentssinceprofessionalstaffwagesaremuchgreaterthansupportstaff;seeTable8below.Togetherabout84percentofallNVTCcostsareessentialtosupportingresidentservices.Theremainingoverheadforasinglefacilitycannotbeexcessiverelativetothemanagementofmanysmall,dispersedcommunityresidentialandsupportsites.TheprofileofcostsattheotherTrainingCentersislikelysimilar.

    Transportation costs associated with community supports should more thanoffsettheunavoidableoverheadcostsofrunningaTrainingCentercampus.InNorth Carolina, their START crisis management program similar to the oneVirginiaisimplementingfindsstatewidethat24percentofcoordinatorstimeisspentintravel.14Time isspent coveringthe longdistances inruralareasandfightingtrafficcongestioninurbanareas.Forprofessionalssuchasnurses,whowouldneed to travel to clients, community placementsmust also absorb thisoverhead cost. Generalizing this specific finding to all other professionalservicesquantifies theobvious factthataccess to services involvessignificanttraveltime,eitherbytheprofessionaloradriverandattendantwiththeclient.

    b.ReasonstoExpectHigherMortalityintheCommunity

    ExperiencesacrossthecountryandinVirginiaunderscorethehigherrisksofmortalityinthecommunityandprovidesomeinsightintothereasonswhy.CommonsenseandfindingsfromthestudyofhumanbehaviorrevealthechallengesthatasystemofcommunitysupportsfaceincomparisontothenaturalprotectionsofferedbyTrainingCenterenvironments.

    NationalNewsReports:InvestigativenewspaperarticlesinWashington,D.C.byKatherineBoo,1999,andinNewYorkbyHakimandBuettner,2011,whofound,morethan1,200(deathsingrouphomes)inthepastdecadehavebeenattributedtoeitherunnaturalorunknowncauses,aswellasmassiveabuse,

    neglect,anddeathsofpeoplewithIDlivingingrouphomesinthoseareas.InNewYork,itrequiredagut-wrenchingnewsarticletobringthesetravestiestothepublicsattention.Thisillustratesthepoliticaldilemmafacedbyagencieschargedwithprotectingthemostvulnerableamongus:theymustaggressively

    14NorthCarolinaSystematic,Therapeutic,Assessment,RespiteandTreatmentprogram(NCSTART)AnnualReport,January2010June2011,publishedbytheNCSTARTCentral,EastandWestTeams,October2011.

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    investigatethemselvestomaintainreasonablelevelsofprotectionfromabuseandneglect.

    Item Percent

    Personnel 83.8%

    Contracting*and*Information*Technology 3.8%

    Off*Campus*Vocational*Placements 4.2%

    Food,*Medical*and*Other*Supplies 4.7%

    Insurance 1.0%

    Utilities*and*Equipment*Rentals 1.8%

    Life*and*Safety*Code*Costs 0.4%

    Equipment*Purchases 0.4%

    Total 100.1%

    Total*NVTC*buget*is*$36.4*million.

    Table7.NVTCBudgetfor2011

    Personnel(Category Number Percent

    Degreed(/(Licensed(Professionals 76 16%

    Direct(Support(Professionals 266 55%

    Administration/Management(Personnel 63 13%

    Support(Personnel(housekeeping,(maintenance,(dining,(security) 82 17%

    Total 487 100%

    Table&8.&Staffing&at&Northern&Virginia&Training&Center&as&of&December&2011

    VirginiaOversight:In2011,Mr.TugglewasscaldedbyaccidentandlaterdiedasaresultofhisburnsbecausethegrouphomemanagerwasnotwillingtosendMr.Tuggletothehospital,presumablytocoveruptheaccidentalharm.Thisexampleillustrateswhyself-reportisuntrustworthyasaprimarybasisforoversightandunderscoreswhatcommonsensewouldsuggest.15

    TransitionRisks:Acourt-orderedclosureoftheBeatriceStateDevelopmentalCenterinNebraskaledto12deathsin25monthsamongthe47infragilehealthwhoweredischarged.Thismortalityrateis20timesthatinthepreviousyearatBeatriceand10timesthatinVirginiasTrainingCenters.16

    Thedispersionandsmallsizeofcommunityresidentialunitscreatesstructuralbarrierstoprovidinganintensive,responsive,andsafesystemofsupports.

