Fox Trial Finder Two Year Performance Report
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FOX TRIAL FINDER TWO YEAR PERFORMANCE REPORT ( U.S. DATA ) July 2011 – July 2013
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Fox Trial Finder was created by the Michael J. Fox Foundation to help increase the flow of willing participants — both people with Parkinson’s and control participants who do not have Parkinson’s — into the clinical trials that need them, accelerating the Parkinson’s drug development process. Clinical trials are a final and crucial step on the path to developing better treatments for Parkinson’s patients today. Around the world, between 40% and 70% of trials face delays because of a lack of volunteers. Fox Trial Finder will not only list ongoing PD clinical trials and research studies, but will match registrants to the trials that need them and are best-suited to their specific traits. Fox Trial Finder also has a secure and anonymous messaging system , making it much easier to find and act on suitable opportunities to get involved.
Transcript of Fox Trial Finder Two Year Performance Report
Fox Trial Finder TWo Year PerFormance rePorT(U.S. daTa)July 2011 – July 2013
20,598
29% 61%71% 39%
10,096 are in the United States
total registered volunteers
are controlvolunteers have Pd
are male are male
are female are female
The Michael J. Fox Foundation | Fox Trial Finder Performance Report 2
23% 77%
Fox Trial Finder regiSTered VolUnTeerS
median age
48median age
64
59 3.6medianyears sincediagnosis
median age of diagnosis
The Michael J. Fox Foundation | Fox Trial Finder Performance Report 3
Fox Trial Finder regiSTered VolUnTeerSVolunteers who haVe pd
diagnoSiS
3%3%
no symptoms
symptoms onone side
symptoms onboth sides
disabled but ableto walk unassisted
wheelchair/bedridden
Pd ProgreSSion55% of PD Volunteers report experiencing symptoms on one side of the body; 32% on both sides.
Pd SYmPTomSSlowness, resting tremor, and sleep disturbances are the most commonly reported symptoms.
n=6,413
55%32%
60%
70%
50%
40%
30%
20%
10%
0%
Slo
Wn
eS
S
re
ST
ing
Tr
em
or
Sle
eP
diS
TU
rb
an
ce
S
Sm
all
Ha
nd
Wr
iTin
g
SH
UFF
led
ga
iT
7%
57%56%
48% 48%44%
n=12,729
29% 4.955% 1%
mean years onmedication
have haddeep brainStimulation
have hadanotherneurosurgery
are notmedicated
The Michael J. Fox Foundation | Fox Trial Finder Performance Report 4
Fox Trial Finder regiSTered VolUnTeerSVolunteers who haVe pd
medicaTion
medicaTion USe bY TYPe45% of PD Volunteers currently taking medication take Sinemet.
40% 50%30%20%10%0%
n=8,401
SinemeT
azilecT
PramiPexole
roPinirole
SYmmeTrel
45%
20%
15%
14%
10%
5The Michael J. Fox Foundation | Fox Trial Finder Performance Report
Pd Patientsmother
sibling
father
child
482/482355/182
679/92516/26
controls
Fox Trial Finder regiSTered VolUnTeerSfamily history of pd
The Michael J. Fox Foundation | Fox Trial Finder Performance Report 6
clinical TrialS on Fox Trial Finder
200 44.0%54.0%24.7%
548 ...trial teams in the US
trials recruiting in the US across...
of trials areconnected toa trial team
of trials areinterventional
of trials are recruiting controls
inTerVenTional/obSerVaTional54% of trials are interventional, 46% are observational
observational
phase 1
phase 2
phase 3
phase 4
n=200 46%
17%
12%
15%
5%
% oF TrialS bY STUdY FocUS (not mutually exclusive)
50%
40%
30%
20%
10%
0%
de
Pr
eS
Sio
n/
an
xie
TY
co
gn
iTiV
ed
eFi
ciT
S
51% 18% 12.5%
bradYKineSia(14%)
gaiT(13%)
TremorS(12%)
PoSTUral inSTabiliTY
(11%)
60%
mo
Tor
SY
mP
Tom
S
7The Michael J. Fox Foundation | Fox Trial Finder Performance Report
new York - northern new Jersey, nY/nJ 639/20
chicago norther Suburbs, il/Wi 393/20
los angeles - Western Suburbs, ca 227/20
boston Suburbs, ma 315/19
Washington, ne Suburbs, dc/md 100/18
Portland - Vancouver - Hillsboro, or/Wa 137/17
Philadelphia Western Suburbs, Pa 306/15
denver - aurora - broomfield, co 231/12
birmingham - Hoover, al 102/12
Tampa - St.Petersburg - clearwater, Fl 325/11
new York - long island, nY 95/11
Seattle Southern Suburbs, Wa 241/10
Houston - Sugar land - baytown, Tx 190/10
San Jose - Sunnyvale - Santa clara, ca 166/10
baltimore - Towson, md 113/10
cleveland - elyria - mentor, oH 198/9
atlanta - Sandy Springs - marietta, ga 182/9
Palm beach, Fl 174/9
St. louis, mo/il 128/9
Phoenix - mesa - glendale, az 251/8
richmond, Va 236/8
minneapolis - St. Paul - bloomington, mn/Wi 201/8
no. of volunteers with Pd
no. of trials recruiting
nashville - davidson - murfreesboro - Franklin, Tn 74/8
cincinnati - middletown, oH/KY/in 8
San diego - carlsbad - San marcos, ca 160/7
ann arbor, mi 148/7
oxnard - Thousand oaks - Ventura, ca 7
new Haven - milford, cT 206/6
gainesville, Fl 28/6
detroit ne Suburbs, mi 6
San Francisco Peninsula Suburbs, ca 265/5
los angeles Se Suburbs, ca 219/5
augusta - richmond county, ga/Sc 5
bradenton, Fl 5
Fairfax county, Va 176
dallas north Suburbs, Tx 150
San Francisco eastern Suburbs, ca 140
northern Jersey Suburbs, nJ 122
riverside - San bernardino - ontario, ca 114
austin-round rock - San marcos, Tx 110
Sacramento - arden - arcade-roseville, ca 108
Hartford - West Hartford - east Hartford, cT 85
orlando - Kissimmee - Sanford, Fl 85
new York north eastern Suburbs, nJ 84
clinical TrialS onFox Trial Finder30 top recruitment areas and corresponding Volunteer footprint
8The Michael J. Fox Foundation | Fox Trial Finder Performance Report
Web TraFFic and reFerralS To Fox Trial Finderhow do registrants learnabout fox trial finder?
from a friend, family member or support group
mJFF event, e-comm.website, or newsletter
from TV orprint media
from ahealthcareprovider
from anotherPd organization
39.09%
31.36%
25.74%
searchcommon search termsfox trial finder (1086), parkinson’s disease (456),parkinson’s research (44), therapy for parkinson’s (44), parkinson’s clinical trial (41), parkinson’s trials (35)
referralstop referral sites1. pdtrials.org2. facebook.com3. michaeljfox.org
direct
once online, HoW do PeoPle geT To FTF?How are web visitors finding us?
3.81% ad campaigns
55% 16%11% 7% 2%