    Dispersionofthosereceivingservicesprecludestheeasymonitoringfromfrequentshortvisitsbyprofessionalstaff,andthetimedelaysoftravelby

    15PressreleasefromAttorneyGeneralCuccinelli,II,filedMay25,2012,Cuccinelliannouncesguiltyverdictofgrouphomeownerresponsibleforabuse,neglect,anddeathofintellectuallydisabledvictim.16Dr.TedKastner,privatecommunication.

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    professionalsleavedirectcarestaffontheirowntosolveproblemsorhavingtorelyontelecommunicationlinks,bothofwhichposeabarriertoaccessingrealhelp.

    Traveldelaysandoverwhelmedon-sitestaffwithoutbackupexacerbaterisksinlifethreateningsituationsifmultipleemergenciesoccuratonce.

    Implementingeffectiveoversightinthecommunityisvirtuallyimpossiblesincemonitoringreliesprimarilyonself-reportbyproviders.Ofcourse,someproviderswoulddiligentlyreportproblemsandofferexceptionalservices,buttheprovidersorstaffposingthegreatestriskstoresidentscanalsobeexpectedtoavoidcandidreporting.TheaccidentaldeathofMr.Tuggleillustratesthisobviousdilemmaforthoseinoversight.Morefrequentunannouncedinspectionswouldhelp,buttheseareunlikelytodeterabuse,neglect,oraccidentsashoped.17Thebestprotectionfromabuse,neglect,oraccidentishavingmorethanonestaffpersononsiteatalltimestoobserveaninfractionorprovidebackupifoneresidenthasanemergency.TrainingCentersandsomelargercommunityfacilitiesmeetthiscondition,but

    smallercommunityplacementsdonot.

    c.HigherMortalityintheCommunity

    Experiencewithcommunityservicesandpeer-reviewedscientificresearchshowthattherearehighermortalityratesinthecommunityforthosewiththelevelsofdisabilitytypicalofmostoftodaysresidentsofTrainingCenters.ModelingprovidesameansofquantifyingthisfortheHHRplan.Themostsignificantimpactofhighermortalityinthecommunityisanexpectednet74morefatalitiesthanifcurrentresidentswerepermittedtoremaininTrainingCenters,fully35percentmore.

    Strauss,Kastner,andShavelleconductedthelargestacademicstudycomparingmortalityinstateoperatedICFswiththefullspectrumofcommunityplacements.18Theyemployedappropriatestatisticalmethodsandanalyzed131,152person-yearsofdata.Theystratifiedtheircomparisonaccordingtocomparabledegreesofdisabilityalongtwoscales:mobilityandself-careskills.Only10percentofthoseinthecommunityhadsignificantdisabilitiesweremorethanhalfwayuponafour-categoryscaleoneitherofthetwodisabilityscales.Fully51percentofstateICFresidentsweremorethanhalfwayupononeortheotherdisabilityscale.Straussetal.concludedthatifthestateICFresidentshadbeenlivinginthecommunitytheywouldhavea72percenthighermortalityratethanintheirpresentinstitutionalplacement.

    17Deterrencedoesnottakeeffectuntilthelikelihoodofbeingcaughtrisesaboveadeterrencethresholdthatdependsupontheseverityofthepenalty.Conductingtheresearchtofindthethresholdisdifficult,butfromfisheriesviolationsbyscofflaws,monitoringwouldhavetoapproachafewpercentofallon-the-jobtimehardlypracticalwithperiodicvisits.RefertoAnthony,ACalibratedModelofthePsychologyofDeterrence,UnitedNations,BulletinonNarcotics,vol.LVI,Nos.1and2,2004.18Strauss,Kastner,andShavelle.MortalityofAdultswithDDinCaliforniaInstitutionsand

    CommunityCare19851994,MentalRetardation,October1998.

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    AlthoughthestudywasconductedinCaliforniaover17yearsago,subsequentstudiesofmoremodestscalealsoachievingalevelofstatisticalsignificancehaveconsistentlyfoundanelevatedrateofmortalityinthecommunity.19Supportpracticeshaveprobablyimprovedsincethis1998study,butthelevelofdisabilityofthoseinTrainingCentershasalsoincreasedasthosewhowerebettersuitedfor

    communityplacementshaveleft.Risksofmortalitywentfrom16.1per1000forthestate-runICFsinCaliforniaduringtheperiod1985to1994to30per1000in2010.InVirginia,mortalityinTrainingCentersarehighbutsignificantlylowerthaninCalifornia,22to20per1000forin2009and2010respectively.SinceintheCaliforniastudyfoundthatthosewiththenoself-careskillormobilityhad2.5timeshighermortalityinthecommunity,itisreasonabletoadoptthe72percenthighermortalityrateforcommunityplacementsinVirginia.ThisratedifferentialfacilitatesmodelingthemortalityimplicationsofclosingTrainingCentersinVirginiaoverthe10yearsoftheSettlementAgreement.

    Table9showstheimpactofa72percenthighermortalityrateinthecommunityon

    theexpectednumberofdeathsofformerTrainingCenterresidentsafterdischarge.PalepurplebackgroundcoloremphasizestheearlyemptyingoftheTrainingCentersby2021leavingtheremaining35TransitionWaiverslotstobefilledbypeoplefromthewaitinglist.PaleredhighlightsthetotalnumberoffatalitieswithoutdischargesfromTrainingCenters(213)andwithdischargesaccordingtotheSettlementAgreementschedule(287).Thedifferenceof74excessdeathsis35percentmorethanifTrainingCenterresidentshadremainedinplace.

    Fromthisanalysis,manyparents,guardians,andAuthorizedRepresentativesrealisticallyunderstandthatamovefromaTrainingCenterplacementtothecommunityislife-threateningdecision.TheDBHDShasnotconductedandpublishedscientificallysoundanalysistoassessthemortalityimpactsoftheirplansnorhavetheymadepublicanyplanstodosoduringtheimplementationoftheSettlementAgreement.WithoutscientificallyvalidresearchmethodsappliedtothemortalityexperiencedamongthisvulnerablepopulationofpeoplewithID/DD,smallnumbersofneedlessdeathsgounnoticed,andtherearenosubstantivestandardsformaintainingqualitysupports.TheDBHDScoulddothefollowingtomaintainstandardsandvisibilityoftheneedsofthisvulnerablepopulation:

    19Subsequentresearchhasfoundhighermortalityinthecommunityaccordingtoprivatecommunicationwithoneoftheauthors,Dr.Kastner.

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    Year Census FatalitiesNew/

    WaiversCensus Fatalities

    Old/

    WaiversCensus Fatalities Census Fatalities

    2012 1018 23.6 60 1018 23.6 0 0 0.0 1018 23.6

    2013 994.4 23.1 160 934.4 21.7 2.4 60 2.4 994.4 24.1

    2014 971.3 22.5 160 750.3 17.4 8.8 220 8.8 970.3 26.2

    2015 948.8 22.0 90 564.1 13.1 15.2 380 15.2 944.1 28.3

    2016 926.8 21.5 85 445.9 10.3 18.8 470 18.8 915.9 29.1

    2017 905.3 21.0 90 331.8 7.7 22.1 555 22.1 886.8 29.8

    2018 884.3 20.5 90 211.9 4.9 25.7 645 25.7 856.9 30.7

    2019 863.7 20.0 35 91.3 2.1 29.3 735 29.3 826.3 31.4

    2020 843.7 19.6 35 24.8 0.6 30.7 770 30.7 794.8 31.3

    2021 824.1 19.1 0 0.0 0.0 32.1 805 32.1 805.0 32.1

    2022 805.0 213 805 0.0 101.4 185.2 805 185.2 805.0 287

    Fatalities1000 23.2 Fatalit ies1000 23.2 Fatalities1000 39.9

    Ratio/of/mortality/(Waiver/slots//Training/Centers)/= 1.72

    Excess/mortality/=/(287/M/213)/=/ 74

    Color/Codes:

    Table&9.&Impact&of&the&Scheduled&Transition&from&Training&Centers&to&Waiver&Placements&on&Expected&Mortality

    Training/Centers Waiver/Placements Grand/Total/CheckNo/Discharge

    Impact/on/schedule:/Early/emptying Impact/on/mortality:/Excess/Fatalities

    Implementscientificallyvalidatedreviewsofmortality:Analyzemortalityaccordingtorecognizedriskfactorsandsearchforotherriskfactors.Publishthesefindingsinpeer-reviewedjournalstoestablishtheindependenceofthereviewsfrompoliticaloradministrativepressures.

    Providetimetorecognizeexcessfatalitiesduringthetransition:UsingFishersexactmethodtocomputethechanceoftheexcessnumberoffatalitieshappeningbychance,thisanalysisfoundthatitwouldtake2yearsbeforethatchancewouldexceedthescientificallyacceptedstandardof1:20odds.ThisslowingdowntherateofdischargesfromTrainingCenterswouldprovidetimetoanalyzecommunityperformance.

    Providepublicaccountabilitytoassureparents,guardians,andAuthorizedRepresentatives:PubliclyreleasetheresultsoftheseanalysesandstatisticalfindingsandothermeasuresoftheeffectivenessofthesupportsforthosewithID/DD.MostpeoplewithID/DDwilloutlivetheirparents,andasystemofpublicaccountabilityispartialassurancethattheneedsofthesemostvulnerablecitizens,whocannotadvocateforthemselves,willbemet.

    3.TabularSummaryofRealBudgetSavings

    Table10consolidatestheHHRBudgetitemsscatteredthroughouttheHHRBudgetbriefingintoasinglelist,giveninthefirstcolumn.TheRealisticBaselinecolumneliminatesthegapbetweenTrainingCenterandcommunitywaiverrates,hence

    eliminatingtheartificial$295.4millionthatDBHDSanticipates.TheTrainingCentersRemainOpencolumnshowsthesimplifiedcaseofleavingall2012residentsinplace,whichyieldsareal$89.2millionsavingsrelativetotherealisticbaseline.IfasmallpercentageofcurrentTrainingCenterresidentschoosecommunityplacementsandafewstaffhaverelocated,itshouldnotsubstantiallyaffectthisrealsavings.

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    Transition)Waiver)Slots!for!TC $278.4 $573.8 $0.0

    WTA/Other!TC!employee!transition $89.2 $89.2 $0.0

    Facility)Savings ($573.8) ($573.8) $0.0

    Community)Waivers)and)Supports $575.4 $575.4 $575.4

    Crisis)Programs* $120.0 $120.0 $120.0

    Waiver)Administration* $26.1 $26.1 $26.1

    Quality)Management* $25.1 $25.1 $25.1

    FY)2012)Trust)Fund)Deposit** ($30.0) ($30.0) ($30.0)

    FY)2012)Items)in)Base** ($169.8) ($169.8) ($169.8)

    $340.6 $636.0 $546.8

    Difference!to!HHR!Briefing!baseline $0.0 $295.4 $206.2

    Percentage!excess!over!HHR!Baseline 87% 61%

    Difference!to!realistic!baseline $0.0 ($89.2)

    Percentage!excess!over!HHR!Baseline J26%

    Color!Key:

    !Trace!Requires!Modeling !Changed!from!Baseline

    !Baseline!Reference !More!Realistic!Baseline !Savings!with!Training!Centers

    *!!Required!by!the!Settlement!Agreement!and!not!analyzed!further!here.

    **!Already!committed!General!Funds!and!not!analyzed!further!here

    The!net!total!for!all!items!designated!by!(*)!and!(**)!is!$28.6!million!of!credit!toward!other!costs.

    Table)10.)Cost)Savings)by)Leaving)Training)Centers)Open))))))))))))))))))))))))))))))))))))))))))))

    When)Compared)with)Realistic)Baseline)Costs

    Total)New)General)Funds

    HHR)Budget)ItemsHHR)Briefing)

    Baseline

    Realistic)

    Baseline

    Training)Centers)

    Remain)Open

    C.TrainingCenterSizeandLocation

    Parents,siblings,family,guardians,andotherAuthorizedRepresentativesgenerallywishtohavetheirlovedonesnearby.Furthermore,partiesconcernedwiththewelfareofTrainingCenterresidentshavenotbeenprovidedanyeconomicorsubstantivereasonswithsupportingevidencefortheurgentscheduleofTrainingCenterclosingsorclosingsratherthandownsizing.

    1.ReasonstoDelayClosures

    Countertotheirplannersassumptions,DBHDSnowknowsthatthecommunitywillnotbereadytoacceptthosewiththemostchallengingconditionsbeforethe

    scheduledclosuresofSVTCin2014andNVTCin2015.Nonetheless,DBHDSclaimsitmustshowprogressbyadheringtothescheduledclosuredates.Ifso,thiswouldforceparentsandAuthorizedRepresentativestochoosebetweenacceptinginadequatecommunityplacementsnearbyorwatchingtheirlovedonesbeingrelocatedtoaremoteTrainingCenterselsewhereinthestate.20TheDBHDS

    20ThesepointscameoutduringameetingbetweenNVTCParentsandAssociatesmeetingwithSecretaryHazelonNovember16,2012.

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    shouldeitherpresentcompellingsubstantivereasonsforclosingSVTCandNVTCbeforethecommunityisreadyordelaytheclosingsuntilthecommunityhasdemonstrateditisadequatelypreparedtoacceptthosetobedischarged.

    2.ReasonstoMaintainaSmallerTrainingCenterinEachRegion

    SurveysatCVTCandNVTCrevealthatover95percentofAuthorizedRepresentativesofcurrentTrainingCenterresidentswanttheirlovedonestoremainwheretheyare.DuringtherestructuringofSEVTC,asubstantialmajorityoftheAuthorizedRepresentativeselectedfortheirresidentstoremaininthenewrainingCenterplacements.TheprospectofalargefractionofcurrentTrainingCenterresidentsnotchoosingtotransitionisalsocountertotheassumptionsoftheDBHDSplanners.

    IfalargefractionofcurrentTrainingCenterresidentsweretoremaininTrainingCenters,thisanalysiscannotidentifyanysubstantiveadvantagestoconsolidatingofthoseresidentsintofewercentersratherthansustainingsmallercentersineachregionofthestate.

    HealthandHumanResourceshasalreadyarguedthatquitesmallICF/MRsarepracticaltoconsider.Bythislogic,itshouldsupportthepreservationofsomewhatdownsizedTrainingCentersineachRegionofVirginia.Slide3oftheHHRBudgetbriefingstatesthat,Theannualstatewideaveragecommunitycostis$138,000perpersonforthosewithcomparablecareneedsasTrainingCenterresidents,andslide4ofHHRsrecentupdatebriefingacknowledgesthattheyarereferringtocommunityIntermediateCareFacilities.21AlthoughthisanalysispointedoutreasonsthatcommunityICFratesareunlikelytocoverTrainingCenterresidentneeds,DBHDSnonethelessmadetheargumentthatsmallerICF/MRsarepractical.InVirginia,thecommunityICF/MRsisgenerallysmall,averaging10.7bedseach.22

    ThebestinterestsofTrainingCenterresidentsandtheirfamilyandfriendsarguesthattheresidentsshouldbesupportedinnearbylocations,irrespectiveoflocallaborratesandlandvalues.Iftransitionedtothecommunity,thoseplacementswouldcostmoresimplybecauselandvaluesandwagesarehigherinmoreprosperousregions.ResidentsofmoreexpensiveregionscontributetheirfairsharetothewealthoftheCommonwealthandshouldbeabletoenjoytheirfairshareofstateservices.

    21SecretaryWilliamHazel,HealthandHumanServicesPresentationtoSenateFinance,January31,2012,andUpdateonVirginiasSettlementAgreementwiththeU.S.DepartmentofJustice,briefingtotheJointCommissiononHealthCare,September18,201222VirginiaBoardforPeoplewithDisabilities,AssessmentoftheDisabilityServicesSysteminVirginia,page262,June2011.

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    D.RestoringtheRateofNewWaiverCreation

    AdvocatesofexpandingcommunitysupportsarelikelytopressuretheGeneralAssemblytorestoretheincreaseinnewWaiversthattheyreceivedinrecentyears.

    1.PressuresforMoreNewWaiversThenumberofnewcommunityIDWaiversrequiredbytheSettlementAgreementaverages291peryear,manyfewerthanthe360peryearaveragethatadvocateshavebeenabletoobtainfrom2003thru2010;seeTable11.23Furthermore,AnActrelatingtoeliminationofwaitinglistsfortheMentalRetardationMedicaidWaiverandIndividualandFamilyDevelopmentalDisabilitiesandSupportMedicaidWaiverwithin10years,approvedinMarch,2009,specifiesfundingatleast400newwaiverseachyear.24TheGovernorsreportcitedaboveshowsthatitwouldrequireasmanyas1,100newwaiversperyeartoeliminatethewaitinglistin10years.Approximatelyhalfthat,550peryear,wouldberequiredtoeliminatejusttheurgentwaitinglist.With5,932peopleonthewaitinglist,itsannualgrowthrate

    is699/5,932=12percentperyear.

    Year ID'slots DD'slots

    2003 150 0

    2004 175 0

    2005 860 105

    2006 0 0

    2007 303 65

    2008 468 100

    2009 710 15

    2010 210 15

    Average 360 38

    Table&11.&Established&Rate&for&New&&&&&&&&&&&&&&&&&&&&&&&&&&&

    ID&and&DD&Waivers&in&Virginia

    2.CumulativeCostsofIDWaivers

    Usingthesamemethodsasbefore,Table12showsthecumulativecostsofproviding360newIDwaiverseachyearor400newwaiversyearly.Table12showstheGeneralFundcostsforthesmaller2010baselineIDwaiverrates.Thefollowingpointsputthisresultinperspective:

    360newIDwaiversperyearwouldincreasetheCommunityWaiversandSupportsitemoftheHHRBudgetby$145.2million,or25percent.

    400newIDwaiversperyearwouldincreasetheHHRBudgetitemby$208.9million,or36percent.

    23PlanfortheEliminationofWaitingListsunderMedicaid:IntellectualDisabilities&IndividualandFamilyDevelopmentalDisabilitiesSupportsWaivers,OfficeoftheGovernor,October1,2009.242009ActsofAssemblyChapter228/Chapter303.

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    360newwaiversperyearwouldincreasetheHHRBudgetnewGeneralFundsby43percent,and400newwaiversperyearwouldincreaseitby61percent.

    IfalloftheTransitionWaiversbecamenewIDwaiversforthecommunity,over10yearsthiswouldbe2,915+805=3,720,whichisonlyslightlylargerthan360x1,000=3,600restoringthehistoricalpaceofnewIDwaivercreation.

    GF#Portion#of#Rate#= $31,855 GF#Portion#of#Rate#= $31,855

    Year NewPerson######

    YearsCosts New

    Person######

    YearsCosts

    2012 360 360 $11,467,956 400 400 $12,742,173

    2013 360 720 $22,935,912 400 800 $25,484,347

    2014 360 1080 $34,403,868 400 1200 $38,226,520

    2015 360 1440 $45,871,824 400 1600 $50,968,6942016 360 1800 $57,339,781 400 2000 $63,710,867

    2017 360 2160 $68,807,737 400 2400 $76,453,041

    2018 360 2520 $80,275,693 400 2800 $89,195,214

    2019 360 2880 $91,743,649 400 3200 $101,937,388

    2020 360 3240 $103,211,605 400 3600 $114,679,561

    2021 360 3600 $114,679,561 400 4000 $127,421,734

    Total 3600 19800 $630,737,586 4000 22000 $700,819,540

    MidDYear#Correction 1800 $57,339,781 2000 $63,710,867

    Corrected#GF#Total 18000 $573,397,805 20000 $637,108,672

    I/#Waivers#Family#Supports $720,630,554 $784,341,421ifference#= $145,230,554 ifference#= $208,941,421

    Percent#ifference#= 25% Percent#ifference#= 36%

    Typical(Number(2003((2010 Legislated(Promise

    Table(12.(General(Fund(Costs(of(Increasing(the(Number(of(New(ID(Waivers(per(Year

    E.UnderlyingBaselineforHHRBudget

    TheHHRBudgetrepresentsthemarginalchangefromabaselineofmaintainingindividualsnowonwaiversandnowinTrainingCenters,plusthecostofnewwaiverslotsincludedintheSettlementAgreementovertheperiodfromJanuary1,2012throughtheendofDecember2021.Thisunderlyingbaselineisverylargeand

    managingitsaggregatecostshasimplicationsforkeepingTrainingCentersopenornot.Specifically,thebaselinedominatestherenegotiationofthewaivertocovercurrentTrainingCenterresidentneeds,anditrevealsthepossiblevalueofTrainingCentersincostcontainment.

    1.SizeoftheUnderlyingBaseline

    Table13showsthehiddenbaselineofGeneralFundsaswellasthenewmoneyforsupportingtheprovisionsoftheSettlementAgreementbutwithoutTrainingCenter

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    closures.SinceTrainingCenterratesoftheHHRBudgetbaselinewerefor2012,theIDandDDwaivercostsemployedforTable13werealsobroughtuptothe2012levelsreportedintheHHRUpdatebriefing.Maintainingcurrentlyfundedwaiversfor10yearscosts10timesthecostofmaintainingallthoseonwaiversfor2012.Person-yearsforTrainingCenterresidentsdiminishwithmortalityassuminga

    therewouldbenonewadmissions.

    Withtheseassumptions,theunderlyingbaselineisapproximately$4.5billionandconsumes87percentofthetotalprojectedbudgetforsupportstothosewithID/DD.Atbest,HHRcouldexpecttosaveonly6percentthroughTrainingCenterclosures.

    WaiverrateshavefourtimesmoreimpactonthetotalbudgetthanTrainingCenterrates,evenwithTrainingCentersremainingopen.Thisisbecause80percentofthetotalcostsarefromwaivers,andtotalwaivercostsareproportionaltotheaveragewaiverrate.

    2.ImpactofWaiverCostInflation

    From2000to2010,IDwaivercostsinflatedatanaveragerateof8.1percentperyear.AlthoughIDwaiverinflationmighthaveleveledoffnow,itismorelikelythatwaiverchargeshavereachedtheircurrentlimitauthorizedbytheGeneralAssembly.RestructuringtheIDwaiverandincreasingsalarycapstocompetitivewagespromisestocontinuethe8.1percentgrowthrate.Thefollowingpointsshouldbeimportanttoplanners:

    8.1percentgrowthmorethandoublestheunderlyingrateinthe9years2012to2021.

    Accumulatedcostsincrease66percentfortheSettlementAgreementscheduleofnewIDwaivers,$339.5millionmorethanwithouttheinflation.

    AccumulatedcostsincreasetheunderlyingbaselineofIDwaiversof$3.3billionby$1.5billion,or46percent.

    TotalIDwaivercostsincreaseby$1.9billionor48percentovertheir$3.9billionbaselinewithoutinflation.

    ThesenumbersshowthattheimpactofpotentialinflationonjusttheIDwaiverdwarfstheothercostconsiderations.Communitycostsoftheunderlyingbaselinewouldlikelydominatedeliberationsovertheexpansionofwaiverservices,subordinatingTrainingCenterresidentneeds.ThissubordinationislikelyalthoughtheneedsofmostresidentstransitioningfromTrainingCentersintothecommunityhelpedinitiatetherenegotiationsincemostresidentsrequirerestructuringandexpandingIDwaivercoverage.Also,futurecost-containmentmeasuresmightwellplacecapsonservices.Costconstraintswouldfallmostheavilyonthosewiththegreatestneedsandmostvulnerability,includingthosewhohavetransitionedintothecommunity.

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    Number'in'

    2012

    PersonYears'

    for'10'Years

    Annual'Cost'to'

    General'Fund

    10Year''''''''''''''''''''

    GF'Costs

    Percent''''''''''''''''''''

    of'Costs

    ID'Underlying 8,621 86,210 $3,339,988,387 65%

    New'ID SA'Schedule 13,363 $517,696,263 10%

    DD'Underlying* 584 5,840 $93,909,600 2%

    New'DD SA'Schedule 2,500 $40,201,027 1%New'Family'

    SupportsSA'Schedule 37,950 $3,000 $113,850,000 2%

    Other'New'Funds'for'the'Settlement'Agreement ($28,600,000) 1%

    HHR'Underlying'Baseline'Costs $4,478,514,975 87%

    New'GF'for'Community'Waivers'and'Family'Supports $671,747,290 13%

    Leverage'of'Increased'Waiver'Rates $4,105,645,277 80%

    Leverage'of'Increased'Training'Center'Rates $1,044,616,989 20%

    Total'General'Funds $5,150,262,266 100%

    HHR'Budget'Net'"Savings"by'Closing'Training'Centers $295,400,000 6%

    Training'Center'and'ID'waiver'census:'Quarterly'Report'of'Office'Activities,'DBHDS,'for'Oct.Dec.'2011.''

    *DD'Waiver'census:'Virginia'Board'for'People'with'Disabilities'2011'Assessment'(2009'data).

    ID'Waiver'cost'of'$75,465:'HHR'briefing'to'Joint'commission'on'Health'Care,'September'18,'2012,

    '''entitled,'Update'on'Virginias'Settlement'Agreement'with'the'U.S.'Department'of'Justice

    *DD'Waiver'costs'of'$37,768:'Virginia'Board'for'People'with'Disabilities'2011'Assessment'(2009'data)

    Family'Supports'annual'cost'from'private'communications.

    Training'Center'annual'costs'of'$224,245:'HHR'Update'briefing,'September'2012

    Credit'of'$28.6'million'for'the'net'of'additional'cost'requirements

    $1,044,616,989 20%

    $38,742

    $16,080

    Training'''''''''

    Centers1,018 9,074 $115,124

    Table&13.&10+Year&Budget&for&HHR&Underlying&Baseline&and&New&Settlement&Agreement&Requirements&&&&&&&&&&&&&&&&&&&&&&&&&&

    3.ValueofTrainingCentersforCostContainment

    Thosewiththegreatestdisabilityorchallengingbehavioralissuesarethemostvulnerableandproblematic.Forthem,safetyandmedicalcareconsiderationsmustbeparamountinshapingtheirsystemofsupports.ThesewillalsobethemostexpensivefewinthepopulationofthosewithID/DD,andmanagingthecostsoftheircarehelpscontainoverallcosts.

    TrainingCentersofferanalternativemodelforprovidingsupportstothosewithID/DDamedicalmodelratherthanamanagedcaresupportsmodel.PreservationofasignificantTrainingCenterpopulationprovidesabaselineagainstwhichtomeasuretheperformanceofsupportsforthosewiththegreatestmortalityrisk.ComparisonswiththoseonIDwaiverforcostandoutcomescouldrevealopportunitiesforsavingsinthecommunitysystem.

    TrainingCentersofferanefficientmeansofprovidingprofessionalstaffsupportstoresidentsandareprobablylessexpensiveforthosewiththegreatestvulnerabilityandmostchallengingmedicalneedsorbehaviors.Asanexampleofaneconomyofscale,TrainingCentersefficientlyusenursingsupport.Asournationfacesanursingshortage,TrainingCenterscanoperatewitha30:1resident-to-nurseratiomadepossiblebyanintegratedteamapproachwithlicensedpracticalnursesfillinginlessdemandingroles.Inthecommunity,grouphomeswithonlyfourbeds,orevensomewhatlargercongregateunits,couldnotprovideon-sitenursingsupportinacostcompetitive

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    manner.Costeffectivenursingsupportwouldonlyavailablebyphone,withaboutanhourstraveldelay,orataTraining-Center-likecrisisstabilizationcenter.

    TrainingCentersareaplacetotrainstaffanddevelopbestpractices.Internshipsoftenleadtoprofessionalsadoptingcareersinprovidingservices

    andothersupportstothosewithID/DD.Opportunitiesforyoungprofessionalstoexperiencethechallengesandrewardsofprovidingcarehelpsrecruitthosewithcriticalskillsataffordablerates.

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    AttachmentI:

    QualificationsofRobertW.Anthony,Ph.D.Overall, Dr. Anthonys career was devoted to public service working for non-profitorganizations whose missions were to determine whether government programs were

    likely to accomplish their intended goals. In his career, Dr. Anthony has been expected toobjectively analyze the broad prospects of program effectiveness that call for a breadth of

    background that spans beyond the expertise of individuals managing or conductingspecific programs. Dr. Anthony received his Ph.D. in physics from the University of

    Michigan in 1971 and proceeded to apply his analytical skills to studying and forecastingthe unexpected and unintended impacts of technology on society in the applied policy

    field of Technology Assessment. Among other studies, Dr. Anthony analyzed the

    delivery of social services in rural areas through transportation and communicationtechnologies, public lack of acceptance of nuclear power and waste disposal options, andissues involving multiple stakeholders in the energy and materials sectors. Dr. Anthony

    consulted with the Congressional Office of Technology Assessment, testified beforeCongress, as well as worked on competitive research grants won from the National

    Science Foundation and other Federal agencies and commissions. From 1982 onward, Dr.Anthony primarily supported the Office of the Secretary of Defense in the oversight of

    operational testing of military systems. In these efforts, he evaluated the technological,psychological, and organizational aspects of performance. Key to this was identifying

    the critical operational issues, that is, what mattered most to accomplishing the mission.During this period, Dr. Anthony also analyzed counter drug operations and counter

    insurgency operations. This work led to an understanding of these clandestinedistribution and attack networks. In addition, he developed and calibrated a model of the

    psychology of deterrence with real operational data.